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Showing results for tags 'Patient involvement'.
Found 94 results
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Content ArticleThis training tracker from the Patient Experience Library helps you find courses on patient experience and patient/public involvement hosted by a range of external organisations. Each listing contains details on how to book places and contact the course providers.
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Content Article
This blog calls for action on the careful review of established pain medication when a patient is admitted to hospital. Richard describes the experience of two elderly patients who suffered pain due to their long term medication being stopped when they were admitted to hospital. Pain control needs must not be ignored or undermined, there needs to be carer and patient involvement and their consent, and alternative pain control must be considered.- Posted
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News Article
Huge leap in breast cancer survival rate
Patient Safety Learning posted a news article in News
The number of people who die after a breast cancer diagnosis has decreased by two-thirds since the 1990s, a study of more than half a million women in England has shown. The research has taken ten years to complete, says Carolyn Taylor, lead author of the study and an oncologist at the University of Oxford, UK. The analysis includes the 512,447 women in England who were diagnosed with early invasive breast cancer between January 1993 and December 2015. The results published in the BMJ found women who were diagnosed in 1993–99 had a 14.4% risk of dying within 5 years. This fell to 4.9% for women diagnosed in 2010–15. Patient involvement was important to the study, Taylor says. The scientists appointed two patient representatives to guide their research. “They helped us in the questions to be addressed. They looked at the analyses and gave comments and suggestions throughout the study. And they helped us to interpret the results in the way that patients can understand.” Read full story Source: Nature, 23 June 2023 -
Content ArticleThe Health and Social Care Select Committee have published a new report reviewing the progress that the UK Government has made in implementing the recommendations of the Independent Medicines and Medical Devices Safety Review, sometimes referred to as the Cumberlege Review. This blog sets out Patient Safety Learning’s reflections on this report.
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Content ArticleDr Henrietta Hughes, England's Patient Safety Commissioner, discusses how the experiences of people from Black and minority ethnic groups has worsened since the pandemic and how this has impacted on patient safety, in a blog for the NHS Race & Health Observatory.
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Content ArticleIn this article, published by Patient Satisfaction News, author Sarah Heath argues that more needs to be done to address the power imbalance between patients and providers. She discusses the dangers of a paternalistic approach and why patient engagement and shared decision making is key to patient safety.
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News ArticleThe Health Research Authority has launched a new strategy to ensure information about all health and social care research – including COVID-19 research - is made publicly available to benefit patients, researchers and policy makers. The COVID-19 pandemic has highlighted the importance of sharing details of research taking place - to understand the virus and find the tests, treatments and vaccines - so that results can inform best quality care and preventive measures. This also means researchers do not duplicate efforts and can build on each other’s work while the public can see what research is going on. Now the new Make it Public strategy aims to build on this good practice and make it easy for researchers to be transparent about their work. The strategy, delivered by the HRA in partnership with NHS Research Scotland (NRS), Health and Care Research Wales and Health and Social Care Northern Ireland, is about making transparency ‘the norm’ in research and making information more visible to the public. New measures set out in the strategy – will improve transparency and openness in health and social care studies, by: expecting researchers to plan how they will let research participants know about the findings of the study from the beginning introducing additional monitoring to check that researchers are reporting results and to collect information about study findings making information on individual research projects – and their transparency performance - available to the public introducing a system to consider past transparency performance when reviewing new studies for approval and in the future introducing sanctions.
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News Article
Take part in a conception & pregnancy study COVID-19
Patient Safety Learning posted a news article in News
CAP-COVID are conducting essential research on how the COVID-19 pandemic affects pregnant women and their babies. If you are a pregnant woman at any stage of pregnancy, you can take part in the study. This includes whether you have just had a positive pregnancy test (even if you are unsure what to do about your pregnancy), whether you are in the middle of pregnancy, or you are about to have your baby. Take part -
News Article
Short surveys will support better connected social care and health services
Patient Safety Learning posted a news article in News
The Professional Record Standards Body would like you to take part in two surveys about the information that should be shared between health and social care. The project aims to improve connections between different services, to allow people better access to the personalised care and wellbeing support they need. They’ve also produced an easy read version for anyone who has difficulty reading, which can be found here. -
News Article
"Patients are not empowered to prevent their own harm", says Sir Liam Donaldson
Patient Safety Learning posted a news article in News
Today, Sir Liam Donaldson is chairing a patient safety meeting at the World Health Organization (WHO) 'A Global Consultation – A decade of Patient Safety 2020–2030' to formulate a Global Patient Safety Action Plan. His introductory address this morning focused on the task ahead – to maintain the World Health Assembly resolution momentum and patient safety as a global movement. "Patients are not empowered to prevent their own harm", Donaldson said, as he highlighted patient stories of unsafe care and the alarming parallels of patient and family experiences across the world. So where is the power? Donaldson went on to to highlight how the six current power blocks are not doing enough to improve safety and that we need to engage and motivate these power blocks to achieve change: Designing of health systems – we have not seen much evidence of systems being designed for safety. Health leaders are not using their power to lead for reduced harm. Educational institutions – these have to happen faster to train staff in. Research community – has patient safety research led to sustainable reduction in risk? Data and information – how has this improved patient safety? Industry – pharma doing very little on medication packaging and labelling; medical devices industry also could do more. -
News Article
Health NHS patient feedback is not being used to improve services, report warns
Patient Safety Learning posted a news article in News
The NHS is spending millions of pounds encouraging patients to give feedback but the information gained is not being used effectively to improve services, experts have warned. Widespread collection of patient comments is often “disjointed and standalone” from efforts to improve the quality of care, according to a study by the National Institute for Health Research (NIHR). Nine separate studies of how hospitals collect and use feedback were analysed. They showed that while thousands of patients give hospitals their comments, their reports are often reduced to simple numbers – and in many cases, the NHS lacks the ability to analyse and act on the results. The research found the NHS had a “managerial focus on bad experiences” meaning positive comments on what went well were “overlooked”. The NIHR report said: “A lot of resource and energy goes into collecting feedback data but less into analysing it in ways that can lead to change, or into sharing the feedback with staff who see patients on a day-to-day basis. NHS England's chief nurse, Ruth May, said: "Listening to patient experience is key to understanding our NHS and there is more that that we can hear to improve it. This research gives insight into how data can be analysed and used by frontline staff to make changes that patients tell us are needed." Read full story Source: 13 January 2020 -
Content ArticleThe first wave of the pandemic necessitated a large scale shift to greater digital engagement with patients, yet progress has not been uniform. While virtual consultations have become increasingly commonplace, communication outside of those appointments is still often analogue and generally sporadic. Cancelling an appointment – or indicating in advance that a specific day or time doesn’t work – remains a complicated, non-digital experience for many patients. With millions now on waiting lists for treatment, and a significant minority having already waited two years, this sort of communication gap becomes more challenging. As such there are arguments that it’s now time for the digital acceleration seen during the pandemic to extend to this area too.
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Content ArticleFrom the perspective of patient partners, the Ontario SPOR SUPPORT Unit Engaging Multi-stakeholders for Patient Oriented-research Wider Effects and Reach Awards have facilitated successful patient-partnered research projects, which, in turn, have led to an evolution in patient partnerships and engagement strategies. The 15 projects profiled in this special issue point to the beneficial impacts of patient-partnered research.
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Content ArticleIn patient experience research, participants frequently report the impact that mesothelioma has on their mental health yet there have been very few studies specifically focused on mental health and mesothelioma. In patient experience research, participants frequently report the impact that mesothelioma has on their mental health yet there have been very few studies specifically focused on mental health and mesothelioma. This new study from the Mesothelioma UK research centre aims to create an understanding of the impact of mesothelioma on the mental health of patients, their families and close friends, and what people do to improve their mental health and well-being.
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Content Article
NIHR: Patient & public involvement in research resources
Patient Safety Learning posted an article in Research
Whether you’re just getting started with involving patients and the public in your work, or if you’re looking for some new techniques, there are some great resources out there. The NIHR have pulled together some of the best available resources to help you involve patients, service users, carers and family members in your research. -
Content ArticleThere is a well-described mismatch between the research that is done on a particular condition and the research that patients themselves would like to see done. Formal research priority-setting partnerships aim to reduce this mismatch by involving patients in the selection of topics for research. The National Institute for Health Research (NIHR) has strongly supported patient and public involvement (PPI) in research, produced national benchmarks for PPI, funded INVOLVE (www.invo.org.uk) which promotes patient involvement in all aspects of biomedical research, and written up some exemplar case studies. Trish Greenhalgh looks back at the history of patient involvement in research and suggests a vision for an institute for patient-led research.
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Content ArticleA report from the Institute of Health and Social Care Management Power-House series discusses virtual wards, an innovation due to be implemented at scale in the NHS as a method of addressing patient waiting lists. With the help of remote treatment options and supported by technology, patients are monitored and cared for in their own homes. The report lists the advantages and disadvantages of this approach. In addition to the report, you can watch the 'How to virtual wards Power Hour' video where an expert panel discusses the details around virtual wards. Roy Lilley was joined by Professor Alison Leary, Elaine Strachan-Hall, Steph Lawrence, Alexandra Evans and Dr Elaine Maxwell for an unmissable hour of insight, expertise and guidance.
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Content Article
NHS My Planned Care Patient Platform
Patient Safety Learning posted an article in Other health and care software
My Planned Care gives you advice and support while you wait and helps you to prepare for your hospital consultation, treatment, or surgery. This includes giving you information about waiting times at your hospital and other supporting and local services while you wait. This site is updated weekly and can be viewed by anyone, which means you, your family or carer as well as your NHS team can all see the latest information. Your hospital team will be in touch with you as soon as they can. If you are looking for an update, please check this website before contacting your hospital or GP. -
Content ArticleThis paper, published in the Journal of Health Services Research & Policy, examines the potential of combining insights from patient complaints and staff incident reports for a more comprehensive understanding of the causes and severity of harm. In their conclusion, the authors state that this study demonstrates the value of using patient complaints to supplement, test and challenge staff reports, including to provide greater insight on the many potential factors that may cause unsafe care.
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Community Post"There is an aspect of information exchange that has attracted less attention and fewer resources: that patients are experts in their experience and know much more than clinicians about their own health and the needs and goals important to them." From: https://catalyst.nejm.org/information-asymmetry-untapped-patient/ Such an important point to see patients as knowledge hubs on their own care experiences.
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Content ArticleMental health is an important component of individual well-being and social participation. According to the Organisation for Economic Co-operation and Development (OECD) between one in six and one in five people experience a mental health problem in any given year and an estimated one in two people experience a mental health problem in their lifetime. There is a need to measure patients’ experience of mental health care delivery and effects of mental health treatment approaches. Patients are in a unique position to contribute to the quality of health care since they are the only ones who experience the whole episode of care from primary care in communities through hospital care to rehabilitation and follow up in general practice. Health professionals in contrast experience only a snap shot of the entire patient’s journey in the health care system. PREMs ((patient-reported experience measures) and PROMs (patient-reported outcomes measures) are means to assure that the patient voice in health care will be heard and institutionalised. This supplement focuses on how to include the patient voice in mental health, in terms of PREMs and PROMs.
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Content Article
Using patient stories to reflect on care (2016)
Patient Safety Learning posted an article in Patient stories
There is an increasing emphasis on, and commitment to, using patient narratives in nursing practice and nurse education. Listening to the voices of those receiving our care is just the beginning. The challenge is to use these narratives to improve practice and the patient experience. This seven-part series in the Nursing Times presents narratives from three fields of nursing: adult, mental health and learning disability. Each article includes opportunities to reflect on the stories presented and consider their implications for practice. -
Content ArticleDavina McCall’s documentary Pill Revolution missed an opportunity to validate painful experiences of intrauterine devices and promote better practice, writes Stephanie O'Donohue, Patient Safety Learning's Content and Engagement Manager, in an opinion piece for the BMJ.
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Content ArticleThis article highlights three questions tabled in the House of Commons relating to the Yellow Card Scheme, the system for recording adverse incidents with medicines and medical devices in the UK.
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EventuntilThe Medicines and Healthcare products Regulatory Agency (MHRA) will be holding a joint virtual Innovative Licencing and Access Pathway (ILAP) information and update session. This event will provide an opportunity for patient groups and patient experts to receive an update on the work of the ILAP, how the MHRA involve patient and public representatives, and future developments about how the MHRA are accelerating the time to market and facilitating patient access to innovative medicines. This event is open to all patient and public representatives who are involved in the work of any of the ILAP partners. Along with presentations from some of the ILAP team, a patient representative will share their experiences as a member of the pilot ILAP Patient and Public Reference Group. There will also be a panel discussion session with plenty of opportunity for questions from participants. Register
