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Showing results for tags 'Patient / family involvement'.
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EventuntilThis two-day King's Fund conference aims to explore how the current strain on services makes listening to people more difficult but even more important, at a time when public satisfaction with the NHS is at an all-time low. Join us to hear about how you can make sure building in the user voice is routine and core to the business of the health and care system, not just ‘a nice to have’. Conference sessions will: discuss how the NHS and social care cannot deliver quality unless listening to patients and carers, and acting on their feedback, lies at the heart of its culture. provide learning on how to listen well and what meaningful engagement with people and communities looks like. Gain insight into the findings from the Fund’s project on understanding integration with the HOPE (Heads of Patient Experience) network by working with six sites on an action learning piece. Learn about how health and social care decision-makers cannot overcome challenges and answer long-term questions alone - such as how the system will address the deep inequalities and how it can adapt to provide the joined-up, efficient care that people want and gives them more control – public input is crucial. Join peers to share learning on grasping this opportunity to finish building a culture where listening to patients, service-users, and communities is everyone's business. Register
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Content ArticleMuch has been written recently about Martha’s rule—the proposal to allow patients in hospitals in England and their families the right to demand an urgent second opinion if their condition is deteriorating. In this BMJ opinion piece, Helen Haskell outlines some principles for creating an effective family activated system, including breadth, urgency, continuity, independence and feedback.
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Content ArticleIt is essential that the voices of people from diverse communities are heard and acted upon because we will only be effective in improving patient safety for everyone if we include these groups. This blog from the Patient Safety Commissioner Dr Henrietta Hughes outlines the importance of listening to patients and staff from diverse communities to identify and act on patient safety issues – and how to make this happen.
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Content ArticleFull opening statement of the Long Covid groups (Long Covid Support, Long Covid SOS and Long Covid Kids) to Module 2 of the Covid-19 Inquiry as representative organisations for nearly 2 million adults and children who have suffered from Long Covid.
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Content ArticleThe UK government's commitment to implement “Martha’s rule,” is good news for patients. It will give patients and their families an explicit right to request a second opinion if a patient’s health condition is getting worse and they feel their concerns are not being taken seriously. However, all patients are familiar with the power imbalance when they encounter health professionals. Patients and carers are key partners in the quest to make care safer, argues Tessa Richards in this BMJ opinion piece. Although actively co-designing research and policy on patient safety with patients and carers is now widely seen as best practice, there is still a long way to go. In her article, Tessa highlights two recent webinars with Henrietta Hughes, Patient Safety Commissioner, who is responsible for implementing Martha’s rule in NHS hospitals, and discusses patient advocacy and the new Patient Safety Partners. Watch the Patient Safety Learning webinar with Henrietta Hughes.
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Content ArticleDespite years of calls for adoption of a Just Culture, it is evident that taking this concept from paper to practice has been slower than expected. Many have cited the subpar application of the Just Culture framework and, recently, questions have been raised regarding how the Just Culture framework is perceived by those impacted by harm, including patients, family members, and staff. Though this framework is one tool that can be used to guide inquiry after harm events, its use, independent of active efforts toward restoration of relationships with patients, families, and staff, could compromise engagement and therefore learning. A lack of focus on restoring the trust of those affected by harm in parallel with the event investigation introduces a risk of further compounding the harm for all involved. Those involved in safety work at NHS England have recognized the need to apply a systems mindset within a concerted effort toward more compassionate engagement for optimal learning and improvement. In response, they have included compassionate engagement and involvement of those affected by patient safety incidents as a foundational pillar in the NHS England Patient Safety Incident Response Framework.
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Content ArticleMartha’s Rule is currently a topic of intense discussion and debate. Behind the rule is a sad and tragic story which strikes at the heart of NHS care delivery – clinical failures and the death of a 13-year-old girl. In this blog, John Tingle argues there is a need to formalise the right of patients and their families/carers to obtain an urgent clinical review, second opinion.
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Content Article
The truth for Gaia Young
Patient Safety Learning posted an article in Patient stories
Previously well, Gaia died aged 25 years of an unexplained brain condition hours after admission to University College Hospital London. Her death has been the subject of hospital investigations and an inquest. Over one year later her death remains unexplained. Why? This is her mother’s (Dorit) search for the truth: information is provided to stimulate medical crowd thinking – to ask the right questions and to get the right answers. Read the narrative of Gaia’s final illness in her mother’s story and in the memorandum from the link below. See also: Serious Incident Report: Unexpected deterioration of a young woman on the Acute Medical Unit: updated report (February 2022) -
Content ArticleEvidence shows that when patients are treated as partners in their care, then safety, patient satisfaction and health outcomes improve. To mark World Patient Safety Day 2023, this podcast episode discusses the importance of engaging with patients and how it contributes towards increased patient safety in health and social care settings. Healthcare Improvement speak to a number of professionals from Healthcare Improvement Scotland, as well as Lisa McDowall, a Senior Charge Nurse at Jubilee Hospital in Grampian. We also spoke with Gareth Bourhill who lost his mum in the Vale of Leven c-difficile outbreak of 2007 to 2008, and is now a public partner with our organisation’s Excellence in Care team.
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Event
Patient involvement & partnership for patient safety
Sam posted an event in Community Calendar
This conference focuses on patient involvement and partnership for patient safety including implementing the New National Framework for involving patients in patient safety, and developing the role of the Patient Safety Partner (PSP) in your organisation or service. The conference will also cover engagement of patients and families in serious incidents, and patient involvement under the Patient Safety Incident Response Framework published in August 2022. This conference will enable you to: Network with colleagues who are working to involve patients in improving patient safety. Reflect on patient perspective. Understand the practicalities of recruiting Patient Safety Partners. Improve the way you recruit, work with and support Patient Safety Partners. Develop your skills in embedding compassion and empathy into patient partnership. Examine the role of patients under the new Patient Safety Incident Response Framework (PSIRF). Understand how you can improve patient partnership, family engagement and involvement after serious incidents. Identify key strategies for support patients, their families and carers to be directly involved in their own or their loved one’s safety. Learn from case studies demonstrating patient partnership for patients safety in action. Examine methods of involving patients to improve patient safety in high risk areas. Self assess and reflect on your own practice. Supports CPD professional development and acts as revalidation evidence. This course provides 5 Hrs training for CPD subject to peer group approval for revalidation purposes. Register **Five free places for hub members. Email info@pslhub.org for code** -
News Article
Scotland: MSPs to vote on patient safety commissioner plan
Patient Safety Learning posted a news article in News
MSPs are set to vote on a new law to establish a patient safety commissioner. The bill to create an "independent public advocate" for patients will go through its final stage on Wednesday. Public Health Minister Jenny Minto has said the commissioner would be able to challenge the healthcare system and ensure patient voices were heard. The Scottish government has been told the new watchdog must have the power to prevent future scandals. In 2020, former UK Health Minister Baroness Julia Cumberlege published a review into the safety of medicines and medical devices like Primodos, transvaginal mesh and the epilepsy drug sodium valproate. She told the House of Lords: "Warnings ignored. Patients' concerns ignored. A system that seemed unwilling or unable to listen let alone respond, unwilling or unable to stop the harm." Her findings led to the recommendation for a patient safety commissioner. Speaking ahead of the vote on the Patient Safety Commissioner for Scotland Bill, Ms Minto said the watchdog would listen to patients' views. "I think it's a really important role for us to have in Scotland," she said. "There's been a number of inquiries or situations where the patient's voice really needs to be listened to and that's what a patient safety commissioner will do." Read full story Source: BBC News, 27 September 2023 -
Content ArticleThe theme of this year’s World Patient Safety Day is ‘engaging patients for patient safety’. In this blog, Hester Wain, Head of Patient Safety Policy, along with Penny Phillips and Douglas Findlay, two of the patient safety partners working to support the national Patient Safety team, introduce NHS England’s work with patient safety partners. To support other organisations going through this process, the blog also shares some of the approaches NHS England has taken in introducing patient safety partners.
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Content Article
The 15th annual HSJ Patient Safety Congress brings together more than 1000 attendees with the shared goal of advancing the national agenda for patient safety across health and social care. In this blog, Samantha Warne, the hub's Lead Editor, captures some of the key highlights and messages from day one of HSJ’s Patient Safety Congress. -
Content Article‘Compassionate communication, meaningful engagement’ is a handbook for all NHS staff which aims to improve collaboration with patients, their families and carers following a patient safety event. Developed with NHS Trusts across England in partnership with Making Families Count, the guide includes principles of compassionate engagement, roles and responsibilities of healthcare professionals, and information about the processes following an incident. It also brings together a range of signposting information and resources for families and staff.
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Content ArticleThe important issue of a patient’s right to a second medical opinion has recently hit the headlines with Martha’s Rule, which relates to the tragic death of 13-year-old Martha Mills in NHS care and the circumstances surrounding this. There is a groundswell of support for Martha’s Rule, with Health and Social Care Secretary Steve Barclay committed to introducing the rule in England. This is excellent news, but development and implementation must not be rushed writes John Tingle, Dr Dita Wickins-Drazilova and Steve Gulati from the University of Birmingham.
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Content ArticleMEG interviews Patient Safety Learning's Chief Executive, Helen Hughes, for this year's World Patient Safety Day. Helen discusses how Patient Safety Learning contributes to improving patient safety, the 'Blueprint for Action', how the new LFPSE service will impact patient engagement and the role leadership plays in patient safety.
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Content Article
Patient Safety Commissioner initiatives
Patient Safety Learning posted an article in England
Patients need to be involved in all aspects of the design and delivery of healthcare and to make quality improvements that prevent harm. The Patient Safety Commissioner website shows examples of where working in partnership with patients and families, listening to patients’ voice and acting upon their concerns have made positive changes. -
Content ArticleDavid Lawson, who leads the Department of Health and Social Care medtech directorate, outlines how the medtech strategy will be implemented with patients.
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Content ArticleDr Kristin Harris, Research Fellow in the Department of Anaesthesia and Critical Care at Haukeland University Hospital, Bergen, Norway, discusses why patient safety patient involvement personally matters to her and talks about the tool she's currently working on, which are safety checklists specific to surgical patients.
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Content ArticleIn honour of World Health Organization World Patient Safety Day 2023, the Patient Safety Movement Foundation hosted a webinar dedicated to the theme of “Empowering Patients.”
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Content ArticlePatients’ perspectives and their active engagement are critical to make health systems safer and people-centred, and are key for co-designing health services and co-producing good health with healthcare professionals, and building trust in health systems. This report, which forms part of a series of Organisation for Economic Co-operation and Development (OECD) papers on the economics of patient safety, looks (i) the economic impact of patient engagement for patient safety; (ii) the results of a pilot data collection to measure patient-reported experiences of safety and; (iii) the status of initiatives on patient engagement for patient safety taken in 21 countries, which responded to a snapshot survey.
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Content ArticleThe Institute of Global Health Innovation (IGHI), Imperial College Healthcare NHS Trust and NIHR North West London Patient Safety Research Collaboration hosted a virtual event to celebrate World Patient Safety Day, chaired by Professor Bryony Dean-Franklin. The event started with keynote speeches from Professor the Lord Ara Darzi, Co-Director of IGHI; Dr Henrietta Hughes, England’s Patient Safety Commissioner; and Rosie Bartel, patient advocate, emphasising the importance of hearing patient’s voices. This was followed by an excellent panel session on how clinicians, researchers, and patients and carers can work together to support patients and their families to feel safe and engage with their care. The event was co-designed with patient representatives from NIHR North West London Patient Safety Research Collaboration and Imperial College Healthcare NHS Trust.
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Content ArticleFamily-activated medical emergency teams (MET) have the potential to improve the timely recognition of clinical deterioration and reduce preventable adverse events. Adoption of family-activated METs is hindered by concerns that the calls may substantially increase MET workload. Brady et al. aimed to develop a reliable process for family activated METs and to evaluate its effect on MET call rate and subsequent transfer to the intensive care unit (ICU).
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Content Article
The Forgiveness Project
Patient Safety Learning posted an article in Suggest a useful website
The Forgiveness Project shares stories of forgiveness in order to build hope, empathy and understanding. -
Content ArticleThe focus of this year's World Patient Safety Day is engaging patients in “recognition of the crucial role patients, families and caregivers play in the safety of healthcare”. In this Comment in the Lancet, Jane O'Hara and Carolyn Canfield outline how supporting patients and families to be partners in care safety is both a logical and moral imperative. That is, we need to do it for safer care, but we also should do it because safer care relies on relationships, reciprocal trust, and collaboration.
