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Found 385 results
  1. Content Article
    A national bespoke system, called NHS e-Review, has been developed and launched as part of the NHS Covid Incident Recovery programme. The online system has been developed to support clinicians record the clinical priority of patients on a waiting list and to identify alternative pathways for patients if required.
  2. Content Article
    Patient Safety Learning’s response to the announcement by the NHS on the 7 October 2020 of a new five-part package of measures to boost support for Long Covid patients.
  3. Content Article
    The Centre for Perioperative Care (CPOC) has now published, perhaps for the first time on this scale, comprehensive evidence that the perioperative pathway is associated with higher quality clinical outcomes, reduced financial cost and better satisfaction for surgical patients. This triad is the holy grail of healthcare. Dr David Selwyn, Director of the Centre for Perioperative Care, and Mr Mark Weiss, Head of Policy and Public Affairs, Royal College of Anaesthetists have written this blog in line with CPOC's own rapid research review that highlights the impact of perioperative care and their pioneering new evidence. "Now is the time to ensure that every surgical patient’s journey is delivered along a single, coordinated care pathway, supported by an appropriate multi-professional team. Now is the time to deliver seamless communication and collaboration between primary, secondary and community care. Now is the time to review our patient flows and how we counsel and prepare patients for surgery. And now is the time to empower patients through shared decision-making and personalised care, and to change the postoperative course with emphasis on enhanced recovery. "
  4. Content Article
    As trusts consider clearing the waiting list, there is an absence of objective approaches to prioritisation. There are 40 million variations of operative type and the NHS elective waiting list may reach more than 10 million. A coronavirus second wave may cause further delays and expansion of the waiting list. This blog from hub topic lead Richard Jones describes a proven approach to prioritising the waiting list built around individualised risk-adjustment for each patient and evolved from the core POSSUM methodology that is widely used for individual risk assessment pre-operatively.
  5. Content Article
    This review explores the benefits of multidisciplinary team working to support people having surgery and the factors that may help and hinder its development and sustainability. Perioperative care is the integrated multidisciplinary care of patients from the moment surgery is contemplated through to full recovery. Multidisciplinary working, whereby professionals from different specialties and sectors work together to support someone along their journey, is a foundation of perioperative care. The Centre for Perioperative Care (CPOC) wanted to explore the benefits of, and barriers and enabler to, multidisciplinary team working. The rapid review summarises learning from 236 UK and international studies about this. About 13% of the studies were from the UK. To identify relevant research, 14 bibliographic databases were searched and screened more than 18,000 articles available as of June 2020.  
  6. Content Article
    Myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS) is characterised by persistent and disabling fatigue, exercise intolerance, cognitive difficulty, and musculoskeletal/joint pain. Post-exertional malaise is a worsening of these symptoms after a physical or mental exertion and is considered a central feature of the illness. Scant observations in the available literature provide qualitative assessments of post-exertional malaise in patients with myalgic encephalomyelitis/chronic fatigue syndrome. To enhance our understanding, Stussman et al. formed focus groups and listened to patients’ experiences to better understand post-extertional malaise. The authors found that the experience of post-exertional malaise in ME/CFS varies greatly between individuals and leads to a diminished quality of life. ME/CFS patients describe post-exertional malaise as all-encompassing with symptoms affecting every part of the body, difficult to predict or manage, and requiring complete bedrest to fully or partially recover. Given the extensive variability in patients, further research identifying subtypes of post-exertional malaise could lead to better targeted therapeutic options. 
  7. Content Article
    Patient Safety Learning has been raising awareness of the safety concerns surrounding the care and treatment of people with persisting symptoms of COVID-19 long after initial infection, sometimes referred to as "long haulers" or having "Long COVID". We recently published a joint blog with patient group Long Covid Support, outlining our concerns and calling for a more coordinated response, led by a dedicated Long COVID Minister. Yahoo News senior editor Ed Hornick has been fighting the lingering symptoms of COVID-19 for over 10 months. "I have abnormal heart, gastrointestinal, and kidney functioning. I sleep with oxygen. Daily debilitating migraine headaches seem to be at a pain level 12; a noticeable tremor in my left hand comes and goes, and my leg muscles twitch uncontrollably. I get so dizzy from standing up that I nearly pass out. I’m often hit with a sense of jamais vu, the big sister of deja vu. I forget friends’ names and often repeat the same story in a conversation." Follow the link below to read his full story on Yahoo Life.
  8. Content Article
    According to the Office for National Statistics (ONS), around one in five people who tested positive for COVID-19 had symptoms that lasted for five weeks or longer, and one in 10 people had symptoms that lasted for 12 weeks or more. This article, published in Which, looks at some of the challenges facing people living with persisting symptoms months after their initial infection and provides tips for accessing support. Content includes: What is Long COVID? Talking to your GP and specialist referrals Long COVID clinics Managing Long COVID at home Support groups and research projects Financial support Living with Long COVID – Francesca’s story How to support someone with Long COVID.
  9. Content Article
    This blog, published in the Journal of Orthopaedic and Sports Physiotherapy, is written by a group of rehabilitation professionals with personal experience of Long COVID. Professionally, they would often advocate for exercise as a first-line intervention. However, in their personal lives they have found themselves contradicting their professional recommendations. In this blog blog post, they share their: battle adapting to an altered lifereluctant acceptance of reduced function (even temporary) to balance rest and usual activities fear of permanent reductions in physical and cognitive abilities.
  10. Content Article
    The scale of the emergency response to the COVID-19 pandemic has been extraordinary, but what comes next? The King's Fund spoke with people involved in response efforts for disasters from around the world, from the Christchurch earthquakes in New Zealand to the Grenfell Tower fire in London, to understand what the health and care system can learn from the experience of recovery from other disasters as it responds to the pandemic.
  11. Content Article
    In The Lancet correspondence, Norton and colleagues on behalf of the ISARIC and GloPID-R Long COVID Forum Working Group, write following an international, multistakeholder forum, in which peoples’ voices were central, to expand the call to action and to identify how we can prevent long COVID from becoming the long-lasting legacy of COVID-19.
  12. Content Article
    “Long Covid” was first used by Elisa Perego as a Twitter hashtag in May to describe her own experience of a multiphasic, cyclical condition that differed in time course and symptomatology from the bi-phasic pathway discussed in early scientific papers, which focused on hospitalised patients. Just three months later, following intense advocacy by patients across the world, this patient made term has been taken up by powerful actors, including the World Health Organization. Politicians have used it too: Matt Hancock, UK health secretary, explained to a parliamentary committee that “the impact of long covid can be really debilitating for a long period of time.” “Long Covid” has clearly struck a chord. However, it’s not the only term being used to describe persistent symptoms: we’ve also seen post-acute COVID-19, postcovid syndrome, and chronic COVID-19. In this BMJ Opinion article, Elizabeth Perego and colleagues explains why, as patients and professionals, they see “Long Covid” as better able to navigate the socio-political, as well as clinical and public health challenges, posed by the pandemic in the coming month.
  13. Content Article
    A study from Chamberlain et al. examined post-traumatic stress disorder (PTSD) symptoms in 13 049 survivors of suspected or confirmed COVID-19, from the UK general population, as a function of severity and hospital admission status. Compared with mild COVID-19, significantly elevated rates of PTSD symptoms were identified in those requiring medical support at home, those requiring hospital admission without ventilation and those requiring hospital admission with ventilator support. Intrusive images were the most prominent elevated symptom. Adequate psychiatric provision for such individuals will be of paramount importance.
  14. Content Article
    Official statistics indicate there are currently hundreds of thousands of people living with Long Covid in the UK. Many of those who contracted Covid-19 at the start of the pandemic are still experiencing significant symptoms almost a year on from their initial infection; some have already passed that grim milestone. Meanwhile, we can expect case numbers of Long Covid to rise significantly as people continue to become infected; recent data shows that at least 1 in 10 people still experience symptoms 12 weeks after initial infection.[1] The implications of Long Covid for individual patients, our health service and wider society are multifaceted, complex and likely to be long-term. There has been some progress to put in place support for people with Long Covid, but many are yet to receive help. Call to action Patient Safety Learning and patient group Long Covid Support are calling for an urgent and significant increase in the scale and pace of the response, and a coordinated, multi-stakeholder approach. We are calling for this to be set up and led by a dedicated Minister for Long Covid, responsible for: Assessment of the issues affecting people with Long Covid, whether or not they were hospitalised (physical and mental health, employment, welfare, education). Delivery plans for meeting the needs of people living with Long Covid. Cross-government coordination and communication. Public information and awareness raising around Long Covid. Data collection, measurement and reporting on the number of adults and children with Long Covid to inform service planning and funding. Identifying research needs, commissioning research and ensuring this informs service delivery. Delivery of a communication and engagement strategy to all key stakeholders.
  15. Content Article
    The Health Foundation policy tracker provides a description and timeline of national policy and health system responses to COVID-19 in England in 2020. The full tracker includes data on what changes have been introduced, when, why, and by whom – as well as how these changes have been communicated by policymakers. We track policy changes in five areas – from health and care system changes to wider social and economic policy.
  16. Content Article
    The Faculty of Occupational Medicine (FOM) has published guidance for healthcare professionals to assist them in facilitating the return to work of people who are unable to work due to Long-COVID. Follow the link below or download the guidance as a pdf.
  17. Content Article
    This letter to the UK Prime Minister and published in the BMJ, was written on behalf of the Long COVID SOS Group. In it, the group call for Boris Johnson to make Long COVID a primary consideration in policy decision making for lifting restrictions. 
  18. Content Article
    In this short blog, Stephanie O'Donohue, Content and Engagement Manager for the hub, reflects on the inner turmoil many NHS staff are experiencing as they are having to spread themselves, and their care, thin.
  19. Content Article
    As part of March for Change's efforts to improve the government’s response to COVID-19, Long Covid week (11-15 January 2021) highlighted the experiences of the hundreds of thousands of people living with Long Covid with a briefing for politicians; the first ever Parliamentary debate on Long Covid in the House of Commons; and a live Q&A event on Long covid with a panel of MPs and experts.
  20. Content Article
    In this section of Kate Borsay's Time Radio programme (listen from 1:08), we hear from three patients who are suffering debilitating and long term symptoms of COVID-19, in some cases more than a year after first feeling unwell. They are joined by former Minister of State (Department of Health), Norman Lamb and Dr David Arnold as they discuss the widespread impact on people's lives, the growing number of people suffering and the need for greater support and resource for this growing crisis.
  21. Content Article
    A significant number of patients with COVID-19 experience prolonged symptoms, known as Long COVID. Few systematic studies have investigated this population, particularly in outpatient settings. Hence, relatively little is known about symptom makeup and severity, expected clinical course, impact on daily functioning, and return to baseline health.  Davis et al. conducted an online survey of people with suspected and confirmed COVID-19, distributed via COVID-19 support groups and social media. Patients with Long COVID reported prolonged, multisystem involvement and significant disability. By seven months, many patients have not yet recovered (mainly from systemic and neurological/cognitive symptoms), have not returned to previous levels of work, and continue to experience significant symptom burden.
  22. Content Article
    The Queen’s Nursing Institute has published a resource for community nurses caring for people living with COVID-19. Commissioned by NHS England and NHS Improvement, ‘Living with COVID-19 (Long Covid) and Beyond’ provides information to support nurses working in community, care homes and primary care and also to the wider multi-disciplinary team including clinical knowledge, care responses and skills when caring for people during their recovery and rehabilitation. It is predicted that there will be a ‘new wave’ of physical, mental and emotional health challenges as individuals enter recovery from COVID-19 infection – and for some this is combined with issues resulting from the social and economic impact of lockdown, such as isolation and unemployment. The resource also aims to help nurses assist people, families, carers and employers to work towards managing post COVID-19 symptoms, regaining everyday life activities and returning to independent living wherever possible. It includes information on physical care, psychological and neuro-psychological care, social impact and features several case studies.
  23. Content Article
    Four patients lie in comas in the Intensive Care Unit (ICU) at King's College Hospital in south London in March 2020. Each one has been struck down by COVID-19 during Britain's first surge. This intimate, feature-length observational documentary follows their stories - and their families' stories - over six months.
  24. Content Article
    This guideline covers identifying, assessing and managing the long-term effects of COVID-19, often described as ‘Long COVID’. It makes recommendations about care in all healthcare settings for adults, children and young people who have new or ongoing symptoms 4 weeks or more after the start of acute COVID-19. It also includes advice on organising services for Long COVID.
  25. Content Article
    Coverage from the Long Covid Forum 2020, in association with ISARIC and GLOPID-R LongCovid.org.
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