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Found 266 results
  1. Content Article
    We are seeing more and more people who have been devastated by the long-lasting impact of Covid-19. Long Covid is a relatively new condition which is still being studied and the need for more awareness and advocacy has never been greater. Scientists are carrying out large-scale clinical trials and researchers are on the hunt for new therapies in the hope that patients with Long Covid will finally see improvements in treatment and support for their symptoms.  In this Top picks blog, shared on International Long Covid Awareness Day, we highlight 11 recent research papers on Long Covid. 
  2. News Article
    Nearly 70 healthcare workers with Long Covid will take their fight to the High Court later to sue the NHS and other employers for compensation. The staff, from England and Wales, believe they first caught Covid at work during the pandemic and say they were not properly protected from the virus. Many of them say they are left with life-changing disabilities and are likely to lose income as a result. The Department of Health said "there are lessons to be learnt" from Covid. The group believe they were not provided with adequate personal protective equipment (PPE) at work, which includes eye protection, gloves, gowns and aprons. In particular, they say they should have had access to high-grade masks, which help block droplets in the air from patient's coughs and sneezes which can contain the Covid virus. But the masks they were given tended to be in line with national guidance. Rachel Hext, who is 36, has always insisted that she caught Covid in her job as a nurse in a small community hospital in Devon. "It's devastating. I live an existence rather than a life. It prevents me doing so much of what I want to do. And it's been four years." Her list of long Covid symptoms includes everything from brain fog and extreme fatigue to nerve damage, and deafness in one ear. Solicitor Kevin Digby, who represents more than 60 members of the group, describes their case as "very important". He says: "It's quite harrowing. These people really have been abandoned, and they are really struggling to fight to get anything. "Now, they can take it to court and hope that they can get some compensation for the injuries that they've suffered." Read full story Source: BBC News, 6 March 2024 Related reading on the hub: Healthcare workers with Long Covid: Group litigation – a blog from David Osborn The pandemic – questions around Government governance: a blog from David Osborn
  3. Content Article
    The South East London Long Covid programme has released 10 short animated films to help people with their recovery.  The films offer guidance, tools, and tips on how to help manage symptoms and reduce the risk of ongoing issues.
  4. Content Article
    In December 2022, a newly formed group called 'Long Covid Doctors for Action' (LCD4A) conducted a survey to establish the impact of Long Covid on doctors. When the British Medical Association published the results of the survey, the findings were both astonishing and saddening in equal measure.[1] The LCD4A have now decided that enough is enough and that it is now time to stand up and take positive action. They have initiated a group litigation against those who failed to exercise the ‘duty of care’ that they owed to healthcare workers across the UK during the pandemic.  In this blog, I summarise how and why I feel our healthcare workers have been let down by our government and why, if you are one of these healthcare workers whose life has been effected by Long Covid, I urge you to join the group litigation initiative.
  5. Content Article
    The aim of this study, published in the BMJ, was to evaluate whether a structured online supervised group physical and mental health rehabilitation programme can improve health related quality of life compared with usual care in adults with Long Covid.  Best practice usual care was a single online session of advice and support with a trained practitioner. The REGAIN intervention was delivered online over eight weeks and consisted of weekly home based, live, supervised, group exercise and psychological support sessions. The authors concluded that in adults with Long Covid, an online, home based, supervised, group physical and mental health rehabilitation programme was clinically effective at improving health related quality of life at 3 and 12 months compared with usual care.
  6. Content Article
    With a number of large-scale clinical trials underway and researchers on the hunt for new therapies, Long Covid scientists are hopeful that this is the year patients will finally see improvements in treating their symptoms. This article in Medscape makes five research-based predictions that could happen in 2024. They provide promising signs of progress in treating a debilitating and frustrating disease. The predictions are: We'll gain a better understanding of each Long Covid phenotype Monoclonal antibodies may change the game Paxlovid could prove effective for Long Covid Anti-inflammatories like metformin could prove useful Serotonin levels may be keys to unlocking Long Covid
  7. Content Article
    Hundreds of doctors - led by campaign group Long Covid Doctors for Action - are planning to sue the NHS over claims that inadequate PPE provision has left them with Long Covid. One of those, Dr Nathalie MacDermott, joins Women's Health host Emma Barnett to discuss it. Listen from 2:40
  8. News Article
    Nearly four years since the start of the coronavirus outbreak, you could be forgiven for believing the pandemic is behind us. But for many, it feels far from over. Close to two million people face a daily battle with debilitating symptoms of Long Covid – the lasting symptoms of the virus that remain after the infection is gone – with some now housebound, unable to walk and even partially blind. Alan Chambers, 49, is among those who have been grappling with the illness for years, having caught coronavirus in March 2020. Mr Chambers went from being “a fit, healthy, working member of the community who would do anything to help anyone” to being “ill and isolated in our bedroom”, blind in one eye and no longer able to walk unaided, his wife Vicki said. As of March, an estimated 1.9 million people in the UK have experienced coronavirus symptoms for more than four weeks, according to the latest figures from the Office for National Statistics. Of those, 1.5 million reported the condition had adversely affected their day-to-day activities. It comes as coronavirus case rates have shown an overall increase since July, with fears the approaching winter will bring a further surge in infections. Yet in May, the World Health Organisation (WHO) declared that coronavirus no longer represents a global health emergency, which was seen as a symbolic step towards the end of the pandemic. Dr Jo House, founding member and health advocacy lead at Long Covid Support, said the advocacy group now has 62,000 members, with about 250 more people joining every month. “In their words, they feel ‘forgotten, unheard, disbelieved, isolated, unemployed, disabled, immobile’. NHS England admitted to The Independent that access to necessary support, treatment and care for Long Covid patients is still lacking. It said there was “still more to do to ensure support is there for everyone who needs it”, so that patients requiring specialist assessment and treatment for Long Covid can access care in a timely way. Read full story Source: The Independent, 29 November 2023
  9. News Article
    The U.S. Department of Health and Human Services (HHS), through the Agency for Healthcare Research and Quality (AHRQ), announced nine grant awards of $1 million each for up to 5 years to support existing multidisciplinary Long COVID clinics across the country to expand access to comprehensive, coordinated, and person-centered care for people with Long COVID, particularly underserved, rural, vulnerable, and minority populations that are disproportionately impacted by the effects of Long COVID. The grants are a first of their kind. They are designed to expand access and care, develop, and implement new or improved care delivery models, foster best practices for Long COVID management, and support the primary care community in Long COVID education. This initiative is part of the Biden-Harris Administration's whole-government effort to accelerate scientific progress and provide individuals with Long COVID the support and services they need. “The Biden-Harris Administration is supporting patients, doctors and caregivers by providing science-based best practices for treating long COVID, maintaining access to insurance coverage, and protecting the rights of workers as they return to jobs while coping with the uncertainties of their illness,” said Secretary Xavier Becerra. “Treatment of Long COVID is a major focus for HHS, and AHRQ is helping lead the way through grants to investigate best practices and get useful guidance to doctors, hospitals, and patients.” Read full story Source: AHRQ, 20 September 2023
  10. Content Article
    Unable to work or to play with their children, forced to sell their homes or facing insolvency—doctors with Long Covid deserve more support from the government and the NHS, writes Adele Waters in this BMJ article.
  11. Content Article
    The aim of the Long Covid webinar held on 5 July 2023 was to discuss where we are now with Long Covid clinics and research. The presentation videos from the webinar can be accessed from the link below.
  12. Content Article
    Some of the same people that noted surgical masks were useless for airborne viruses also made decisions to limit the use of effective respirator masks: a decision that had devastating ramifications when the pandemic struck. In this article in the Byline Times, Josiah Mortimer delves deeper into a hub blog written by David Osborn: 'The pandemic – questions around Government governance' and questions the decisions made by the Government during the pandemic.
  13. Content Article
    In a new Lancet Respiratory Medicine Series about Long Covid, Sally J Singh and colleagues discuss the origins of respiratory sequelae and consider the promise of adapted pulmonary rehabilitation programmes and physiotherapy techniques for breathing management. Pratik Pandharipande and colleagues review the epidemiology and pathophysiology of neuropsychological sequelae of COVID-19-related critical illness, highlighting the combined threat of long COVID and post-intensive care syndrome (PICS), and outline potential mitigation strategies. Finally, Matteo Parotto and colleagues discuss pathophysiological mechanisms of diverse, multisystem sequelae in adult survivors of critical illness, including longitudinal effects of endothelial and immune system dysfunction, and consider the challenges of providing appropriate care and support for patients.
  14. News Article
    Health officials are calling for urgent intervention from the government to meet the steep surge in demand for occupational therapy in the wake of the Covid-19 pandemic. According to healthcare professionals from both the NHS and the private care system, demand for occupational-therapy-led rehabilitation services in Britain has increased by a staggering 82 per cent over the past six months alone. Swelling pressure on already “overloaded” rehabilitation services has stirred up stark warnings from members of the Royal College of Occupational Therapists (RCOT), who say the level of demand for the service they provide “isn’t sustainable” as there isn’t a large enough workforce to meet the need. A revealing survey carried out by the college has raised grave questions about the prospect of providing timely rehabilitation for people recovering from short and long-term illnesses who need urgent support to enable them to carry out their daily activities. The survey of of 550 occupational therapists working in the UK found that 84 per cent are now supporting people whose needs have become more complex because of delays in treatment brought about by the pandemic. As a result of this, coupled with a wider increase in the number of people requiring help, 71 per cent of the RCOT’s respondents felt there were not enough occupational therapists to meet the demand. Read full story (paywalled) Source: The Independent, 22 May 2022
  15. News Article
    More than half of people hospitalised with Covid-19 still have at least one symptom two years after they were first infected, according to the longest follow-up study of its kind. While physical and mental health generally improve over time, the analysis suggests that coronavirus patients discharged from hospital still tend to experience poorer health and quality of life than the general population. The research was published in the Lancet Respiratory Medicine. “Our findings indicate that for a certain proportion of hospitalised Covid-19 survivors, while they may have cleared the initial infection, more than two years is needed to recover fully,” said the lead author, Prof Bin Cao, of the China-Japan Friendship hospital in China. Until now, the long-term health effects of Covid-19 have remained largely unknown, as the longest follow-up studies to date have spanned about a year. The absence of pre-Covid-19 health status data and comparisons with the general population in most studies also made it difficult to determine how well patients with Covid-19 have recovered. “Ongoing follow-up of Covid-19 survivors, particularly those with symptoms of long Covid, is essential to understand the longer course of the illness, as is further exploration of the benefits of rehabilitation programmes for recovery,” said Cao. “There is a clear need to provide continued support to a significant proportion of people who’ve had Covid-19, and to understand how vaccines, emerging treatments and variants affect long-term health outcomes.” Read full story Source: The Guardian, 11 May 2022
  16. News Article
    People suffering from long Covid have reacted with alarm to comments by government’s equalities watchdog that the condition should not be treated as a disability. Under the Equalities Act, anyone with a physical or mental impairment that has lasted for longer than 12 months and substantially impacted their ability to carry out normal day-to-day activities qualifies as disabled and is entitled to protection to ensure that they aren’t discriminated against in the workplace. This includes requesting that their employer makes “reasonable adjustments”, such as flexible working hours or home working, to ensure that they can continue working. In a tweet posted on Sunday night, the Equalities and Human Rights Commission (EHRC), which was set up to promote and enforce equality and non-discrimination laws said: “Discussions continue on whether ‘long Covid’ symptoms constitute a disability. Without case law or scientific consensus, EHRC does not recommend that ‘long Covid’ be treated as a disability.” The statement prompted immediate concern and confusion from long Covid support groups and unions. Dr Jenny Ceolta-Smith, an employment advocate for Long Covid Support and co-founder of Occupational Therapy for Long Covid, said: “There is already disbelief of workers’ long Covid symptoms within the workplace, and this harmful announcement by the EHRC may make it much harder for workers to gain the support that they need from colleagues and line managers. It may even mean more jobs are lost.” Read full story Source: The Guardian, 9 May 2022
  17. News Article
    Fewer than one in three people who have been hospitalised with Covid-19 have fully recovered a year after they succumbed to infection. That is the shock finding of a survey into the impact of long Covid in the UK. The team of scientists and doctors at Leicester University also found that women had poorer recovery rates than men after hospitalisation, while obesity was also likely to hinder a person’s prospects of health improvements. Among the symptoms reported by patients a year after their initial infection were fatigue, muscle pain, poor sleep and breathlessness. “Given that more than 750,000 people have been hospitalised in the UK with Covid-19 over the past two years, it is clear from our research that the legacy of this disease is going to be huge,” said Rachael Evans, one of the study’s authors. The team stressed their results show there is now an urgent need to develop ways to tackle Long Covid. “Without effective treatments, Long Covid could become a highly prevalent long-term condition,” said Professor Chris Brightling, another author. A critical factor in these poor rates of recovery was the lack of treatments that exist for Long Covid, added Professor Louise Wain, who was also involved in the study. “No specific therapeutics exist for long Covid and our data highlights that effective interventions are urgently required.” The researchers also found that many of those reporting impairment in the wake of their hospitalisation were suffering from persistent inflammation. “That suggests these groups might respond to anti-inflammatory strategies,” added Wain. Read full story Source: The Guardian, 24 April 2022
  18. News Article
    An analysis of data from 50 studies looking at 1.6 million people suggests that as much as 43% of those infected with the coronavirus experienced post-Covid conditions, pointing to the need for better diagnosis and care for “long Covid” patients. Post-Covid conditions are clinically defined by the World Health Organization (WHO) as mid- and long-term symptoms – also known as Long Covid – occurring in individuals after infection with the SARS-CoV-2 virus. The research, published this week in the Journal of Infectious Disease, assessed 23 symptoms reported across 36 of the studies and found that shortness of breath, sleep problems, and joint pain was widely reported by those who had recovered from the novel coronavirus infection. Researchers say fatigue (23%) and memory problems (14%) were the most common symptoms of individuals experiencing post-Covid conditions. While about 34% of non-hospitalised coronavirus patients report lingering post-Covid symptoms, scientists say this rate jumps to over 50% for hospitalised Covid patients. “Long Covid is quite common overall and across geographic regions, sex and acute COVID-19 severity. Knowing this, providers should take proactive approaches such that their patients are well-supported when experiencing long-term health effects of Covid-19,” scientists wrote in the study. Read full story Source: The Independent, 21 April 2022
  19. News Article
    Scottish Liberal Democrat leader and health spokesperson Alex Cole-Hamilton MSP today said the SNP/Green Government has “yet again let down long Covid sufferers” as it is revealed that not a single penny of the £10 million announced by ministers last September has been spent. On 9 September 2021, the Scottish Government announced the £10 million Long Covid Support Fund. Now a parliamentary question from Alex Cole-Hamilton and a freedom of information request have confirmed that the money remains entirely unspent. Alex Cole-Hamilton commented: “The latest official statistics showed a record are a record 119,000 long Covid sufferers in Scotland. The SNP/Green Government has let down every single one of them by failing to spend any of the £10 million it announced last September. “Time and again I have pressed Nicola Sturgeon for answers on the absence of long Covid clinics, pressed for automatic referrals and urged the rollout of in-home support for sufferers. Now we’ve learned that none of the money announced more than six months ago has been spent. “Long Covid sufferers need new hope. Scottish Liberal Democrats are determined to see the rollout of proper care. Read full story Source: Scottish Liberal Democrats, 27 March 2022
  20. News Article
    People who suffer from severe Covid-19 symptoms are more likely to have long-term mental health problems, a new study suggests. Higher rates of depression and anxiety have been found in people who were “bedridden” with Covid-19 for more than seven days last year, according to a study published in the Lancet. Scientists, drawing on data from 247,249 people across the UK, Denmark, Estonia, Iceland, Norway and Sweden, found that people with coronavirus who were not admitted to hospital were more likely to experience symptoms of depression up to 16 months after diagnosis, compared to those never infected. However, over 16 months, patients who were bedridden for seven days or more were between 50 and 60% more likely to experience higher levels of depression and anxiety compared to people never infected during the study period, the researchers found. Overall, people diagnosed with Covid-19 had a higher prevalence of depression and poorer sleep quality compared with individuals who were never diagnosed – 20% of those in the former group experienced symptoms of depression, versus 11% in the latter group. Researchers suggested patients who spent longer in bed or had higher depression or anxiety rates could be suffering from ill health due to a combination of worrying about long-term health effects and Covid symptoms persisting. Patients with severe Covid often experience inflammation, which has previously been linked to chronic mental illness, particularly depression. Read full story Source: The Independent, 15 March 2022
  21. News Article
    Deepa Singh, 30, of Louisville, USA, has been seriously ill for two years, racked with extreme fatigue, racing heartbeat and memory problems from Long covid that she says prevent her from working. Adding to her distress, she says, has been a grueling — and so far unsuccessful — battle for disability payments. Singh, who worked as a project manager, is among a cohort of Long Covid patients who have been denied disability benefits, either by private insurance companies, which operate benefit plans offered by employers, or by the Social Security Administration, which manages government disability benefits. Tasked with sorting legitimate health claims from fraudulent or marginal ones, these gatekeepers now face a novel challenge as the coronavirus pandemic drags on: a flood of claims citing a post-infection syndrome that is poorly understood by the medical community and difficult to measure. Patients cite a litany of symptoms that defy verification through basic medical tests. They become exhausted at the merest exertion. They can’t remember simple words. Their hearts feel like they are fluttering. Yet neurological exams, ECGs and chest X-rays come back clean. Doctors said in interviews they are treating Long Covid patients who are clearly too sick to work but who have difficulty meeting the evidence threshold insurers demand: objective medical test results showing an inability to perform work. Specialized tests can measure a few Long Covid-related problems, such as a central nervous system disorder called dysautonomia, which affects the body’s ability to regulate itself. But there are months-long waiting lists for the tests, doctors and patients said. The challenges are similar to those faced for years by people claiming disabilities based on chronic fatigue syndrome. But the pandemic has given rise to such claims on a far greater scale. Read full story (paywalled) Source: The Washington Post, 8 March 2022
  22. News Article
    Today the Government is expected to announce the end to all Covid restrictions, including ending self-isolation and free testing in the country. However, in an open letter to the UK's Chief Medical Officer and Chief Scientific Officer, the UK science and medical communities say this is a "HUGE mistake". The open letter expresses concern about the Government plans to end testing, surveillance surveys and legal isolation of Covid-19 cases and asks the Government to clarify the scientific advice underpinning these policy decisions as they do not believe there is a solid scientific basis for the policy. "It is almost certain to increase the circulation of the virus and remove the visibility of emerging variants of concern." "The emergence of new variants and a resultant wave of infections can occur very quickly, potentially within just several weeks. The ability to rapidly detect and characterise new variants and to scale up necessary responses (such as TTI and vaccinations) quickly will be very important. Considerations for future response preparedness and surveillance infrastructure should take this into account." "We believe humanity is in a race against the virus." The letter goes on to say that some form of surveillance must be continued to ensure the situation is well understood and new variants of concern identified. Lack of testing is not only detrimental to controlling the spread of SARSCoV2 and detecting new variants, it also puts people who develop Long Covid at a great disadvantage by not having a confirmation of their infection, which is integral to the diagnosis, support and care they need to receive. For the 1 in 4 people in the UK who are clinically vulnerable, the current approach appears a perilous and politicised pandemic response. The authors of the letter are asking members of the UK science and medical communities to sign the open letter. Read the letter in full and sign here
  23. News Article
    A "significant" number of doctors are still suffering with the "debilitating effects" of Long Covid, according to a new report. Many are left in financial limbo as they have been forced to quit work or reduce their hours, the British Medical Association (BMA) report warns. Some 600 doctors with long COVID were quizzed about the impact on their day-to-day lives. One in five told the BMA and the Long COVID Doctors for Action group they had been forced to stop work or significantly cut back on their hours. Carrying out essential daily activities such as getting dressed, household activities, and childcare have become difficult or not possible for 60% of the medics who took part in the survey. Nearly half (49%) said they have experienced loss of earnings as a result of Long Covid symptoms of which include: fatigue, headaches, muscular pain, nerve damage, joint pain, ongoing respiratory problems. The BMA has made a series of calls to support doctors with Long Covid, including: Financial support for doctors and other health workers with Long Covid. Long Covid to be recognised as an "occupational disease". Better access to physical and mental health services for those affected after the report said that access to NHS long COVID clinics is "patchy". Greater "workplace protection" for staff. More support to help healthcare workers return to work "safely". Read full story Source: Medscape, 3 July 2023
  24. News Article
    An estimated 430,000 Britons were still suffering from Long Covid two years after first contracting the virus, according to data released by the Office for National Statistics (ONS). One in every 32 people in the UK was estimated to have some form of Long Covid at the end of July, equivalent to 2 million people. Of those, around 1.5 million said their symptoms were adversely affecting their daily activities, while 384,000 said their ability to undertake daily activities had been “limited a lot”. Fatigue continues to be the most common symptom reported by individuals with long Covid, with 62% reporting weakness or tiredness. More than a third, 37%, of those surveyed reported shortness of breath as one of their symptoms, while difficulty concentrating (33%) and muscle ache (31%) were the next most cited symptoms. Kelly Fearnley, a foundation doctor at Bradford Royal Infirmary, said: “Long Covid is not only crippling the health of the nation, it is destroying the health of our economy. “Research efforts so far have been slow and underfunded, and fail to reflect the scale and urgency of the problem. “Not only are some people not recovering, they are deteriorating. People have not only lost their health and independence, they are losing their jobs, financial security and homes.” Read full story Source: The Guardian, 1 September 2022
  25. News Article
    Patients with long-lasting symptoms from Covid will have access to more convenient tests and checks closer to home, under new NHS measures announced. Specialist clinics, dedicated to Long Covid, will now be able to send people for tests at local one stop shops and mobile clinics, rather than people going back to their GP practice for multiple different tests. Backed by an additional £90 million investment, the updated Long Covid plan includes ambitions for all patients to have an initial assessment within six weeks to ensure they are diagnosed and treated quickly. Latest estimates from the ONS show that around 1.6 million people in England are experiencing ongoing COVID symptoms lasting more than four weeks, with around one in five saying it has a significant impact on their daily life. The plan, which has been developed with expert insights from patients, clinicians and partners across the health and care system, shows the NHS has already made significant progress on delivering the 10 commitments it set out for Long Covid services just over one year ago. This includes establishing a nationwide network of 90 specialist long COVID clinics, 14 hubs for children and young people and investment in training and guidance to support GP teams in managing the condition. Dr Kiren Collison, GP and chair of the NHS long COVID taskforce said: “Long COVID can be devastating for those living with it, and while we continue to learn more about this new condition, it’s important people know they’re not alone, and that the NHS is here for them. “In just under two years, the NHS has invested £224m to support people experiencing long term effects from COVID – from setting up specialist clinics, hubs for children, and an online recovery platform, to providing training for GP teams. “Today’s plan builds on this world-leading care, to ensure support is there for everyone who needs it, and that patients requiring specialist support can access care in a timely and more convenient way.” Read full story Source: NHS England, 28 July 2022
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