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Showing results for tags 'Patient / family support'.
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Content Article
This is part of our series of Patient Safety Spotlight interviews, where we talk to people working for patient safety about their role and what motivates them. Lesley talks to us about how personal stories enrich our understanding of data, drive real quality improvement and remind us that healthcare is all about people. She also explains how her own personal experience drives her work to improve healthcare experiences for patients and their families. -
Content ArticleA repository of resources aimed at patients and carers which have been co-produced by the Falls and Fragility Fracture Audit Programme (FFFAP) patient and carer panel.
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Content ArticleThe Harmed Patients Alliance (HPA) was founded to highlight and promote restorative approaches to healthcare harm. To support their campaign for action, HPA carried out a survey of 44 people asking how those harmed by their contact with healthcare felt about the response, and what impacts this had on them. They were also asked what could have been done differently.
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Content ArticlePain and trauma experienced as a preterm baby in the NICU have been linked to lasting psychological injury, altered brain development and individuals' ability to regulate emotions later in life. In this blog, Vox's Science and Health Editor Brian Resnick looks at how scientists are investigating how to treat pain in babies who can’t tell you when it hurts.
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News Article
GPs say parents need clearer strep A advice
Patient Safety Learning posted a news article in News
GP leaders have urged the government to put out clearer advice for parents about when to seek help over potential strep A infections. Prof Kamila Hawthorne, of the Royal College of GPs, said many surgeries were struggling with the extra demand on top of existing pressures. The government should consider "overspill" services for surgeries unable to cope, she said. Since September, 15 UK children have died after invasive strep A infections. This includes the death of one child in Wales, and one in Northern Ireland. There have been no deaths confirmed in Scotland. The UK Health Security Agency figures (UKHSA) show there have also been 47 deaths from strep A in adults in England. Most strep A infections are mild, but more severe invasive cases - while still rare - are rising. Prof Hawthorne, said: "We do not want to discourage patients who are worried about their children to seek medical attention, particularly given the current circumstances. "But we do want to see good public health messaging across the UK, making it clear to parents when they should seek help and the different care options available to them - as well as when they don't need to seek medical attention." Read full story Source: BBC News, 8 December 2022 -
News Article
Palliative care: 'My dad should not have been expected to die in office hours'
Patient Safety Learning posted a news article in News
A woman who struggled to access night-time care for her dying father has told the BBC he "shouldn't have been expected to die in office hours". Tracey Bennett said she was "completely lost" when her dad Michael needed help. Early in 2021, Mrs Bennett, 54, from Doncaster, moved in with her dad, 76-year-old Michael Woodward, to care for him in the last stages of his cancer. One night he had a fall. Mrs Bennett was able to help him back up but turned to the local NHS palliative care phone line for help, only to find it closed. Although she did not feel her father should be in a hospital, she called 999 as she felt she had no-one else to turn to. He died in the early hours of the next morning. "In his hour of need I feel I let my dad down," she said. "He shouldn't have been expected to die in office hours." Almost 70% of the UK does not have a consistent 24-hour help-line for the terminally ill, research suggests. And 27% of these areas do not have a designated phone line, the study funded by Marie Curie found. Ruth Driscoll, from the charity, said the research painted "a bleak picture of out-of-hours care in many areas of the UK". Read full story Source: BBC News, 28 November 2022 -
News Article
Families blame ‘chaotic, splenetic mess of a government’ for compensation hold-up
Patient Safety Learning posted a news article in News
Families whose loved ones’ bodies were sexually abused in a hospital mortuary have yet to receive any compensation, because the Department of Health and Social Care has not signed off a proposed framework. A family member involved in the case claimed the delay was due to a “chaotic, splenetic mess of a government… [which] can’t get an arse on a seat long enough to approve it”. Former hospital maintenance supervisor David Fuller is serving life sentences for the murder of two women, committed two decades before he went on to commit sexual offences against 101 dead women and girls in hospital mortuaries in Kent. He was given a total of 12 years, to run concurrently, for 51 sex offences when he was sentenced last December but recently pleaded guilty to 16 additional charges involving 23 bodies and will be sentenced for these next month. But the families of the women and girls involved have waited more than a year to receive any compensation for the emotional distress his actions caused. Read full story (paywalled) Source: HSJ, 16 November 2022 -
News Article
"Get doctors in the room for clinical negligence mediation," lawyers told
Patient Safety Learning posted a news article in News
Mediators want more clinicians to come forward – and lawyers to enable them – to speak directly to patients bringing medical negligence claims against the NHS. Alan Jacobs, mediator at the Centre for Effective Dispute Resolution, told a conference of lawyers that they should do more to encourage discussions between injured people and those allegedly responsible. His call came as figures show record numbers of clinical claims against the NHS went to mediation in 2018/19 – with the majority of mediations resulting in damages being agreed on the day. Jacobs, speaking at the Claims Media conference in Manchester, said the challenge now is to ensure medical professionals volunteer to take part in the process. "It allows an apology to be given face to face and allows explanations to be given," he said. "It is also an opportunity for the clinician to have a discussion, sit down with the claimant and answer questions and concerns. It can be tremendously important for a claimant to vent and express their frustrations and for the trust to hear that." Both claimant and defendant lawyers agreed on the merits of bringing doctors in to the room, but stressed this was not always a realistic aim. Barrister Daniel Frieze, head of the personal injury team at St Johns Buildings, said: "Often it is too late and there is too much water under the bridge. Claimants are very stressed and it may be counter-productive for them to face the other side. I know the idea is of being collaborative but I’m not sure that’s necessarily always true." Read full story Source: 21 February 2020, The Law Society Gazette -
News Article
Hospital wrong to ban woman visiting partner on his deathbed
Patient Safety Learning posted a news article in News
The partner of a dying man was denied the chance to be at his bedside during his final moments after a hospital wrongly banned her from daily visits, an ombudsman report has found. Brian Boulton, 70, was admitted to Royal Gwent Hospital in Newport, South Wales, after suffering from a chest infection, which was later diagnosed as aspiration pneumonia caused by oesophageal cancer. Celia Jones, his “long term life partner” of twenty years, was accused by hospital staff of giving the retired tailor a larger dose of the prescribed furosemide medication than was allowed. Ms Jones, 65, was restricted to one-hour visits twice a week, meaning she was unable to be with him when he died a day after her last authorised visit on Wednesday 27 September 2017. The Public Services Ombudsman for Wales has upheld her complaints about her “appalling” treatment, ruling that the visiting restrictions were imposed “without warning” and resulted in a “significant injustice”. It found no record of Ms Jones, a retired nurse, admitting to a senior ward manager that she gave the large dose of medicine to her partner. Read full story Source: The Telegraph, 6 January 2020 -
Content ArticleIn a wide-ranging Report on NHS litigation reform, the Health and Social Care Committee finds the current system for compensating injured patients in England ‘not fit for purpose’ and urges a radically different system to be adopted. Reforms would introduce an administrative scheme which would establish entitlement to compensation on the basis that correct procedures were not followed and the system failed to perform rather than clinical negligence which relies on proving individual fault. The new system would prioritise learning from mistakes and would reduce costs. Currently, litigation offers the only route by which those harmed can access compensation. MPs say in addition to being grossly expensive and adversarial, the existing system encourages individual blame instead of collective learning. This is a House of Commons Committee report, with recommendations to government. The Government has two months to respond.
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Content Article'Cautious Tortoise' is an easy to follow flow chart that aims to guide parents and caregivers through the early steps of their child's recovery from Covid-19 and Long Covid, while supporting them to preserve energy to aid ongoing recovery. Alongside an infographic flow-chart, this webpage contains frequently asked questions about Covid-19 and Long Covid in children, including: What does the government advise? Long Covid Kids urge families to proceed cautiously When can a child be referred to a Long Covid Paediatric Hub? How many children get Long Covid? Long Covid Symptoms In Children What is post exertional malaise/post exertional symptom exacerbation? When is the right time to return to school?
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Content ArticleIn March 2015, Bill Kirkup published his report on avoidable harm in maternity services at the Morecambe Bay NHS Trust. His introduction carried a warning: “It is vital that the lessons, now plain to see, are learnt... by other Trusts, which must not believe that ‘it could not happen here.’” With the publication of the Ockenden report, we now know that one of those other Trusts was the Shrewsbury and Telford NHS Hospital Trust. “For more than two decades,” Donna Ockenden wrote, “they [famiies] have tried to raise concerns but were brushed aside, ignored and not listened to.” But why should patients and families have had to show that kind of courage in the first place? Instead of seeing patient feedback as a foundation stone of high quality, evidence based care, healthcare providers too often see it as a threat writes Miles Sibley in this BMJ Editorial.
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Content ArticleThis duty of candour animation offers guidance on the importance of being open and honest. Being open and honest with patients and those close to them is always the right thing to do and is often referred to as the duty of candour. NHS Resolution have produced a short animation to help those working in health and social care to better understand the similarities and differences that exist between the professional and statutory duties of candour. The 8-minute animation also offers guidance on how they can be fulfilled effectively.
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Content ArticleThe Independent review of maternity services at the Shrewsbury and Telford Hospital NHS Trust was commissioned in 2017 to assess the quality of investigations relating to newborn, infant and maternal harm at the Trust. When it commenced this review was of 23 families’ cases, but it has subsequently grown to cover cases of maternity care relating to 1,486 families, the majority of which were patients at the Trust between the years 2000 and 2019. Some families had multiple clinical incidents therefore a total of 1,592 clinical incidents involving mothers and babies have been reviewed with the earliest case from 1973 and the latest from 2020.
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Content ArticleIn this article in the journal Health Expectations, the authors explore how current investigative responses can increase the harm for all those affected by failing to acknowledge and respond to the human impacts. They argue that when investigations respond to the need for healing alongside learning, it can reduce the level of harm for everyone involved, including including patients, families, health professionals and organisations.
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Content ArticleThis report by Bliss, the UK’s leading charity for babies born premature or sick, found that young parents are often underprepared and under-supported when their babies are in neonatal care. Research by Bliss found that more than half of young parents felt they were not as involved in caregiving or decision-making as they wanted to be when their baby was born premature or sick. It also highlighted contradictory messages that young mothers are given throughout their pregnancy that their youth will be a protective factor, despite an increased risk of prematurity and neonatal mortality for babies born to mothers aged under 20. This myth leaves many young parents feeling unprepared, enhancing their feelings of shock and disbelief if their babies are born unwell.
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Content ArticleAlthough the direct effects of Covid-19 on children and young people are usually milder than for older age groups, the pandemic’s effect on the overall health and care of the youngest generation has nonetheless been extensive. This analysis from the Nuffield Trust looks at the impact Covid-19 has had on healthcare for children and young people. The review has looked at both physical and mental health services and come to the same conclusion - support has been badly disrupted and the plight of children overlooked.
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Content ArticleThis article in Studies in Health Technology and Informatics looks at how patient-peer support can be a valuable resource for patients in the context of hospital safety. Hospitalised patients often lack access to safety systems and face difficulties in having a proactive role in their safety. The authors of this study conducted semi-structured interviews with 30 patients and caregivers at a paediatric and an adult hospital. They highlight the potential benefits of incorporating patient-peer support into patient-facing technologies and argue that helping patients access such support can help them engage with and improve the quality and safety of their hospital care.
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Content ArticleThis article in the journal Resuscitation examines the needs of the 'forgotten patient' in out-of-hospital cardiac arrests (OHCA), which have a mortality rate of between 80 and 90%. Unlike many other critical illnesses, family members and partners often witness the collapse or have to perform CPR on their friend or loved one. The traumatic burden associated with these events can be significant, resulting in unique psychosocial needs both for survivors and those who witness or perform CPR. The partner or caregiver may struggle to deal with the fear, anxiety and guilt associated with the arrest, CPR provision and subsequent care upon discharge of their loved ones from hospital. This often makes the caregiver a ‘forgotten patient’ and there is growing literature examining the high levels of stress, anxiety, anger and confusion experienced by caregivers of survivors in the first 12 months after OHCA.
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Content ArticleIn this interview with Dr. Robert Mentz, Editor-in-Chief and Dr. Anu Lala, Deputy Editor at the Journal of Cardiac Failure, Kristin and Will Flanary (AKA Lady and Dr. Glaucomflecken) share their experience as co-patient and patient. Will suffered a cardiac arrest in May 2020 and the experience of discovering her husband, having to perform CPR and waiting in isolation for news left his wife Kristin with significant trauma. The interview explores the experience of those involved in medical trauma who are not the patient themselves, the 'co-patient', and the ways in which healthcare professionals can support them to process their experience.
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Content ArticleIn his account in the Journal of Cardiac Failure, Kristin Flanary describes her experience of discovering her husband having a cardiac arrest, giving him CPR and the subsequent wait for information on his condition. She then describes the trauma she experienced in the weeks and months following the incident. She highlights that healthcare providers can play an important role in helping relatives or non-patients who have been part of a medical emergency process their experiences.
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Content ArticleFor many years the NHS has talked about the need to shift towards a more personalised approach to health and care so that people have the same choice and control over their mental and physical health that they have come to expect in every other part of their life. And as local health and care organisations work together more closely than ever before, they are recognising the power of individuals as the best integrators of their own care. This document sets out how the NHS Long Term Plan commitments for personalised care will be delivered. It introduces the comprehensive model for personalised care, comprising six, evidence-based standard components, intended to improve health and wellbeing outcomes and quality of care, whilst also enhancing value for money. Implementation will be guided by delivery partnerships with local government,
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Content ArticleIn this blog Patient Safety Learning provides an overview of the key points included in its response to the call for evidence for the Health and Social Care Select Committee Inquiry examining the case for reform of NHS litigation.
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Content Article
Carer knows best… A blog by Miriam Martin
Miriam Martin posted an article in Community care
Many people are taking on more caring responsibilities for their relatives and friends who are disabled, ill or older and who need support. For Carers Rights Day, Miriam Martin, Chief Executive of Caring Together, looks at the role carers play at hospital discharge, why poor quality discharge can put the patient at risk and discusses what more can be done to support carers when patients return home from hospital. -
Content ArticleThis is the report of an inquiry conducted by the Health and Social Care Select Committee in 2020/21 which considers how the social care system is supporting those living with dementia. In the report the Committee make the case that the UK government’s plans for the health and care levy provides insufficient funding for social care over the next three years.
