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Content ArticleThis framework from NHS England supports nurses, midwives and care staff in ensuring care remains at a high standard, as well as demonstrating the contribution to the Long Covid response. It aims to give the opportunity to embrace collective leadership in supporting people and communities served and showcase good practice as it emerges across England.
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Content ArticleThis practice pointer in The BMJ provides an update on treating Long Covid in primary care and outlines how healthcare professionals might respond to questions that patients ask about the condition. The article provides information on: Definition of Long Covid Epidemiology Symptoms and case definition Questions patients ask Further resources for patients and healthcare professionals
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Content ArticleLong Covid is politically problematic, medically uncertain, and personally scary. It is too easy to look away. In media narratives this summer the Covid-19 pandemic was eclipsed by the cost of living and climate crises. But in practice these crises co-exist and interact. Long Covid makes heatwaves and price hikes a whole lot harder to bear. Jo Maybin was healthy, triple vaxed, and had been down with Long Covid since February 2022. In this blog for The King's Fund, Jo describes how she feels and asks you not to look away from Long Covid, this ‘mass disabling event’, which is affecting 2 million people in the UK, and will likely have a direct impact on hundreds of thousands more this winter.
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EventuntilConnect Health “Change” has developed a series of webinars to make and embed transformation in healthcare. Aimed at system leaders and clinicians across the NHS, the webinars provide practical solutions to the challenging issues we are all grappling with. As the lasting effects of COVID-19 emerge from the near overwhelming demands on the acute services, the need for long term support and rehabilitation for survivors is becoming increasingly clear. But the how is still very much a matter up for debate. This webinar is a must for anyone involved in the design, delivery and commissioning of post COVID rehabilitation/ community services as well as those involved in public and population-health . The webinar will explore: Are traditional community services set up to provide COVID rehab? Or, is there a need for specialist services to focus on supporting COVID recovery? Who are the best clinicians to provide rehab to COVID patients? How we approach COVID rehab from a commissioning perspective? Registration
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EventThere is growing concern that a significant number of COVID-19 patients continue to experience persistent physical and mental symptoms weeks and months after first contracting the virus. Chaired by RSM President Professor Roger Kirby, this webinar will tackle the topic of ‘Long COVID’, hearing insights from Dr Alastair Miller, Deputy Medical Director at the JRCPTB, Dr Nisreen Alwan, Associate Professor in Public Health at the University of Southampton and Long COVID sufferer, and Dr Carolyn Chew-Graham, GP Principal in Central Manchester and Professor of General Practice Research at Keele University. The panel will look at the symptoms and diagnosis of Long COVID, discuss current research and evidence, hear experiences of living with Long COVID, and ask what needs to be done to manage this significant healthcare concern. The webinar will include plenty of opportunities for questions. All views expressed in this webinar are of the speakers themselves and not of The RSM. Please note this webinar will be recorded and stored by The RSM and may be used in the future on various internet channels. Registration
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ICUsteps Zoom Q&A webinar
Clive Flashman posted an event in Community Calendar
untilOur ICUsteps trustees and invited guests answer questions about recovery from critical illness and what patients and relatives can do to help support their recovery. Book here -
Content ArticleIn this blog, Patient Safety Learning reflects on the recent steps taken by the healthcare system in the UK to increase provision and support for people living with Long COVID. It then goes on to consider the importance of engagement and information sharing with patients, outlining suggestions where Patient Safety Learning feel the current NHS approach could be improved.
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Content ArticleNearly a year into the global coronavirus pandemic, scientists, doctors and patients are beginning to unlock a puzzling phenomenon: For many patients, including young ones who never required hospitalisation, COVID-19 has a devastating second act. Many are dealing with symptoms weeks or months after they were expected to recover, often with puzzling new complications that can affect the entire body—severe fatigue, cognitive issues and memory lapses, digestive problems, erratic heart rates, headaches, dizziness, fluctuating blood pressure, even hair loss. What is surprising to doctors is that many such cases involve people whose original cases weren’t the most serious, undermining the assumption that patients with mild COVID-19 recover within two weeks. Doctors call the condition “post-acute Covid” or “chronic Covid,” and sufferers often refer to themselves as “long haulers” or “long-Covid” patients. “Usually, the patients with bad disease are most likely to have persistent symptoms, but Covid doesn’t work like that,” said Trisha Greenhalgh, professor of primary care at the University of Oxford and the lead author of an August BMJ study that was among the first to define chronic Covid patients as those with symptoms lasting more than 12 weeks and spanning multiple organ systems. Other viral outbreaks, including the original SARS, MERS, Ebola, H1N1 and the Spanish flu, have been associated with long-term symptoms. Scientists reported that some patients experienced fatigue, sleep problems and joint and muscle pain long after their bodies cleared a virus, according to a recent review chronicling the long-term effects of viral infections. What differentiates COVID-19 is the far-reaching nature of its effects. While it starts in the lungs, it often affects many other parts of the body, including the heart, kidneys and the digestive and nervous systems, doctors said. “I haven’t really seen any other illness that affects so many different organ systems in as many different ways as Covid does,” said Zijian Chen, medical director for Mount Sinai Health System’s Center for Post-Covid Care. Read the full article in the Wall Street Journal.
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Content ArticleThis report from the Skills for Health reveals the extensive mental and physical health impact on the NHS, and health and care professionals across the UK, as a result of working and living through COVID-19. It also identifies organisational priorities for recovery, both as the country enters the next phase of the pandemic and for the longer term.
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Post Covid Syndrome
PatientSafetyLearning Team posted an article in Patient recovery
This is an online platform and information portal for post covid syndrome (also known as Long Haul Covid, Long Tail Covid and Long Covid). It has been designed to be a central point for patients, practitioners and researchers globally. -
Content ArticleLarge numbers of people are being discharged from hospital following COVID-19 without assessment of recovery. Mandal et al. followed 384 patients who had tested positive and had been treated at Barnet Hospital, the Royal Free Hospital or UCLH. Collectively the average length of stay in hospital was 6.5 days. The team found that 54 days after discharge, 69% of patients were still experiencing fatigue, and 53% were suffering from persistent breathlessness. They also found that 34% still had a cough and 15% reported depression. In addition 38% of chest radiographs (X-rays) remained abnormal and 9% were getting worse. The study has identified persisting symptoms and radiological abnormalities in a significant proportion of subjects. These data may assist with the identification of people outside expected recovery trajectories who could benefit from additional rehabilitation and/or further investigation to detect post-COVID complications.
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Content ArticleNHS Commissioning guidance to assist local healthcare systems to establish post-COVID assessment clinics for patients experiencing long-term health effects following COVID-19 infection.
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Your COVID recovery guidance (6 November 2020)
PatientSafetyLearning Team posted an article in Patient recovery
This NHS document outlines new guidance on accessing and referring into the digital COVID-19 rehabilitation programme, Your COVID Recovery.- Posted
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Content ArticleCOVID-19 survivors Fiona Lowenstein and Nikki Brueggeman share their experiences with the disease and how they navigated the healthcare system during the pandemic, and how they were inspired to become advocates for others.
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Content ArticleThe past several months have shown that most people hospitalized with COVID-19 will get better. As inspiring as it is to see these patients breathe on their own and converse with their loved ones again, we are learning that many will leave the hospital still quite ill and in need of further care. But little has been published to offer a detailed demographic picture of those being discharged from our nation’s hospitals and the types of community-based care and monitoring that will be needed to keep them on the road to recovery. Dr. Francis Collins takes a look at the current research.
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Content ArticleDr John Campbell, a retired A&E nurse, discusses the research and evidence on the long-term health consequences of COVID-19 in this video.
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Content ArticlePost-intensive care syndrome (PICS) is a nonspecific syndrome that results from physical, mental, and emotional stresses associated with critical illness and treatment in intensive care units (ICUs). Common features include neuromuscular weakness from immobility, cognitive impairment from sedation, and anxiety, depression, post-traumatic stress syndrome (PTSD), and, as we are learning, additional sequelae for COVID-19 survivors. Symptoms can manifest or persist weeks, months, or years after patient discharge. This eBook from ECRI provides an overview of PICS, the common danger signs health providers and family members should be able to identify, and its potential long term negative effects. Learn about strategies like creating an ICU diary to help mitigate risks, in addition to understanding other recommendations to consider to protect the safety and well-being of patients during their recovery.
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Content ArticleECRI position paper looking at post-intensive care syndrome (PICS) after covid. PICS, a nonspecific syndrome that results from physical, mental, and emotional stresses associated with critical illness and treatment in intensive care units.
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Content ArticlePatient Safety Movement's Dr Donna Prosser is joined by Dr Steven Deeks, Professor of Medicine, University of California, San Francisco, and Dr Jake Suett, Staff Grade Anaesthetist and Intensive Care Doctor, UUK, to discuss the long term implications of COVID-19 from clinical and personal perspectives. Dr Deeks shares the research around long COVID-19 symptoms and Dr Suett provides a personal anecdote of his experience with symptoms that have lasted months. Dr. Suett shares information about the COVID symptom study, which consists of an international mobile app to track COVID-19 symptoms over time.
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Content ArticleDoctors who contracted COVID, and thought the symptoms would be over in weeks, tell Jennifer Trueland about their continuing pain, exhaustion and – sometimes – struggle to be believed
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Content ArticleThe COVID-19 pandemic has had far-reaching effects upon people’s lives, health care systems and wider society. As yet there is little research into the number of people at risk of developing ongoing COVID-19. Early attention has been on the acute illness generated by the virus, but it is becoming clear that, for some people,COVID-19 infection is a long term illness. This rapid and dynamic review authored by Dr Elaine Maxwell draws on the lived experience of patients and expert consensus as well as published evidence to better understand the impact of ongoing effects of COVID19, how health and social care services should respond, and what future research questions might be.
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Content ArticlePatients collectively made Long Covid – and cognate term ‘long-haul Covid’ – in the first months of the pandemic. Patients, many with initially ‘mild’ illness, used various kinds of evidence and advocacy to demonstrate a longer, more complex course of illness than laid out in initial reports from Wuhan. Long Covid has a strong claim to be the first illness created through patients finding one another on social media: it moved from patients, through various media, to formal clinical and policy channels in just a few months. This initial mapping of Long Covid – by two patients with this illness – focuses on actors in the UK and USA and demonstrates how patients marshalled epistemic authority. Patient knowledge needs to be incorporated into how COVID-19 is conceptualised, researched, and treated.