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Found 69 results
  1. Content Article
    PEP Health is a social media listening tool which offers a radical new approach to collecting and analysing the views of patients on the health services they encounter. The platform delivers comprehensive real-time reporting of what patients really think about their care and provide actionable insights that can function as a board assurance tool and provide feedback to inform operational decisions. This report explores some of the key findings from PEP Health data on trends and variation in patient experiences across hospitals in England and derives insights and recommendations that can lead to improvement in care.
  2. Content Article
    In this International Society for Quality in Healthcare (ISQua) webinar, Eugene Litvak discussed streamlining patient flow to improve access to care and its quality, and reduce cost. Other benefits include lower staff turnover rates, improved organisation culture and improved patient outcomes. Eugene gives a number of examples of hospitals where this 're-engineering' of pathways has resulted in increased performance and reduced risk.
  3. Content Article

    Faded rainbows

    Claire Cox
    As the colourful rainbows in people's windows are beginning to fade, is the public support for our frontline workers also fading? Has gratitude and thank you's been replaced with frustration and anger from the public? In her latest blog, critical care outreach nurse Claire reflects on the impact this is having on the wellbeing of already exhausted frontline staff.
  4. Content Article
    This paper from Helen Hughes presents a proposal to improve the safety of patients and the effectiveness of healthcare using Human Factors methods.
  5. Content Article
    In her latest blog for the hub, topic lead Eve Mitchell discusses the impact COVID-19 is having on the mental health and wellbeing of healthcare staff who are now having to absorb the anger of the public, patients, and their carers. 
  6. Content Article
    This article from Susan Carr discusses how fear is keeping patients from getting the care they need. The author highlights the importance of recognising that rebuilding trust in the system disrupted by COVID-19 will take time and the role of leaders to anchor this effort.  
  7. Content Article
    Patient experience measures are widely used as a means of assessing the quality of care from the perspective of users. Despite the recent proliferation of these measures, they are all too often poorly understood and fail to lead to service improvements. This session, from the European patient experience and innovation congress (EPIC), will look at the role that measuring and understanding experiences can play in ensuring that care services are person-centred, including the barriers to effective use of experience information and how these can be overcome.  
  8. Content Article
    When patients give feedback to healthcare providers, the topic of "communication" often features prominently. That is because when people are feeling vulnerable, the way they are spoken to, and the words that are used, matter a great deal. There can be few experiences that are more distressing than the death of a baby. So we need to think very carefully about how bereaved parents are spoken to. This paper looks at clinical terms such as "miscarriage", "stillbirth" and "neo-natal death" and finds that "These categorisations based on gestational age and signs of life may not align with the realities of parental experience". This study, published by the International Journal of Obstetrics and Gynaecology, explored the healthcare experiences of parents whose babies had died just before 24 weeks of gestation. Those interviewed "felt strongly that describing their loss as a "miscarriage" was inappropriate and did not adequately describe their lived experience".
  9. Content Article
    PHSO – Labyrinth of Bureaucracy is the follow-up report to the November 2014 Patients Association report on the Parliamentary and Health Service Ombudsman, The ‘Peoples’ Ombudsman – How it Failed us.
  10. Content Article
    In the worst moment of your life, what would you need? In 2017, Jen Gilroy-Cheetham’s life changed forever. Just six months after having her second child, she was diagnosed with a rare neuroendocrine tumour and was advised that she would need to undergo open surgery to have half of her stomach removed. Complications led to one of the darkest and scariest times of Jen’s life, as she was put into a hospital ward feeling unwell, vulnerable and unsafe. Now recovered, Jen shares her experiences as a patient from a hospital bed - or audience member - watching all of the healthcare staff around her - actors on a stage - doing everything they could to make her feel safe. In reliving her journey to recovery, Jen highlights what’s needed within a healthcare setting to make patients feel safe. Jen feels that highlighting what’s worked well to help her to feel safe and what needs to change is valuable and may help others in the future.
  11. Content Article
    When someone you love is hospitalised, it can be scary-even terrifying-for the patient and for family and friends. A hospital may seem like a foreign land. Sounds, smells, and the culture are unfamiliar; even the medical terminology sounds like a different language. Understanding the hospital environment and knowing how to navigate its complicated pathways can make you a strong champion for your loved one. You are as critical to your loved one's recovery as the doctors and nurses. Your role is different, but vital. In some cases, you can make the difference between life and death. Hospital Warrior de-mystifies the process and provides the tools, understanding and insight you need to get the best care for your loved one.
  12. Content Article
    The prison population of England and Wales is around 86,000 prisoners. This report by the NHS Benchmarking Network summarises the results of an audit that has taken place across Health and Justice Commissioning services, Her Majesty’s Prison and Probation Service (HMPPS) and NHS England Specialised Commissioning to quantify the extent of prisoners waiting for assessment and waiting for transfer to mental health facilities (secure and non-secure services).
  13. Content Article
    For the fourth year, the Health Quality Council of Alberta (HQCA), in partnership with the Patient and Family Advisory Committee (PFAC), held the Patient Experience Awards programme to recognise and help spread knowledge about initiatives that improve the patient experience in accessing and receiving healthcare services in Alberta, Canada. Applications spanned all corners of the province and came from a wide variety of care settings, and ranged from “elegantly simple” to complex in nature. The initiatives described reflected the diverse healthcare needs of Albertans and were equally diverse in their approach to healthcare improvement. However, they all had one thing in common: A desire to make change and deliver a better patient and family member experience.
  14. Content Article
    The NHS is in crisis – it's in record demand, and care services are at breaking point – but what if the solution to rescuing the NHS is in the hands of the patients themselves? In this refreshingly positive and remarkable book, David Gilbert shares the powerful real-life stories of 'patient leaders' – ordinary people affected by life-changing illnesses, disabilities, or conditions, who have all gone back into the fray to help change the healthcare system in necessary and inspiring ways. Charting their diverse journeys – from managing to live with their condition, and their motivation to change the status quo, right through to their successes in improving approaches to health and social care – these moving and courageous stories aim to motivate others to take back control and showcase the pivotal importance of patients as genuine decision-making leaders. 
  15. Content Article
    The Institute for Safe Medication Practices (ISMP) is the only nonprofit organisation in the US devoted entirely to preventing medication errors.  In this video, produced by ISMP in partnership with the Temple University School of Pharmacy, experts discuss medication safety concerns and offer practical error prevention recommendations. 
  16. Content Article
    The patient is the biggest stakeholder in the NHS with the most to lose when things go wrong. Suzie Shepherd and Dr Kate Granger share their experiences in this video.
  17. Content Article
    ThinkSAFE is developed by Newcastle University, in partnership with NHS staff and patients.  Research has shown that by encouraging patients and their families to work together with hospital staff, safety can be improved during the patient’s stay in hospital.
  18. Content Article
    Helen Haskell, co-chair of the WHO Patients for Patient Safety Advisory Group, brings the patient leader perspective to her take on World Patient Safety Day in this essay published in the BMJ.
  19. Content Article
    Listening to patients is hugely important as they are at the very the heart of what we do. We need to listen to them more, as they help us all move the conversation on safety forward. This short video from the Health Service Journal includes patients, relatives and patient advocates and staff who speak about their experiences from being in the healthcare system.
  20. Content Article
    This report aims to build a better understanding of the role of patient and public involvement (PPI) in research, helping ensure meaningful involvement that has tangible impacts and to mitigate against undesired consequences.
  21. Content Article
    The King's Fund commissioned this research project from Picker Institute Europe to examine the role of patient engagement and involvement in the quality and development of general practice services.
  22. Content Article
    Interesting article, by the Patient Safety Network, around how patients can be involved in the solution and the cause of some patient safety incidents.
  23. Content Article
    Involving patients in improving safety is a Health Foundation publication also known as an evidence scan. It is designed to help those involved in improving the quality of healthcare understand what research is available on a particular topic. This publication describes research into how patients have been involved in improving safety.  It addresses two questions: How have patients and carers been involved in improving safety in healthcare?  Is there any evidence that patient involvement leads to improved safety? 
  24. Content Article
    In this thought paper published by The Health Foundation, Dr Rebecca Lawton and Dr Gerry Armitage look at ways to involve patients in clinical safety and the readiness of patients and health professionals to adopt new roles. They discuss the importance of involving patients in the development of patient engagement and involvement strategies. Genuine patient involvement in their own care requires a fundamental cultural shift in the relationship between patients and clinicians. 
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