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Showing results for tags 'Patient engagement'.
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Content ArticleHealthcare services improvisation relies heavily on collaborating with patients and caregivers by acknowledging their feedback to enhance quality and safety. The 2023 World Patient Safety Day underscores the significance of co-production with patients in safety strategies. In accordance with this, a crucial tool that involves patients and caregivers is the “Patient-reported experience measures (PREMs)” that help in assessing healthcare delivery in terms of quality, safety and performance. These tools for various healthcare processes offer valuable insights into treatment effectiveness and areas needing improvement. PREMs are surveys used to assess patients' care experiences objectively, aiding in pinpointing the areas for improvement. Unlike patient satisfaction measures, which reflect only subjective evaluations, PREMs offer an objective view of care encounters. In view of the importance of a standardised tool for Indian health care organisations, CAHO in collaboration with various stakeholders and patients unveil the White paper on Patient-Reported Experience Measures (PREMs) tool development process. This white paper was released by the honourable governor of West Bengal, Dr C.V Ananda Bose at the recently concluded CAHOCON 2024 at Biswa Bangla, Kolkata.
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Content ArticleMeasures exist to improve early recognition of, and response to, deteriorating patients in hospital. However, deteriorating patients continue to go unrecognized. To address this, interventions have been developed that invite patients and relatives to escalate patient deterioration to a rapid response team. To systematically review articles that describe these interventions and investigate their effectiveness at reducing preventable deterioration.
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Content ArticleMeasures exist to improve early recognition of and response to deteriorating patients in hospital. However, management of critical illness remains a problem globally; in the United Kingdom, 7% of the deaths reported to National Reporting and Learning System from acute hospitals in 2015 related to failure to recognize or respond to deterioration. The current study explored whether routinely recording patient-reported wellness is associated with objective measures of physiology to support early recognition of hospitalised deteriorating patients.
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Content ArticleMeasures exist to improve early recognition of, and response to deteriorating patients in hospital. Despite these, 7% of the deaths reported to the National Reporting and Learning System from acute hospitals in 2015 related to a failure to recognise or respond to deterioration. Interventions have been developed that allow patients and relatives to escalate patient deterioration to a critical care outreach team. However, there is not a strong evidence base for the clinical effectiveness of these interventions, or patients’ ability to recognise deterioration. The aims of this study were to (a) identify methods of involving patients in recognising deterioration in hospital, generated by health professionals, and (b) to develop and evaluate an identified method of patient involvement in practice, and explore its feasibility and acceptability from the perspectives of patients. The preliminary findings suggest that patient-reported wellness may predict subsequent improvement or decline in their condition as indicated by objective measurements of physiology (NEWS). Routinely recording patient-reported wellness during observation shows promise for supporting the early recognition of clinical deterioration in practice, although confirmation in larger-scale studies is required.
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Content ArticleIn this blog Dr Henrietta Hughes, Patient Safety Commissioner for England, outlines the activities included in the Patient Safety Commissioner Business Plan 2024-25.
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Content Article
Digital storytelling: Learning opportunity or reputational risk?
Anonymous posted an article in Culture
In this anonymous blog, a member of NHS staff talks about their experience promoting digital storytelling to help staff members and the wider trust learn from patients’ perspectives on incidents of harm. They describe the conflicting pressures of leaders’ concerns about how these stories might affect the Trust's reputation and the need to be transparent with patients and staff.- Posted
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Content ArticlePublic confidence in the NHS is at an all time low and even when people can access the service, national surveys tell us that their experiences of NHS services are deteriorating. The authors of this blog—Patients Association Trustee Alf Collins and Health Consultant Richard Sloggett—make a simple plea: that all aspects of patient experience is taken seriously. They argue that the care backlogs and levels of unmet need require a radical re-orientation of the relationship between the Government, the health system and the public, and that this needs to involve a complete step-change in how patients are engaged in their care.
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Content ArticleHow we talk about health is important, and even those with the best intentions don't always do it well. Krista Lamb is an author and science communicator in Toronto. For years she has helped scientists, physicians, advocates and others share their healthcare stories effectively. Along the way, some of them have taught her how we can and should talk about health in ways that are empathetic, understandable and accurate. In this podcast she asks those people to share their tips and tricks to help everyone communicate better.
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Content ArticleThe Health Services Safety Investigations Body (HSSIB) came into operation on 1 October 2023. One of the organisation's key priorities is to develop a new strategy, outlining the long-term goals and themes that underpin its objectives. This consultation is an opportunity to engage and shape HSSIB's strategy and investigation criteria for the future. The organisation is inviting comments and suggestions for improvement from all stakeholders. Comments can be submitted via this online survey. The deadline for submissions to the consultation is 16 May 2024.
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News Article
GPs and patients invited to share views on legal ‘duty of candour’
Patient Safety Learning posted a news article in News
The Government is inviting views on how well GP practices and other NHS organisations are complying with their legal duty of candour when things go wrong. Patients and health professionals are being asked whether the statutory duty is well understood and adequately regulated by the CQC. Under the statutory duty of candour, introduced for all CQC-registered providers in 2015, GP practices must be open and honest with their patients when something goes wrong and has caused harm. In December, the Department of Health and Social Care (DHSC) announced a review into whether healthcare providers are following the duty of candour rules. This was in response to concerns that the duty is not always being met and that there is variation in how the rules are being applied. The DHSC has published its ‘call for evidence’ to gather views on how well the duty of candour obligation is working for both patients and health professionals. Patients have been asked whether GP practices and other providers ‘demonstrate meaningful and compassionate engagement’ with patients who have been affected by an incident. The call for evidence also asks for views on whether the criteria for triggering the duty are appropriate and well understood by staff. Read full story Source: Pulse, 16 April 2024 -
Content ArticleIn this blog, Peter Provonost MD, Chief Quality and Transformation Officer at University Hospitals Cleveland Medical Center, offers advice about what patients and their families can do to prevent health risks associated with hospital stays. He looks ways to mitigate against medication errors, surgical errors, infections, blood clots and other medical complications.
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Content Article
Consumer perspectives enable a broader understanding of how harm occurs. This webpage by Te Tāhū Hauora, the Health Quality & Safety Commission of New Zealand, contains guidance on engaging patients and consumers who have experienced harm and wish to be involved in learning and improvement in the healthcare system. It describes how patients and family will be supported to work in partnership with health care workers. -
Content ArticleThose who use any type of health or social care service have a right to be informed about all elements of their care and treatment. Health and social care providers have that fundamental responsibility to be open and honest with those who are under their management and care. In particular, when things go wrong during the provision of care and treatment, patients and service users and their families or caregivers expect to be informed honestly about what happened, what can be done to deal with any harm caused, and to know what will be done to prevent a recurrence to someone else. In November 2014, the government introduced a statutory (organisational) duty of candour for NHS trusts and NHS foundation trusts via Regulation 20 of the Health and Social Care Act 2008. In essence, the duty places a direct obligation upon trusts to be open and honest with patients and service users, and their families, when something goes wrong that appears to have caused or could lead to moderate harm or worse in the future (known as a ‘notifiable safety incident’). The Department of Health and Social Care (DHSC) are seeking views on the statutory duty of candour for health and social care providers in England. This call for evidence closes at 11:59 pm on 29 May 2024.
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Content ArticleThe Information Commissioner’s Office (ICO) is supporting health and social care organisations to ensure they are being transparent with people about how their personal information is being used. The UK data protection regulator has today published new guidance to provide regulatory certainty on how these organisations should keep people properly informed. The health and social care sectors routinely handle sensitive information about the most intimate aspects of someone’s health, which is provided in confidence to trusted practitioners. Under data protection law, people have a right to know what is happening to their personal information, which is particularly important when accessing vital services. The guidance will help organisations to understand the definition of transparency and assess appropriate levels of transparency, as well as providing practical steps to developing effective transparency information.
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Content Article
World Patient Safety Day 2024
Patient Safety Learning posted an article in WHO
This year’s World Patient Safety Day on 17 September 2024 is focused on the theme “Improving diagnosis for patient safety”. This article explains the aims of the event and the areas it will cover. -
Content Article
Endometriosis: A patient's journey (10 April 2024)
Patient-Safety-Learning posted an article in Women's health
This Medscape article tells the story of Josephine Vest, who was diagnosed with endometriosis aged 19. Now 30, she describes how her symptoms were dismissed and belittled by GPs and gynaecologists before she received a diagnosis a year after her symptoms began. With an average diagnostic delay approaching nine years across the UK, Josephine counts herself fortunate to have been diagnosed in this time frame. She goes on to describe the obstacles she faced in getting effective treatment and the suspicious attitudes healthcare staff displayed towards her. -
Content ArticleThe Health & Social Care Committee is examining the relationship between leadership in the NHS and performance/productivity as well as patient safety. It will consider the findings of and implementation of recent reviews of NHS leadership, such as the Messenger (2022) and Kark (2019) reviews as they relate to patient safety, as well as topics including how effectively leadership supports whistleblowers and learning from patient safety issues. Here is AvMA's response to the Committee's call for evidence.
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Content ArticleIntegrated Care Boards (ICBs) are responsible for commissioning and funding care provided by the various healthcare providers in its area, such as hospital trusts and community trusts. This blog offers patients practical advice on how to hold their ICB to account, for example, by raising questions at their ICB's monthly or bimonthly meeting.
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EventuntilThe Patients Association is running a webinar to support Future Health’s campaign, The Forgotten Majority. This campaign aims to raise awareness among policy representatives from Government and other political parties, as well as other key stakeholders, about the real life every day challenges faced by people with long-term health conditions and advocate for meaningful policy change as we approach the General Election. This webinar will provide patient experience to bring to life policies and initiatives aimed at addressing gaps in care for people with long-term health conditions. We hope this will raise awareness among policymakers and key stakeholders about the challenges faced by the ‘forgotten majority’ and the urgency of addressing their treatment and care. Rachel Power, Chief Executive of the Patients Association, will be chairing this webinar. The panel will share their insights on the importance of addressing the needs of people with long-term health conditions, and will advocate for improved care and support services. Hopefully this will increase awareness and understanding among policymakers and key stakeholders about the challenges faced by individuals with long-term health conditions, and drive systemic change. Register for the webinar
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Content Article
Lost in the system? NHS referrals
Patient_Safety_Learning posted an article in Patient engagement
Demos is Britain's leading cross-party think tank, working on different policy areas, from improving public services to building a more collaborative democracy. In this blog, Miriam Levin, Director of Participatory Programmes at Demos, tells us about their recent report, “I love the NHS but…”: Preventing needless harms caused by poor communication in the NHS. She argues there is an urgent need to improve NHS communications for patients and staff if we are to prevent people falling through the gaps and suffering worse health outcomes. Miriam highlights key issues with NHS referrals, disjointed computer systems and gaps in patient information, and offers some potential solutions.- Posted
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Content Article
Parkinson’s is the fastest growing neurological condition in the world. It can affect young or old, and in the UK, around 145,000 people are living with the condition. With population growth and ageing, this figure is estimated to increase by 20%, within the next ten years. At the moment, there is no cure for Parkinson’s, but medication plays a vital role in managing symptoms and preventing deterioration. People with Parkinson’s face a number of specific patient safety issues when accessing healthcare including communication difficulties and risks associated with medication delays. In this blog, Patient Safety Learning has pulled together 11 useful resources about Parkinson’s shared on the hub. They include guidance for patients and their families about hospital stays and medication, and awareness-raising resources for healthcare professionals about the patient safety issues people with Parkinson’s face. -
Content ArticleSepsis Research FEAT and the James Lind Alliance launched a survey last year giving health and social care professionals and sepsis patients and their carers the unique opportunity to shape future sepsis research. They are now launching phase 2 of the survey.
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Content Article
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Richard von Abendorff, an outgoing member of the Advisory Panel of the Healthcare Safety Investigation Branch (HSIB), has written an open letter to incoming Directors on what the new Health Services Safety Investigations Body (HSSIB) needs to address urgently and openly to become an exemplary investigatory safety learning service and, more vitally, how it must not contribute to compounded harm to patients and families. The full letter is attached at the end of this page.- Posted
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Content ArticleThis report sets out Care Quality Commission's activity and findings during 2022/23 from our engagement with people who are subject to the Mental Health Act 1983 (MHA) as well as a review of services registered to assess, treat and care for people detained using the MHA.
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Content Article
Think Ammonia! Elliot's story
Patient Safety Learning posted an article in Patient stories
In March 2018, Elliot Peters, 14, died after becoming suddenly and seriously ill before being diagnosed with Ornithine transcarbamylase (OTC) deficiency. His mum, Holly, is dedicated to speaking out about Elliot’s story to raise awareness and prevent more deaths.
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