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Found 385 results
  1. News Article
    Patients with long Covid are facing a postcode lottery across the UK when it comes to getting care, nurses say. The Royal College of Nursing (RCN) said treatment varied hugely with some services treating it as a physical condition, but others as psychological. The union also highlighted long waits in parts of England, which has a network of specialist clinics. It warned that patients in Scotland and Wales may be missing out because of a lack of dedicated clinics. Speaking at the RCN's conference in Glasgow, nurses said they had seen first-hand how debilitating the symptoms could be. Nearly half of patients referred to specialist services are aged 35 to 54. Jo Strucke, a mental health nurse who works in a specialist service in Yorkshire, said: "Some of our patients have really complex physical health problems and their lives have been transformed. "They may be unable to work, socialise and do things they previously enjoyed." Helen Donovan, the RCN's public health lead, added: "As nursing staff we see first-hand how life-limiting long Covid can be." But she said: "There aren't enough specialist services to meet growing demand and the help patients get varies hugely across the country." Read full story Source: BBC News, 7 June 2022
  2. News Article
    Few of the 23 million Americans with lingering symptoms are getting answers – in this dangerous void, alternative providers and wellness companies have created a cottage industry of Long Covid miracle cures. Some doctors ply controversial blood tests that claim to identify evidence of the elusive disease. Other practitioners speak assuredly about the benefits of skipping breakfast and undergoing ozone therapy, or how zinc can bring back loss of taste or smell. Some desperate patients have gone overseas for controversial stem cell therapy. Over the next seven years, the global complementary and alternative medicine industry is expected to quadruple in value; analysts cite alternative Covid therapies as a reason for growth. Robert McCann, a 44-year-old political strategist from Lansing, Michigan, sleeps for 15 hours – and when he wakes up, he still finds it impossible to get out of bed. Sometimes he wakes up so confused that he’s unsure what day it is. McCann tested positive for Covid in July 2020. He had mild symptoms that resolved within about a week. But a few months later, pain, general confusion and debilitating exhaustion returned and never fully left. He says he’s skeptical of “miracle cures”. But, after about 17 months of illness and no relief from doctor’s visits, he’s desperate. “I’ll just be frank,” he told me, “if someone has mentioned on the Subreddit that it’s helped them, I’ve probably bought it and tried it.” Read full story Source: The Guardian, 2 June 2022
  3. News Article
    Many people with Long Covid have a lower health-related quality of life than people with some advanced cancers, research suggests. Fatigue is the symptom with the greatest impact on the daily lives of Long Covid patients, according to a study led by researchers at University College London (UCL) and the University of Exeter. They found that many were seriously ill and had fatigue scores worse than or similar to people with cancer-related anaemia or severe kidney disease. Their health-related quality of life scores were also lower than those of people with advanced metastatic cancers, such as stage 4 lung cancer. Overall, the impact of long Covid on the daily activities of patients was worse than that for stroke patients and comparable to people with Parkinson’s disease. The study co-author Prof William Henley, of Exeter University medical school, said: “Long Covid is an invisible condition, and many people are left trying to manage significant changes to how they can function. “Shockingly, our research has revealed that Long Covid can leave people with worse fatigue and quality of life than some cancers, yet the support and understanding is not at the same level. We urgently need more research to enable the development of evidence-based services to support people trying to manage this debilitating new condition.” Read full story Source: The Guardian, 8 June 2023
  4. News Article
    Inadequate health visiting provision has led to gaps in care for children and heaped pressure on acute services, senior clinicians have told HSJ. Government data suggests that a fifth of infants are not receiving one or more of their five mandatory health visiting reviews across the first two years of life, with rates still substantially below pre-covid levels. Meanwhile, nationally about 1 in 10 children are still being seen virtually, contrary to the government’s delivery model and despite clinicians saying in-person contact is vital to spotting problems. Senior figures in children’s services told HSJ that in some areas a much higher rate was still being carried out with no in-person contact. Clinicians said the reasons were ongoing funding and staffing constraints, and that the problems were leading to parents turning to emergency departments and GPs instead. Read full story (paywalled) Source: HSJ, 20 April 2023
  5. Content Article
    The Covid-19 pandemic has thrown a spotlight on the treatment of NHS staff and their perceived value to their employers.  An estimated two million people in the UK have Long Covid, including many thousands of NHS workers, so why do we hear so little about it? In this BMJ article, a doctor in the NHS who has Long Covid explains why he is disappointed by the collective silence and the lack of protections and support mechanisms in place.
  6. Content Article
    Young people from across the UK reflect on how the pandemic is still affecting their lives and their plans for the future, 18 months after the end of the third national lockdown.
  7. Content Article
    This article in Science News looks at the impact of the growing global burden of Long Covid during 2022. It describes "a tidal wave of people with lingering symptoms—some mild, some profoundly disabling" which has commanded the attention of researchers and doctors, who are still looking for answers on how to diagnose and treat Long Covid. The article also highlights risk factors, symptoms and the need to focus on people whose lives are most severely restricted by the condition.
  8. Content Article
    This study in eClinicalMedicine aimed to bring together the global evidence on the prevalence of persistent symptoms in people who had experienced Covid-19 infection. The authors found, across the 194 studies included in the systematic review, that 45% of Covid-19 survivors, regardless of hospitalisation status, were experiencing a range of unresolved symptoms at around four months after infection. The authors state that current understanding is limited by heterogeneous study design, follow-up durations and measurement methods, and highlight that definition of subtypes of Long Covid is unclear, which hampers effective treatment and management strategies.
  9. News Article
    Just a “fraction” of people with Long Covid is getting the help they need, with a third of them waiting more than three and a half months to be assessed after a GP referral, rising to almost half in some areas. More than 60,000 people in England had a first assessment for post-Covid syndrome in an NHS specialist service between July 2021 and August 2022. But the latest estimates released by the Office for National Statistics (ONS) show that about 277,000 people with Long Covid in England report that the disease has limited their day-to-day activities “a lot”. These are the people that experts would expect to be referred for an assessment; however, the numbers who have been seen are far lower. Dr Helen Salisbury, a GP and columnist for the BMJ, said: “A fraction of the people who have got this problem are actually being seen” within the existing services. She said reasons could include patients not realising that the help is available to them; GPs not recognising Long Covid in those who do not self-label as having the condition; and a lack of knowledge of, and local access to, specialised clinics. While Salisbury conceded that there was no current cure for long Covid, she added that patients require treatment that involves symptom management, psychology and knowing they are not alone in their diagnosis. Ondine Sherwood, a co-founder of the advocacy charity Long Covid SOS, said many people with long Covid “are struggling to get any healthcare. Many are not getting any treatment at all.” She said public misconceptions around long Covid made it harder for sufferers to ask for and get help. “There was a lack of preparedness for the potential long-term morbidity which was not conveyed to healthcare professionals and this has contributed to the lack of care for long Covid.” Read full story Source: The Guardian, 27 October 2022
  10. News Article
    Long Covid clinics across Australia are being inundated with requests for assessments from patients struggling with ongoing symptoms, an inquiry has heard. Doctors told the federal parliamentary inquiry into long and repeated coronavirus infections that they were struggling to keep up with demand as waitlists increased. At least 10 million Australians have been infected with Covid and it is estimated 3-5% will develop Long Covid at some point. “Our waitlist is increasing because what we’ve observed is that it can take some time for the recognition of post-Covid conditions, particularly with the fatigue-predominant types, to reach us,” Royal Children’s hospital Associate Prof Shidan Tosif told the inquiry on Wednesday. Patients are usually referred to specialist clinics through a GP and while there is no official cure, symptoms can sometimes be treated on a case-by-case basis. The inquiry by the House of Representatives health committee is investigating the economic, social, educational and health impacts of long Covid and repeat infections. Read full story Source: The Guardian, 12 October 2022
  11. News Article
    Long Covid is “devastating” the lives and livelihoods of tens of millions of people, and wreaking havoc on health systems and economies, the head of the World Health Organization (WHO) has warned as he urged countries to launch “immediate” and “sustained” efforts to tackle the “very serious” crisis. The world has never been in a better position to end the Covid-19 pandemic, but it is also “very clear” that many of those infected by the virus, which first emerged in China in late 2019, are still experiencing “prolonged suffering”, the WHO director general, Dr Tedros Adhanom Ghebreyesus, said. With the absence of evidence about how best to treat it, Long Covid is turning people’s lives upside down, and many face “often lengthy” and “frustrating” waits for support or guidance, Tedros said. The large numbers of those cruelly affected by the long tail of Covid is also having a dangerous impact on health systems and economies still reeling from waves of infections. “While the pandemic has changed dramatically due to the introduction of many lifesaving tools, and there is light at the end of the tunnel, the impact of long Covid for all countries is very serious and needs immediate and sustained action equivalent to its scale,” Tedros said, writing for the Guardian. Countries must now “seriously ramp up” both research into the condition and access to care for those affected if they are to “minimise the suffering” of their populations and protect their health systems and workforces. Read full story Source: The Guardian, 12 October 2022
  12. News Article
    More than 1 million people in the UK have long Covid at least one year after they were first infected, new figures reveal. The data, released by the Office for National Statistics (ONS) on Thursday, comes as other figures suggest the number of Covid patients admitted to hospital in England is continuing to rise amid a new wave of the virus. As of 3 September, an estimated 2.3 million people living in private households in the UK – 3.5% of the population – had Long Covid, equivalent to one in every 28 people. Ondine Sherwood, a co-founder of the advocacy group and charity Long Covid SOS, says the number of people now reporting long Covid – 342,000 of whose lives are “severely impacted” as result – illustrates that this is “not just a personal tragedy but a societal, health and workforce problem”. Danny Altmann, professor of immunology at Imperial College London and expert on long Covid, described the situation as deeply disappointing, noting that while the number of people with long Covid appeared to dip over the summer, it is now clear there is a definite, ongoing, upwards trend. “This reinforces the message that it’s really foolhardy to imagine we can laugh off a massive, growing BA.5 wave as ‘living with the virus’ and ‘no worse than flu’,” he said. “Long Covid and even long Covid from the 2022 Omicron waves continues to wreck lives in people of all ages. I do wish we could just remind everyone to take this seriously – get boosted, keep indoor meetings well ventilated, wear masks indoors and for travel.” Read full story Source: The Guardian, 6 October 2022
  13. News Article
    The global response to the first two years of the Covid-19 outbreak failed to control a pandemic that has led to an estimated 17.7 million deaths to date, a major review has concluded. The Lancet Commission on lessons for the future from the Covid-19 pandemic, produced by 28 world leading experts and 100 contributors, cites widespread failures regarding prevention, transparency, rationality, standard public health practice, operational coordination, and global solidarity. It concludes that multilateral cooperation must improve to end the pandemic and manage future global health threats effectively. The commission’s chair, Jeffrey Sachs, who is a professor at Columbia University and president of the Sustainable Development Solutions Network, said, “The staggering human toll of the first two years of the Covid-19 pandemic is a profound tragedy and a massive societal failure at multiple levels.”In its report, which used data from the first two years of the pandemic and new epidemiological and financial analyses, the commission concludes that government responses lacked preparedness, were too slow, paid too little attention to vulnerable groups, and were hampered by misinformation.Read full story Source: BMJ, 14 September 2022
  14. Content Article
    In this blog, published by the World Health Organization, we hear about one family's experience of long Covid. Claire Hastie and her children are yet to recover and continue to experience numerous debilitating symptoms that prevent them from taking part in their pre-covid occupations.  WHO/Europe has also been working with patient groups to define priority areas where action is needed. It is now calling upon governments and authorities to focus attention on long COVID and its sufferers through greater: recognition: all services must be adequately equipped, and no patient should be left alone or have to struggle to navigate through a system that is not prepared to, or not capable of, recognizing this very debilitating condition;  research and reporting: data gathering and reporting of cases, and well-coordinated research with full participation of patients, are needed to advance understanding of the prevalence, causes and costs of long COVID; and  rehabilitation: this cost-effective intervention is an investment in building back healthy and productive societies.
  15. Content Article
    With the NHS often characterised as being trapped in a permacrisis, what can be done to shift the dial? In this NHS Confederation podcast, Daniel Elkeles, chief executive of the London Ambulance Service NHS Trust, talks about improvements in the urgent and emergency care pathway, shifting the narrative on primary care and busting the barriers holding the health and care system back. With industrial action taking a toll, Daniel, who leads the world’s largest ambulance service, sheds light on the untold impact of strikes, the effect on long-term innovation and recovery and why culture change in the ambulance service is top of his mission list.
  16. Content Article
    This document offers advice and guidance for people with Long Covid who are having difficulties communicating with others as a result of their symptoms. It explains how Long Covid can impair communication by affecting speech, language and voice. It also outlines how many people are affected by Long Covid-related communication issues, explains how speech and language therapists can help and offers simple tips on how to improve communication with Long Covid.
  17. Content Article
    This study in the journal Acta Neuropathologica Communications examined neuropathological findings of patients who died following hospitalisation in an intensive care unit with Covid-19. The researchers conducted brain autopsy on 20 people who had died, followed by ex-vivo imaging and dissection. They found that acute tissue injuries and microglial activation were the most common abnormalities discovered in Covid-19 brains. They also found evidence of encephalitis-like changes despite the lack of detectable virus. The majority of older subjects showed age-related brain conditions even in the absence of known neurologic disease. The findings of this study suggest that acute brain injury alongside common pre-existing brain disease may put older subjects at higher risk of post-Covid neurological issues.
  18. News Article
    More than two million people in the UK say they have symptoms of Long Covid, according to the latest Office for National Statistics (ONS) survey. Many long Covid patients now report Omicron was their first infection. But almost three years into the pandemic there is still a struggle to be seen by specialist clinics, which are hampered by a lack of resources and research. So has the condition changed at all, and have treatments started to progress? NICE defines Llong Covid, or post-Covid syndrome, as symptoms during or after infection that continue for more than 12 weeks and are not explained by an alternative diagnosis. An estimated 1.2m of those who answered the ONS survey reported at least one such symptom continuing for more than 12 weeks - health issues that they didn't think could be explained by anything else. It's easy to assume that new cases of long Covid have significantly decreased, given recent research suggesting the risk of developing long Covid from the Omicron variant is lower. However, the sheer scale of cases over the past year has resulted in more than a third of people with long Covid acquiring it during the Omicron wave, according to the ONS. Patients are usually referred to post-Covid assessment clinics after experiencing symptoms for 12 weeks - however, waiting times have not improved much within the past year. The latest NHS England figures show 33% of Londoners given an initial assessment had to wait 15 weeks or more from the time of their referral, compared to 39% from a similar period in 2021. The British Medical Association (BMA) has called on the government to increase funding for Long Covid clinics to deal with ever-increasing patient numbers. The BMA says that NHS England's 2022 strategy set out in July failed to announce any new funding. Read full story Source: BBC News, 18 November 2022
  19. News Article
    Greater NHS support is needed for people chronically ill for months with COVID-19 symptoms, experts have told BBC Radio 4's File on 4. The Royal College of GPs is calling for a national network of "post-Covid" clinics to help such people. But less than 12% of 86 NHS care commissioning groups asked by the BBC said they were running such services. NHS England said it was "rapidly expanding new and strengthened rehab centres". Tim Spector, professor of genetic epidemiology at King's College London and leader of the Covid Symptom Study app, said around 300,000 people in the UK have reported symptoms lasting for more than a month - so called "long Covid". He added that data from the app showed around 60,000 people have been ill for more than three months. However, many of these people may not have been tested for Covid. The government moved away from community testing on 12 March, instead only testing those admitted to hospital. That meant people who recovered from suspected coronavirus at home were unable to access tests. Elly MacDonald, 37, from Surbiton, was training for the London Marathon when she first developed what she believes were Covid symptoms on 21 March. More than five months on, she still suffers from breathlessness and extreme fatigue, but has not received a positive test result - because community testing was re-introduced too late for it to detect her illness. She changed her GP practice after initially feeling she was not being helped. Elly said: "Just knowing that I actually have people who are taking me seriously - that's been very important for my recovery. I just want my life back." Read full story Source: BBC News, 8 September 2020
  20. News Article
    The lungs and hearts of patients damaged by the coronavirus improve over time, a study has shown. Researchers in Austria recruited coronavirus patients who had been admitted to hospital. The patients were scheduled to return for evaluation 6, 12 and 24 weeks after being discharged, in what is said to be the first prospective follow-up of people infected with COVID-19, which will be presented at today's European Respiratory Society International Congress. Clinical examinations, laboratory tests, analysis of the amounts of oxygen and carbon dioxide in arterial blood, and lung function tests were carried out during these visits. At the time of their first visit, more than half of the patients had at least one persistent symptom, predominantly breathlessness and coughing, and CT scans still showed lung damage in 88% of patients. But by the time of their next visit, 12 weeks after discharge, the symptoms had improved, and lung damage was reduced to 56%. Dr Sabina Sahanic, a clinical PhD student at the University Clinic in Innsbruck and part of the team that carried out the study, said: "The bad news is that people show lung impairment from COVID-19 weeks after discharge; the good news is that the impairment tends to ameliorate over time, which suggests the lungs have a mechanism for repairing themselves." A separate presentation to the congress said that the sooner COVID-19 patients started a pulmonary rehabilitation programme after coming off ventilators, the better and faster their recovery. Yara Al Chikhanie, a PhD student at the Dieulefit Sante clinic for pulmonary rehabilitation and the Hp2 Lab at the Grenoble Alps University in France, used a walking test to evaluate the weekly progress of 19 patients who had spent an average of three weeks in intensive care and two weeks in a pulmonary ward before being transferred to a clinic for pulmonary rehabilitation. She said: "The most important finding was that patients who were admitted to pulmonary rehabilitation shortly after leaving intensive care progressed faster than those who spent a longer period in the pulmonary ward where they remained inactive. The sooner rehabilitation started and the longer it lasted, the faster and better was the improvement in patients' walking and breathing capacities and muscle gain." Read full story Source: The Independent, 7 September 2020
  21. News Article
    Nearly three-quarters of coronavirus patients admitted to hospital suffer ongoing symptoms three months later, new research suggests. A total of 81 patients out of 110 discharged from Southmead Hospital in Bristol were still experiencing symptoms from the virus, including breathlessness, excessive fatigue and muscle aches, after 12 weeks. Many were struggling to carry out daily tasks such as washing, dressing or going back to work, the study found. The majority of patients reported improvements in the initial symptoms of fever, cough and loss of sense of smell, and most had no evidence of lung scarring or reductions in lung function. The findings are part of North Bristol NHS Trust's Discover project, which is studying the longer-term effects of coronavirus - so-called Long COVID. An intensive care doctor, Dr Jake Suett, told Sky News in June that he was still suffering COVID-19 symptoms three months after contracting the disease. Dr Jake Suett, 31, had no underlying health conditions but was still suffering chest pain, breathlessness, blurred vision, memory loss, a high temperature, concentration problems. Dr Rebecca Smith, from North Bristol NHS Trust, said: "There's still so much we don't know about the long-term effects of coronavirus, but this study has given us vital new insight into what challenges patients may face in their recovery and will help us prepare for those needs." Read full story Source: Sky News, 20 August 2020
  22. News Article
    A third of doctors have treated patients with long term COVID-19 symptoms, including chronic fatigue and anosmia, a survey conducted by the BMA has found. Richard Vautrey, chair of the BMA’s GP committee for England, said it was clear that the long term impact of COVID-19 on patients and the NHS would be profound. “With more patients presenting with conditions as the result of infection, it’s essential that sufficient capacity is in place to support and treat them,” Vautrey said. “With the growing backlog of non-COVID-19 treatment, the likelihood of a season flu outbreak, and the possibility of a second wave of infections we need to see a more comprehensive long term plan to enable doctors to care for their patients this winter and beyond.” The survey also asked doctors about their own experiences of COVID-19: 63% said they did not believe they had contracted the virus, 12% had had a diagnosis of COVID-19 confirmed by testing, and 14% believed they had been infected with the virus. David Strain, co-chair of the BMA’s medical academic staff committee, said that the NHS could not afford more failures of quality and supply in personal protective equipment. “Risk assessments should be available to all working in the NHS and appropriate steps should be put in place to mitigate the risk of catching the virus, even in those that have a low risk of a bad outcome from the initial infection,” he said. Read full story Source: BMJ, 13 August 2020
  23. News Article
    Coronavirus patients who have lived with symptoms for up to five months have spoken about the huge impact it has had on their lives. "Long Covid" support groups have appeared on social media and the government says "tens of thousands" of people have long-term problems after catching the virus, such as extreme fatigue. Daliah, from Borehamwood, Hertfordshire, said: "It's scary because we don't know how permanent this is. There are times where I feel like life will never be normal again, my body will never be normal again." The NHS has launched a Your Covid Recovery website to offer support and advice to people affected. See video here
  24. News Article
    Health Secretary Matt Hancock has announced one of the world’s largest comprehensive research studies into the long-term health impacts of coronavirus on hospitalised patients. Backed by an award of £8.4m in funding by the Government, through UK Research and Innovation (UKRI) and the National Institute for Health Research (NIHR), the study is expected to include around 10,000 across the UK and will support the development of new measures to treat NHS patients with coronavirus. The study will be led by the NIHR Leicester Biomedical Research Centre, a partnership between the University of Leicester and University Hospitals of Leicester NHS Trust and will draw on the expertise of a consortium of leading researchers and doctors from across the UK. They will assess and publish findings on the impact of COVIDd-19 on patient health and their recovery, including looking at potential ways to help improve the mental health of patients hospitalised with the virus and how individual characteristics such as gender and ethnicity influence recovery. Patients on the study from across the UK will be assessed using techniques such as advanced imaging, data collection and analysis of blood and lung samples, creating a comprehensive picture of the impact COVID-19 has on longer-term health outcomes. The findings will support the development of new strategies for clinical and rehabilitation care, including personalised treatments based on the particular disease characteristics that a patient shows, to improve their long-term health. Read full story Source: National Health Executive, 10 August 2020
  25. News Article
    I fell sick on 25 March. Four months later, I’m still dealing with fever, cognitive dysfunction, memory issues and much more I just passed the four-month mark of being sick with Covid. I am young, and I had considered myself healthy. My first symptom was that I couldn’t read a text message. It wasn’t about anything complex – just trying to arrange a video call – but it was a few sentences longer than normal, and I couldn’t wrap my head around it. It was the end of the night so I thought I was tired, but an hour later I took my temperature and realized I had a fever. I had been isolating for 11 days at that point; the only place I had been was the grocery store. My Day 1 – a term people with Long Covid use to mark the first day of symptoms – was 25 March. Four months later, I’m still dealing with a near-daily fever, cognitive dysfunction and memory issues, GI issues, severe headaches, a heart rate of 150+ from minimal activity, severe muscle and joint pain, and a feeling like my body has forgotten how to breathe. Over the past 131 days, I’ve intermittently lost all feeling in my arms and hands, had essential tremors, extreme back, kidney and rib pain, phantom smells (like someone BBQing bad meat), tinnitus, difficulty reading text, difficulty understanding people in conversations, difficulty following movie and TV plots, sensitivity to noise and light, bruising, and petechiae – a rash that shows up with Covid. These on top of the CDC-listed symptoms of cough, chills and difficulty breathing. Read the full article here.
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