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Showing results for tags 'Post-virus support'.
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Content Article
Long-haulers are fighting for their future (1 September 2021)
Patient Safety Learning posted an article in Blogs
Many people with long COVID feel that science is failing them. Neglecting them could make the pandemic even worse, writes Ed Yong in this article for The Atlantic.- Posted
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BMJ Webinar: Post-covid conditions (15 April 2021)
Patient Safety Learning posted an article in Resources for staff
A recording of a recent BMJ webinar for clinicians. researchers and policy makers on post-covid conditions.- Posted
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Content ArticleClare Rayner is a retired occupational health doctor who caught Covid-19 in March 2020. Clare has since worked with medical colleagues to raise awareness of their concerns associated with prolonged symptoms, also referred to as Long Covid. They have also contributed to the NHS England (NHSE) Long Covid Taskforce as patient/patient group representatives. One year on from her initial infection, Clare draws on personal and professional insight to explain why people living with Long Covid continue to feel let down, abandoned and frightened.
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Content ArticleThis work from Nurek et al. aims to provide a rapid expert guide for post Covid-19 condition ('long covid') clinical services. In the absence of research into mechanisms, therapies and care pathways, yet faced with an urgent need, guidance based on “emerging experience” is required.
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Long Covid Kids: Schools Awareness Pack
PatientSafetyLearning Team posted an article in Patient recovery
This pack has been created by the Long Covid Kids advocacy group. It provides Headteachers with evidence and information to aid the understanding of COVID-19 in children, transmission and the importance of mitigating risk to reduce long-term health implications for children and staff.- Posted
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Content ArticleSpace From Covid programme is made up of six modules, each addressing issues you may be experiencing due to the COVID-19 Pandemic. Each module provides clinically-backed support for trouble sleeping, coping with stress, developing mindfulness, financial worries and experiencing grief and loss. SilverCloud is offering this service completely free of charge and for anyone to use. The average module takes 30 minutes to complete and is accessible 24/7 from a smartphone, tablet or computer.
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Content ArticleIn this episode of Covid in the News, hosts Monique and Tom spoke to Ondine Sherwood, co-founder of patient advocacy and support group LongCovidSOS. They talk about the patient agenda, how community-driven research has changed since the start of the pandemic, Long Covid and policy, and the key questions to be answered in the coming months for longhaulers.
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Content ArticleIn this video from The Guardian, we hear from University College London hospital's Long COVID clinic where patients are treated for a multitude of different chronic symptoms ranging from ongoing fatigue to issues with taste and smell. Some patients have been suffering for months, and the toll on their mental and physical health has been significant.
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Content ArticleThis report from Long Covid Support summarises patient's experiences of Long Covid.
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Content ArticleOn Wednesday 10 March the Health, Social Care and Sport Committee of the Senedd Cymru - Welsh Parliament held an evidence session on Long COVID. They heard from the patient group Long COVID Wales, academics and professional bodies.
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Content ArticleThis is a video recording of a oral evidence session of the All-Party Parliamentary Group (APPG) on Coronavirus into the effects of Long COVID in children. This session took place during Long COVID week (11-15 January 2021), which aimed to highlight the experiences of the hundreds of thousands of people living with Long COVID in the UK.
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Content ArticleThis World Health Organization (WHO) policy brief highlights areas where policy-makers can take action to meet the challenge of post-Covid conditions based on what is currently known. It addresses the need for multidisciplinary, multispecialty approaches to assessment and management; development of new care pathways and contextually appropriate guidelines for health professionals; and the creation of appropriate services, including rehabilitation and online support tools.
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Content Article
Learning from long Covid
Patient Safety Learning posted an article in Patient recovery
At Cromwell Hospital’s Long Covid Clinic, a multidisciplinary team of consultants are learning lessons from the virus. Dr Brian O’Connor, a consultant in respiratory medicine, and consultant psychiatrist Dr Rajeev Dhar are part of the multidisciplinary Long Covid team at Cromwell Hospital. “We established the clinic because, between the various consultants, we recognised we had an increasing number of mutual patients who had symptoms that didn’t add up,” he explains. “You’d have patients with psychological symptoms, such as low-grade levels of anxiety and depression, but they would also display odd physical symptoms such as palpitations or breathlessness when they lay down.” The collaboration between consultants across the fields of respiratory medicine, cardiology, neurology and psychiatry has allowed them to pool information and recognise symptom patterns quickly. Both Dr O’Connor and Dr Dhar believe the holistic, multidisciplinary treatment being delivered at the clinic could have a longer-term effect — one that involves a fundamental change in attitudes and perspective. “Medicine often focuses on treating symptoms,” Dr Dhar explains, “but long Covid has made us think about how we help people to function better. Our approach is now focused on how people are functioning, because that tells us how well we’re managing the symptoms.”- Posted
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Content ArticleThis paper from Trish Greenhalgh and colleagues explores the lived experience of ‘brain fog’—the wide variety of neurocognitive symptoms that can follow Covid-19.
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Content ArticleThe What Good Looks Like (WGLL) programme draws on local learning. It builds on established good practice to provide clear guidance for health and care leaders to digitise, connect and transform services safely and securely. This will improve the outcomes, experience and safety of citizens.
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Long Covid: the NHS plan for 2021/22 (15 June 2021)
Mark Hughes posted an article in Patient recovery
The Long Covid Plan 2021/22 builds on the previous five-point plan announced in October 2020 and outlines 10 key next steps to be taken by the NHS to support people living with Long Covid. The plan highlights the need for equity of access, outcomes and experience in Long Covid support, as well as committing to extending the Your COVID Recovery website, collecting and publishing data. -
Content ArticleMore than a million people in the UK are now living with prolonged symptoms of Covid-19,[1] also referred to as Long Covid, including at least 122,000 NHS staff.[2] With many struggling to come to terms with life-changing health challenges, Long Covid is considered by some to be the next pandemic. Good health information has the power to educate, influence and clarify; all of which are critical to effectively responding to public health crises and keeping patients safe. But the absence of good information can leave patients, staff and the wider public feeling confused and unsupported, and can widen health inequalities. In this blog, Patient Safety Learning has identified four key areas where better information could help improve care for those living with Long Covid: Symptoms of Long Covid Long Covid assessment centres Education and awareness Performance and effectiveness.
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The cost of Long Covid (File on 4, 18 May 2021)
PatientSafetyLearning Team posted an article in Patient recovery
Latest figures show more than a million people in Britain are suffering from Long Covid. For many the condition is completely debilitating. The extreme fatigue, breathing difficulties, brain-fog is forcing hundreds of thousands of previously fit, working people on to long term sick. File on 4 hears from frontline workers who kept Britain going through the pandemic but now feel abandoned. Others reveal how they’ve felt pressurised to return to work even though they’re very ill. Listen hereFurther reading that may be of interest:Long Covid Minister needed to respond to growing crisis Promises of Long Covid support have not materialised (a blog by Clare Rayner)My experience of suspected 'Long COVID' (by Dr Jake Suett)- Posted
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Content ArticleThese resources from Queen Margaret University, Edinburgh were developed following a study funded by the Chief Scientist Office in Scotland. The study was based on an online survey which people completed between July and August 2020, followed by a further survey six months later. Some participants also took part in a telephone interview to enhance understanding of their responses. The study used the responses of people living with Long Covid to: develop a resource with advice for people accessing services for Long Covid. write guidance for people providing services relevant to people with Long Covid. write recommendations to inform policy and service design that relate to Long Covid and other impacts of the pandemic. plan a series of short podcasts, interviewing people who have lived experience of Long Covid.
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Content Article'Support after Covid-19' is a series of short podcasts exploring Long Covid and work. It was developed by Professor Cathy Bulley and Dr Eleanor Curnow at Queen Margaret University in response to research insights from the ‘Support After Covid Study,’ which was carried out between May 2020 and June 2021. It focuses on the experiences of people working in health services who are living with Long Covid, offering resources, insight and advice.
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Content ArticleDecision makers should apply insights learnt from people living with chronic illness to collectively managing covid, says Charlotte Augst in this BMJ opinion article.
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Content ArticleIn this interview for Woman's Hour, Dr Nisreen Alwan, Associate Professor in Public Health at the University of Southampton, discusses the impact of Long Covid on her own life with presenter Emma Barnett. She also shares insights from research that suggests women, people of working age, people from areas of high social deprivation and frontline health and education workers are more likely to be affected by Long Covid. Dr Alwan talks about the need to manage Long Covid alongside daily activities and highlights new research that demonstrates that vaccines may reduce the incidence of the condition. The interview can be heard at 17:23-25:20 in the recording.
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Content ArticleIn this interview with the journal International Politics and Society, Brendan Delaney, professor at the Faculty of Medicine at Imperial College London discusses the impact of Long Covid on individuals and society. He describes his own experience of Long Covid, which rendered him unable to work for months, and highlights that we should not be surprised by the prevalence of Long Covid, as all epidemics result in long-term illness for many people. He draws attention to parts of the political system 'not believing in' Long Covid and highlights the damage caused by psychologising the condition. Finally, he points to the need for more research to better understand Long Covid symptoms.
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Content Article
Long Covid: The hidden iceberg of Covid-19
Dr Shruthi posted an article in Blogs
In the wake of new variants and the relentless spread of Covid-19, understanding the complex nature of Long Covid is crucial. In this article, I aim to present useful information on the risk factors, plausible pathophysiological mechanisms and treatment of Long Covid. The obscure nature of Long Covid is a conundrum both for doctors and patients. To mitigate the burden of Long Covid, early identification of disease signs, appropriate treatment and timely access to rehabilitation care is vital. I believe that strengthening the 4 Rs (Reporting, Recognition, Rehabilitation and Research) through close collaboration between government organisations, pharmaceutical industries, patients and health care providers could reduce the impact of Long Covid.- Posted
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