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Showing results for tags 'Post-virus support'.
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Content ArticlePatient Safety Learning’s response to the announcement by the NHS on the 7 October 2020 of a new five-part package of measures to boost support for Long Covid patients.
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Content Article
Long-term health consequences of COVID-19 (5 October)
PatientSafetyLearning Team posted an article in Blogs
Because COVID-19 is a new disease, much about the clinical course remains uncertain – in particular, the possible long-term health consequences, if any. This article, published by JAMA, looks at the available data on neurological, cardiovascular, pulmonary manifestations of the virus. It also looks at the impact on mental health and wellbeing. The authors conclude: "It is imperative that the care of this vulnerable patient population take a multidisciplinary approach, with a thoughtfully integrated research agenda, to avoid health system fragmentation and to allow the comprehensive study of long-term health consequences of COVID-19 on multiple organ systems and overall health and well-being. Furthermore, such an approach will provide the opportunity to efficiently and systematically conduct studies of therapeutic interventions to mitigate the adverse physical and mental health effects among hundreds of thousands, if not millions, of people who recover from COVID-19." -
Content ArticleThe COVID-19 pandemic has caused unprecedented morbidity, mortality and global disruption. Following the initial surge of infections, focus shifted to managing the longer-term sequelae of illness in survivors. ‘Post-acute COVID’ (also known as ‘Long COVID’) is emerging as a prevalent syndrome. It encompasses a plethora of debilitating symptoms (including breathlessness, chest pain, palpitations and orthostatic intolerance) which can last for weeks or more following mild illness. Dani et al. describe a series of individuals with symptoms of ‘Long COVID’, and posit that this condition may be related to a virus- or immune-mediated disruption of the autonomic nervous system resulting in orthostatic intolerance syndromes. They suggest that all physicians should be equipped to recognise such cases, appreciate the symptom burden and provide supportive management. They present our rationale for an underlying impaired autonomic physiology post-COVID-19 and suggest means of management.
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Content ArticleIn The Lancet correspondence, Norton and colleagues on behalf of the ISARIC and GloPID-R Long COVID Forum Working Group, write following an international, multistakeholder forum, in which peoples’ voices were central, to expand the call to action and to identify how we can prevent long COVID from becoming the long-lasting legacy of COVID-19.
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Content Article“Long Covid” was first used by Elisa Perego as a Twitter hashtag in May to describe her own experience of a multiphasic, cyclical condition that differed in time course and symptomatology from the bi-phasic pathway discussed in early scientific papers, which focused on hospitalised patients. Just three months later, following intense advocacy by patients across the world, this patient made term has been taken up by powerful actors, including the World Health Organization. Politicians have used it too: Matt Hancock, UK health secretary, explained to a parliamentary committee that “the impact of long covid can be really debilitating for a long period of time.” “Long Covid” has clearly struck a chord. However, it’s not the only term being used to describe persistent symptoms: we’ve also seen post-acute COVID-19, postcovid syndrome, and chronic COVID-19. In this BMJ Opinion article, Elizabeth Perego and colleagues explains why, as patients and professionals, they see “Long Covid” as better able to navigate the socio-political, as well as clinical and public health challenges, posed by the pandemic in the coming month.
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Content ArticleThe Faculty of Occupational Medicine (FOM) has published guidance for healthcare professionals to assist them in facilitating the return to work of people who are unable to work due to Long-COVID. Follow the link below or download the guidance as a pdf.
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Content Article
Long Covid week: Parliamentary content
Patient Safety Learning posted an article in Patient recovery
As part of March for Change's efforts to improve the government’s response to COVID-19, Long Covid week (11-15 January 2021) highlighted the experiences of the hundreds of thousands of people living with Long Covid with a briefing for politicians; the first ever Parliamentary debate on Long Covid in the House of Commons; and a live Q&A event on Long covid with a panel of MPs and experts. -
Content ArticleThe Queen’s Nursing Institute has published a resource for community nurses caring for people living with COVID-19. Commissioned by NHS England and NHS Improvement, ‘Living with COVID-19 (Long Covid) and Beyond’ provides information to support nurses working in community, care homes and primary care and also to the wider multi-disciplinary team including clinical knowledge, care responses and skills when caring for people during their recovery and rehabilitation. It is predicted that there will be a ‘new wave’ of physical, mental and emotional health challenges as individuals enter recovery from COVID-19 infection – and for some this is combined with issues resulting from the social and economic impact of lockdown, such as isolation and unemployment. The resource also aims to help nurses assist people, families, carers and employers to work towards managing post COVID-19 symptoms, regaining everyday life activities and returning to independent living wherever possible. It includes information on physical care, psychological and neuro-psychological care, social impact and features several case studies.
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Content Article
This guideline covers identifying, assessing and managing the long-term effects of COVID-19, often described as ‘Long COVID’. It makes recommendations about care in all healthcare settings for adults, children and young people who have new or ongoing symptoms 4 weeks or more after the start of acute COVID-19. It also includes advice on organising services for Long COVID. -
Content Article
The Long Covid Forum 2020 video (12 December 2020)
Patient Safety Learning posted an article in Patient recovery
Coverage from the Long Covid Forum 2020, in association with ISARIC and GLOPID-R LongCovid.org. -
Content ArticleLast week, Patient Safety Learning’s Chief Executive, Helen Hughes, gave an overview of some of the patient safety issues we’ve focused on this year. We then published the first of five mini blogs, looking at one of these key areas, namely the impact of the COVID-19 pandemic on patient safety. This week, we turn our focus to Long COVID. Long COVID is a condition where people experience debilitating and sometimes severe symptoms for more than 12 weeks following confirmed or suspected COVID-19, and where their condition cannot be explained by an alternative diagnosis.
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Content Article
COVID-19: COGER Study (30 November 2020)
Patient Safety Learning posted an article in Data, research and statistics
The COGER study is collecting data to gain insight into the course of functional and medical recovery in older people affected by COVID-19 participating in rehabilitation across Europe. -
Content Article
Coronavirus Recovery: Breathing Exercises
Claire Cox posted an article in Patient recovery
The coronavirus that causes COVID-19 attacks the lungs and respiratory system, sometimes resulting in significant damage. COVID-19 often leads to pneumonia and even acute respiratory distress syndrome (ARDS), a severe lung injury. Recovering lung function is possible but can require therapy and exercises for months after the infection is treated. -
Content Article
Engaging Long COVID patients (30 November 2020)
Patient Safety Learning posted an article in Blogs
Patient Safety Learning looks at some of the concerns facing people living with Long COVID in this blog for the Patient Information Forum. -
Content ArticleBack in April the ME Association (MEA) became aware of an increasing number of people who had been ill with COVID-19 and were not improving, even after several weeks. Almost all had been self-managed at home with an illness that mostly varied from mild to moderate in severity, but not requiring hospital admission. Most had debilitating fatigue, sometimes with continuing COVID-19 symptoms involving the lungs or heart in particular. Some had symptoms that are more consistent with the sort of post viral fatigue syndromes that may precede ME/ CFS. Five months on and we are now in a situation where some people are being given a diagnosis, or a possible diagnosis, of post COVID-19 ME/CFS. Back in April the ME Association produced an MEA guide to post COVID fatigue and post COVID fatigue syndromes. This information and guidance has now been fully updated to cover all the developments that have occurred since then.
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Content ArticleThis letter, published by the BMJ, is written by a group of doctors affected by persisting symptoms of suspected or confirmed COVID-19. Their aim is to share their insights from both personal experience of the illness and their perspective as physicians. In the letter they call for a number of principles to be used so that the best possible outcomes can be achieved for all people affected by persisting symptoms of COVID-19. These principles fall under three categories: Research and surveillance Clinical services Patient involvement Access to services.
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Content ArticleThis is a Early Day Motion tabled in the House of Commons on the 8th September 2020 which notes that significant numbers of people in the UK are living with Long COVID, a term for those with confirmed or suspected COVID-19 who are continuing to struggle with prolonged, debilitating and sometimes severe symptoms months later. The motion calls for the Government to consider and implement measures to support those living with Long COVID.
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Content ArticleOn 28 August 2020, LongCovid.org and partners sent a letter to Jeremy Hunt, Chair of the Health & Social Care Committee, to ask for the UK Government to assemble a multi-disciplinary Long Covid taskforce to consider: improvements to (continuing) professional education more and better research quality psychosocial and mental health services better public health programmes help for NHS and social care workers to return to work safely funding for patient-led support groups. The full letter can be read via the link below.
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Content ArticleThis blog, published in the BMJ, is written by Editor-in-Chief Alison Twycross and Dr Jake Suett, a staff grade doctor in Intensive Care, who both have suspected Long Covid. They discuss what Long Covid is and discuss some of the employment related issues health care professionals may encounter. They are keen to hear from nurses, midwives and other health care professionals with Long Covid about the issues they are facing. Posts on several of the Long Covid Facebook groups suggest that these issues include: Being denied full sick pay because they haven’t had a positive test for COVID-19 (despite the unavailability of tests and relatively high incidence of false negatives). Employers only applying the COVID-19 enhanced sick pay to staff in the acute phase of illness. Being expected to use annual leave for a phased return to work.
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Content ArticleA large sample of non-hospitalised COVID-19 patients still experience multiple symptoms months after being infected. These persistent symptoms are associated with many clinically relevant outcomes, including poor health status and impaired functional status. To date, no information is available about care dependency. The authors of this study, published in the Journal of Clinical Medicine, aimed to explore the level of care dependency and the need for assistance with personal care in non-hospitalised COVID-19 patients.
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Content Article
BMJ: Living with COVID-19 (3 September 2020)
PatientSafetyLearning Team posted an article in Blogs
In this Editors choice piece from the BMJ, the author discusses the persisting and debilitating symptoms that many sufferers of COVID-19 are experiencing and how some are also facing further challenges of dismissive attitudes from doctors. -
Content ArticleIn this commentary, published by Infectious Diseases, authors argue that more support for research is needed on the trajectory of people recovering from COVID-19.
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Content ArticleAuthors of this BMJ Opinion piece, recently had the opportunity to present the existing evidence and highlight patients’ experiences of having Long Covid at a meeting attended by Maria Van Kerkhove, (WHO Covid Technical Lead) and Janet Diaz (WHO Head of Clinical Care) from the central WHO team. At the meeting, Clare Rayner and Amali Lokugamage, both doctors who are experiencing long term impacts of COVID-19, discussed their perspective of having long covid. In this article, the authors summarise the points they raised at the meeting. They also highlight the supportive comments made by Dr. Tedros Adhanom Ghebreyesus, which indicated genuine recognition of long covid sufferers and hope for the future.
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Content Article
Critical Care Recovery: COVID-19
PatientSafetyLearning Team posted an article in Resources for patients
Critical Care Recovery and Life Lines have teamed up to develop this web resource, designed to help patients and families recover from COVID-19. Informed by published expert guidance, they have also worked very closely with front line health care professionals, patients and families. This website will be updated regularly, as more information becomes available. -
Content ArticleWhen you are ill or recovering from an illness, you are likely to have less energy and feel tired. A simple task, such as putting on your shoes, can feel like hard work. This guide from the Royal College of Occupational Therapists (RCOT) uses the 3 Ps principle (Pace, Plan and Prioritise) to help you find ways to conserve your energy as you go about your daily tasks. By making these small changes you’ll have more energy throughout the day.
