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Found 247 results
  1. Content Article
    The case contains useful guidance for practitioners, healthcare providers and commissioners concerning when an inquest into the death of a vulnerable person at a care home will engage Article 2 ECHR.
  2. Content Article
    This paper, published by BMJ Quality & Safety, argues that discharge handovers are often haphazard. Healthcare professionals do not consider current handover practices safe, with patients expected to transfer information without being empowered to understand and act on it. This can lead to misinformation, omission or duplication of tests or interventions and, potentially, patient harm. Vulnerable patients may be at greater risk given their limited language, cognitive and social resources. Patient safety at discharge could benefit from strategies to enhance patient education and promote empowerment.
  3. Content Article
    The development of the Learning Disability Epilepsy Specialist Nurse Competency Framework was led by a working party of experienced Learning Disability (LD) Epilepsy Specialist Nurses (ESNs), from Focus in Epilepsy Learning Disability (FIELD), in association with the Epilepsy Nurses Association (ESNA). The document has been accredited by the Royal College of Nursing (RCN), with the support of Epilepsy Action to ensure that the perspective of people with learning disabilities (PWLD) has been considered.
  4. Content Article

    Walk on by...

    Anonymous
    This anonymous blog is about a patient with learning disabilities, his treatment and outcome while coming in for a 'routine' procedure. This blog highlights the need for adequate training for all staff around caring for patients with learning disabilities to prevent harm and protracted length of stay.
  5. Content Article
    What is the Autism Act? The Autism Act 2009 was the result of two years of active campaigning, with thousands of National Autistic Society members and supporters persuading their MPs to back Cheryl Gillan MP’s Private Members Bill. It is the only act dedicated to improving support and services for one disability.
  6. Content Article
    This patient passport template designed by East Sussex Healthcare NHS Trust, can be used by any patient, although primarily aimed at patients with a learning disability. The passport is to be kept and updated by the patient/carer/family, brought in to healthcare settings to help staff  deliver appropriate, safe care.
  7. Content Article
    NHS England published an independent report into the deaths of people with a learning disability or mental health problem at Southern Health NHS Foundation Trust and highlighted a system-wide response. The report was commissioned by NHS England (South) following the death of Connor Sparrowhawk in July 2013 in a unit in Oxford run by Southern Health NHS Foundation Trust. Both Southern Health NHS Foundation Trust and the clinical commissioning groups (CCGs) that commission services from them have accepted the recommendations.
  8. Content Article
    The preventable death of Connor Sparrowhawk in July 2013 led to a number of investigations and enquiries into practice at Southern Health NHS Foundation Trust in whose care he died. This is a review of all deaths of people in receipt of care from Mental Health and Learning Disability services in the Trust between April 2011 and March 2015. It is not a clinical case review of each service user and we have therefore not tried to identify clinically unavoidable deaths. It does seek to establish the extent of unexpected deaths in Mental Health and Learning Disability services provided by the Trust and to identify any themes, patterns or issues that may need further investigation based on a scope provided by NHS England. We were asked to benchmark this Trust with other similar organisations where this was possible. In the report, we focus on the responsibilities as they impact on the Trust to report deaths and then to secure the right level of review, enquiry or investigation. However, the responsibility for investigating deaths lies with a number of organisations across the area and we refer to these responsibilities where appropriate.  
  9. Content Article
    State of Care is the Care Quality Commission (CQC) annual assessment of health care and social care in England. The report looks at the trends, shares examples of good and outstanding care, and highlights where care needs to improve.
  10. Content Article
    Connor Sparrowhawk died in July 2013 while he was in the care of Southern Health NHS Foundation Trust. An independent report concluded that Connor’s death was preventable and that there were significant failings in his care and treatment. Following publication of this report in February 2014, Oxfordshire Safeguarding Adults Board and NHS England (South) commissioned a second report in June 2014 to find out whether there were wider commissioning, leadership or management issues that could have contributed to the inadequate care that Connor received.
  11. Content Article
    Amy Shaw, Clinical Leader, Specialist Learning Disability Division from Mersey Care Foundation NHS Trust, UK talks about 'fostering a just culture' in her trust.
  12. Content Article
    This is the second part of Irene Tuffrey-Wijne's (Professor of Intellectual Disability and Palliative Care at St Georges NHS Trust) blogs on end of life care for people with learning disabilities. This time focusing on why it is important. 'End of life care planning is not so much a question of where and how do you want to die? But where and how do you want to live until you die?'
  13. Content Article
    This is part 1 of a series of blogs on end of life care planning and people with learning disabilities. This is a tricky subject as there seems to be confusion on the language. What's the difference between an end of life plan and a funeral plan? Should these plans be for young and old - well and unwell? What does the CQC say? This blog, by Irene Tuffrey-Wijne, Professor of Intellectual Disability and Palliative Care at St Georges NHS Foundation Trust, should give you some of these answers.
  14. Content Article
    People with a learning disability have higher rates of morbidity and mortality than the general population and die prematurely. At least 41% of them die from respiratory conditions. They have a higher prevalence of asthma and diabetes, and of being obese or underweight in people. All these factors make them more vulnerable to coronavirus. There is evidence that people with autism also have higher rates of health problems throughout childhood, adolescence, and adulthood, and that this may result in elevated risk of early mortality. This guide, from NHS England, states the following key points should be addressed when assessing and treating a patient with a learning disability or with autism who is suspected of having or is known to have coronavirus: Be aware of diagnostic overshadowing Pay attention to healthcare passports Listen to parents/carers Make reasonable adjustments Understanding behavioural responses to illness/pain/discomfort Mental Capacity Act Ask for specialist support and advice if necessary Mental wellbeing and emotional distress. Please download the full guide for further detail.
  15. Content Article
    A list of guides that help to explain the coronavirus outbreak in an easy read format. Resources include those specifically designed for people with Downs Syndrome and learning disabilities. These guides and posters will help families, care providers and hospital staff communicate messages inclusively. 
  16. Content Article
    This is an easy to understand guide for people with learning disabilities who might be admitted to hospital with COVID-19. The author, Georgia, is a Speech & Language Therapist at Northants Healthcare.
  17. Content Article
    In this question and answer session, produced by the World Health Organization, guests discuss the considerations that need to be made specific to disability during the coronavirus pandemic. Considerations include that people with disabilities may be less able to social distance, due to the support required and so will potentially be more at risk of contracting the virus. Some people with disabilities may have further underlying health conditions, respiratory function and immune responses that could make them at higher risk of developing a severe case if they get get the virus.
  18. Content Article
    This webpage from Scope provides up to date information about how coronovirus is impacting on their service provision. Content includes information on Scope's: service changes shop closures the Scope helpline the Scope online community.
  19. Content Article
    The CEO of Disability Rights UK has written to the Rt Hon Justin Tomlinson MP, Minister for Disabled People, Health and Work, and the Rt Hon Helen Whately MP, Minister for Care, to raise concerns about safeguarding disabled people, people with long-term health conditions and older people in relation to COVID-19 (Coronavirus).
  20. Content Article
    How do we protect individuals during lockdown and ensure their health needs are not exacerbated or overshadowed by COVID-19? Simple Stuff Works has created a webinar series to support those providing care for people with postural care needs (anyone who finds it difficult to change position independently and is reliant on others for their positioning / repositioning needs).
  21. Content Article
    This video made by Health Education England and the Restraint Reduction Network looks at the impact of inappropriately used restraint practices in mental health and learning disability services. Three people with lived experience of restraint discuss the impact it has had on their lives and why they are campaigning for change.
  22. Content Article
    An NHS-Led Provider Collaborative is a group of providers of specialised mental health, learning disability and autism services who have agreed to work together to improve the care pathway for their local population. They will do this by taking responsibility for the budget and pathway for their given population. The Collaborative will be led by an NHS Provider who remains accountable to NHS England and NHS Improvement for the commissioning of high-quality, specialised services. These Collaboratives aim to ensure that people with specialist mental health, learning disability and autism needs experience high quality, specialist care, as close to home as appropriately possible. They seek to enable specialist care to be provided in the community to prevent people being in hospital if they don’t need to be, and to enable people to leave hospital when they are ready. This webpage explains the role of NHS-Led Provider Collaboratives and includes case studies that demonstrate how they are helping to transform specialised mental health services.
  23. Content Article
    This training from the World Health Organization (WHO) is part of WHO's QualityRights Initiative, which aims to change mindsets and practices in a sustainable way to improve the lives of people with psychosocial, intellectual or cognitive disabilities globally. It seeks to empower all stakeholders to promote rights and recovery. These materials can be used to build capacity among mental health practitioners, people with psychosocial, intellectual and cognitive disabilities, people using mental health services, families, care partners and nongovernmental organisations. They offer guidance on how to implement a human rights and recovery approach to mental health in line with the UN Convention on the Rights of Persons with Disabilities, and other international human rights standards.
  24. Content Article
    This document by the Restraint Reduction Network offers a framework to support care providers in reducing the use of restrictive practices. Restrictive practices are often a response to behaviours seen by care providers and wider society as ‘behaviours of concern’ or ‘challenging behaviour’. These behaviours can occasionally include wilful acts that have the potential to cause harm, but more often than not, these behaviours are symptoms of distress or frustration and a response to the environment or situation that a person finds themselves in. This document outlines the National Minimum Standards for the content of Restrictive Interventions Reduction Plans in mental health and learning disability settings.
  25. Content Article
    In this blog, Debbie Ivanova, Deputy Chief Inspector — People with a learning disability and autistic people, and Jemima Burnage, Deputy Chief Inspector and Mental Health Lead, update on progress since the Care Quality Commission’s (CQC) 'Out of Sight' report published in October 2020. Their blog discusses the findings of the authors' 'Restraint, segregation and seclusion review: Progress report' published in December 2021.
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