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Found 61 results
  1. Content Article
    Official statistics indicate there are currently hundreds of thousands of people living with Long Covid in the UK. Many of those who contracted Covid-19 at the start of the pandemic are still experiencing significant symptoms almost a year on from their initial infection; some have already passed that grim milestone. Meanwhile, we can expect case numbers of Long Covid to rise significantly as people continue to become infected; recent data shows that at least 1 in 10 people still experience symptoms 12 weeks after initial infection.[1] The implications of Long Covid for individual patients, our health service and wider society are multifaceted, complex and likely to be long-term. There has been some progress to put in place support for people with Long Covid, but many are yet to receive help. Call to action Patient Safety Learning and patient group Long Covid Support are calling for an urgent and significant increase in the scale and pace of the response, and a coordinated, multi-stakeholder approach. We are calling for this to be set up and led by a dedicated Minister for Long Covid, responsible for: Assessment of the issues affecting people with Long Covid, whether or not they were hospitalised (physical and mental health, employment, welfare, education). Delivery plans for meeting the needs of people living with Long Covid. Cross-government coordination and communication. Public information and awareness raising around Long Covid. Data collection, measurement and reporting on the number of adults and children with Long Covid to inform service planning and funding. Identifying research needs, commissioning research and ensuring this informs service delivery. Delivery of a communication and engagement strategy to all key stakeholders.
  2. Content Article
    Independent SAGE is a group of scientists who are working together to provide independent scientific advice to the UK government and public on how to minimise deaths and support Britain’s recovery from the COVID-19 crisis.This report seeks to answer some of the more common questions that they are asked about Long COVID and sets out key recommendations.
  3. Content Article
    The COGER study is collecting data to gain insight into the course of functional and medical recovery in older people affected by COVID-19 participating in rehabilitation across Europe.
  4. Content Article
    As research into the long-term impact of COVID-19 continues, this guide from the Royal College of Nursing explores the symptoms and how clinicians can support their patients’ recovery. Topics covered: Post-viral fatigue Fluctuating multi-system symptoms Lasting organ damage Post-intensive care syndrome Mental health Learning and training
  5. Content Article
    With delays to promised support and trusts accused of penalising staff during their recovery, HSJ dig into why the NHS must provide support sooner rather than later for those experiencing Long-COVID. Patient Safety Learning has recently published a blog calling for better information and engagement with patients who have Long COVID: Clear NHS plan needed to reassure Long COVID patients. We have also co-produced a patient information leaflet with the Royal College of General Practitioners, to help patients understand what they can expect from their GP. To listen to the HSJ podcast, click on the link below. 
  6. Content Article
    On 28 August 2020, LongCovid.org and partners sent a letter to Jeremy Hunt, Chair of the Health & Social Care Committee, to ask for the UK Government to assemble a multi-disciplinary Long Covid taskforce to consider: improvements to (continuing) professional education more and better research quality psychosocial and mental health services better public health programmes help for NHS and social care workers to return to work safely funding for patient-led support groups. The full letter can be read via the link below.
  7. Content Article
    Authors of this BMJ Opinion piece, recently had the opportunity to present the existing evidence and highlight patients’ experiences of having Long Covid at a meeting attended by Maria Van Kerkhove, (WHO Covid Technical Lead) and Janet Diaz (WHO Head of Clinical Care) from the central WHO team. At the meeting, Clare Rayner and Amali Lokugamage, both doctors who are experiencing long term impacts of COVID-19, discussed their perspective of having long covid. In this article, the authors summarise the points they raised at the meeting. They also highlight the supportive comments made by Dr. Tedros Adhanom Ghebreyesus, which indicated genuine recognition of long covid sufferers and hope for the future. 
  8. Content Article
    Critical Care Recovery and Life Lines have teamed up to develop this web resource, designed to help patients and families recover from COVID-19. Informed by published expert guidance, they have also worked very closely with front line health care professionals, patients and families. This website will be updated regularly, as more information becomes available. 
  9. Content Article
    This webinar recording from ICU Steps is a session with trustees about recovery from critical illness and what can be done to help.
  10. Content Article
    When recovering from COVID-19 people may still be coming to terms with the impact the virus has had on both their body and mind. Your COVID Recovery is a digital resource that has been developed by the NHS to help people understand what has happened and what they might expect as part of their recovery. Content includes: Managing the effects Wellbeing Exercises When to seek help Information for family, friends and carers.
  11. Content Article
    This article, published by The Conversation, highlights the mounting evidence that some people who have had COVID-19 but were not hospitalised, are experiencing prolonged illness. Reported after-effects of the virus include; overwhelming fatigue, palpitations, muscle aches and pins and needles. The author of this article looks at the research to date and talks about using twin studies to gain further insight into 'post-COVID syndrome'.
  12. Content Article
    This short film was created by patients who are experiencing long-lasting and debilitating symptoms of COVID-19, to raise awareness of their ongoing issues, also known as 'Long COVID'.
  13. Content Article
    An increasing number of people with confirmed or suspected COVID-19 are continuing to struggle with prolonged, debilitating and sometimes severe symptoms months later.[1] Many were never admitted to hospital and have instead been trying to manage their symptoms and recovery at home. These patients are sometimes referred to as the ‘long-haulers’ or described as having ‘post-acute’, ‘chronic’ or ‘long-term’ COVID-19. Here, we will use the term ‘Long COVID’. With social distancing restrictions still in place, patients in the UK and across the world have been turning to social media support networks[2] to connect with others who are experiencing similar challenges. These patients have raised very credible concerns about the care they are receiving[3] and the uncertainties they face. Their concerns are revealing many implications for patient safety. We have recently shared on the hub the story of Dr Jake Suett[4], one of the many people experiencing symptoms of Long COVID. When we conclude this article, we will return to his story and highlight the changes that he is calling for. However, first, we will focus on the patient safety aspects of Long COVID, highlighting key areas of concern and action needed (a full list of actions can be found summarised here).
  14. Content Article
    In this blog, intensive care doctor Jake Suett draws on his personal journey and that of others to highlight the prolonged and frightening symptoms many patients with confirmed or suspected COVID-19 are experiencing. Jake outlines his concerns and sets out recommendations for future action to address the needs of these 'Long COVID' patients. Included is an example letter that can be adapted by others to call on MPs to raise awareness of those suffering persisting symptoms of COVID-19. 
  15. Content Article
    The COVID-19 Recovery Collective is a small team of collaborators that wanted to do something constructive to help those that are in recovery from the COVID-19 virus. The impact of the virus across the globe has been rapid and far reaching. Many are struggling to keep pace with developments, from the recovery process of the infection itself, to the economic consequences of the virus and also the sociological impact of lockdown.The collaboration started as a token action towards helping those that are in recovery from COVID-19, in the hope that by encouraging people to share their own experiences of recovery they can instil some reassurance in others of potential expectations. Through this sharing of experiences, we might see some similar patterns of recovery and also provide an opportunity to share any knowledge or actions that might have helped others to deal with the personal impact of the infection on their health.
  16. Content Article
    COVID-19 rehabilitation will improve exercise tolerance, muscle strength, and help patients manage breathlessness, and potentially allow someone to be discharged earlier. The treatments in this guide, produced by Liverpool Heart and Chest Hospital, focus on breathing, functional and physical exercises. Only complete exercises at home and in hospital that have been discussed with a clinician.
  17. Content Article
    This document, developed by McMaster University's School of Rehabilitation Science in Canada, provides a guide for rehabilitation practice during the COVID-19 crisis. Informed by the best available evidence, including consultation with the clinical community, this living document consolidates findings from resources for front line rehabilitation professionals.
  18. Content Article
    As COVID-19 spread throughout the world, clinicians and researchers rapidly published guidance and data and shared their experiences in the hope of understanding the virus better. Their shared purpose was to keep more patients safe from becoming acutely unwell or dying. While the initial focus was on treating the hospitalised, one Trust was also thinking ahead to the challenging recovery many would face.
  19. Content Article
    There is an increasing amount of evidence that co-producing change and improvement in health care leads to new approaches that are more likely to succeed and be sustained.  This blog, by the US-based Institute for Healthcare Improvement, asks: 'As health care systems grapple with planning for an uncertain future during the COVID-19 pandemic, how do we ensure that people with lived experience are real partners in what comes next?'
  20. Content Article
    This patient information pack has been produced by staff at Homerton University Hospital. It is designed to help people recover and manage their symptoms following COVID-19.
  21. Content Article
    A significant number of people, who may or may not have been acutely unwell with COVID-19, are experiencing a prolonged and debilitating recovery at home. Symptoms and experiences of care seem to vary greatly among this group, sometimes known as the COVID-19 ‘long-haulers’. Many are finding comfort and reassurance through online communities, set up by and designed for patients who are struggling to get back on their feet.
  22. Content Article
    Paul Garner is Professor at the Liverpool School of Tropical Medicine. He is Director of the Centre for Evidence Synthesis in Global Health and Co-ordinating Editor of the Cochrane Infectious Diseases Group. In this blog for BMJ Opinion, Paul describes how he has struggled in the weeks following his COVID-19 infection and the relapses in fatigues that have occurred after any exertion.
  23. Content Article
    Rehabilitation is fast becoming the new priority in dealing with the impact of this pandemic and is crucial for people recovering from COVID-19 infection.The Royal College of Occupational Therapists (RCOT) have published three guides to support people to manage post-viral fatigue and conserve their energy as they recover from COVID-19. These guides are endorsed by the Intensive Care Society.Practical advice for people who have been treated in hospitalPractical advice for people who have recovered at home’Practical advice for people during and after having COVID-19.You can download the guides via the link below.
  24. Content Article
    This statement outlines the UK's four nations’ collective strategic priorities and approach to Allied Health Professional (AHP) rehabilitation leadership during and after COVID-19. Rehabilitation is critical to ensuring our population’s recovery from the impacts of the pandemic and the long-term sustainability of the health and social care system. AHPs are at the centre in shaping the rehabilitation agenda while working as part of the wider multidisciplinary and multiagency teams across all sectors.
  25. Content Article
    This document from the British Thoracic Society provides a list of resources that are available free of charge and can be used by people with chronic lung disease (and pulmonary rehabilitation professionals) while face-to-face pulmonary rehabilitation is not possible. For example, during the COVID-19 pandemic.
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