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Showing results for tags 'Patient engagement'.
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Content Article
House of Lords debate – Patient Safety Commissioner (2 December 2021)
Mark Hughes posted an article in England
This is a debate from the House of Lords on 2 December 2021 about when the process to appoint a Patient Safety Commissioner for England will commence and when the Commissioner is expected to be in post.- Posted
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Content ArticleIn the Scottish Government’s Programme for Government 2020-21 it committed to establishing a Patient Safety Commissioner for Scotland. The decision to create this role came about as a result of a specific recommendation in the First Do No Harm: The Report of the Independent Medicines and Medical Devices Safety Review (also known as the Cumberlege Review), published in July 2020. The Scottish Government held a consultation process seeking views on a range of issues relating to the creation of a new Patient Safety Commissioner role between 5 March 2021 and 28 May 2021. This report analyses responses from the public and other interested parties.
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Content ArticleTechnical developments tend to grab the headlines in health care. Predictive analytics, telemedicine, electronic health records — technology is rightly seen as a transformative force in health delivery. But it’s not the only one. At Rotterdam Eye Hospital, hospital administrators have found that through their ongoing design-thinking programme, lower-tech measures can also improve health care. Simple measures such as building a more intuitive website, replacing harsh fluorescent lighting and cold linoleum floors with softer lighting and wood parquet, and giving children and pediatric ophthalmologists matching T-shirts have reduced patient fears. Addressing patients’ fears is important because fear can make an eye operation difficult or even impossible. Moreover, less fear translates into greater patient satisfaction. In an article for Harvard Business Review, Dirk Deichmann and Roel van der Heijde explain how now Rotterdam Eye Hospital has integrated a measure that is even lower-tech: better conversations...
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- User centred design
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Content ArticleIn this opinion piece for the BMJ, David Oliver, a consultant in geriatrics and acute general medicine, draws lessons from the Grenfell Tower disaster and subsequent public inquiry. 72 people lost their lives in the fire that destroyed Grenfell Tower in 2017. Evidence to the public inquiry has shown that several residents had raised concerns about the building's safety over many years, and that architects, building contractors, and providers and fitters of cladding material had also expressed concerns about the safety of the exterior cladding used on Grenfell Tower. David Oliver highlights that had these concerns been listened to and acted on, the disaster could have been avoided and many lives saved. He draws parallels with concerns being raised by patients about the safety of the healthcare system and highlights the role of staff in repeatedly raising and keeping a record of concerns. He states that NHS leaders must create a culture where no one is afraid to speak out and act to mitigate safety issues. Leaders must expect to be held accountable for their response - or lack of response - to safety issues raised.
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- Patient safety strategy
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Content ArticleThe James Lind Alliance (JLA) Guidebook is aimed at people interested in the JLA’s priority setting process: namely, patients and their carers, clinicians and the organisations that represent them. It is a step-by-step guide to establishing and managing a Priority Setting Partnership (PSP) and the principles behind it. PSPs bring patients, their carers and clinicians together to identify and prioritise unanswered questions (or as they can sometimes be referred to ‘evidence uncertainties’) in specific conditions or areas of healthcare, for research, using JLA methods, The Guidebook is intended to help PSPs work effectively using established methods to ensure credible and useful outcomes.
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Content ArticleIn this blog for National Voices, Sue Brown, CEO of the Arthritis and Musculoskeletal Alliance, argues that using the word 'elective' when referring to elective surgery is misleading, and downplays the seriousness of waiting for a long time for treatment or surgery. She looks at the impact of waiting too long for surgery such as joint replacement on the lives of patients. Intense, long term pain and loss of mobility can lead to deteriorating mental health, isolation from friends and family and job loss, among other things. Patients needs support while they wait for surgery, and Sue outlines what she believes is needed to support patients who have had community and secondary care delayed: Design support with those with lived experience – ask what is important to them. Use the things we know can help, like social prescribing and health coaching – individual or group personal support. Use the voluntary and community sector who have a wealth of experience in supporting long term condition management – people need to know they are not alone and get support from others in the same situation.
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- Long waiting list
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Content Article
Healthy data e-consultation (2022)
Patient-Safety-Learning posted an article in Data and insight
The Healthy Data e-consultation is a joint initiative run by the Belgian project 'Towards the development of a national health data platform' (AHEAD) and the European initiative 'Towards a European Health Data Space' (TEHDAS). Its aims are: to listen to citizens and patients’ views on health data secondary use and sharing, and on the role that they would like to play in the management and use of their health data. to increase citizen awareness, engagement and empowerment on the topic, so that everyone can develop informed opinions and take an active role in the use of their health data. Anyone can sign up and share their views on the following questions: What should your health data be used for? Under which conditions should your health data be used? How would you like to be informed and involved in the reuse of your health data? What other ideas do you have on health data reuse?- Posted
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Content Article
The Health Literacy Place toolkit
Patient-Safety-Learning posted an article in Health inequalities
It is easy to underestimate people’s health literacy needs, because those needs can be hidden or people can be reluctant to admit that they haven’t understood the information they have been given. This toolkit by The Health Literacy Place contains a range of resources to help healthcare professionals better understand and meet the health literacy needs of their patients.- Posted
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- Health literacy
- Health inequalities
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Content ArticleThis article in The BMJ discusses the consequences for practising doctors of the 2015 Montgomery v Lanarkshire Case. The case was brought by Nadine Montgomery, a woman with diabetes and of small stature, after she delivered her son vaginally and experienced complications during the birth which resulted in her son having cerebal palsy. Her obstetrician had not disclosed the increased risk of this complication in vaginal delivery, despite Montgomery asking if the baby’s size was a potential problem. The Supreme Court ruling in her favour established that a patient should be told whatever they want to know, not what the doctor thinks they should be told.
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Content ArticleThis guide by The Eve Appeal and The Survivors Trust gives information about attending cervical screening for survivors of rape, sexual abuse or assault. It offers tips that may help patients feel more comfortable about their appointment. It is part of the #CheckWithMeFirst campaign to help raise awareness of the challenges survivors of rape, sexual abuse and sexual violence may face when accessing cervical screening.
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- Surgery - Obs & Gynae
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Content ArticleThis is the second in our new series of Patient Safety Spotlight interviews, where we talk to different people about their role and what motivates them to make health and social care safer. Marie talks about her campaign for justice for families affected by hormone pregnancy tests, why she is passionate about reforming medicines regulation and the important role patient campaigners play in improving patient safety.
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- Maternity
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Content ArticleThis study in Social Science & Medicine aimed to fill a gap in existing research by exploring public views of health inequalities and potential policy responses in three UK cities in July 2016. This involved a nationally representative survey and three two-day citizens' juries that took place in Glasgow, Manchester and Liverpool. The results of the study demonstrate significant public support for proposals that aim to tackle health inequalities through improvements to living and working conditions. There is more limited support for proposals targeting individual behaviour change,
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Content Article
Patient blog - A tale of two MRIs (10 July 2020)
Patient-Safety-Learning posted an article in Patient stories
This blog by patient Lelainia Lloyd in the Journal of Medical Imaging and Radiation Sciences is a personal account of two starkly different MRI appointment experiences. In the first scan, the technologist said very little to Lelainia and the experience left her with significant anxiety about future MRIs. But her second experience was completely different, with the technologist communicating clearly, asking questions and making sure she felt comfortable throughout the process. Lelainia highlights the importance of communicating clearly and compassionately with patients to make them feel safe and able to ask for help. She outlines some practical steps for healthcare workers to help them engage with patients and ensure they are clearly consenting to all aspects of care and treatment.- Posted
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Content ArticleThis article, published in the International Journal for Quality in Health Care, explores the usage of participatory engagement in patient-created and co-designed medical records for emergency admission to the hospital. It is advocated as a means to improve patient safety.
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Content ArticleThis declaration was written by participants of the regional workshop on 'Patients for Patient Safety’ in July 2007 in Jakarta, Indonesia. This included patients, consumer advocates, health care professionals, policy-makers and representatives of non-governmental organisations, professional associations and regulatory councils. It was inspired by the WHO World Alliance for Patient Safety, Patients for Patient Safety London Declaration (March 2006).
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Content ArticleIn this blog for the Hospital Times, Tracy Bignall, Senior Policy and Practice Officer at the Race Equality Foundation, writes about how ethnicity impacts on women's health experiences. She argues that the The Department for Health and Social Care (DHSC) Vision for the Women's Health Strategy released in December 2021 does not give adequate attention to the influence that ethnicity has on women's experience of, and outcomes in healthcare. The article outlines instances in healthcare where ethnicity has an impact on women's health and calls for specific action to address how ethnicity influences health inequalities.
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- Womens health
- Health inequalities
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Content ArticleIn this editorial in the Journal of Health Services Research & Policy, Professor Brendan McCormack, Associate Director of the Centre for Person-centred Practice Research at Queen Margaret University Edinburgh, looks at the role of person-centred care in improving quality in health systems. He argues that there is a need to demonstrate the value of person-centred cultures and the significance of person-centred outcomes to healthcare organisations. In order to achieve this, researchers need to utilise theory-driven and mixed-methodology evaluation designs that demonstrate effectiveness and capture the diversity of experiences among all stakeholders.
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Content ArticleThis study in the International Journal for Equity in Health aimed to listen to the views of community leaders from seven diverse urban communities in Minneapolis-Saint Paul, Minnesota, around quality healthcare and financial reimbursement. In the US, healthcare quality is measured by insurers, professional organisations and government agencies, with little input from diverse communities. The researchers found that community leaders identified several ideal characteristics of quality primary healthcare, most of which are not currently measured. Community leaders expressed concern that health inequalities are perpetuated when social and structural determinants of health are not considered in determining quality.
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Content ArticleThis scoping review in JMIR Human Factors looked at existing research into how including the reason for use on a prescription impacts pharmacists. It suggests that including the reason for use on a prescription can help the pharmacist catch more errors, reduce the need to contact prescribers, support patient counselling, impact communication and improve patient safety. Concerns about workflow and patient privacy may be factors that prevent the inclusion of use information. The review identified that more research is needed to better understand how the inclusion of use information affects pharmacists.
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Content ArticlePeople and communities using heath and care services are best placed to understand what they need, what is working and what could be improved. The health and care system can listen and learn from the people and communities it serves in a variety of different ways. From local Healthwatch teams to large scale national patient surveys, to citizen assemblies run by local government and service user stories, there is a wealth of insight and data already being collected across both the NHS and local government. This explainer from the King's Fund is intended as an introduction for those working in the health and care system who want to understand more about this area of work. It looks at some of the terminology used in this area and outlines the different ways and methods that the NHS and local government can hear from people and communities at both a national and local level. It asks what the introduction of integrated care systems (ICSs) means for this work and how partners in these new systems can listen together to people and communities.
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- Patient engagement
- Collaboration
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EventThis virtual masterclass will build confidence in compassionately engaging and involving families and loved ones to work within the requirements of PSIRF and the Complaints Standards Framework. But more than this, the masterclass will support staff to go beyond compliance to understand the issues and emotional component on a deeper level; to have real authentic engagement and involvement with patients and families. New frameworks such as PSIRF are now in place, but how do we not only comply with these, but go beyond compliance to have real authentic compassionate engagement and involvement with patients, families and indeed staff to make a real positive difference? Connecting new knowledge with emotions can really support long term learning, which is an important part of this masterclass. Knowing things may have gone wrong can feel a heavy burden and a complex emotional situation to be managing. Often, we avoid visiting difficult emotions in others, as well as ourselves, because we don’t feel confident or skilled, or we feel fearful of not doing it perfectly. This one-day masterclass will look at the new PSIRF and the Complaints Standards Framework and through real life content, bringing the human focus for the patients, loved ones, and indeed staff to the forefront. It will support staff to explore what compassionate engagement looks like, feels like, and how to communicate it authentically and meaningfully. In a supportive and relaxed environment, delegates will have the opportunity to gain in depth knowledge of the emotional component, relate to, analyse and realise the significance of and believe in their own abilities in creating practices that not only support the PSIRF but go beyond compliance to be working in a way that supports gaining an optimum outcome for patients, families and staff, in often a less than optimum situation. Key learning objectives: Feel, analyse, and explore the presence and absence of compassionate engagement within life, trauma, and a healthcare incident and how empathy is the gateway to compassion. Seeing perspectives and understanding emotional motivations and the emotional component recognising vulnerability in others and self. Seeing the bigger picture and having an enquiring mind to understand the story and how the ‘Funnel of Life’ can impact on our ability to engage. Build confidence in the positive impact of compassionate engagement and really being authentically interested in the emotional component to be able to create an optimum outcome in often a less than optimum situation. Explore and have a good grasp of how internal unconscious belief systems, can link through to the outcomes we achieve. We know what works with compassionate engagement, but why do we so often struggle? Explore and analyse biases, judgments, and how a lack of compassionate engagement not only has the potential to cause psychological harm, but can prevent optimum outcomes for the organisation. Realise the significance of authenticity rather than feeling fearful of not doing things perfectly. Examine where can we get emotional information from to support us, even if we are not aware we are doing it! Identify the importance of an enquiring mind and a hypothesis as we try and understand the story that we are aiming to compassionately engage with. Develop understanding of Safeguarded Personal Resolution (SPR ®) to formulate compassionate engagement under PSIRF and the Complaints Standards Framework. Develop awareness on personal wellbeing and resilience. Register hub members receive a 20% discount. Email info@pslhub.org for discount code.
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Event
HSIB Safety Investigations Conference 2023
Patient Safety Learning posted an event in Community Calendar
The annual Healthcare Safety Investigation Branch (HSIB) conference agenda will cover: A focus on patient and family engagement. Sharing learning from HSIB national investigations – what has been learnt and how it can help support and improve local investigation practice. HSIB's maternity investigation programme work with families and trusts. This includes how HSIB implements learning from investigations and where the opportunities are to influence change. HSIB's work on Safety Management Systems. How HSIB's education programme is sharing learning to develop and improve local safety investigations. • An overview of HSIB's international work. Breakout sessions to share knowledge. You will also hear how the HSIB will form into the Health Services Safety Investigations Body and the Maternity and Newborn Safety Investigations (MNSI) function and how this may impact you. Register- Posted
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- Investigation
- Patient engagement
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