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Showing results for tags 'Post-virus support'.
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News ArticleHealth Secretary Matt Hancock admits he is "worried" about the long-term impacts of coronavirus on those who have been infected. Mr Hancock said a "significant minority" of people had suffered "quite debilitating" conditions after contracting COVID-19. It comes after Sky News reported on how psychosis, insomnia, kidney disease, spinal infections, strokes, chronic tiredness and mobility issues are being identified in former coronavirus patients in northern Italy. Asked about the long-term impact of the disease on patients, the health secretary told Sky News: "I am concerned there's increasing evidence a minority of people - but a significant minority - have long-term impacts and it can be quite debilitating. "So we've set up an NHS service to support those with long-term impacts of COVID-19 and, also, we've put almost £10m into research into these long-term effects." Read full story Source: Sky News, 15 July 2020
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News Article
Coronavirus: NHS England launches tool to aid long-term recovery
Patient Safety Learning posted a news article in News
NHS England is launching a new service for people with ongoing health problems after having coronavirus. The government says "tens of thousands" of people have long-term symptoms after catching COVID-19. "Your Covid Recovery" will be an online portal for people in England to access tutorials, contact healthcare workers and track their progress. The project will be rolled out in two phases, with the web portal launching later this month. It will only be accessible via a personal log-in and will be available to virus patients who had to be treated in hospital, as well as to those who managed their illness at home. Later in the summer, tailored rehabilitation will also be offered to those who qualify, following an assessment. Each programme will last a maximum of 12 weeks, the Department of Health and Social Care said. Read full story Source: BBC News, 5 July 2020 -
News Article
Scientists investigate cases of post-COVID-19 fatigue
Patient Safety Learning posted a news article in News
Most people experience COVID-19 as a short-term illness: once the infection has been fought off, they bounce back to health. But evidence is emerging of a significant minority – sometimes referred to as “long haulers” – who struggle with long-term symptoms for a month or longer. Anecdotal reports have abounded of people left with fatigue, aching muscles and difficulty concentrating. Online support groups on Facebook and Slack have sprung up, already hosting thousands of members who say they have not got better. Speaking to the BBC’s Andrew Marr Show on Sunday, Matt Hancock said it was difficult to gauge the scale of the problem. “This is a really serious problem for a minority of people who have Covid,” the health secretary said. “Some people have long-term effects that look like a post-viral fatigue syndrome.” Scientists are only just beginning to investigate the potential causes of enduring fatigue, but say that there are likely to be a wide variety of reasons why some people face a longer road to recovery. Read full story Source: The Guardian, 5 July 2020 -
News Article
‘Long covid’ – The under-the-radar coronavirus cases exhausting thousands
Patient Safety Learning posted a news article in News
We’re swiftly learning the symptoms of Covid-19 may last longer than previously thought. One in 10 people are reporting a longer tail of symptoms, which exceeds the suggested two-week recovery time. It’s thought around 30,000 people in the UK could be impacted by a prolonged version of the illness – what some are calling ‘long covid’. These people are months into their recovery from the virus and still fighting a range of persistent symptoms. In some cases, the symptoms disappear for a while before coming back. In others, they’re gradually improving over time. Research from the Covid-19 Symptom Study in the UK, led by Professor Tim Spector of King’s College London, shows after three weeks of first reporting symptoms, a group of people continue to experience fatigue, headaches, coughs, loss of smell, sore throats, delirium and chest pain. People with mild cases of the disease are more likely to have a wide range of symptoms that come and go over an extended period, Prof Spector found. And these people are often flying under the radar because they’re not in hospital. Those who believe they’ve had ‘long covid’ are now calling on the government to recognise their plight, invest in research and put support in place. Read full story Source: Huffpost, 2 July 2020 -
News Article
Coronavirus 'long haulers' are sick for months. This doctor is one of them
Patient Safety Learning posted a news article in News
Psychiatrist Dr. Scott Krakower was diagnosed with the coronavirus in April and continues to have symptoms more than two months later, making him what’s known as a “long hauler.” Although Krakower said he's feeling better, he is not able to return to work. “Each day is different. Some days are up, some days are down. I would say the mornings are better for me and then by 1 or 2 o’clock is when my voice and my shortness of breath kick in more and then it’s harder to do things.” Krakower hasn’t had a clear answer about when he will recover or whether that may happen, although he takes solace in the fact that he is improving. Krakower continues to try and shake off the symptoms, a signature of long hauling. It’s a trait that has been on display before with MERS and SARS, says Dr Robert Glatter, an emergency physician at Lenox Hill Hospital in New York City. “What we’re seeing is that this is a byproduct of the inflammation from the virus itself. In other words, dead fragments of virus elicit an immune response. And as a result of this, the body reacts and produces certain types of substances that can really have adverse effects,” Glatter said. Read full story Source: Today, 1 July 2020 -
News ArticleInitial survey findings show the long road to recovery for people who have faced COVID at home without going into hospital New survey findings from over 1,000 people show that those recovering from mild-moderate COVID are struggling for weeks with symptoms, raising concerns that there is not adequate support for people who have not been in hospital with the illness. The ongoing survey is being run by Asthma UK and the British Lung Foundation, through their post-COVID HUB, which they set up, alongside a helpline and WhatsApp service, to support anyone left with breathing difficulties after COVID. Read full article here
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Content ArticleDr Roberta Heale, Associate Editor of Evidence-Based Nursing, speaks to Dr Elaine Maxwell, Nurse and author of two National Institute for Health Research reviews on evidence on Long COVID in this BMJ Talk Medicine podcast. They discuss the variance in reported Long COVID statistics, the impact of vaccinations, symptoms, and research efforts.
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Content ArticleChen et al. examined the worldwide prevalence of post COVID-19 condition, through a systematic review and meta-analysis. The research, published in the Journal of Infectious Disease, assessed 23 symptoms reported across 36 of the studies and found that shortness of breath, sleep problems, and joint pain was widely reported by those who had recovered from the novel coronavirus infection. They analysed the prevalence of this condition globally and regionally, estimating the proportion of individuals facing long Covid in Asia, Europe and North America. They found that the global prevalence for post-Covid conditions at 30, 60, 90 and 120 days after infection was about 37, 25, 32, and 49%, respectively. The authors concluded that post COVID-19 condition prevalence is substantial; the health effects of COVID-19 appear to be prolonged and can exert stress on the healthcare system.
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Content ArticlePeople with COVID-19 often have symptoms in the long term (ie, long COVID), including fatigue, breathlessness, and neurocognitive difficulties. The disease mechanisms causing long COVID are unknown, and there are no evidence-based treatment options. Clinical guidelines focus on symptom management, and various treatment options are being evaluated. The scarcity of advice has often left people with long COVID feeling isolated and frustrated in their search for therapies. Research is needed to understand the self-management practices that are being used to manage long COVID symptoms; factors influencing their uptake; and the benefits, harms, and costs. There is also a need to assess the potential harmful effects of polypharmacy and drug–drug interactions in these individuals. The Therapies for Long COVID (TLC) Study (ISRCTN15674970) will begin to explore self-management practices through a survey of people with long COVID. This study aims to be a first step towards understanding this important and under-researched public health issue.
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Content ArticleWhatever your standpoint on whether the pandemic is over, or what “living with the virus” should mean, it is clear some manifestation of Covid-19 will be with us for some time to come. Not least for the estimated 1.7 million people in the UK living with Long Covid. This is a now a large, well-documented, convergent cluster of clear physiological symptoms, and it is common to every part of the globe affected by Covid-19. Many sufferers are now disabled and deprived of their former passions, while some are unable to resume their former professions. Doctors and scientists the world over now consider this a recognised part of the Sars-CoV-2 symptom profile. We thought that the number of Long Covid cases developing might be lower when most cases were breakthrough cases in the vaccinated, or infections in vaccinated or partially vaccinated children. Sadly, far from any subsidence in new Long Covid cases, the big, ongoing caseloads of the Delta, Omicron and BA.2 waves have brought a large cohort of new sufferers. These waves have disproportionately affected primary and secondary schools, and many of the new sufferers are children. In this Guardian article, Danny Altmann discusses why a failure to recognise the need for a response to Long Covid could be a blunder we rue for decades to come
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Content ArticleWhat have we learned about the symptoms of Long COVID or Post COVID-19 condition so far? How long does it last, when should you worry, and what treatments are recommended? WHO’s Dr Janet Diaz explains in this video. Part of WHO's Science in 5 series.
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Content ArticleThis film from NHS England and NHS Improvement follows patients at the NHS specialist Post-Covid service at Newcastle’s Royal Victoria Infirmary, one of 90 such services that are now established across England, as part of a £200m NHS investment to support people experiencing the long term effects of Covid. Featured in the film is John, who explains how the ongoing effects of Covid have impacted on his overall health and day-to-day life. As part of his assessment, John gets a psychological and physical check-up from a multidisciplinary team of NHS professionals to help him manage his symptoms and support his recovery. Anyone who is concerned about long-lasting symptoms following Covid-19 should contact their GP, or go online to the NHS Your Covid Recovery website for further advice: https://www.yourcovidrecovery.nhs.uk/
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Content ArticleLong Covid Support are keen to hear your experiences of Long Covid service(s) for adults in England. The purpose of this survey is to collect information on the patient experience of healthcare and other support services for Long Covid. Because services differ by nation, this survey is for patients in England only. This survey has been designed and developed by people who have Long Covid. You can do the survey for yourself, or on behalf of a friend or relative who has Long Covid. The survey will take 15 - 30 minutes to complete depending on your answers. You may save the survey and finish it later as long as you use the same device to complete it. Long Covid Support is a not-for-profit organisation, advocating for those impacted by Long Covid.
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Content ArticleLearn more about Long Covid and common symptoms like fatigue, cognitive dysfunction, post-exertional symptoms exacerbation, and orthostatic intolerance. Produced by Long COVID Physio. Long COVID Physio is an international peer support, education and advocacy, patient-led association of physiotherapists living with Long COVID and allies working internationally across advocacy, policy, guideline development and research.
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Content ArticleHow is the UK handling long Covid, one of the biggest health issues to emerge from the pandemic? A panel of experts brought together by The Independent discussed this and the overall message was that the UK’s response has been lacking. Chaired by Health Correspondent Rebecca Thomas and Science Correspondent Samuel Lovett, the panel included Dr Elaine Maxwell, Professor Amitava Banerjee and Professor Brendan Delaney. The session explores the UK’s response in depth from research approaches to provision for patients. Watch back a video of the full event.
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Content ArticleMedical research is progressing to clarify the full range of sub-acute and long-term effects of post-COVID-19 syndrome (Long Covid), but most manuscripts published to date only analyse the effects in patients discharged from hospital, which may induce significant bias. This Spanish study in the journal Scientific Reports aimed to analyse the single and multiple associations between post-COVID-19 characteristics with up to six months of follow-up in hospitalised and non-hospitalised Covid-19 patients. Key findings include: At six months follow-up, fatigue, arthralgia, fever, breathlessness, emotional disturbance, depression, cognitive deficit, haemoglobin, total bilirubin, and ferritin are correlated with the gender of the patient Patients with previous respiratory diseases and abnormal body mass index, ex-smoker, and dyspnoea had a robust statistically significant association. Non-hospitalised patients may suffer more severe thromboembolic events and fatigue than hospitalised patients. Functional lung tests are good predictors of chest CT imaging abnormalities in elderly patients with Long Covid.
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Content ArticleIn this blog for The BMJ, several doctors who are experiencing long term impacts of Covid-19 share their report of a meeting with the World Health Organization's Covid-19 response team in August 2020. They highlighted the importance of patient-led research and and engaging with patients with Long Covid.
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Content Article
Long Covid Support: Information leaflet
Patient Safety Learning posted an article in Resources for patients
Long Covid can be difficult to diagnose, and some people might not realise their symptoms could be linked to prior COVID-19 infection. There can be more than 200 symptoms. Symptoms can affect anywhere in the body. Symptoms can come and go, and new ones can appear weeks or months later. People may not be aware they had Covid-19: some don’t have symptoms at the time of infection, and test results can be unreliable. Long Covid Support and Long Covid Kids have produced an information leaflet on the symptoms of Long Covid. -
Content Article“As someone living with Long Covid…you want somebody to believe what you're going through.” Davine Forde National Voices held their event, Long Covid webinar event: A community-focused response, where they were joined by Davine Forde (Manchester BME Network CIC), Claire Hastie (Long Covid Support), Michael MacLennan (covid:aid) and Sammie Mcfarland (Long Covid Kids) in an enlightening panel discussion, focusing on the depth and breadth of dedication within the Long Covid community space. National Voices colleagues, Rachel Matthews (Head of Experience) and Keymn Whervin (Lived Experience Associate), also joined the event and spoke about the importance of getting people with lived experience in the room and at the heart of decision-making. Their focus on co-production highlighted a fantastic opportunity to harness the resourcefulness within our communities by working with people throughout decision-making processes.
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Content ArticleEpisode 09 of the Long Covid Podcast is a conversation with Claire Hastie. Claire became ill with Covid right at the start of the first wave in the UK and like so many others, is still suffering the effects of Long Covid. She started the Long Covid Support Group on Facebook in early May 2020. Claire talks about her experiences, how the group came to be and what they are fighting for.
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Content ArticleFinding solutions to long covid will require new ways of thinking across clinical services and research, says in this BMJ Opinion article.
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Content ArticleIn this blog, PC Barry Calder, Lead of the Metropolitan Police Service Disability Staff Association COVID Peer Support Group, raises concerns about the potential impact of long COVID on staff and organisations. He highlights that organisations can take proactive steps to mitigate the consequences of staff being affected by long COVID, such as staff absences and changes to job roles. He recommends that organisations: introduce regular contingency planning activities (such as COVID Resilience meetings) ensure managers are trained to support staff living with long COVID ensure occupational health and staff wellbeing services include support relevant to long COVID consider establishing peer support groups for affected staff.
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Content Article
Long-haulers are fighting for their future (1 September 2021)
Patient Safety Learning posted an article in Blogs
Many people with long COVID feel that science is failing them. Neglecting them could make the pandemic even worse, writes Ed Yong in this article for The Atlantic. -
Content Article
BMJ Webinar: Post-covid conditions (15 April 2021)
Patient Safety Learning posted an article in Resources for staff
A recording of a recent BMJ webinar for clinicians. researchers and policy makers on post-covid conditions. -
Content Article
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Clare Rayner is a retired occupational health doctor who caught Covid-19 in March 2020. Clare has since worked with medical colleagues to raise awareness of their concerns associated with prolonged symptoms, also referred to as Long Covid. They have also contributed to the NHS England (NHSE) Long Covid Taskforce as patient/patient group representatives. One year on from her initial infection, Clare draws on personal and professional insight to explain why people living with Long Covid continue to feel let down, abandoned and frightened.
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