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Showing results for tags 'Patient involvement'.
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Content ArticleThis training tracker from the Patient Experience Library helps you find courses on patient experience and patient/public involvement hosted by a range of external organisations. Each listing contains details on how to book places and contact the course providers.
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Content ArticleMental health is an important component of individual well-being and social participation. According to the Organisation for Economic Co-operation and Development (OECD) between one in six and one in five people experience a mental health problem in any given year and an estimated one in two people experience a mental health problem in their lifetime. There is a need to measure patients’ experience of mental health care delivery and effects of mental health treatment approaches. Patients are in a unique position to contribute to the quality of health care since they are the only ones who experience the whole episode of care from primary care in communities through hospital care to rehabilitation and follow up in general practice. Health professionals in contrast experience only a snap shot of the entire patient’s journey in the health care system. PREMs ((patient-reported experience measures) and PROMs (patient-reported outcomes measures) are means to assure that the patient voice in health care will be heard and institutionalised. This supplement focuses on how to include the patient voice in mental health, in terms of PREMs and PROMs.
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Content Article
Using patient stories to reflect on care (2016)
Patient Safety Learning posted an article in Patient stories
There is an increasing emphasis on, and commitment to, using patient narratives in nursing practice and nurse education. Listening to the voices of those receiving our care is just the beginning. The challenge is to use these narratives to improve practice and the patient experience. This seven-part series in the Nursing Times presents narratives from three fields of nursing: adult, mental health and learning disability. Each article includes opportunities to reflect on the stories presented and consider their implications for practice.- Posted
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News Article
Huge leap in breast cancer survival rate
Patient Safety Learning posted a news article in News
The number of people who die after a breast cancer diagnosis has decreased by two-thirds since the 1990s, a study of more than half a million women in England has shown. The research has taken ten years to complete, says Carolyn Taylor, lead author of the study and an oncologist at the University of Oxford, UK. The analysis includes the 512,447 women in England who were diagnosed with early invasive breast cancer between January 1993 and December 2015. The results published in the BMJ found women who were diagnosed in 1993–99 had a 14.4% risk of dying within 5 years. This fell to 4.9% for women diagnosed in 2010–15. Patient involvement was important to the study, Taylor says. The scientists appointed two patient representatives to guide their research. “They helped us in the questions to be addressed. They looked at the analyses and gave comments and suggestions throughout the study. And they helped us to interpret the results in the way that patients can understand.” Read full story Source: Nature, 23 June 2023 -
Content ArticleDavina McCall’s documentary Pill Revolution missed an opportunity to validate painful experiences of intrauterine devices and promote better practice, writes Stephanie O'Donohue, Patient Safety Learning's Content and Engagement Manager, in an opinion piece for the BMJ.
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- Womens health
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Content ArticleThis article highlights three questions tabled in the House of Commons relating to the Yellow Card Scheme, the system for recording adverse incidents with medicines and medical devices in the UK.
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Content ArticleThe Health and Social Care Select Committee have published a new report reviewing the progress that the UK Government has made in implementing the recommendations of the Independent Medicines and Medical Devices Safety Review, sometimes referred to as the Cumberlege Review. This blog sets out Patient Safety Learning’s reflections on this report.
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Content ArticleDr Henrietta Hughes, England's Patient Safety Commissioner, discusses how the experiences of people from Black and minority ethnic groups has worsened since the pandemic and how this has impacted on patient safety, in a blog for the NHS Race & Health Observatory.
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Content ArticleIn this article, published by Patient Satisfaction News, author Sarah Heath argues that more needs to be done to address the power imbalance between patients and providers. She discusses the dangers of a paternalistic approach and why patient engagement and shared decision making is key to patient safety.
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Content ArticleIn this blog, peer researchers Saffron, Bianca and Alysha describe their involvement in a study about violence and mental health funded by the UKRI Violence, Abuse and Mental Health Network. The study looked at how adolescents’ experiences of violence and neighbourhood disorder—such as vandalism and muggings—affects their mental health as they move into adulthood. As peer researchers, they helped analyse data and used their lived experience to interpret the findings and co-author an academic research paper. They highlight the value of involving people with relevant lived experience in research studies.
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- Research
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Content ArticleThe paradox of representation in public involvement in research is well recognised, whereby public contributors are seen as either too naïve to meaningfully contribute or too knowledgeable to represent ‘the average patient’. Given the underlying assumption that expertise undermines contributions made, more expert contributors who have significant experience in research can be a primary target of criticism. Knowles SE et al. conducted a secondary analysis of a case of expert involvement and a case of lived experience, to examine how representation was discussed in each.
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Content Article
Vaginal mesh: The forgotten women (4 July 2022)
Patient Safety Learning posted an article in Women's health
Mesh survivors Katherine Cousins and Mary McLaughlin talk about their ongoing fight for justice for women suffering due to vaginal mesh.- Posted
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- Medical device
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Content ArticleThe Framework for Involving Patients in Patient Safety (PSP) identifies the requirement for individual organisations to develop local approaches to recruiting, working with and supporting Patient Safety Partners based on the principles provided. As integrated care systems (ICSs) are established opportunities for recruiting PSPs at ICS level to work across the system are being locally considered at system level. A focus group was held in May 2022 with Patient Safety Specialists from both provider and commissioning organisations to discuss the benefits and risks of recruiting PSPs at both provider and system level. This presentation is intended to support organisations when determining the most appropriate approach for their needs.
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Content ArticleThe Quality Network for Inpatient Working Age Mental Health Services (QNWA) based within the Royal College of Psychiatrists' Centre for Quality Improvement are pleased to announce the publication of their 8th edition standards. Since the publication of the first edition standards in 2006, the Network has grown to include over 140 members from the NHS and private sector. This new edition of standards aims to reflect the changes in working practices and legislation over the last two years in addition to placing greater emphasis on equality, diversity and inclusion as well as sustainability in inpatient mental health services. The eighth edition standards have been drawn from key documents and expert consensus and have been subject to extensive consultation with professional groups involved in the provision of inpatient mental health services, and with people and carers who have used services in the past.
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- Mental health
- Mental health unit
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Content ArticleThe Belfast Health Trust failed to intervene quickly enough in the practice of a doctor which led to Northern Ireland's largest ever patient recall, the Independent Neurology Inquiry has found. More than 5,000 former patients of neurologist Michael Watt were invited to have their cases examined for possible misdiagnoses. Among the conditions being treated were stroke, Parkinson's disease and multiple sclerosis (MS). The inquiry found "numerous failures". The Independent Neurology Inquiry concluded that the combined effect of the failures ensured that patterns in the consultant's work were missed for a decade.
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- Medicine - Neurology
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Content ArticleThis study, published in the Journal of the Royal Society of Medicine, examines national policies of complaint handling in English hospitals, how they are understood by those responsible for enacting them, and explores if there are any discrepancies between policies-as-intended and their reality in local practice.
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Content ArticleThe first wave of the pandemic necessitated a large scale shift to greater digital engagement with patients, yet progress has not been uniform. While virtual consultations have become increasingly commonplace, communication outside of those appointments is still often analogue and generally sporadic. Cancelling an appointment – or indicating in advance that a specific day or time doesn’t work – remains a complicated, non-digital experience for many patients. With millions now on waiting lists for treatment, and a significant minority having already waited two years, this sort of communication gap becomes more challenging. As such there are arguments that it’s now time for the digital acceleration seen during the pandemic to extend to this area too.
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- Digital health
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Content ArticleFrom the perspective of patient partners, the Ontario SPOR SUPPORT Unit Engaging Multi-stakeholders for Patient Oriented-research Wider Effects and Reach Awards have facilitated successful patient-partnered research projects, which, in turn, have led to an evolution in patient partnerships and engagement strategies. The 15 projects profiled in this special issue point to the beneficial impacts of patient-partnered research.
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EventuntilThe Medicines and Healthcare products Regulatory Agency (MHRA) will be holding a joint virtual Innovative Licencing and Access Pathway (ILAP) information and update session. This event will provide an opportunity for patient groups and patient experts to receive an update on the work of the ILAP, how the MHRA involve patient and public representatives, and future developments about how the MHRA are accelerating the time to market and facilitating patient access to innovative medicines. This event is open to all patient and public representatives who are involved in the work of any of the ILAP partners. Along with presentations from some of the ILAP team, a patient representative will share their experiences as a member of the pilot ILAP Patient and Public Reference Group. There will also be a panel discussion session with plenty of opportunity for questions from participants. Register
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- Regulatory issue
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Content ArticleIn patient experience research, participants frequently report the impact that mesothelioma has on their mental health yet there have been very few studies specifically focused on mental health and mesothelioma. In patient experience research, participants frequently report the impact that mesothelioma has on their mental health yet there have been very few studies specifically focused on mental health and mesothelioma. This new study from the Mesothelioma UK research centre aims to create an understanding of the impact of mesothelioma on the mental health of patients, their families and close friends, and what people do to improve their mental health and well-being.
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EventuntilThe King's Fund and Healthwatch England join forces on 28–31 March 2022 to explore how meaningful engagement and listening to people’s experiences can result in better-quality care. We will all need to use health and social care services at some point in our lives. Many complex factors can influence the quality of care we receive. However, policy-makers and researchers are increasingly highlighting the importance of putting people's voices at the centre of organising and planning health care services. Although seen as important, listening to people properly, harnessing the lessons from feedback and implementing them to make changes is not always straightforward. How can the NHS and social care services ensure that they really listen to and learn from people and communities? Event topics How to listen well – we'll show you examples of good-quality engagement and the methods you can use to implement these How you can improve commissioning and service delivery by listening to people How public engagement is a critical asset in the battle against health inequalities How people’s voices are already making a difference to strategy and policy-making The opportunities to ensure people’s voices are used meaningfully within integrated care systems. Buy tickets
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Content ArticleA report from the Institute of Health and Social Care Management Power-House series discusses virtual wards, an innovation due to be implemented at scale in the NHS as a method of addressing patient waiting lists. With the help of remote treatment options and supported by technology, patients are monitored and cared for in their own homes. The report lists the advantages and disadvantages of this approach. In addition to the report, you can watch the 'How to virtual wards Power Hour' video where an expert panel discusses the details around virtual wards. Roy Lilley was joined by Professor Alison Leary, Elaine Strachan-Hall, Steph Lawrence, Alexandra Evans and Dr Elaine Maxwell for an unmissable hour of insight, expertise and guidance.
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Content Article
NHS My Planned Care Patient Platform
Patient Safety Learning posted an article in Other health and care software
My Planned Care gives you advice and support while you wait and helps you to prepare for your hospital consultation, treatment, or surgery. This includes giving you information about waiting times at your hospital and other supporting and local services while you wait. This site is updated weekly and can be viewed by anyone, which means you, your family or carer as well as your NHS team can all see the latest information. Your hospital team will be in touch with you as soon as they can. If you are looking for an update, please check this website before contacting your hospital or GP.- Posted
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- Digital health
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Content Article
NIHR: Patient & public involvement in research resources
Patient Safety Learning posted an article in Research
Whether you’re just getting started with involving patients and the public in your work, or if you’re looking for some new techniques, there are some great resources out there. The NIHR have pulled together some of the best available resources to help you involve patients, service users, carers and family members in your research.- Posted
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Content ArticleThis paper, published in the Journal of Health Services Research & Policy, examines the potential of combining insights from patient complaints and staff incident reports for a more comprehensive understanding of the causes and severity of harm. In their conclusion, the authors state that this study demonstrates the value of using patient complaints to supplement, test and challenge staff reports, including to provide greater insight on the many potential factors that may cause unsafe care.