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Showing results for tags 'Long Covid'.
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Content ArticleA Community of Practice for nurses in the community to improve care and increase understanding about the physical, mental and emotional effects of Long Covid.
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Content ArticleThis article in Social Science and Medicine examines the role of patients in naming and defining Long Covid. Patients with the condition, many of whom had ‘mild’ illness initially, used different evidence and advocacy to demonstrate a longer, more complex course of illness than was laid out in initial reports from Wuhan.
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Long Covid Support: Information leaflet
Patient Safety Learning posted an article in Resources for patients
Long Covid can be difficult to diagnose, and some people might not realise their symptoms could be linked to prior COVID-19 infection. There can be more than 200 symptoms. Symptoms can affect anywhere in the body. Symptoms can come and go, and new ones can appear weeks or months later. People may not be aware they had Covid-19: some don’t have symptoms at the time of infection, and test results can be unreliable. Long Covid Support and Long Covid Kids have produced an information leaflet on the symptoms of Long Covid. -
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Hannah Hylton is a highly specialised respiratory physiotherapist at Barts Health NHS Trust. During the first wave of the Covid-19 pandemic, she was part of the team that designed the Trust’s after-Covid services, including the Living With Covid Recovery app. In this interview, Hannah explains how the app works and how it is being used by Trusts around the UK to support over 1,500 patients living with Long Covid. -
Content Article“As someone living with Long Covid…you want somebody to believe what you're going through.” Davine Forde National Voices held their event, Long Covid webinar event: A community-focused response, where they were joined by Davine Forde (Manchester BME Network CIC), Claire Hastie (Long Covid Support), Michael MacLennan (covid:aid) and Sammie Mcfarland (Long Covid Kids) in an enlightening panel discussion, focusing on the depth and breadth of dedication within the Long Covid community space. National Voices colleagues, Rachel Matthews (Head of Experience) and Keymn Whervin (Lived Experience Associate), also joined the event and spoke about the importance of getting people with lived experience in the room and at the heart of decision-making. Their focus on co-production highlighted a fantastic opportunity to harness the resourcefulness within our communities by working with people throughout decision-making processes.
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Content ArticleEpisode 09 of the Long Covid Podcast is a conversation with Claire Hastie. Claire became ill with Covid right at the start of the first wave in the UK and like so many others, is still suffering the effects of Long Covid. She started the Long Covid Support Group on Facebook in early May 2020. Claire talks about her experiences, how the group came to be and what they are fighting for.
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Content ArticleFinding solutions to long covid will require new ways of thinking across clinical services and research, says in this BMJ Opinion article.
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Content ArticleGlobally, children have been profoundly affected by the COVID-19 pandemic in many ways. While the majority of children with acute COVID-19 infection experience mild illness and fully recover, many go on to experience Long Covid. Long Covid is clinically identified by experience of persistent (and sometimes different) symptoms for several months after the acute infection (even in children who were asymptomatic). There is currently no agreed consensus on the case definition of Long Covid, but real-world data from American health insurance firms and the UK Office for National Statistics report that children may experience intestinal symptoms, pain, breathlessness, cognitive dysfunction and post-exercise malaise. The current understanding of the natural history, diagnostics and treatments of Long Covid is limited, meaning the medical model in isolation is not helpful. Michael Fanner and Elaine Maxwell in this paper explores how health visitors and school nurses are ideally placed to case-find children with Long Covid and co-produce child and family-centred care.
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Content ArticleLong-COVID refers to a variety of symptoms affecting different organs reported by people following Coronavirus Disease 2019 (COVID-19) infection. To date, there have been no robust estimates of the incidence and co-occurrence of long-COVID features, their relationship to age, sex, or severity of infection, and the extent to which they are specific to COVID-19. The aim of this study from Taquet et al. is to address these issues.
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Content ArticleThe World Health Organization IWHO) has developed a clinical case definition of post COVID-19 condition by Delphi methodology that includes 12 domains, available for use in all settings. This first version was developed by patients, researchers and others, representing all WHO regions, with the understanding that the definition may change as new evidence emerges and our understanding of the consequences of COVID-19 continues to evolve.
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Content ArticleThis systematic review published in BMJ Global Health looks to identify the nature, frequency and causes of long-COVID symptoms by reviewing data from existing research studies into long-COVID. It aims to regularly synthesise evidence on long-COVID characteristics to help improve long-term outcomes. From the data provided by 39 studies, the review found that: long-COVID affects both patients who were hospitalised and those managed in the community patients with long-COVID display a wide range of symptoms including weakness, general malaise, fatigue, concentration impairment and breathlessness research currently available on long-COVID is vulnerable to bias, so caution should be used when interpreting data. The authors also identify areas where further research is needed to help define long-COVID symptoms, identify risk factors for different populations and assess the impact of variants of concern and vaccination on long-term outcomes.
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Content ArticleThis study in Jama Network Open examines the health outcomes of patients who were hospitalised with COVID-19 in two Wuhan hospitals between February and April 2020. The authors found that: 45 percent of patients reported at least one symptom one year after hospitalisation the most common symptoms that patients reported were fatigue, sweating, chest tightness, anxiety and muscle pain patients who experienced severe disease during hospitalisation were more likely to experience more symptoms of long-COVID one year on patients who experienced severe disease were likely to have higher chronic obstructive pulmonary disease (COPD) assessment test scores that patients with less severe disease.
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Content ArticleIn this blog, PC Barry Calder, Lead of the Metropolitan Police Service Disability Staff Association COVID Peer Support Group, raises concerns about the potential impact of long COVID on staff and organisations. He highlights that organisations can take proactive steps to mitigate the consequences of staff being affected by long COVID, such as staff absences and changes to job roles. He recommends that organisations: introduce regular contingency planning activities (such as COVID Resilience meetings) ensure managers are trained to support staff living with long COVID ensure occupational health and staff wellbeing services include support relevant to long COVID consider establishing peer support groups for affected staff.
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Content ArticleThe Children and young people with Long COVID (CLoCk) study is the largest study to date of children and young people in the world. It aims to describe how children and young people are affected by post-COVID physical symptoms and mental health problems and to identify those most at risk. The CLoCk study is led by UCL and Public Health England and involves collaboration with researchers at the universities of Edinburgh, Bristol, Oxford, Cambridge, Liverpool, Leicester, Manchester as well as King’s College London, Imperial College London, Public Health England, Great Ormond Street Hospital and University College London Hospitals (UCLH).
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Long-haulers are fighting for their future (1 September 2021)
Patient Safety Learning posted an article in Blogs
Many people with long COVID feel that science is failing them. Neglecting them could make the pandemic even worse, writes Ed Yong in this article for The Atlantic. -
Content ArticleThis document informs the commissioning of post Covid services in England. It will assist local healthcare systems to plan and deliver services that meet the varied and often complex needs of people living with Long Covid and is being published alongside the NHS plan for improving Long Covid services.
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BMJ Webinar: Post-covid conditions (15 April 2021)
Patient Safety Learning posted an article in Resources for staff
A recording of a recent BMJ webinar for clinicians. researchers and policy makers on post-covid conditions. -
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Clare Rayner is a retired occupational health doctor who caught Covid-19 in March 2020. Clare has since worked with medical colleagues to raise awareness of their concerns associated with prolonged symptoms, also referred to as Long Covid. They have also contributed to the NHS England (NHSE) Long Covid Taskforce as patient/patient group representatives. One year on from her initial infection, Clare draws on personal and professional insight to explain why people living with Long Covid continue to feel let down, abandoned and frightened. -
Content ArticleThis work from Nurek et al. aims to provide a rapid expert guide for post Covid-19 condition ('long covid') clinical services. In the absence of research into mechanisms, therapies and care pathways, yet faced with an urgent need, guidance based on “emerging experience” is required.
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Long Covid Kids: Schools Awareness Pack
PatientSafetyLearning Team posted an article in Patient recovery
This pack has been created by the Long Covid Kids advocacy group. It provides Headteachers with evidence and information to aid the understanding of COVID-19 in children, transmission and the importance of mitigating risk to reduce long-term health implications for children and staff. -
Content ArticleThe prolonged illness experienced by many patients following acute COVID-19 has been termed ‘Long Covid’ by the self-organised patient groups formed on platforms like Facebook. Some of these patients have now been symptomatic for over a year. Long Covid impacts on ability to work, which has implications for employers, occupational health (OH) services and the wider economy. Clare Rayner and Richard Campbell discuss this in an article in Occupational Medicine.
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Content ArticleHow have health inequalities impacted the course of the pandemic? How do we optimise infection control across newly-opening schools? And finally: how can we overcome the barriers to wider understanding and recognition of Long Covid (Post-Acute Covid-19 Syndrome)? Dr Nisreen Alwan (University of Southampton) joins LivedHealth hosts Lere and Monique for this episode of Covid in the News to share her personal and professional experience on some huge, important questions for the community.
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Content ArticleIn this episode of Covid in the News, hosts Monique and Tom spoke to Ondine Sherwood, co-founder of patient advocacy and support group LongCovidSOS. They talk about the patient agenda, how community-driven research has changed since the start of the pandemic, Long Covid and policy, and the key questions to be answered in the coming months for longhaulers.
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Content ArticleIn this article, published by BMJ Opinion, authors argue that Long COVID stigma will have long lasting detrimental outcomes for patients, services, and society as a whole.
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Content ArticleFindings from this study, published in BMC Infectious Diseases, suggests that patients who recovered from COVID-19 disease may still experience COVID-19 like symptoms, particularly fatigue and headaches. Therefore, careful monitoring should be in place after discharge to help mitigate the effects of these symptoms and improve the quality of life of COVID-19 survivors.
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