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Content ArticleWorld Physiotherapy is the international voice for physiotherapy, representing more than 685,000 physiotherapists worldwide, through 125 member organisations. Recognising the lack of good quality evidence relating to Long Covid and physical activity, this briefing paper aims to support healthcare professionals to provide safe and effective Long Covid rehabilitation practice, research and policy. It recommends screening for post-exertional symptom exacerbation (PACS), cardiac impairment, exertional oxygen desaturation and autonomic dysfunction before exercise is recommended to people with symptoms of Long Covid.
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News Article
More than 1m people report Long Covid in UK a year after infection
Patient Safety Learning posted a news article in News
More than 1 million people in the UK have long Covid at least one year after they were first infected, new figures reveal. The data, released by the Office for National Statistics (ONS) on Thursday, comes as other figures suggest the number of Covid patients admitted to hospital in England is continuing to rise amid a new wave of the virus. As of 3 September, an estimated 2.3 million people living in private households in the UK – 3.5% of the population – had Long Covid, equivalent to one in every 28 people. Ondine Sherwood, a co-founder of the advocacy group and charity Long Covid SOS, says the number of people now reporting long Covid – 342,000 of whose lives are “severely impacted” as result – illustrates that this is “not just a personal tragedy but a societal, health and workforce problem”. Danny Altmann, professor of immunology at Imperial College London and expert on long Covid, described the situation as deeply disappointing, noting that while the number of people with long Covid appeared to dip over the summer, it is now clear there is a definite, ongoing, upwards trend. “This reinforces the message that it’s really foolhardy to imagine we can laugh off a massive, growing BA.5 wave as ‘living with the virus’ and ‘no worse than flu’,” he said. “Long Covid and even long Covid from the 2022 Omicron waves continues to wreck lives in people of all ages. I do wish we could just remind everyone to take this seriously – get boosted, keep indoor meetings well ventilated, wear masks indoors and for travel.” Read full story Source: The Guardian, 6 October 2022 -
Content ArticleThe Office for National Statistics reports that 98,000 children are now living with the symptoms of Long Covid in the UK. To support these children and young people at school and college, Long Covid Kids has collaborated with education resource website Twinkl to produce a series of resources for teachers and teaching staff about Long Covid. Although the resources are free to download, you will need to sign up for a Twinkl account to access them.
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Content ArticleThis framework from NHS England supports nurses, midwives and care staff in ensuring care remains at a high standard, as well as demonstrating the contribution to the Long Covid response. It aims to give the opportunity to embrace collective leadership in supporting people and communities served and showcase good practice as it emerges across England.
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Content ArticleThis practice pointer in The BMJ provides an update on treating Long Covid in primary care and outlines how healthcare professionals might respond to questions that patients ask about the condition. The article provides information on: Definition of Long Covid Epidemiology Symptoms and case definition Questions patients ask Further resources for patients and healthcare professionals
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Content ArticleLong Covid is politically problematic, medically uncertain, and personally scary. It is too easy to look away. In media narratives this summer the Covid-19 pandemic was eclipsed by the cost of living and climate crises. But in practice these crises co-exist and interact. Long Covid makes heatwaves and price hikes a whole lot harder to bear. Jo Maybin was healthy, triple vaxed, and had been down with Long Covid since February 2022. In this blog for The King's Fund, Jo describes how she feels and asks you not to look away from Long Covid, this ‘mass disabling event’, which is affecting 2 million people in the UK, and will likely have a direct impact on hundreds of thousands more this winter.
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News Article
Long Covid: protesters outside the White House demand better care
Patient Safety Learning posted a news article in News
Protesters took to the pavement outside the White House on 19 September to demand a better deal for people affected by Long Covid, complaining that the Biden administration’s plans fell short on action and funding. “The pandemic is over,” President Joe Biden declared the night before in a pre-recorded interview which aired on the news magazine 60 Minutes. “We still have a problem with covid,” he said. “We’re still doing a lot of work on it but the pandemic is over. If you notice, no one’s wearing masks. Everybody seems to be in pretty good shape. And, so, I think it’s changing.” But the scene outside the presidential mansion the next day belied that message. Wearing black masks and red shirts, protesters called for research, medical treatment, and social services for those with Long Covid. Around half would qualify for a diagnosis of myalgic encephalomyelitis/chronic fatigue syndrome. The protest was organised by #MEAction, an international network of patient advocates. “I went undiagnosed for 15 years, because doctors are not educated about the condition,” Jennifer Nish told The BMJ. Nish, from Lubbock, Texas, said that she was inspired to help organise the protest to raise awareness. “I don’t want anyone to go through what I had to go through,” she said and called on “the White House to treat this like the emergency that it is.” Read full story Source: BMJ, 20 September 2022 -
Content ArticleOnly 1 in 3 people were fully recovered from COVID-19 a year after they left hospital. Being female, having obesity or being on a ventilator were each linked with ongoing symptoms, months after people were discharged (Long-COVID). Nearly 1 million people in the UK have so far been admitted to hospital because of COVID-19. The long-term effects of the infection in this group are only just coming to light. Researchers explored the impact of being hospitalised for COVID-19 on people’s mental and physical health, and on their employment. They looked at characteristics such as age and sex to see which were associated with worse recovery. They also assessed whether inflammation in the blood may be a potential target for treatment. This study described, for the first time, four different patterns of COVID-19 recovery. It found, for example, that some people with long-COVID had higher levels of inflammation. The researchers say that targeting treatment to specific clinical problems, such as treating inflammation in people with higher levels of inflammation, are promising approaches to aid recovery.
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Content ArticleThis article in the Daily Mail looks at the link between mild Covid infection, heart disease and other circulatory issues. The article describes the experience of TV doctor Xand van Tulleken, who suffered from recurrent atrial fibrillation after catching Covid-19 in March 2020. It then looks at the cardiovascular symptoms being reported by people with Long Covid, and highlights different research studies around the world which are establishing a link between Covid infection and cardiovascular problems.
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Content ArticleLong Covid Support and Long Covid Kids surveyed people with Long Covid about their experience of being reinfected with Covid. Responses were received from 484 adults and 112 children and young people. The study found that reinfection worsens the symptoms of Long Covid in the majority those who are still symptomatic. Reinfection causes a recurrence of Long Covid in 60% of those who were in recovery or remission. 89% of respondents first got Long Covid after their first infection, 10% after their second infection and 1% after their third. Most adult respondents had been vaccinated before their second infection.
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Content ArticleThe TUC and Long Covid Support Employment Group are interested in the experiences of people with Long Covid. This survey aims to better understand how workers with Long Covid have been treated in the workplace and what support is needed. The survey is for people with Long Covid currently in and out of work. Long Covid is the term used to describe COVID-19 symptoms that extend beyond the initial infection. The survey will take around 15-20 minutes to complete.
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Content ArticleOn 25 March 2020, Hannah Davis was texting with two friends when she realized that she couldn’t understand one of their messages. In hindsight, that was the first sign that she had COVID-19. It was also her first experience with the phenomenon known as “brain fog,” and the moment when her old life contracted into her current one. She once worked in artificial intelligence and analysed complex systems without hesitation, but now “runs into a mental wall” when faced with tasks as simple as filling out forms. Her memory, once vivid, feels frayed and fleeting. Former mundanities—buying food, making meals, cleaning up—can be agonisingly difficult. For more than 900 days, while other long-COVID symptoms have waxed and waned, her brain fog has never really lifted.
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Content ArticleThis guideline developed by the World Health Organization (WHO) is intended for healthcare professionals involved in the care of patients with suspected or confirmed Covid-19. It is not meant to replace clinical judgment or specialist consultation, but rather to strengthen frontline clinical management and the public health response. Considerations for special and vulnerable populations, such as paediatric patients, older people and pregnant women, are highlighted throughout the text. This guideline is a product of the contributions of several WHO team members and independent experts from all over the world.
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Content ArticleUnderstanding myalgic encephalomyelitis/chronic fatigue syndrome—an elusive condition that often follows an infection and shares many similarities with Long Covid—could improve Long COVID19 research, argues a new Science Perspective.
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Content ArticleThere are rising reports of profound cognitive impairment on par with clinical dementia as a result of Long Covid. By researchers’ best estimates, more than 1 in 8 people with Covid-19 will have some array of the 200 odd symptoms reported in this disease for months to years. Long Covid is quickly emerging as the next public health challenge. What are these land mines left behind by the SARS-CoV-2 virus? Are you at risk for them to explode even if you never get very sick from Covid? A study released earlier this month suggests that people suffering from long COVID end up with reservoirs of active SARS-CoV-2 virus — documented in our lungs, brain, and GI tract — which produce ongoing levels of viral spike protein in the blood. A year after becoming infected, patients’ levels can sometimes remain as high as were found during early infection.
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News Article
Billionaire-backed group steps up hunt for Long Covid treatment
Patient Safety Learning posted a news article in News
A group of top researchers, clinicians and patients have stepped up efforts to combat Long Covid, launching a new billionaire-backed initiative to search for drivers of the poorly understood condition and ultimately find treatments to help the millions of people around the world living with the disease. The Long Covid Research Initiative (LCRI) hopes to accelerate efforts to understand and treat Long Covid, a sometimes disabling condition that lingers for months or years after infection with SARS-CoV-2, the virus that causes Covid-19. The group’s first goal—supported by $15 million dollars in funding from Balvi, a scientific investment fund led by crypto billionaire and Ethereum co-founder Vitalik Buterin—will be to investigate the causes Long Covid, with a particular focus on whether the virus stubbornly persists in the body after initial infection. Dr. Amy Proal, a microbiologist at the PolyBio Research Foundation and LCRI’s chief scientific officer, told Forbes the research is not just geared towards identifying the presence of the virus in the body but is also aimed at understanding the downstream impact it has on things like blood clotting and the immune system. Proal said another key aim of LCRI’s research program is to identify measurable features of Long Covid that could form the backbone of clinical trials and help develop much-needed treatments for the condition. LCRI has already secured a commitment for further funding from the Chan Soon-Shiong Family Foundation, led by biotech billionaire Dr. Patrick Soon-Shiong (the final amount has yet to be settled), and Scott-Green said the group is aiming to raise $100 million in order to help patients as soon as possible. Read full story Source: Forbes, 8 September 2022 -
News Article
430,000 Britons have long Covid two years after infection, says ONS
Patient Safety Learning posted a news article in News
An estimated 430,000 Britons were still suffering from Long Covid two years after first contracting the virus, according to data released by the Office for National Statistics (ONS). One in every 32 people in the UK was estimated to have some form of Long Covid at the end of July, equivalent to 2 million people. Of those, around 1.5 million said their symptoms were adversely affecting their daily activities, while 384,000 said their ability to undertake daily activities had been “limited a lot”. Fatigue continues to be the most common symptom reported by individuals with long Covid, with 62% reporting weakness or tiredness. More than a third, 37%, of those surveyed reported shortness of breath as one of their symptoms, while difficulty concentrating (33%) and muscle ache (31%) were the next most cited symptoms. Kelly Fearnley, a foundation doctor at Bradford Royal Infirmary, said: “Long Covid is not only crippling the health of the nation, it is destroying the health of our economy. “Research efforts so far have been slow and underfunded, and fail to reflect the scale and urgency of the problem. “Not only are some people not recovering, they are deteriorating. People have not only lost their health and independence, they are losing their jobs, financial security and homes.” Read full story Source: The Guardian, 1 September 2022 -
Content ArticleThis is the report of an employment tribunal concerning claimant Terence Burke, who was employed as a caretaker for the charity Turning Point Scotland. The tribunal ruled that Mr Burke was a disabled person within the meaning of s6 of the Equality Act 2010, and therefore unfairly dismissed by Turning Point Scotland in August 2021. The tribunal found that Mr Burke was disabled as he was suffering from Long Covid. This is the first case of Long Covid being classed as a disability in an employment tribunal and the ruling is likely to have implications on future cases concerning employees with Long Covid.
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Content Article
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Covid-19 has posed a huge challenge to the delivery of safe care, both when infection rates were at their highest levels and in terms of its long-term impact on health and social care systems.[1] The pandemic has magnified existing patient safety issues, created new ones, and exposed safety gaps which require systemic responses. This month the World Health Organization (WHO) has published a new report, Implications of the Covid-19 pandemic for patient safety: A rapid review.[2] The review aims to create a greater understanding of the impact of the pandemic on patient safety, particularly in relation to diagnostic services, treatment and care management. In this blog, Patient Safety Learning, one of the international organisations who contributed to this review, provides an overview and reflections on some the key themes and issues raised in this review. -
Content ArticleGovernments in England, Scotland and Wales recently withdrew covid sick leave for NHS staff. These changes to sick pay provision for staff on Covid-related sick pay is hard to understand at a time when Covid-19 infections are going up exponentially and many NHS organisations are reporting increasing numbers of staff off sick. Evidence is emerging that your chances of on-going issues (Long Covid) following a covid infection increase with each re-infection. Given this you might expect that NHS organisations were ensuring their infection control guidelines guaranteed staff were fully protected against Covid-19. However, in many Trusts this does not appear to be the case. Throughout the pandemic many NHS organisations seem to have focused on following Government guidelines about PPE requirements and ignored their obligations under Health and Safety Legislation. This has resulted in on-going shortcomings in protecting staff at work. This is discussed by Professor Raymond Agius and colleagues in a BMJ blog.
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News Article
Economically inactive Britons with Long Covid have ‘doubled’ in a year
Patient Safety Learning posted a news article in News
One in twenty people in the UK who are neither employed nor seeking paid work are suffering from Long Covid, with the figure more than doubling in the past year, official data has revealed. The proportion is far higher than for the 1 in 29 people who are unemployed but seeking work who have long Covid symptoms, or the one in 30 employed people who are sufferers, data released by the Office for National Statistics (ONS) shows. Individuals who are not employed and are not looking for paid work are classified as being economically inactive. The data suggests the long-term impacts of the virus could be driving people into this category, or into retirement. Read full story Source: The Guardian, 4 August 2022 -
News Article
Covid-19: One in eight adults develops long covid symptoms, study suggests
Patient Safety Learning posted a news article in News
One in eight Covid-19 patients (12.7%) is likely to experience long term symptoms, a study from the Netherlands has reported. Using digital questionnaires, researchers collected data on the frequency of 23 symptoms commonly associated with Covid in an uninfected population and in people who had had a Covid diagnosis. The findings, published in the Lancet, found that 21.4% of adults who had had Covid experienced at least one new or severely increased symptom three to five months after infection when compared with before. This compared with only 8.7% of uninfected people followed over the same period. The core Long Covid symptoms highlighted by the researchers include chest pain, difficulties breathing, pain when breathing, painful muscles, loss of taste and smell, tingling extremities, lump in throat, feeling hot and cold, heavy arms or legs, and general tiredness. Read full story Source: BMJ, 4 August 2022 -
Content ArticlePatients often report various symptoms after recovery from acute COVID-19. Ballering et al. aimed to analyse the nature, prevalence, and severity of long-term symptoms related to COVID-19, while correcting for symptoms present before SARS-CoV-2 infection and controlling for the symptom dynamics in the population without infection. They found persistent symptoms in COVID-19-positive participants at 90–150 days after COVID-19 compared with before COVID-19 and compared with matched controls included chest pain, difficulties with breathing, pain when breathing, painful muscles, ageusia or anosmia, tingling extremities, lump in throat, feeling hot and cold alternately, heavy arms or legs, and general tiredness.
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Content Article
Infographic: Long Covid explained
Patient Safety Learning posted an article in Good practice and useful resources
The science behind the symptoms of Long Covid are explained in this infographic from docdroid. -
Content ArticleThis article in the Nursing Times Long Covid series discusses how nurses are at high occupational risk of Long Covid and how best to support them.
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