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Found 94 results
  1. Content Article
    This conceptual article published in The Joint Commission Journal on Quality and Patient Safety describes the barriers and facilitators of adopting, implementing, and sustaining the Patient and Family Advisory Councils on Quality and Safety (PFACQS) model across a large, geographically diffuse health system. Successful strategies that emerged include active board engagement, co-creation and mentorship by experienced patient advocates to support enhanced engagement by local PFACQS community members, and clear alignment with and line of sight on organisational quality and safety goals. It concludes that implementing a robust network of PFACQS focused on improving quality and patient safety requires leadership commitment to transparency, as well as mutual respect and trust. Establishing clear guidelines, structures, and processes supports early adoption. Openness to continuous improvement and adaptations are important to programme success and contribute to programme sustainability.
  2. Content Article
    Medicines optimisation and shared decision making are frequently used buzzwords, but what do these terms mean in practice? Steve Turner shares some patient stories to reflect on.
  3. Content Article
    Steve Turner's blog look at a workshop session delivered jointly by a facilitator and a user of mental health services. The aims of the session were to discuss adherence to medicines and treatments, relate this to practice through group work and discuss this with a user of mental health services
  4. Content Article
    This article, published by the Royal College of Obstetrics and Gynaecology (RCOG), talks about the 2015 Supreme Court decision on Montgomery vs NHS Lanarkshire. The Ruling has significant implications for doctor–patient communications, information sharing and informed consent. Since the ruling, the College leadership has been meeting with medico-legal experts to fully understand the impact on the profession and to determine the RCOG’s role in supporting our members to work within a shared decision-making model.
  5. Content Article
    Danielle, Critical Care Outreach Nurse at Southend University Hospital, share's her 'We're Listening' leaflet as part of the trust's Call for Concern service. This leaflet will be displayed in all hospital areas. This service has been developed so that patients, friends and family can alert the Critical Care Outreach team if they have concerns that need listening to and gives a telephone number to call and outlines the next steps.
  6. Content Article
    Healthy eating and fitness mobile apps are designed to promote healthier living. However, for young people, body dissatisfaction is commonplace, and these types of apps can become a source of maladaptive eating and exercise behaviours. Furthermore, such apps are designed to promote continuous engagement, potentially fostering compulsive behaviours. This study, published by JMIR Publications, highlights the necessity for careful considerations around the design of apps that promote weight loss or body modification through fitness training, especially when they are used by young people who are vulnerable to the development of poor body image and maladaptive eating and exercise behaviours.
  7. Content Article
    This white paper explores the significance of safety strategies in healthcare settings and how these practices influence the patient and clinician experience. The Experience of Safety in Healthcare: A Call to Expand Perceptions and Solutions, reflects on the integrated nature of safety and service and how they interact to create the overall experience of patients, families and clinicians.
  8. Content Article
    This toolkit from The Point of Care Foundation includes short videos from staff and patients involved in experience-based co-design (EBCD) projects to help bring to life the successes and intense rewards of running this type of improvement project.
  9. Content Article
    This framework provides guidance on how the NHS can involve people in their own safety as well as improving patient safety in partnership with staff. It is relevant to all NHS trusts and commissioners and should also be useful to other NHS settings, including primary care and community services, that are considering how they can involve patients in safety.
  10. Content Article
    A learning disabilities service in Leicester found that experience based co-design (EBCD) was the ideal way to bring together users, families and staff to share experiences of care and design and implement change. Leicestershire Partnership NHS Trust used co-design to improve the way they cared for patients with learning disabilities. In a series of videos, Jane Parr, from the My Care, My Voice project at Leicestershire Partnership NHS Trust, shares her reflections about how the project used Patient Experience programme methodologies to improve communication with patients with learning disabilities. Find out more about EBCD
  11. Content Article
    Good Hydration! is a quality improvement initiative designed by care homes for care homes to reduce urinary tract infections (UTIs) through structured drinks rounds. Developed in partnership with East Berkshire Clinical Commissioning Group, it is now delivering sustained improvements and spreading further afield. Oxford Academic Health Science Network has produced a range of useful resources for care homes to use.
  12. Content Article
    This report by the Patient Experience Library explores the reasons why the healthcare system in the UK has failed to listen to and learn from patient experience. It highlights how the NHS – at an institutional and cultural level – fails to take patient experience evidence seriously enough. It also identifies steps that would strengthen evidence-based practice and ensure that the patient voice is better heard.
  13. Content Article
    The Medicines & Healthcare products Regulatory Agency (MHRA)'s first 'Patient Involvement Strategy' sets out how they will engage and involve the public and patients at each stage of the regulatory journey. The MHRA involved patients throughout the process of developing this strategy and carried out a final public consultation before it was published. The strategy identifies five priority areas for the MHRA: Patient and public involvement Responsiveness Internal culture Measuring outcomes Partnerships.
  14. Content Article
    Fraser Gilmore, Head of Scotland at Care Opinion, outlines the highlights of the 'Annual Review of Stories told on Care Opinion about NHS Boards in Scotland during 2020/21'. He describes an increase in patient feedback and highlights the success of Care Opinion Scotland's online events, including their first conference.
  15. Content Article
    This Annual Review contains data and infographics about patient and staff engagement with Care Opinion at 17 NHS boards in Scotland between April 2020 and March 2021. The theme of the review is 'Communication, connectivity and relationships' and it notes that use of online communication has become more widespread as a result of the COVID-19 pandemic, a factor which has contributed to increases in online patient feedback.
  16. Content Article
    This report from the Patients Association describes shared decision making and its benefits, before going on to assess how it has been formally embedded in NHS programmes and practice. It identifies the barriers preventing shared decision making becoming a reality for patients as a matter of course, and possible solutions.
  17. Content Article
    In this blog, peer researchers Saffron, Bianca and Alysha describe their involvement in a study about violence and mental health funded by the UKRI Violence, Abuse and Mental Health Network. The study looked at how adolescents’ experiences of violence and neighbourhood disorder—such as vandalism and muggings—affects their mental health as they move into adulthood. As peer researchers, they helped analyse data and used their lived experience to interpret the findings and co-author an academic research paper. They highlight the value of involving people with relevant lived experience in research studies.
  18. Content Article
    Patients can play a distinct role in protecting their health, choosing appropriate treatments for episodes of ill health and managing chronic disease. Considerable evidence suggests that patient engagement can improve their experience and satisfaction and also can be effective clinically and economically. This policy brief outlines what the research evidence tells us about the effects of engaging patients in their clinical care, and it reviews policy interventions that have been (or could be) implemented in different health care systems across Europe. In particular, it focuses on strategies to improve: health literacy treatment decision-making self-management of chronic conditions.
  19. Content Article
    The Center for the Advancement of Team Science, Analytics, and Systems Thinking, College of Medicine, Ohio State University, have created a model to conceptualise engagement capacity drawing upon social cognitive theory, developed in the 1960s and 1970s by Canadian psychologist Albert Bandura to explain the various ways that people acquire behaviours. This theoretical framework is widely used specifically to study how people acquire their health habits. The theory includes the concept of 'reciprocal determinism': the idea that there is a dynamic relationship between the person, their environment, and their behaviours, in which they continually influence each other and are influenced by each other. A focus on capacity and context can help providers and health care organisations identify the dimension(s) of engagement that create the greatest barriers for both individual patients and their patient population as a whole, and allocate their resources accordingly.
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