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Showing results for tags 'Disability'.
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Event
HoPE Storytelling Festival - Made by Mortals
Sam posted a calendar event in Community Calendar
To share the learning and resources from the award-winning (The Royal Society of Public Health - Arts in Health 2022) community partnership programme between Tameside and Glossop Integrated Care NHS FT, Made By Mortals CIC (arts organisation) and over 50 patients with a broad range of lived experience- including mental ill health, learning disability, autism, English not as their first language, and people that identify as non-binary. The project used immersive audio case studies coproduced by patients, including the use of music, sound effects, and drama, together with an interactive workshop that challenged volunteers and staff at the hospital to take a walk in the patient’s shoes. The experiential community-led training raised awareness of the challenges that people with protected characteristics and additional needs face. This work supported Tameside and Glossop Integrated Care NHS FT ongoing approach to quality and diversity and supported attendees to adapt their behaviours to create an empathetic and person-centred environment. Register -
Event
HoPE Storytelling Festival - Bounce Back Boy
Sam posted a calendar event in Community Calendar
untilJosh Cawley was 22 when he finally died from catastrophic injuries inflicted on him by his birth parents. These resulted in his inability to speak or to move from his wheelchair, but it didn’t dampen his positive and cheeky spirit. This is his story. Josh was adopted by Lynn Cawley, a campaigning Methodist Minister whose devotion to Josh ensured that he lived his short life as positively and ‘normally’ as possible. Lynn couldn’t just be his loving mum though. She was expected to be his palliative care consultant, his nurse, his campaigner for compensation and she had to fight the ongoing battles with the system .The play explores their real story: having to accept that Josh’s needs were too ‘complex’ for the hospice; and dealing with Josh’s transition from boy, to teenager to adult - and being his full-time interpreter. .Professional actor Joseph Daniel-Taylor performs the play and gives the voice to Josh - the voice that he never had. Register -
Content ArticleKey points CVD is largely preventable. The risk factors for CVD apply also to other major conditions such as cancer, dementia and diabetes. Preventing and managing CVD and its risk factors therefore has the potential to improve population health, reduce health inequalities and ease pressures on overstretched health and care systems by reducing demand for services. The current national CVD policy landscape is fragmented. National leaders need urgently to deliver coherent CVD and public health strategies that focus on preventing and managing CVD and its risk factors. Given its high prevalence and large contribution to health inequalities, tackling CVD will be a relevant priority in most local areas. Integrated care systems (ICSs) can tackle CVD in their local areas by establishing strong local leadership and partnerships on CVD and public health, focusing on preventing and managing CVD and its risk factors, raising awareness of CVD, using data, tools and technology effectively, and reducing clinical variation.
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Content ArticleSpeakers at the webinar included: Len Hodkin, a founding member and chair of Making Families Count whose mother was attacked and killed on her way to work by a mental health service user with a history of extreme violence and drug abuse. Jan Sunman, a founding member and former director of Making Families Count, whose eldest daughter Katy, who had learning disabilities and physical disabilities, experienced serious harm in an acute NHS trust. Dorit Braun, is a volunteer project coordinator with Making Families Count and has traumatic lived experience as a family member. Jan Fowler, is a recently retired senior NHS leader. Her clinical background is in nursing and she was an early advocate of Making Families Count when at NHS England South.
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News Article
Health inequities lead to early death in many persons with disabilities
Patient-Safety-Learning posted a news article in News
A new report by the World Health Organization shows evidence of a higher risk of premature death and illness among many persons with disabilities compared to others in the society. The Global report on health equity for persons with disabilities published today shows that because of the systemic and persistent health inequities, many persons with disabilities face the risk of dying much earlier—even up to 20 years earlier—than persons without disabilities. They have an increased risk of developing chronic conditions, with up to double the risk of asthma, depression, diabetes, obesity, oral diseases, and stroke. Many of the differences in health outcomes cannot be explained by the underlying health condition or impairment, but by avoidable, unfair and unjust factors. Read more Source: WHO, 2 December 2022 -
Content ArticleThe report highlights that countries need to take urgent action to address the inequities in health caused by unjust and unfair factors within health systems. These factors—which account for many of the differences in health outcomes between persons with and without disabilities—can take the form of: negative attitudes of healthcare providers, health information in formats that cannot be understood, or difficulties accessing a health centre due to the physical environment, lack of transport or financial barriers. 9789240063600-eng.pdf
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Content ArticleThe IIAC recommends the following prescription should be added to the list of prescribed diseases for which benefit is payable. This applies to workers in hospitals and other healthcare settings and care home/home care workers working in proximity to patients in the two weeks prior to infection: Persisting pneumonitis or lung fibrosis following acute Covid-19 pneumonitis. Persisting pulmonary hypertension caused by a pulmonary embolism developing between 3 days before and 90 days after a diagnosis of Covid-19. Ischaemic stroke developing within 28 days of a Covid-19 diagnosis. Myocardial infarction developing within 28 days of a Covid-19 diagnosis. Symptoms of Post Intensive Care Syndrome following ventilatory support treatment for Covid-19.
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News Article
C-section delay left baby severely disabled
Patient Safety Learning posted a news article in News
A baby was left "severely disabled" after a delay during his delivery by Caesarean section, a High Court judge has been told. Betsi Cadwaladr health board will pay £4m in compensation after a negligence claim was brought by one of the boy's relatives. He has required 24-hour care since his birth in 2018 at Glan Clwyd Hospital in Denbighshire. The hospital apologised, saying doctors are "working hard" to learn lessons. "We are extremely sorry," barrister Alexander Hutton KC, representing the health board, told Mr Justice Soole. "[Betsi Cadwaladr] is working hard to learn lessons from this case," he added. Read full story Source: BBC News, 2 November 2022 -
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AvMA case study: Stuart's story
Patient-Safety-Learning posted an article in Risk management and legal issues
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Content ArticleTommy Jessop is an actor and campaigner who wants to use his voice to make sure people with a learning disability are heard. He's known to millions for his role as Terry Boyle on the UK TV series Line of Duty. He also has Down's syndrome, which puts him among the 1.5 million people with a learning disability in the UK at risk of having their lives cut short by illnesses that can be treated or prevented. For a BBC Panorama, he has been investigating the failures of healthcare which contribute to people with a learning disability having a life expectancy 20 years shorter than non-disabled people. He found cases where disabled people were not listened to, where they were neglected, and where families had to fight for appropriate treatment instead of their loved ones being allowed to die. Tommy says he has always had good care from the NHS but that's not always the case for other people like him. An NHS report found that in nearly half of cases where a person with a learning disability died before the age of 75, the cause was a preventable or treatable illness. For everyone else, that figure was 22%. Reviewing more than 3,500 deaths of people with a learning disability, the NHS found that in nearly a third of cases there was no evidence of good practice. Tommy and Panorama examined thousands of coroners' reports from the past nine years. They also heard the stories of four people with a learning disability who had been affected by poor care.
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Content Article
NICE and health inequalities (October 2022)
Patient-Safety-Learning posted an article in NICE
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Content ArticleRocco Friebel and Laia Maynou examined the prevalence of five avoidable in-hospital patient safety incidents (adverse drug reactions, hospital-acquired infections, pressure ulcers, postoperative pulmonary embolism or deep vein thrombosis, and postoperative sepsis) for four developmental disability groups (people with intellectual disability, chromosomal abnormalities, pervasive developmental disorders, and congenital malformation syndrome) in the NHS during the period April 2017–March 2019. The authors found that the likelihood of experiencing harm in disability groups was up to 2.7-fold higher than in patients without developmental disability. Patient safety incidents led to an excess length-of-stay in hospital of 3.6–15.4 days and an increased mortality risk of 1.4–15.0 percent. The authors show persisting quality differences in patients with developmental disability, requiring an explicit national policy focus on the needs of such patients to reduce inequalities, reach parity of care, and lower the burden on health system resources.
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News ArticleHospital authorities in Wales have been accused of attempting to cover up failings in the delivery of a baby born with significant brain damage. Gethin Channon, who was born on 25 March 2019 at Singleton Hospital, in Swansea, suffers from quadriplegic cerebral palsy, a severe disability that requires 24/7 care. There were complications during his birth, due to him being in an abnormal position that prevented normal delivery, and he was eventually born via caesarean section. An independent review commissioned by Swansea Bay University Health Board (SBUHB), which manages Singleton Hospital, found “several adverse features” surrounding Gethin’s delivery that were omitted from or “inaccurately specified” in the hospital’s internal report. The investigation, carried out by obstetrician Dr Bill Kirkup, said SBUHB had “significantly” downplayed the “suboptimal” care received by Gethin and his mother, Sian, and had erroneously attributed his condition to a blocked windpipe. It also suggests that amendments were retrospectively made to examination notes taken by staff during the course of Ms Channon’s labour. The family said that SBUHB, which was flagged by national inspectors in the months after Gethin’s birth due to “concerns” over its ability to deliver “safe and effective” maternity care, had “covered up” the failings in their case. SBUHB said it had been “working tirelessly” with the family to investigate and address their concerns, and that it would be inappropriate to comment on specific allegations as the process was ongoing. Read full story Source: The Independent, 2 September 2022
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NHS England: Stroke toolkit
Patient Safety Learning posted an article in Other conditions and diseases
The NHS Long Term Plan identifies stroke as a clinical priority. The creation of Integrated Stroke Delivery Networks (ISDNs) is crucial to this plan, providing an integrated 24/7 full-pathway approach; bringing people and organisations together to deliver the best possible care across the whole pathway, from prevention and urgent care to rehabilitation and long term support. Twenty ISDNs, covering the whole of England, have been in place since April 2021. The National Stroke Programme published the National Stroke Service Model (NSSM) in May 2021, which outlines best practice to ensure integrated stroke care across the whole system. The National Stroke Programme and Getting It Right First Time (GIRFT) stroke programme have been working closely with RightCare to develop this Stroke Toolkit and assessment tool, to bring to life the NSSM, the subsequently published policy document Integrated Community Stroke Service (ICSS) Model, and the GIRFT National Stroke report 2022. This toolkit provides ISDN’s and local stroke services with key actions to guide service improvement in the following pathway specific and across pathway system improvement priority areas: health inequalities prevention TIA management pre-hospital hyper acute and acute care rehabilitation and life after stroke workforce medicines optimisation technology. For the first time, responses to the self-assessment questions included in the Stroke Toolkit can be submitted and stored within the pdf. Additionally, these questions are also available as a separate interactive assessment tool, which enables responses to be submitted, summarised, and explored. -
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Content ArticleKey messages 60% of those who died from Covid-19 in the first year of the pandemic were disabled. The health inequalities disabled people already faced were made worse by the pandemic and a decade of austerity. In this context, it’s vitally important to include disabled people in designing and planning health and care system responses. Health and care services need to understand the broad diversity of disabled people’s identities and experiences, and adopt a social model approach to disability, understanding that people are disabled by barriers in society, rather than by impairments or health conditions. Health and care professionals need to value disabled people’s expertise through properly recognising the value of lived experience and ensure disabled people’s voices are central to any plans right from the start. Disabled health and care staff are potential partners in this work, with their perspectives of both using and delivering services. Disabled people’s organisations (DPOs) can strengthen their impact by working with other local DPOs and user-led organisations, understanding which parts of health and care systems they can best influence, and supporting health and care organisations to meaningfully engage with disabled people. Both health and care organisations and DPOs need to improve their understanding of how people’s multiple identities shape their experiences, and embrace diversity of voices, opinions and challenges as an opportunity to think differently. Ensuring disabled people’s voices are heard requires constant attention. While there are some examples of good practice, we heard many stories we heard where involvement wasn’t happening or felt tokenistic.
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News Article
'More help needed' to make patient info accessible
Patient Safety Learning posted a news article in News
People with disabilities must be helped more by health providers to access information, a report has found. Over 300 people in North Yorkshire were asked about communication from GPs, hospitals, and healthcare providers in a survey by watchdog Healthwatch. The report said there is "some good practice" but many patients are not being contacted in their preferred format. This leads to missed appointments which "costs time and money". Since 2016, the Accessible Information Standard means health and care organisations must legally provide a "consistent approach to identifying, recording, flagging, sharing, and meeting the information and communication support needs of patients, service users, carers and parents with a disability, impairment, or sensory loss," Healthwatch said. But the report said some people receive printed letters which they are unable to read meaning they have to ask for private and confidential information to be relayed. Scarborough respondent Ian said it was "amazing" that in the 21st Century many are still facing such issues. "The [GP booking] system doesn't anticipate that not everyone can use the phone," he said. "The problem is a lot of organisations haven't moved with the times". Read full storyp Source: BBC News, 21 June 2022
