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Showing results for tags 'Post-virus support'.
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Content ArticleWhile it is now apparent that Long Covid may persist after acute COVID-19, its nature, frequency and aetiology are poorly characterised. This study from MicHelen et al. aimed to regularly synthesise evidence on long COVID characteristics, to help inform clinical management, rehabilitation strategies and interventional studies to improve long-term outcomes. The authors conclude that Long Covid is a complex condition with prolonged heterogeneous symptoms. The nature of studies precludes a precise case definition or risk evaluation. There is an urgent need for prospective, robust, standardised, controlled studies into aetiology, risk factors and biomarkers to characterise long COVID in different at-risk populations and settings.
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Content ArticleThis report from CIPD examines the latest evidence and the experiences of employees experiencing long COVID, and offers recommendations for organisations on how to effectively support those with long COVID to return to, and stay in, work.
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Content ArticleThis is the second of two dynamic reviews of the evidence around people’s experience of the enduring symptoms following a Covid-19 infection. The National Institute for Health Research published their first review of the evidence in October 2020. At the time there was uncertainty about the extent to which there could be lasting effects, and most people assumed a linear progression of a severe acute infection with a long recovery tail. The first review on “Living with Covid-19” was informed by the experience of professionals and the NIHR worked closely with a group of people with lived experience. This review focuses on the published evidence. In addition, it reports findings from a short survey of people living with Covid-19. With over 3,000 responses it provides an insight into the key issues and challenges for people living with Covid-19.
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Content ArticleThis self-assessment tool has been developed by the British Lung Foundation for people with Long Covid symptoms. It aims to help patients identify and prioritise their needs, signposts them to further information and outlines the help they should get in dealing with Long Covid. It is anonymous and takes 5-10 minutes to complete. Patients can also print out their answers and share them with healthcare professionals an employers to clearly highlight an individual's needs.
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EventThis Westminster conference will discuss the future for Long Covid research, services, and care. It will be an opportunity to assess Long Covid: the NHS plan for improving Long Covid services and how its ambitions for improving access to services, patient experience and outcomes for patients can be achieved. Further sessions examine priorities for research and improving understanding of Long Covid, looking at implementing the latest developments in research to improve services, and the long-term health implications of Long Covid. There will also be discussion on addressing concerns around inequalities, capacity and wait times for Long Covid services, as well as the primary care referral system, and utilisation of investment. Sessions in the agenda include: latest developments: trends - key issues - assessing the NHS plan for improving long COVID services. clinical research: taking forward the understanding of Long Covid - advancing clinical trials - utilising data - funding and investment. improving patient outcomes, prediction and prevention - accelerating the development of effective treatments - areas for focus, such as cardiology. examining the increased risk of long-term health conditions and impacts of reinfection for Long Covid patients. improving specialist Long Covid services: progress made so far and priorities for moving forward. options for increasing capacity - addressing inequalities in provision, access to services and information - applying latest developments from research. children’s Long Covid services: assessing delivery - implications for child development and attainment. primary care: tackling key challenges for diagnosis and referral. the workforce: priorities for education and training - support for long COVID patients in the workforce. Register
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Community PostWhy do we need GP referrals to this service for assessment? Early patients untested cannot get access to GPs, not being believed, dismissed, told they are delusional. se have been sat for months unable to get referrals ...today someone got a referral and the NHS denied them that too. So we are getting no support. We are having a host of around 200 effects (Ive documented them), most of us are weeks 12 to 33 and having lung cognitive and heart problems. We needs mri and ct scans now and we cant be joining the back of already lengthy outpatient appointments. theresa huge backlog. When is someone going to help us? #longtailgoing viral @postcovidsynd Post Covid 19 Syndrome Support Group International (facebook). Sir Simon Stevens from NHS England doesn't have time to answer our letter, he said the Seacole Centre has been set up...but it only takes tested positive patietns and the phone numbers don't work. He told us to watch himself on the Andrew Marr show..which was about this app. As you can see we still cant get referrals here either as we need GP referrals adn we cant get them/..did no one raise this? I think they did...as I did with Senior Government Advisors. Nothing has been offered to untested patients. The medical community are very much aware that we were sent home so to deny we are sick and label it as anxiety is a scandal. Likewise, graded therapy (I note exercise is on here) is not recommended as we have heart problems and some of us have done it and had heart attacks...dangerous information to share with people suffering 200 symptoms thatt the medical community have not followed us on .... health-problems (1).pdf
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Community Post
Sepsis UK and LongCovid.org working together
Clive Flashman posted a topic in Coronavirus (COVID-19)
A video has been produced featuring @Ron Daniels that gives some useful information based on the joined up working between these two organisations. Watch the video on Youtube (1:34 mins) here -
Content ArticleThe aim of the Long Covid webinar held on 5 July 2023 was to discuss where we are now with Long Covid clinics and research. The presentation videos from the webinar can be accessed from the link below.
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Content ArticleSome of the same people that noted surgical masks were useless for airborne viruses also made decisions to limit the use of effective respirator masks: a decision that had devastating ramifications when the pandemic struck. In this article in the Byline Times, Josiah Mortimer delves deeper into a hub blog written by David Osborn: 'The pandemic – questions around Government governance' and questions the decisions made by the Government during the pandemic.
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Content ArticleIn a new Lancet Respiratory Medicine Series about Long Covid, Sally J Singh and colleagues discuss the origins of respiratory sequelae and consider the promise of adapted pulmonary rehabilitation programmes and physiotherapy techniques for breathing management. Pratik Pandharipande and colleagues review the epidemiology and pathophysiology of neuropsychological sequelae of COVID-19-related critical illness, highlighting the combined threat of long COVID and post-intensive care syndrome (PICS), and outline potential mitigation strategies. Finally, Matteo Parotto and colleagues discuss pathophysiological mechanisms of diverse, multisystem sequelae in adult survivors of critical illness, including longitudinal effects of endothelial and immune system dysfunction, and consider the challenges of providing appropriate care and support for patients.
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Content ArticleA significant number of doctors and other healthcare workers have developed post-acute COVID, including a large number who developed it as a result of workplace exposure to Covid-19. This paper examines the impact post-acute Covid symptoms have had on the medical workforce, personally and professionally. It provides a unique and valuable insight into the experience of UK doctors suffering from post-acute Covid. It has been informed by a UK survey of over 600 doctors suffering from the continuing effects of an infection with Covid-19, as well as wider research of the issues. The survey was undertaken by the British Medical Association (BMA) in partnership with Long COVID Doctors for Action. This is the first comprehensive survey of doctors with post-acute Covid health complications. This paper should inform the support needed by current sufferers of post-acute COVID in the NHS workforce, and help protect services and patients now and in the future.
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Content ArticleThis podcast series from Julie Taylor aims to raise awareness of Long Covid, provide a platform of support, education and the lived experience. Julie is a registered nurse in the UK and became unwell with Covid in May 2020 while working on the frontline, during the first wave of the pandemic. She now lives with Long Covid and POTS (postural orthostatic tachycardia syndrome). In this podcast series, Julie shares her journey and lived experience, the symptoms and how each impacts daily life, not only the physical issues but also the impact this has had mentally and emotionally.
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News Article
Long Covid: nearly 2m days lost in NHS staff absences in England
Patient Safety Learning posted a news article in News
NHS trusts in England lost nearly 2m days in staff absences due to long Covid in the first 18 months of the pandemic, according to figures that reveal the hidden burden of ongoing illness in the health service. MPs on the all-party parliamentary group (APPG) on coronavirus estimate that more than 1.82m days were lost to healthcare workers with long Covid from March 2020 to September 2021 across England’s 219 NHS trusts. The estimate is based on data obtained under the Freedom of Information Act from 70 NHS trusts and does not include the impact of the highly transmissible Omicron variant that has fulled record-breaking waves of infection in the UK and globally since it was first detected in November. Layla Moran, the Liberal Democrat MP who chairs the APPG, said the government had paid “almost no attention to long Covid and the severe impact it was having on vital public services” and called for immediate support for those affected. “Thousands of frontline workers are now living with an often debilitating condition after being exposed to the virus while protecting this country,” she said. “They cannot now be abandoned.” Read full story Source: The Guardian, 24 January 2022 -
News Article
UK survey suggests 1.3 million have Long Covid
Patient Safety Learning posted a news article in News
About 1.3 million people in the UK have Long Covid symptoms lasting more than four weeks after an initial infection, an Office for National Statistics survey suggests. Of those, 892,000 (70%) first caught the virus at least 12 weeks ago and 506,000 (40%) at least a year ago. The survey asked nearly 352,000 people to record their own symptoms. There is no universally agreed definition of long Covid and different studies use varying definitions. The ONS survey, over four weeks in November and December 2021, suggests, of those with Long Covid: 51% have fatigue 37% have loss of smell 36% have shortness of breath 28% have difficulty concentrating. University of Exeter senior clinical lecturer Dr David Strain said: "The stark warning here is that, based on this, in the previous waves, over 800,000 people have their day-to-day activities significantly affected over three months after catching Covid and nearly a quarter of a million report this has a dramatic impact on their quality of life. "As we continue to see case numbers of Omicron rise, we must be wary that our reliance purely on hospitalisations and death as a measure of the risk from Covid could grossly underestimate the public-health impact of our current Covid strategy." Read full story Source: BBC News, 6 January 2022 -
News ArticleNearly two years into the pandemic, people like me are still out of action. We need better support and more funding, writes Joanna Herman, consultant in infectious diseases in London. Joanna caught Covid in March 2020, and was by definition a “mild” case: not admitted to hospital and no risk factors for severe disease, but how it has affected her and her family is anything but mild. Having been fit and active, Joanna now finds that on bad days that she still struggle with everyday chores, and her usually quick-firing brain "remains in slo-mo ('brain fog')". For many months, it has felt as though long Covid has not been on the political agenda, but many people are still struggling with their everyday lives, and struggling to get the help they need. Why is long Covid not included in the daily statistics, or as one of the main incentives to avoid Omicron, and to get a vaccine and booster jab? It’s never mentioned, and it often feels as if sufferers don’t exist. Even if the new variant results in milder disease than previous ones, could more people still end up like Joanna? And how will an already stretched NHS cope if there are new cases of long Covid after this current viral surge? There’s a lot we still don’t know about Omicron; a fuller picture will become evident over the coming weeks and months... Read full story Source: The Guardian, 22 December 2021
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News Article
People hospitalised with COVID-19 are likely to face a limited recovery
Patient Safety Learning posted a news article in News
People who were hospitalised with COVID-19 and continued to experience symptoms at five months show limited further recovery one year after hospital discharge, a key finding of the Post-hospitalisation COVID-19 study (PHOSP-COVID) has revealed. The NIHR/UKRI-funded study, led by the NIHR Leicester Biomedical Research Centre, also confirmed that people who were less likely to make a full recovery from COVID-19 were female, obese, and required invasive mechanical ventilation (IMV) to support their breathing during their hospital stay. The study found that one year after hospital discharge, less than three in ten patients reported they felt fully recovered, largely unchanged from at five months. The most common ongoing symptoms were fatigue, muscle pain, physically slowing down, poor sleep and breathlessness. Participants felt their health-related quality of life remained substantially worse one year after hospital discharge, compared to pre-COVID. This suggests the physical and mental health impairments reported in the study are unlikely to be pre-existing conditions. Professor Chris Brightling said: “The PHOSP-COVID study is further evidence of the UK’s ability to combine expertise across both disease area and geography to rapidly gather data to help us understand the longer term implications of Long-COVID in hospitalised patients with persistent symptoms. Our findings show that people who were hospitalised and went on to develop Long-COVID are not getting substantially better a year after they were discharged from hospital. Many patients in our study had not fully recovered at five months and most of these reported little positive change in their health condition at one year. “When you consider that over half a million people in the UK have been admitted to hospital as a result of COVID-19, we are talking about a sizeable population at risk of persistent ill-health and reduced quality of life.” Read full story Source: National Institute for Health Research, 16 November 2021 -
News Article
Many Covid hospital patients do not feel fully recovered year later
Patient Safety Learning posted a news article in News
Fewer than one in three patients who have ongoing Covid symptoms after being hospitalised with the disease say they feel fully recovered a year later, according to a study that offers new insights into potential treatments. As the pandemic has unfolded, a growing body of research has revealed that Covid not only causes health problems in the short-term, but also has long-term effects. Now a study has revealed many of those who had ongoing symptoms after hospitalisation are showing little improvement, with their condition similar at about 12 months after discharge to seven months earlier. “Only one in three participants felt fully recovered at one year,” said Dr Rachel Evans, one of the co-leads of the post-hospitalisation Covid-19 study – or Phos-Covid – which is led by the National Institute for Health Research (NIHR) Leicester Biomedical Research Centre, although the team says missing data means the figure could be as low as 2 in 10 or as high as 6 in 10. The research – which has yet to be peer-reviewed – reveals how the team collected both self-reported and objective measures of health, such as physical performance and organ function, among 2,320 adults about five months after they were discharged from hospital after having had Covid. They then looked at similar measures for 924 participants at about one year after discharge, 807 of whom had attended the previous follow-up. Between five months and one year after discharge, the proportion of participants reporting feeling recovered remained very similar – at just under 30% at 12 months – as did the prevalence of symptoms including breathlessness, fatigue and pain. Little or no improvement was seen for areas including organ function, physical function and cognitive impairment – or “brain fog” – with about one in 10 participants having a significant degree of the latter 12 months after discharge. “Unfortunately, we weren’t seeing improvements at one year from where people were at five months post-discharge,” said Evans. Read full story Source: The Guardian, 16 December 2021 -
News Article
Doctor with Long Covid found to have multiple blood clots in his brain
Patient Safety Learning posted a news article in News
A doctor who became very unwell with COVID-19 at the start of the pandemic was later found to have multiple blood clots in his brain which could easily have killed him. Dr Ian Frayling started suffering with a "bone-cracking" fever, muscle pain and a "cough like no other" in March 2020, weeks before the national lockdown was announced by the UK and Welsh governments. His condition then took a turn for the worse when he started experiencing problems with his breathing and encountering such extreme brain fog that entire days would pass him by. The 62-year-old said his "frightening" range of symptoms, which also included irritable bowel syndrome, disruptive sleep and difficulty with coordination, persisted for many months and left him a fatigued shell of his former self. After sharing his story with WalesOnline 12 months ago, Dr Frayling was invited to meet the Senedd's health committee in March 2021 to give evidence of his battle with Long Covid. It led to a respiratory consultant reaching out to him and offering him a full clinical assessment at the University Hospital Llandough. Not only did she find problems with his heart and blood pressure, which were to be expected, but a referral for CT scans in May 2021 revealed that he was living with several blood clots in his brain which were very likely to be attributed to the after-effects of coronavirus. It meant suffering a catastrophic stroke was highly likely. After being given the deeply distressing news, Dr Frayling said his mind began turning to other people with Long Covid who may be experiencing similar neurological symptoms but are waiting many months to be referred to see a specialist doctor by their GP. "The consultant used her clinical skills and expertise [to properly assess me and give me a CT scan]. I'm one of the lucky ones. A GP can't directly send people off for these kind of tests, so there could be thousands of people with Long Covid, just like me, who aren't getting the help they need and are just being fobbed off." Read full story Source: Wales Online, 28 November 2021 -
News ArticleWith the excitement of the Covid vaccine’s arrival, it may be easy to forget and ignore those of us with “long Covid”, who are struggling to reclaim our previous, pre-viral lives and continue to live with debilitating symptoms. Even when the NHS has managed the herculean task of vaccinating the nation, COVID-19 and the new mutant variants of the virus will continue to circulate, leaving more people at risk of Long Covid. Data from a King’s College London study in September suggested as many as 60,000 people in the UK could be affected, but the latest statistics from the Office for National Statistics suggest it could be much higher. Joanna Herman is a consultant in infectious diseases. "Long Covid' is anything but a mild illness". Nine months on from having the virus, she is seriously debilitated. She explains how the new NHS clinics need to help the thousands of people with Long Covid. Read full story Source: The Guardian, 27 December 2020
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News Article
Layla Moran secures first Commons debate on Long Covid
Patient Safety Learning posted a news article in News
Layla Moran, Lib Dem MP for Oxford West and Abingdon and Chair of the APPG on Coronavirus, has secured the first Commons debate on Long Covid on Thursday 7 January following cross-party support. The Backbench Business Committee granted the application by Layla Moran, co-sponsored by Dr Dan Poulter MP (Con) and Andrew Gwynne MP (Lab) and supported by many others. Layla said that the debate “is long overdue” and called on “those with lived experience and clinical experience to tell us your stories” in advance of the debate. Layla Moran said: “I’m pleased that we’ve been able to secure this important debate on Long Covid, which is long overdue. The APPG on Coronavirus, which I chair, has submitted recommendations to the Government on this, and the debate will give us the opportunity to hold them to account and represent our constituents suffering from it." “What’s really important now is that as many MPs as possible take part in the debate, so we can give this the profile it deserves and give the Government the opportunity to listen and respond to our concerns. Thank you to my cross-party colleagues for supporting this. I’m calling on those with lived experience and clinical experience to tell us your stories between now and the 7 January. This is a crucial opportunity.” Read full story Source: Liberal Democrats, 19 December 2020 -
News Article
Long COVID patients to get help at more than 60 clinics
Patient Safety Learning posted a news article in News
Thousands of patients suffering with the long term symptoms of coronavirus can now access specialist help at more than 60 sites, NHS England announced today. The assessment centres are taking referrals from GPs for people experiencing brain fog, anxiety, depression, breathlessness, fatigue and other debilitating symptoms. NHS England has provided £10 million for the network of clinics, which started opening last month. There are now 69 operating across the country with hundreds of patients already getting help. The new centres bring together doctors, nurses, physiotherapists and occupational therapists to offer both physical and psychological assessments and refer patients to the right treatment and rehabilitation services. Ten sites are now operational in London, seven in the East of England, eight in the Midlands, South East and South West respectively, nine in the North West and a further 18 across the North East and Yorkshire. A further 12 sites are earmarked to launch in January in the East Midlands, Lancashire, Cornwall and Isle of Wight. The National Institute for Clinical Excellence (NICE) has today also issued official guidance on best practice for recognising, investigating and rehabilitating patients with long COVID. Patients can access services if they are referred by a GP or another healthcare professional, so that doctors can first rule out other possible underlying causes for symptoms. Read full story Source: NHS England, 18 December 2020 -
News Article
Major concerns over funding and staffing of new ‘long covid’ clinics
Patient Safety Learning posted a news article in News
There are serious concerns over the funding and staffing numbers available for new ‘long-covid’ clinics, while patient groups ‘remain in the dark’ over their locations. Last month, NHS England announced there would be 40 clinics around the country, to start opening at the end of November, with £10m of funding to cover set-up and operational costs until March 2021. But several speakers at HSJ’s inaugural virtual respiratory forum last week said there were still uncertainties and concerns about the capacity to provide the clinics. Dr Jon Bennet, a respiratory consultant and chair of the British Thoracic Society, said staffing the respiratory rehabilitation services within the clinics would be challenging, as “there isn’t at the moment sufficient capacity”. Read full story (paywalled) Source: HSJ, 29 November 2020 -
News Article
Long Covid: overlap emerges with ME – including debate over treatment
Patient Safety Learning posted a news article in News
As more people suffer lasting symptoms from Covid including fatigue, ME patient advocates fear they will get bad advice, Based on current estimates, about 10% of COVID-19 patients develop lasting symptoms, one of the most common being fatigue. The underlying mechanism is still unclear, but possible explanations include reduced oxygen supply to tissues caused by heart or lung damage, or muscle weakness from prolonged bed rest. However, some doctors are increasingly concerned about the overlap between long Covid and another largely virus-triggered illness: “It’s extraordinary how many people have a postviral syndrome that’s very strikingly similar to myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS),” said the US’s top public health official, Dr Anthony Fauci, in July. “They just don’t get back to normal energy or normal feeling of good health.” Like people with ME/CFS, many long-Covid patients report headaches, brain fog, sleep problems, a racing heart, joint and muscle pain and fatigue. Some also experience a relapse of fever, muscle pain and exhaustion, known as “post-exertional malaise”, if they exercise beyond their capabilities. “There are so many similarities between long Covid and ME/CFS it leads me to believe the underlying pathology is probably the same – except that long Covid is presenting as an epidemic, whereas ME/CFS has presented in a very sporadic way, and by no means in such large numbers in such a short space of time,” said Dr William Weir, a consultant in infectious diseases with a special interest in ME. Read full story Source: The Guardian, 19 November 2020 -
News Article
Support for Long COVID patients visiting their GP
Patient Safety Learning posted a news article in News
PRESS RELEASE (London, UK, 19 November 2020) – The charity Patient Safety Learning and the Royal College of GPs have published new guidance to help patients with post COVID-19 syndrome (also known as Long COVID) understand the support they can expect from their GP. This guidance draws on the RCGP's recent summary and top tips for GPs caring for patients with post COVID-19 syndrome. Both these documents have been produced in advance of more detailed national guidance being developed by the National Institute of Health and Care Excellence (NICE), the Scottish Intercollegiate Guidelines Network (SIGN) and the Royal College of GPs, due to be published in December 2020. Helen Hughes, Chief Executive of Patient Safety Learning, said: “We have used the RCGP’s guidance to produce a simple patient-friendly guide to help support people living with Long COVID in the interim period before more detailed guidance is produced by NICE. We hope that this guidance will empower and inform patients, providing them with an evidence-based document that can be shared with those around them. We believe that this will also help raise awareness of the health challenges these patients are facing so that their health and recovery needs can be better met.” Professor Martin Marshall, Chair of the Royal College of GPs, said: “It’s important that patients experiencing debilitating prolonged effects of Covid-19, which we know affect a small but significant number of people who have had the virus, feel that they have the understanding and support of the GPs and other healthcare professionals delivering their care. To this end we hope this guidance is helpful for them. The RCGP is working hard to ensure that the long term effects of Covid-19 are recognised, especially in those who were never admitted to hospital, and that our GP members have interim guidance whilst waiting for formal national guidance, currently being developed by NICE, SIGN and the College, to be published.” Notes to editors: 1. The new Patient Safety Learning and RCGP guidance can be found here: Post COVID-19 syndrome: What support can patients expect from their GP? 2. Patient Safety Learning is a charity and independent voice for improving patient safety. We harness the knowledge, insights, enthusiasm and commitment of health and social care organisations, professionals and patients for system-wide change and the reduction of avoidable harm. We believe patient safety is not just another priority; it is a core purpose of health and social care. Patient safety should not be negotiable. 3. The RCGP guidance for GPs can be found here: RCGP, Management of the long term effects of COVID-19. The RCGP response and top tips for caring for our patients, V1 30 October 2020. -
News Article
Major delays for new NHS England covid service
Patient Safety Learning posted a news article in News
A key expansion of services for patients recovering from coronavirus has been delayed by several months, HSJ has learned. In July, NHS England hailed a “ground breaking” new service with the launch of a website with information for patients on how to recover from covid following hospital discharge. It promised a second phase of the service would allow patients to be connected with health professionals for more tailored support, to be launched “later this summer”. But in a memo sent to professional bodies on 30 October, NHSE said the national roll-out was delayed until at least January 2021, with no date confirmed for the launch beyond that. Documents on the website itself said a “first cohort of patients from Leicester will begin to work through the programme” in November, with a further rollout scheduled for early December, followed by a “refresh” in January 2021 and a “full national rollout accessible across the country” at an unspecified date beyond that. The second phase is seen as vital for ensuring that people with covid receive personalised support to help them recover from its debilitating effects, especially as a separate face-to-face rehabilitation programme was scrapped due to costs. Read full story (paywalled) Source: HSJ, 16 November 2020
