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Found 222 results
  1. Content Article
    Lucy Cohen recently had a contraceptive device (IUD) fitted, during which she suffered extremely high levels of pain. Following her experience, she decided to launch a survey to understand how others had found the procedure. In this interview, Lucy shares her findings and calls for better pain management and improved consent processes, in order to reduce avoidable harm.  
  2. Content Article
    This report by Muscular Dystrophy UK looks at the impact of the Covid-19 pandemic on people living with muscle-wasting conditions, according to the results of a survey conducted in Scotland. It is estimated that more than 6,000 people in Scotland live with a muscle-wasting condition and require access to a range of specialist appointments and clinicians to meet their complex care needs.
  3. Content Article
    In this personal account, hub member Sophie talks about the trauma she experienced after a painful contraceptive device (IUD) fitting, and the impact this has had on her subsequent experience of medical procedures. She argues that damaging narratives around female pain cause harm to patients in multiple ways and have consequences that reach far beyond the initial experience of pain.
  4. Content Article
    This study in Pain Research and Management reviewed available literature about gender bias in the treatment of pain and gendered norms towards patients with chronic pain. The authors found that gendered norms about men and women with pain are present in research from different scientific fields. They highlight that awareness of the issue can help counteract gender bias in healthcare and support healthcare professionals to provide more equitable care.
  5. Content Article
    This is an Adjournment Debate from the House of Commons on the 31 January 2022 on NHS Hysteroscopy Treatment, tabled by Lyn Brown MP.
  6. Content Article
    On Wednesday 26 January, the All-Party Parliamentary Group for First Do No Harm (APPG FDNH) held a virtual public meeting on the topic of redress schemes for those who have suffered avoidable harm linked to pelvic mesh, sodium valproate and Primodos. This meeting was an opportunity to hear from representatives of various patient groups about what victims need and what they are missing from current support mechanisms. Below is a recording of the meeting.
  7. Content Article
    On Wednesday 26 January, the All-Party Parliamentary Group for First Do No Harm (APPG FDNH) held a virtual public meeting on the topic of redress schemes for those who have suffered avoidable harm linked to pelvic mesh, sodium valproate and Primodos. This meeting was an opportunity to hear from representatives of various patient groups about what victims need and what they are missing from current support mechanisms. The meeting heard from Kath Sansom, founder of the Sling the Mesh campaign. Attached is the speech she presented and results from the Sling the Mesh survey. View the recording of the public meeting
  8. Event
    until
    The Safe Anaesthesia Liaison Group Patient Safety Conference will be held in collaboration with RA-UK. The first session will include engaging lectures around the current work of SALG, and the second session will focus on topical issues in relation to regional anaesthesia safety. There will be a prize session for accepted abstracts, with a poster section and oral presentations. This online conference is being organised by SALG co-chairs, Dr Peter Young from the Association of Anaesthetists, Dr Felicity Platt, Royal College of Anaesthetists and Nat Haslam, Regional Anaesthesia UK The day will provide valuable knowledge for doctors engaged in clinical anaesthesia, pain management and intensive care medicine, and who have an interest in improving patient safety. Register
  9. Content Article
    The pain and distress of not being able to see an NHS dentist are "totally unacceptable", an inquiry has told the government. A review was launched after a BBC investigation found 9 in 10 NHS dental practices across the UK were not accepting new adult patients. Some people drove hundreds of miles for treatment or even resorted to pulling out their own teeth, the BBC found. The government says it invests more than £3bn a year in dentistry. But a damning report, by the Commons' Health and Social Care Committee, says more needs to be done, and quickly. The House of Commons Committee report with recommendations to government can be viewed at the link below. The Government has two months to respond.
  10. Content Article
    This story is part one of a series by AP News, examining the health disparities experienced by Black Americans across a lifetime.
  11. Content Article
    Davina McCall’s documentary Pill Revolution missed an opportunity to validate painful experiences of intrauterine devices and promote better practice, writes Stephanie O'Donohue, Patient Safety Learning's Content and Engagement Manager, in an opinion piece for the BMJ.
  12. Content Article
    Trust is central to the therapeutic relationship, but the epistemic asymmetries between the expert healthcare provider and the patient make the patient, the trustor, vulnerable to the provider, the trustee. The narratives of pain sufferers provide helpful insights into the experience of pain at the juncture of trust, expert knowledge, and the therapeutic relationship. While stories of pain sufferers having their testimonies dismissed are well documented, pain sufferers continue to experience their testimonies as being epistemically downgraded. This kind of epistemic injustice has received limited treatment in bioethics. In this paper, Buchman and colleagues examine how a climate of distrust in pain management may facilitate what Fricker calls epistemic injustice. They critically interrogate the processes through which pain sufferers are vulnerable to specific kinds of epistemic injustice, such as testimonial injustice. They also examine how healthcare institutions and practices privilege some kinds of evidence and ways of knowing while excluding certain patient testimonies from epistemic consideration. 
  13. Content Article
    Doctors are taught from medical school about the benefits of IUDs, and often encourage patients that they are a good contraceptive option. However, recent media attention on the pain that some women suffer when having their IUDs fitted has started conversations about the need for cervical blocks and more honest counselling of women about the procedure. Rebekah Fenton, adolescent medicine fellow at Lurie Children's Hospital of Chicago, joins us to talk about how she counsels her patients, and why the most important thing is to make sure women are in charge of their reproductive healthcare decisions.
  14. Content Article
    This report was prepared by the Endometriosis Task and Finish Group and submitted to the Welsh Government on 16 April 2018. Authors propose a robust care pathway based on NICE guidance using a life course approach to ensure that symptoms are recognised and responded to promptly and appropriately, as they emerge. 
  15. Content Article
    In this article, published by British Vogue, Alexa Chung shares her experiences of endometriosis and the barriers and attitudes she faced in seeking a diagnosis and treatment.
  16. Content Article
    This recent cohort study, published in Evidence Based Medicine, investigated ‘the risk of transitioning from acute to prolonged use’ of opioid analgesics in patients undergoing elective surgery. Patients given tramadol or long-acting opioids after discharge were at greater risk of prolonged opioid use than those who were given other short-acting opioids.
  17. Content Article
    The opioid crisis in the United States (US) is one of the most high-profile public health scandals of the 21st century with millions of people unknowingly becoming dependent on opioids. The United Kingdom (UK) had the world’s highest rate of opioid consumption in 2019, and opiate-related drug poisoning deaths have increased by 388% since 1993 in England and Wales. This article, published in the British Journal of Pain, explores the epidemiological definitions of public health emergencies and epidemics in the context of opioid use, misuse, and mortality in England, to establish whether England is facing an opioid crisis.
  18. Content Article
    Many AI models are being developed and applied to understand opioid use. However, authors of this paper, published in BMJ Innovations, found there is a need for these AI technologies to be externally validated and robustly evaluated to determine whether they can improve the use and safety of opioids.
  19. News Article
    "Seeing how much pain she's in is killing me," the mother of a woman waiting four years for a hip operation has said. It is only by screaming that Marie Morgan, from Carmarthenshire, can express her level of suffering. The 30-year-old, who has multiple brain conditions, can speak only a few words and needs round-the-clock care. "Her hip is out and is rubbing against bone... there's no socket there," Marie's mother Sandra said. "She can't travel because every time I move her she's screaming in pain. Marie has cerebral palsy, severe epilepsy and fluid on the brain and the constant agony caused by the wait has meant these conditions, including her seizures, have become "horrendous". Sandra said: "She used to be so happy, we used to go to the pool, play music... Now she's gone downhill. I don't think she can last much longer to be honest with you." Marie, from Penygroes, is on a waiting list to have surgery in Morriston Hospital, Swansea. Her mother said staff have told her she is considered to be high priority, but despite her best efforts, she is still in the dark about when the operation will happen. "They said because of Covid they weren't operating, now they say it's staff shortages so it's something all the time. "I feel I'm knocking my head against a wall. It's not fair, she's only 30 and suffering the way she is." Swansea Bay Health Board said it hoped to tackle the backlog by increasing capacity at one of its hospitals. Read full story Source: BBC News, 17 February 2022
  20. News Article
    The federal government on Thursday proposed new guidelines for prescribing opioid painkillers that remove its previous recommended ceilings on doses for chronic pain patients and instead encourage doctors to use their best judgment. But the overall thrust of the recommendations was that doctors should first turn to “nonopioid therapies” for both chronic and acute pain, including prescription medications like gabapentin and over-the-counter ones like ibuprofen, as well as physical therapy, massage and acupuncture. Though still in draft form, the 12 recommendations, issued by the Centers for Disease Control and Prevention (CDC), are the first comprehensive revisions of the agency’s opioid prescribing guidelines since 2016. They walk a fine line between embracing the need for doctors to prescribe opioids to alleviate some cases of severe pain while guarding against exposing patients to the well-documented perils of opioids. “We are welcoming comments from patients who are living with pain every day and from their caregivers and providers,” said Christopher Jones, a co-author of the draft and acting director of the National Center for Injury Prevention and Control, the arm of the CDC that released the new guidelines. Read full story (paywalled) Source: The New York Times, 10 February 2022
  21. News Article
    A mum says her life has been destroyed following a hernia repaired with a mesh implant – with pain so severe she considered ending her life. Roseanna Clarkin, 38, has suffered excruciating pain since medics used mesh products to repair the issue. Now she wants the use of mesh in hernia operations to be suspended, as it has for vaginal mesh following years of suffering by thousands of women. Revealing her own hell, Roseanna told how she was in so much pain last month she asked for ­guidance about how to legally end her own life. She added: "When I was going to the doctor's after my op, I wasn't believed. They told me it was all in my head and even told my husband Brendan 'Don't get roped into this'". Roseanna said: "I suspect the mesh has moved. But even the other week one of the GPs at my practice was suggesting it was in my head." Roseanna launched a petition calling for the suspension of mesh in hernia ops. It is going through the public ­petitions committee at Holyrood. To date, more than 70 patients or their families have written to the committee about their experiences with hernia mesh implants. Labour's health spokeswoman, Jackie Baillie, who campaigned for vaginal mesh ops to be suspended, called for an urgent review of the uses of mesh for other procedures. She said: "It has taken years for the serious problems caused for women who had transvaginal mesh used in their surgical treatment to be resolved but it appears to be affecting other conditions too." She warned: "We can't repeat the mistakes of the past." Read full story Source: Daily Record, 31 January 2022
  22. News Article
    Women are being forced to wait longer for operations and healthcare appointments in the wake of the pandemic, according to a new report. Research carried out by the Care Quality Commission, England’s regulator of health and social care, found 53% of women experienced longer waiting times for appointments or healthcare procedures during the Covid crisis. The report also found 3 in 10 women experienced appointment cancellations. More women report grappling with these issues than men – with some 44% of men saying they have experienced longer waiting times for appointments or procedures. Helena Mckeown, a GP who previously specialised in women’s health at the British Medical Association (BMA), told The Independent she is not surprised by the findings. "Our world is full of sexism and we know of other examples of sexism and biases in healthcare. Some of them are racial biases. To stop unconscious biases, they need to be recognised and addressed. Ms Mckeown, one of the directors of the Menopause Expert Group, a non-profit which provides education about menopause, said female patients are treated differently to men. She added: “We need to make sure we are not taking women saying they are in pain differently to men saying they are in pain. It is really important that we address this problem of women waiting longer for operations and appointments.” Read full story Source: The Independent, 22 January 2022
  23. News Article
    Dying patients are going without care in their own homes because of a collapse in community nursing services, new data shared with The Independent reveals. Across England a third of district nurses say they are now being forced to delay visits to end of life care patients because of surging demand and a lack of staff. This is up from just 2% in 2015. The situation means some patients may have to wait for essential care and pain medication to keep them comfortable. Other care being delayed includes patients with pressure ulcers, wounds which need treating and patients needing blocked catheters replaced. More than half of district nurses said they no longer have the capacity to do patient assessments and psychological care, in an investigation into the service. Professor Alison Leary, director of the International Community Nursing Observatory, said her study showed the country was “sleepwalking into a disaster,” with patients at real risk of harm. She said the situation was now so bad that nurses were being driven out of their jobs by what she called the “moral distress” they were suffering at not being able to provide the care they knew they should. “People are at the end of their tether. District nurses are reporting having to defer work much more often than they did two years ago. What they are telling us is that the workload is too high. This is care that people don’t have time to do.” Read full story Source: The Independent, 29 November 2021
  24. News Article
    Huge waiting lists have left patients questioning whether their lives are worth living, a surgeon has warned. Paul Williams, an orthopaedic surgeon at Neath Port Talbot Hospital, dubbed the effect of long delays on mental and physical health "horrific". A health think-tank said waiting times were the biggest challenge the NHS in Wales has ever faced. The Welsh government said it wanted to "radically transform" how healthcare was delivered. Mr Williams said: "To be living with pain from an arthritic joint is terrible. "We sent out a questionnaire recently and many of the patients have actually replied that they're questioning if their life is worth living because of the pain they're in." The latest figures for the Welsh NHS showed another record high for those waiting for hospital treatment. The number of patients waiting more than 36 weeks has grown from 25,634 in February 2020 to 243,674 by August 2021. The longest waits included 56,279 people who needed orthopaedic or trauma treatment. Read full story Source: BBC News, 3 November 2021
  25. News Article
    A drug developed over 20 years ago to treat cancer could help patients living with crippling pain, according to new research. Kenpaullone switches on a gene that douses chronic inflammation, say scientists. Experiments on mice and humans found it was remarkably successful at alleviating nerve injury and bone tumour symptoms. The US team is hopeful clinical trials will see equally successful results in humans suffering a host of conditions. Up to 8 million people in the UK live with chronic pain. Major causes include arthritis and spine damage. Lead author Professor Wolfgang Liedtke said: “New drugs and other therapies against chronic pain need to be safe, i.e., the fewer side effects the better. “It’s especially important they be non-addictive and non-sedative, while being effective against nerve injury pain and cancer pain, preferably with a minimal time to official approval." Read full story Source: The Independent, 27 October 2021
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