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Found 49 results
  1. Content Article
    A casually centred proposal identifying how Fire and Rescue Services can improve pre-hospital care and quality of life outcomes for burn survivors.  David Wales and Kristina Stiles have released this report looking at the burn survivor experience in the pre-hospital environment. The work makes ten operational recommendations and also two 'lessons learned' recommendations exploring strategic partnership working and the resulting fragmented services.
  2. Content Article
    Paul Batalden is the host of "The Power of Coproduction". Prepared as a pediatric physician, he has been an international architect, teacher, and advocate for the improvement of healthcare services for five decades. His current focus is the coproduction of healthcare services.
  3. Content Article
    Charlotte Augst, chief executive of National Voices, challenges system leaders to think differently about what is needed to repair the NHS. As next year is likely to be the most difficult people ever had to live through, since NHS’s inception, she urges leaders to stand together
  4. Content Article
    The Patients Included charters were created by Lucien Engelen in 2010. Fed up of hearing people talk about 'what the patient wants' at medical conferences where no patients were present, he decided he would no longer speak at or attend conferences where patients were not speaking, offered bursaries to attend or part of the organising committee. The charters provide organisations with a way to demonstrate their commitment to incorporating the experience and insight of patients into their organisations by ensuring that they are neither excluded nor exploited. The charters that have been published so far include: Conferences (v.1.0 May 2015) Journals (v.1.0 April 2016) Patient information resources (v.1.0 December 2016) Ethics (v.1.0 April 2018) The Patients Included logo can also be used by conferences who adopt the conference charter.
  5. Content Article
    Whether you’re just getting started with involving patients and the public in your work, or if you’re looking for some new techniques, there are some great resources out there. The NIHR have pulled together some of the best available resources to help you involve patients, service users, carers and family members in your research. 
  6. News Article
    NHS 24 is urging people to treat common illness at home as it faces its busiest period over the festive season. Helpline bosses have warned that it will take longer to answer calls as the service faces staffing pressures and increased demand caused by Covid. It expects 170,000 calls over Christmas and New year - including two four-day weekends with GP surgeries closed. The public have been advised to use the NHS Inform website to check symptoms before phoning NHS 24. Janice Houston, NHS 24 associate director of operations and nursing, said the spread of Omicron had left the service "missing key staff" with people required to self-isolate. "This year is exceptional and particularly busy," she said. "We plan within an inch of our life for our busiest period, so I would just ask the public to be patient with us. "We need to re-plan depending on who can't come to work from self-isolating. It might take a bit longer to answer the phone, but you will always get good care." Read full story Source: BBC News, 24 December 2021
  7. Content Article
    This whitepaper takes a deeper look at the impact the COVID-19 pandemic has had on mental health services, outlining some immediate actions taken as a result of increased needs to meet mental health demands. These are further broken down according to distinct stakeholders across the spectrum of mental healthcare. Importantly, the research that backs SilverCloud’s digital mental health solution is presented, as providing an evidence-backed solution is key to offering and implementing treatments. Further, this whitepaper explains some of the key considerations that are essential for integrating internet-delivered Cognitive Behavioural Therapy (iCBT) within a wider delivery of mental health support in the future. A series of recommendations is made for reshaping the delivery of digital mental health therapy to create technology-enabled mental health services and processes, addressing current inequalities, and with built-in flexibility to withstand those challenges.
  8. Content Article
    StopSIM is a coalition of mental health service users and allies who have grave concerns about the rapid, widespread rollout of the High Intensity Network’s ‘Serenity Integrated Mentoring’ (SIM) intervention across NHS England. The intervention is designed for people who have not committed a crime, but are in contact with mental health services, are frequently at high risk of suicide and self harm and are deemed “high intensity users” of emergency services. Key intervention components include a co-ordinated withholding of potentially life saving treatment by multiple agencies (A&E, mental health, ambulance and police services) and, using SIM’s own words, the “coercive” approach of a police officer as an interventionist.  
  9. Content Article
    Serenity Integrated Mentoring (SIM) is a new program being introduced in London aimed at improving coping mechanisms and reducing emergency service use in High Intensity Service Users (HISUs). In this feasibility study, Anokhina et al. an evaluation of SIM effectiveness was assessed using demographic data. Three SIM boroughs (Greenwich, Camden and Islington) were compared with a non-SIM borough (Enfield) on emergency service use and costs in the 12 months prior to SIM and 9 months after. Qualitative interviews were conducted with SIM practitioners and service users. They found hat service users did attend A&E less, and were being arrested less, but this was true for both SIM and non-SIM participants. The economic analysis also showed that, at this stage, we cannot see any cost savings to service use yet. These results are something we expected because of the small scale of the study. However, we found that the quality of the data that is recorded by emergency services would allow us to carry out a full-scale study which would give us clearer answers
  10. Content Article
    The Serenity Integrated Mentoring (SIM) model is described as "an innovative mental health workforce transformation model that brings together the police and community mental health services, in order to better support 'high intensity users' of Section 136 of the Mental Health Act (MHA) and public services." The SIM model is part of a 'High Intensity Network' (HIN) approach, which is now live in all south London boroughs. In this hub post, Steve Turner highlights the benefits and risks of this approach and seek your views on it.
  11. Content Article
    The shift towards a digital-first healthcare system has accelerated during the COVID-19 pandemic, demonstrating that, given the opportunity for better access, people will engage in new ways with their health and wellbeing services. However, while many individuals have developed a greater awareness of their health and taken meaningful steps to improve it, the pandemic has exposed, and potentially increased inequalities in health outcomes due, in part, to inequalities in access to the technologies, connectivity, and digital and/or health literacy needed to improve outcomes equitably. The move to Integrated Care Systems (ICS) provides an opportunity to give greater priority to patient engagement and to integrate services around a 360 degree view of patient’s needs, focusing on how people experience their lives and health conditions, rather than on specific treatment/disease areas or pathways. This blog from Catherine Skilton, Deloitte, discusses what ICSs can do to realise the long-held vision of a person-centric health and care system.
  12. Community Post
    Some years ago I stopped writing for journals, in favour of blogging & volgging. My reasons were: I specialise in patient involvement and inclusion, so I want the work of me and my colleagues to be easily found by everyone We didn't want our work to end up behind a paywall We work across disciplines and try to bypass hierarchies, especially in promoting action learning and patient led care I can see there are some really good Open Access Journals around. So my question for us all is: Which are the best Open Access Journals? Here a link to my digital profile: https://linktr.ee/stevemedgov This is our developing model of working, a away of working in healthcare that all use and participate in:
  13. Content Article
    A framework has been developed by the Royal College of Obstetricians and Gynaecologists (RCOG), Royal College of Midwives and the Society and College of Radiographers, in partnership with NHS England and NHS Improvement, to support maternity services with the local reintroduction of hospital visitors and individuals accompanying women to appointments. This framework has been designed to assist NHS trusts to reintroduce access for partners, visitors and other supporters of pregnant women in English maternity services. It applies to inpatient and outpatient settings. Reintroducing visits is challenging during a pandemic, and the priority must be the safety of all service users (including pregnant women), staff and visitors. 
  14. Content Article
    The University of Leeds have developed and tested the first mechanism for gathering real-time feedback from patients in acute mental health settings, about how safe they feel, and explored how this might be used to manage ward safety.
  15. Content Article
    This is an easy to understand guide for people with learning disabilities who might be admitted to hospital with COVID-19. The author, Georgia, is a Speech & Language Therapist at Northants Healthcare.
  16. Content Article
    Patients and service users ask us to be clear when we give them information about their health. They also want us to show care and compassion when we talk and write to them. When we explain things clearly and with care and compassion, people have more confidence and trust in us and are more likely to take our advice, and follow medical guidance. They are happy to ask us questions about our advice so that they can take better care of their health. The Health Service Executive gives tips on how we can communicate clearly with patients and service users.
  17. Content Article
    The UK Standards for Public Involvement are designed to improve the quality and consistency of public involvement in research.  Developed over three years by a UK-wide partnership, the standards are a description of what good public involvement looks like and encourages approaches and behaviours that are the hallmark of good public involvement, such as flexibility, sharing and learning and respect for each other.  The standards are for everyone doing health or social care research and have been tested by over 40 individuals, groups and organisations during a year-long pilot programme. They provide guidance and reassurance for users working towards achieving their own best practice.
  18. Content Article
    This is part 1 of a series of blogs on end of life care planning and people with learning disabilities. This is a tricky subject as there seems to be confusion on the language. What's the difference between an end of life plan and a funeral plan? Should these plans be for young and old - well and unwell? What does the CQC say? This blog, by Irene Tuffrey-Wijne, Professor of Intellectual Disability and Palliative Care at St Georges NHS Foundation Trust, should give you some of these answers.
  19. Content Article
    Time to Talk Mental Health UK is a fully private and confidential Facebook Community. The community is highly interactive and fully moderated. They provide a safe place for people to talk about their mental health in confidence with others who understand. In addition, they provide events, regular clubs and a library of resources.  The community enables consistent support, which may otherwise be lacking in the mental health care package.
  20. Content Article
    Having surgery can be a daunting experience for most people. Staff at the Princess of Wales Hospital in Bridgend, Wales, have recognised this, especially in their patients with complex needs. The reasonable adjustments that they have put in place to ensure their patients receive a bespoke, calming, safe experience won them an NHS Wales Award in 2016 in the Citizens at the Centre of Service Redesign and Delivery category.
  21. Content Article
    Action against Medical Accidents (AvMA) provides a list of patients/family members with lived experience of patient safety issues who can speak at events, help with training, or provide consultancy.
  22. Content Article
    Venous thromboembolism (VTE) is responsible for over 25,000 deaths a year in the UK, including 10% of hospital inpatient deaths. A House of Commons report in 2005 led to the development of guidance by the National Patient Safety Agency (NPSA), the National Institute for Health and Clinical Excellence (NICE) and the Chief Medical Officer, for the safe use of anticoagulants and other measures to prevent VTE (deep vein thrombosis and pulmonary embolism). VTE prevention is a patient safety priority for the National Health Service (NHS).
  23. Content Article
    Technology is often viewed as either positive or negative. On one hand weight loss apps are usually seen as a positive influence on users. From the sociocultural perspective, on the other hand, media and technology can negatively impact body satisfaction and contribute to eating disorders; however, these studies fail to include weight loss apps. While these apps can be beneficial to users, they can also have negative effects on users with eating disorder behaviours. Yet few research studies have looked at weight loss apps in relation to eating disorders. In order to fill this gap,these researchers conducted interviews with 16 women with a history of eating disorders who use(d) weight loss apps. While findings suggest these apps can contribute to and exacerbate eating disorder behaviours, they also reveal a more complex picture of app usage. Women’s use and perceptions of weight loss apps shift as they experience life and move to and from stages of change. This research troubles the binary view of technology and emphasises the importance of looking at technology use as a dynamic process. This study contributes to the understanding of weight loss app design.
  24. Content Article
    This article, published by the University of Hertfordshire, addresses the need for reasonable adjustments, and other issues, by using examples of: a hospital passport assessing the mental capacity of a person how to improve care provided how to reduce clinical risks for people with intellectual disability.
  25. Content Article
    STOMP stands for stopping over medication of people with a learning disability, autism or both with psychotropic medicines. It is a national project involving many different organisations which are helping to stop the over use of these medicines. STOMP is about helping people to stay well and have a good quality of life. Psychotropic medicines affect how the brain works and include medicines for psychosis, depression, anxiety, sleep problems and epilepsy. Sometimes they are also given to people because their behaviour is seen as challenging. People with a learning disability, autism or both are more likely to be given these medicines than other people. These medicines are right for some people. They can help people stay safe and well. Sometimes there are other ways of helping people so they need less medicine or none at all.
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