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Found 450 results
  1. News Article
    Young people experiencing long Covid have urged people to get their vaccine in a new NHS video, featuring three previously healthy people in their early 20s and 30s. Quincy Dwamena, a 31 year-old a support worker, described himself in the video as a “healthy young guy”, warned “I ended up being hospitalised and thought I was going to die. My advice is to get the vaccine: don’t put yourself and others at risk, I wish I’d got mine as soon as it was offered.” Data from Public Health England has shown young people aged 16 to 29 at more likely to develop long Covid, however, vaccine uptake among this age group is lower than average, particularly within the London area. Speaking in the NHS video, Dr Emeka Okorocha, an emergency medicine physician said, “As an A&E doctor, I’ve seen a lot during the pandemic. But nothing has shaken me like the sight of young, otherwise healthy adults being rushed into our hospitals with Covid-19. As well as their age, many of them have one other thing in common: they are unvaccinated.” Read full story. Source: The Guardian, 23 August 2021
  2. News Article
    A new report has found tens of thousands of children are suffering from Long Covid, with experts worried children will be left vulnerable if the vaccine roll-out does not expand to include the 12-15 year old age group. Experts have also warned herd immunity cannot be achieved without the young people taking the jab. "There is no time to waste in getting on with this. We could have had all of this age group [16- and 17-year-olds] vaccinated before September." Said Dr Deepti Gurdasani, an epidemiologist at Queen Mary University London. Read full story. Source: The Independent, 6 August 2021
  3. News Article
    According to research by King's College scientists, children who become ill with Covid-19 rarely experience long-term symptoms. The study was conducted using data provided by the Zoe Covid Study App and looked at 1,734 children, aged between five and 17 who had been reported to have tested positive for the virus between September 2020 and February 2021, with the most common long-term symptoms being found to be headaches and tiredness. "This study is reassuring for the majority of children and young people who develop Sars-CoV-2 infection, and reflects what paediatricians are seeing in clinical practice." Says Dr Liz Whittaker, infectious disease lead at the Royal College of Paediatrics and Child Health who was not involved in the research Read full story. Source: BBC News, 4 August 2021
  4. News Article
    Researchers from the 'Therapies for Long COVID (TLC) Study Group' at the University of Birmingham are studying long COVID is and what influences it by pooling data from lots of separate studies to find out the prevalence of reported symptoms and to see what the impacts and complications of long COVID are. Their review showed just how varied long COVID is. Patients may experience symptoms related to any system in the body – including respiratory, neurological and gastroenterological symptoms. The pooled data showed that the ten most commonly reported symptoms in long COVID are fatigue, shortness of breath, muscle pain, cough, headache, joint pain, chest pain, an altered sense of smell, diarrhoea and altered taste. Other common symptoms include “brain fog” – when thinking is fuzzy and sluggish – memory loss, disordered sleep, heart palpitations and a sore throat. Rare but important outcomes include thoughts of self-harm and suicide and even seizures. Most long COVID patients complain of symptoms experienced during their acute infection persisting beyond it, with the number of symptoms experienced tending to decline as patients move from acute to long COVID. Some, though, report developing new symptoms during their long COVID illness, while some also report symptoms reoccuring that had previously resolved themselves. What the huge variability of long COVID suggests is that it actually comprises a number of different syndromes, potentially with different underlying causes. A better understanding of the underlying biological and immunological mechanisms of long COVID is therefore urgently needed if we’re to develop effective treatments for it. Read full story Source: The Conversation, 27 July 2021
  5. News Article
    US President Biden has said people suffering from long-term effects if Covid-19 could be considered a disability under federal civil rights laws. The administration does make clear however that having long covid doesn't automatically mean disability and that an individual assessment may be needed to determine whether a person’s long-term symptoms “substantially limits a major life activity.” President Biden has said the classification of long covid as a possible disability would “help Americans grappling with long-term effects of covid-19 that doctors call long covid.” Read full story. Source: The Washington Post, 26 July 2021
  6. News Article
    UCLH has been awarded £6.8m to conduct what has been regarded as the largest Long Covid clinical study and will focus on understanding the condition, how to diagnose it, manage it and improve the recovery process. The research will be a collaborative effort and will include 30 researchers, health professionals, patients and industry partners from more than 30 organisations and the project will be known as TIMULATE-ICP (Symptoms, Trajectory, Inequalities and Management: Understanding Long-Covid to Address and Transform Existing Integrated Care Pathways). Read full story. Source: National Health Executive, 19 July 2021
  7. News Article
    It has been announced that the UK is set to launch 15 new research programs to study 'Long Covid', allocating nearly 20 million pounds to the projects. The research programs are aiming to understand the condition better as well as identify it and evaluate different treatments. The Department for Health and Social Care have said, "Those people who have long COVID will benefit from the latest research revealed, which will help to understand the condition better, improve diagnosis and find new treatments." Read full story. Source: The Day Chronicle, 18 July 2021
  8. News Article
    A major new study has found Long Covid is associated with at least 200 symptoms, the most common of which includes fatigue, post-exertional malaise and cognitive dysfunction. The research led by a team at University College London spoke to thousands of people, many of whom have said they experienced symptoms for months. Other symptoms include: visual hallucinations, tremors, itchy skin, changes to the menstrual cycle, sexual dysfunction, heart palpitations, bladder control issues, shingles, memory loss, blurred vision, diarrhoea, and tinnitus. Read full story. Source: The Independent, 15 July 2021
  9. News Article
    New research has suggested unvaccinated young people may be at a higher risk of getting long-term symptoms. With restrictions being lifted on 19th July, concerns have been raised about the impact of the Delta variant. Professor Danny Altmann has said “From every version of Covid we’ve ever seen on the planet, we’ve got a rule of thumb that any case of Covid, whether it’s asymptomatic, mild, severe, or hospitalised, incurs a 10 to 20% risk of developing long Covid, and we haven’t seen any exceptions to that.” Read full story. Source: The Guardian, 13 July 2021
  10. News Article
    Researchers at Imperial College London have found a pattern of rouge antibodies that may allow a simple blood test to diagnose Long Covid in the next 6 to 18 months. Currently, there is no diagnostic test for Long Covid and the condition is not yet fully understood, and with the rise in cases, it is not yet known if the vaccination can protect patients from getting long-term symptoms. However, leading the research team at Imperial College London, Professor Danny Altmann believes the research could allow for a test to be performed in a GP surgery. And regarding the rising cases, Professor Altmann has said "If we're heading into a phase of 100,000 cases per day, and, we're saying that 10-20% of all infections can result in long Covid, I can see no certainty that we're not brewing those long Covid cases despite having a vaccinated population," Read full story. Source: BBC News, 12 July 2021
  11. News Article
    A pattern in rouge antibodies has been found by Imperial College London scientists which may lead to a blood test for the condition within 6 to 18 months. Leading the team at Imperial College London, Professor Danny Altmann has said the 'work will lead to a test which could be done in a doctor's surgery'. However, he is concerned with the lifting of lockdown restrictions on 19th July. Long Covid is not yet fully understood with no current diagnostic test yet available for the illness. However, a range of symptoms have been listed which include fatigue, breathlessness, muscle pain and headaches. Read full story. Source: BBC News, 12 July 2021
  12. News Article
    A study by React have estimated around 2 million people may be suffering from long Covid but scientists say the cases are going under reported. Currently, there is no universal definition of long Covid and the symptoms are varying and broad. To better understand the condition, the government has set up around 80 clinics and have invested £50m for research. Read full story. Source: BBC News, 30 June 2021
  13. News Article
    A new survey of half a million adults in the UK has revealed more than 2 million may have suffered from long Covid. Currently, long Covid is not fully understood and its definition has not yet been agreed upon. The self-reported survey showed 37% of respondents experienced at least one symptom lasting 12 weeks or more with higher weight, smoking, lower incomes and having a chronic illness being associated with a higher chance of experiencing symptoms of long Covid. The government has issued £50m in funding for research on long Covid. Read full story. Source: BBC News, 24 June 2021
  14. News Article
    GPs have been given until the 31st July to sign up patients to the new enhanced long Covid enhanced service (ES). The new service was set up to help support patients with the condition as it was considered complex and needed consistent support. The ES is also intended to help GP practices 'plan their workforce set up, training needs and infrastructure in order to support patients with this new condition’. The payment to practices will occur on a monthly basis and will be paid 75% of the fee (£0.371) per registered patient. The remaining 25% (£0.124 )will be paid once patients have been signed up. Read full story. Source: Pulse Today, 21 June 2021
  15. News Article
    NHS England are set to launch a new service for children suffering from long COVID. Although data has suggested that children are less likely to suffer from severe disease, there have been an increasing number of reports of continued symptoms. The new service will consist of 15 new paediatric hubs with experts to treat young people and advise their families and carers or refer them to specialist services. The NHS has invested £100m in specialist services to help meet the needs of the possible hundreds of thousands who are expected to experience long COVID with symptoms ranging from breathing difficulties to fatigue. Read full story. Source: Sky News, 15 June 2021
  16. News Article
    The number of people suffering from symptoms of long covid more than a year after their initial Coronavirus infection has jumped to almost 400,000. New data from the Office for National Statistics based on a survey of patients found the numbers of patients with persistent symptoms after 12 months jumped from 70,000 in March to 376,000 in May. Overall, the ONS said an estimated one million people had self-reported signs of long Covid which last for more than four weeks. The effects of long Covid were reported to be affected the day-to-day activities of 650,000 people, with 192,000 of those saying their ability to undertake day-to-day activities had been limited a lot. Fatigue was the most common symptom reported, with 547,000 people affected. A total of 405,000 people reported a shortness of breath, while 313,000 had muscle aches. More than a quarter of a million patients, 285,000 people, said they had difficulty concentrating. According to the ONS the prevalence of long Covid was higher among those aged between 35 and 69-year-old and women were more likely to be affected than men along with those living in the most deprived areas as well as staff working in health and social care. Read full story Source: The Independent, 3 June 2021
  17. News Article
    People who remain chronically ill after Covid infections in England have had to wait months for appointments and treatment at specialist clinics set up to handle the surge in patients with long Covid. MPs called on Matt Hancock, the health secretary, to explain the lengthy waiting times and what they described as a “shameful postcode lottery” which left some patients facing delays of more than four months before being assessed at a specialist centre while others were seen within days. NHS England announced in December that people with long Covid, or post-Covid syndrome, could seek help at more than 60 specialist clinics. But despite government assertions in January that the network of 69 centres was already operating, the all-party parliamentary group on coronavirus found that some clinics were still not up and running three months later. Freedom of information requests submitted to NHS trusts revealed that while some clinics had opened and were seeing patients, others had been delayed by the second wave of infections in January. Read full story Source: The Guardian, 30 May 2021
  18. News Article
    Family doctors are being forced out of their jobs after developing long Covid, prompting demands for the government to compensate NHS staff with the debilitating condition who cannot work. GPs struggling with the condition have told the Observer they felt “shocked and betrayed” when their colleagues removed them from their posts because of prolonged sick leave. “I received a lawyer’s letter on behalf of the other partners in the GP surgery telling me that they were ending my partnership. I understood why they did what they did, because I was too sick to work at the time. But it was also callous and mercenary,” said one doctor who lost her job. “It was hard on me, as one of the partners was also my best friend. The partners were worried I’d be a ‘disabled partner’ and wouldn’t be able to pull my weight. Long Covid meant I simply couldn’t function normally and so couldn’t meet the return to work date they gave me, so they exercised their right under our partnership agreement to end my partnership at the surgery,” added the GP, who asked to remain anonymous. The issue has prompted soul-searching within the medical profession about what duty of care family doctors owe each other when they cannot work because they have been laid low with exhaustion, brain fog, breathlessness and other symptoms of long Covid. Locum medics and hospital doctors with the condition are also having problems including loss of income, trouble accessing sick pay, contractual difficulties and getting employers to accept that they cannot work normally, sometimes for months. Read full story Source: The Guardian, 23 May 2021
  19. News Article
    COVID-19 vaccines tend to alleviate the symptoms of long Covid, according to a large survey of more than 800 people that suggests mRNA vaccines, in particular, are beneficial. Although COVID-19 was initially understood to be a largely respiratory illness from which most would recover within a few weeks, as the pandemic wore on increasing numbers of people reported experiencing symptoms for months on end. There is no consensus definition of the condition of these people who have symptoms ranging from chronic fatigue to organ damage, let alone a standardised treatment plan. As vaccines hit the mainstream, concerns arose that vaccination could precipitate relapses or a worsening of symptoms. But conversely, anecdotal reports suggested that vaccines helped some people with long Covid. The analysis, which is yet to be peer reviewed, was conducted on the basis of a survey of 812 people (mostly white, female participants) with long Covid in advocacy groups in the UK and internationally who were contacted via social media. The participants (a small proportion of whom also said they had ME/CFS) were asked to wait at least a week after their first dose to avoid their responses conflating with side-effects of the vaccine. In general, those who received mRNA vaccines (Pfizer/BioNTech or Moderna) reported more improvements in symptoms, compared with those who got an adenovirus vaccine (Oxford/AstraZeneca). In particular, those who received the Moderna vaccine were more likely to see improvements in symptoms such as fatigue, brain fog and muscle pain, and less likely to report a deterioration, the analysis found. Read full story Source: The Guardian, 18 May 2021
  20. Event
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    Long COVID Physio will host the Long COVID Physio International Forum in partnership with Rocky Mountain University of Health Professions and Fisiocamera, sponsored by Kaiser Permanente and Realize Canada. The two day online forum will bring the lived experience to Long COVID, disability and rehabilitation. The Long COVID Physio International Forum is suitable for any audience, including health and social care professionals, people living with or affected by Long COVID or other conditions, academics, service providers, policymakers, students of allied health and rehabilitation professions, and people wanting to learn more. The Long COVID Physio International Forum programme will be released soon. Programme content will be delivered live and available on demand, covering three different streams: Science - learn the most up to date research from leaders in the field. Discussion - the hot discussions and debates on the topics we all want. Workshop - share knowledge and skills that make a difference. Registration will open June 15th 2022. Further details can be found here.
  21. Event
    until
    The UK may have now past the worse of the pandemic, but the burden of Long Covid is only going to intensify in the weeks and months ahead. Estimates suggest that well over a million people are suffering from the condition, nearly half of whom have struggled with persistent symptoms for at least a year. Many will have developed Long Covid after the recent Omicron wave, which fuelled millions of weekly infections over the Christmas period. Yet support and treatment for these individuals has been in short supply. The NHS’ dedicated long Covid clinics have struggled to cope with high demand from patients, who feel neglected and ignored by the health system. Some ‘long haulers,’ as they’re known, have come together to form support groups and have regularly petitioned the government for more help and recognition of their plight. Despite the many challenges that lie ahead, there is some hope on the horizon: scientists are starting to make progress in better understanding long Covid and closing in on some of the biggest questions surrounding the condition. To discuss all of these themes, join out expert panel hosted by The Independent's Health Correspondent Rebecca Thomas and Science Correspondent Samuel Lovett, with Dr Elaine Maxwell, Professor Amitava Banerjee and Professor Brendan Delaney. Register
  22. Event
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    The session will focus on the patient experience of Long Covid and will talk about what people with the illness would like from healthcare. It will then look at what we know so far in terms of support plans. The workshop will be presented by Margaret O’Hara, a research professional in the NHS who has Long Covid and Dr Elaine Maxwell, a former Scientific Advisor to the National Institute for Health Research. Margaret runs a Facebook page to promote involvement, participation and engagement in Covid research and is a founding Trustee of the charity Long Covid Support, while Dr Maxwell has authored two dynamic reviews on Long Covid and is a Trustee of Long Covid Support. Register
  23. Event
    By joining this session, you will be able to take away information and guidelines on how to support the wellbeing of our NHS people who are affected by Long Covid. The session will be run by our fantastic speakers covering a range of key topics, including: An introduction to Long Covid. Guidelines for supporting our NHS people affected by Long Covid. Exploring Long Covid through wellbeing conversations. Register
  24. Event
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    The next NHS England and NHS Improvement wellbeing community event, hosted by the People Directorate and facilitated by NHS Horizons will be focusing on: ‘Supporting our NHS People affected by Long Covid’ By joining this session, you will be able to take away information and guidelines on how to support the wellbeing of our NHS people who are affected by Long Covid. Register
  25. Event
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    Six months on from the Royal Society of Medicine's first Spotlight on long COVID, this second episode will look at the current prevalence and cases of long COVID, how our understanding of symptoms and treatments has moved on, and the challenges around access to care. This episode will: Advise health professionals on how to continue managing and supporting patients with long COVID using the latest research and treatments Showcase how long COVID has impacted children and young people Discuss the challenges and solutions around access to care, and rising referral rates to long COVID clinics Address the various barriers that different population groups like minority ethnic communities are facing around long COVID Find out how healthcare workers are being affected by long COVID e.g. morale, workforce turnover, wellbeing Understand how other countries are coping with long COVID and what they are doing differently to the UK Register
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