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Found 793 results
  1. News Article
    A recent report based on research and case studies of good practice in combatting digital health inequalities demonstrates the importance in working with patients who are digitally excluded. The report, Putting patients first: championing good practice in combatting digital health inequalities, is the second report by the Patient Coalition for AI, Data and Digital Tech in Health. This report focuses on digital health inequalities and the impact that digital exclusion is having on health in the UK. It highlights different reasons for disparities in a person’s ability to access and use digital health technology and provides insights into the severity of the UK’s digital inequalities. The Coalition report concludes recommending that the Government and NHS should: Engage with those digitally excluded Ensure patients have a choice Ensure the language is appropriate for all audiences Learn from good practice. Read full story Source: The Patients Association, 9 May 2022
  2. Content Article
    This report has been developed by the Patient Coalition for AI, Data and Digital Tech in Health, which aims to unite representatives from patient advocacy groups, including Patient Safety Learning, Royal Colleges, medical charities, industry and other stakeholders committed to ensuring that patient interests lie at the heart of digital health policy and discussions.  The report focuses on how programmes have worked with patients to reduce digital health inequalities, by supporting those who are unable to access and use the internet and digital devices to improve their health and general wellbeing.
  3. News Article
    Women and babies in the UK are “dying needlessly” because of a lack of suitable medicines to use in pregnancy, according to a report that calls for a radical overhaul of maternal health. A “profound” shortage of research and the widespread exclusion of pregnant and breastfeeding women from clinical trials means hardly any new drugs are approved for common medical problems in pregnancy or soon after childbirth, the report finds. Meanwhile, scarce or contradictory information about the safety of existing medicines women may be taking for continuing conditions can make it impossible to reach a confident decision on whether or not to continue them in pregnancy, the experts add. “While pregnancy in the UK is generally considered safe, women and babies are still dying needlessly as a direct result of preventable pregnancy complications,” the authors say. Each year, 5,000 babies in the UK are either stillborn or die shortly after birth, while about 70 women die of complications in pregnancy. The Healthy Mum, Healthy Baby, Healthy Future report draws on evidence from patient groups, clinicians, researchers, lawyers, insurance specialists and the pharmaceutical industry, it proposes “urgent” changes to transform women’s access to modern medicine. The report highlights the “profound lack of research activity” and up-to-date information that leaves pregnant women and their physicians in the dark about whether to continue with certain medicines in pregnancy. Some epilepsy drugs, for example, can increase the risk of birth defects, but coming off them can put the woman at risk of severe seizures, which can also harm the baby. Lady Manningham-Buller said the situation “urgently needs to change”, with the report setting out eight recommendations to prevent needless deaths. Read full story Source: The Guardian, 12 May 2022
  4. Content Article
    In a UK-first report launched in the House of Commons, leading figures from charity, healthcare, industry, law and academia have outlined a collaborative vision for UK leadership to improve maternal health. The Healthy Mum, Healthy Baby, Healthy Future: The Case for UK Leadership in the Development of Safe, Effective and Accessible Medicines for Use in Pregnancy report proposes a clear roadmap to improve the lives of millions of people, not just for women while they are pregnant, but for future generations. Over the past year, a Birmingham Health Partners led Policy Commission – co-chaired by Baroness Manningham-Buller, Co-president of Chatham House and Professor Peter Brocklehurst, University of Birmingham – has heard from key stakeholders on how best to develop safe, effective and accessible medicines for use in pregnancy. Compelling evidence gathered throughout the process has informed eight critical recommendations which, if implemented by government, will successfully prevent needless deaths and find new therapeutics to treat life-threatening conditions affecting mothers and their babies.
  5. Event
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    The results from the Five X More nationwide survey on Black women’s maternity experiences will be officially launching on Tuesday 24th May "No decisions about us, without us" For many years Black women and birthing people in the UK have experienced poorer health outcomes and lower quality of care. This is particularly true within maternity. In the recent MBRRACE reports, clear racial variations in maternal deaths were observed, showing that Black women are four times as likely to die as white women during pregnancy, delivery or postpartum, yet the reasons for the differences in maternal outcomes remain unclear. We believe a crucial step to solving this is to understand how maternity care is delivered from the perspective of women from the Black community. Join us as we delve further into the statistics of this landmark study completed by over 1300 respondents and hear updates from our special guest keynote speakers TBA.
  6. Content Article
    In a fundamental sense, the vision for transforming virtual care from that of an exclusive service that benefits only a few to that of a standard for providing equitable care for all echoes the age-old debate between policy variations on the zip code and the genetic code. This commentary from Esha Ray Chaudhuri aims to further develop the key theme of engaging the “reimagining” of virtual care for older ethnic adults—by considering the syndemic nature of COVID-19 and the intersection of cultural interventions in care and equity in virtual care.
  7. News Article
    People in England are struggling to get dental treatment, as dentists close to new NHS patients, a watchdog says. Healthwatch England, the NHS body representing patients, said the problem was made worse by the rising cost of living and needed "urgent attention". It said some people were living in pain, unable to speak or eat properly, because they could not find treatment. And it warned the poorest were suffering most as they were least able to afford to pay for private dentistry. Healthwatch England said the issue was creating a two-tier system - dividing the rich and the poor - and called on the government to take action. "There is now a deepening crisis," said Louise Ansari, of Healthwatch England. "With millions of households bearing the brunt of the escalating living costs, private treatment is simply not an option - and even NHS charges can be a challenge. "This needs urgent attention." Read full story Source: BBC News, 9 May 2022
  8. Content Article
    Chronic (persistent or long-lasting or recurrent) pain is life-changing and can significantly impact individuals, their families and carers. This paper sets out the Arthritis and Musculoskeletal Alliance's (ARMA's) position on how pain affects people with musculoskeletal conditions, and how their pain should be managed.
  9. Content Article
    Racism is a pervasive problem in Western society, leading to mental and physical unwellness in people from racialised groups. Psychology began as a racist discipline and still is. As such, most clinical training and curricula do not operate from an anti-racist framework. Although most therapists have seen clients with stress and trauma due to racialisation, very few were taught how to assess or treat it. Furthermore, clinicians and researchers can cause harm when they rely on White-dominant cultural norms that do not serve people of colour well. This paper from Racism is a pervasive problem in Western society, leading to mental and physical unwellness in people from racialized groups. Psychology began as a racist discipline and still is. As such, most clinical training and curricula do not operate from an anti-racist framework. Although most therapists have seen clients with stress and trauma due to racialisation, very few were taught how to assess or treat it. Furthermore, clinicians and researchers can cause harm when they rely on White-dominant cultural norms that do not serve people of colour well. This paper from Williams et al. discusses how clinicians can recognize and embrace an anti-racism approach in practice, research, and life in general. Included is a discussion of recent research on racial microaggressions, the difference between being a racial justice ally and racial justice saviour, and new research on what racial allyship entails. Ultimately, the anti-racist clinician will achieve a level of competency that promotes safety and prevents harm coming to those they desire to help, and they will be an active force in bringing change to those systems that propagate emotional harm in the form of racism.
  10. News Article
    Trusts have been told to ‘get their act together’ on health inequalities, after HSJ research suggested only a small minority have so far published data on disparities in waiting times between different patient groups. Planning guidance issued by NHS England in September 2021 said trusts’ board performance reports should include a disaggregation of waiting lists by ethnicity and deprivation group. Through freedom of information and media requests, HSJ attempted to obtain such data from the 20 trusts with the largest waiting lists, but only three currently appear to have met the requirement in full. The remainder either said they were still undertaking the work, were thinking about how to publish it, or failed to respond. Roger Kline, an academic researcher and former director of NHSE’s workforce race equality standard, said trusts should have been collecting and publishing the data for years. He said: “We know there are issues around health and healthcare of some groups of people, most notably in poor working class communities and black and minority ethnic communities. It shouldn’t be seen as an optional extra, this should be part of good public health work and good equitable healthcare provision." “This data should be on the trust website. It should be an active part of the conversations with local communities. Well done to the trusts that are pushing this forward. The ones that are not need to get their act together.” Read full story (paywalled) Source: HSJ, 3 May 2022
  11. News Article
    The American Academy of Pediatrics is attempting to ban race-based medical guidance which the organisation attributes to long-standing inequities in healthcare. In a statement on Monday, the AAP said: “Race is a historically-derived social construct that has no place as a biologic proxy. Over the years, the medical field has inaccurately applied race correction or race adjustment factors in its work, resulting in differential approaches to disease management and disparate clinical outcomes.” “Although it will continue to be important to collect clinical data disaggregated by race and ethnicity to help characterize the differential lived experiences of our patients, unwinding the roots of race-based medicine, debunking the fallacy of race as a biologic proxy, and replacing this flawed science with legitimate measures of the impact of racism and social determinants on health outcomes is necessary and long overdue,” the academy added. A re-examination of AAP treatment recommendations that began before George Floyd’s 2020 murder by police in Minneapolis, and intensified after it and the resulting nationwide protests, has doctors concerned that Black youngsters have been under-treated and overlooked, said Joseph Wright, lead author of the new policy and chief health equity officer at the University of Maryland medical system, a network of hospitals. According to Wright, the academy has begun to scrutinise its “entire catalog,” including guidelines, educational materials, textbooks and newsletter articles. The academy went on to recommend a series of policies to medical societies, institutions and pediatricians. “All professional organizations and medical specialty societies should advocate for the elimination of race-based medicine in any form,” it said. It urged institutions to collaborate with learner-facing organizations such as the Accreditation Council on Continuing Medical Education to expose more people to health equity content with a “specific focus on the elimination of race-based medicine”. Read full story Source: The Guardian, 2 May 2022
  12. Content Article
    Communication barriers are the number one reason Deaf people have poorer health compared to hearing people. This blog by the organisation SignHealth gives 12 tips for healthcare workers and non-clinical staff on how to communicate with Deaf people. It also describes the difficulties Deaf people face when booking appointments and describes why remote consultations are problematic for Deaf people.
  13. Event
    until
    On 23 June 2022, National Voices is holding an all-day conference, as we explore the topic of Integrated Care Systems (ICSs), on the eve of ICSs becoming statutory bodies that cover the entirety of England. Now is the right moment to identify the changes we want to see as a result of this fundamental shift in the way the health and care system is organised. We want to see better, more equal outcomes for people, especially those not currently well supported by existing models. We also want to see more coordinated and effective care that enables people to live well, with fewer barriers between communities and formal services. The day will consist of high profile, topical panel discussions and engaging workshops. During the conference we will have a number of expert speakers joining us, including the keynote speaker, Matthew Taylor, Chief Executive of NHS Confederation, and of course National Voices Chief Executive, Charlotte Augst. A series of workshops will cover crucial topics, including health inequalities, social prescribing and others to be confirmed. We look forward to welcoming a range of individuals and organisations to this event, which will offer an opportunity for the Voluntary, Community and Social Enterprise sector to have constructive conversations with system leaders; ensuring that people and communities are involved appropriately and that the result of the new ICSs is a positive impact on the way people experience healthcare. Register for the conference
  14. Content Article
    Women often have worse asthma than men, and female sex hormones can affect the condition. Asthma and Lung UK are conducting a survey to find out more about women's experience of asthma - women with asthma and those that care for them are invited to take the survey, which takes about five minutes to complete and is completely anonymous. Asthma and Lung UK have also published a report, Asthma is Worse for Women, outlining the need for more research into asthma and female sex hormones.
  15. Content Article
    Globally, there are 136 million women with asthma. Asthma is more common among women, women experience more severe symptoms and they are more likely to die from their asthma. Many women experience a significant worsening of symptoms around menstruation and are at risk of potentially fatal asthma attacks every month. However, there has been very little research to understand why. Asthma and Lung UK has published this report following a roundtable meeting with scientists, funders and pharmaceutical companies to discuss how to transform outcomes for women with asthma. The report covers information on sex bias in asthma and looks at recent developments in understanding about the condition, highlighting areas for further research. The report also makes the case for increasing funding to deliver better outcomes for women with asthma, strengthening leadership and infrastructure in asthma treatment, and increasing innovation in drug trials. Alongside the report, Asthma and Lung UK has made a short video where one woman talks about her experience of severe asthma, how it has affected her life and why we need more research into the link between asthma, periods and female hormones. Asthma and Lung UK has also released a survey to find out more about women's experience of living with asthma.
  16. Content Article
    Much research has been done into the causes, extent and impact of health inequalities that affect rural and coastal populations. Health services in these areas currently face serious challenges due to a combination of factors, including social deprivation, ageing populations and workforce staffing issues. In this blog, Patrick Mitchell, Director of Innovation, Digital and Transformation at Health Education England (HEE), describes a new HEE programme that aims to help tackle health inequalities in rural and coastal areas.
  17. News Article
    Women with asthma are twice as likely to die from an asthma attack compared with men in the UK, new figures show as health experts called for urgent research into the condition’s sex-related differences. They are more likely to have the condition, more likely to need hospital treatment for it and more likely to die from an attack, Asthma + Lung UK said. Over the past five years women have accounted for more than two-thirds of asthma deaths in the UK. The charity said the current “one size fits all” approach to asthma treatment is “not working” because it does not take into account the impact that female sex hormones during puberty, periods, pregnancy and menopause can have on asthma symptoms and attacks. More must be done to tackle the “stark health inequality”, it added. Between 2014-15 and 2019-20 more than 5,100 women in the UK died from an asthma attack compared with fewer than 2,300 men. Meanwhile, emergency hospital admissions in England show that, among those aged 20 to 49, women were 2.5 times more likely to be admitted to hospital for asthma treatment compared with men. Asthma + Lung UK said many people were unaware that fluctuations in female sex hormones can cause asthma symptoms to flare up or even trigger life-threatening attacks. It is calling for more research to examine the sex-related differences in asthma. Read full story Source: The Guardian, 27 April 2022
  18. Content Article
    This video by the organisation Maternity Action looks at the impact of UK Border Agency policies on pregnant women seeking asylum. The video highlights the unique challenges faced by women in this situation, including the risk of sudden deportation, lack of rights and mental health issues associated with trauma and lack of perinatal support. Two women share their stories of being pregnant and having young babies while in the asylum system.
  19. Content Article
    Older generations are becoming more diverse than ever, but also more unequal. Tackling these inequalities is important to ensure that everyone is able to live a good later life. This set of downloadable 'evidence cards' by the Centre for Ageing Better highlights the severe inequalities experienced by Black, Asian and Minority Ethnic groups approaching retirement age, and what causes these inequalities. The evidence cards are available to download as both PDF and image files.
  20. Content Article
    The recent workforce race equality standard report described how staff from a Black and minority ethnic background are less well represented at senior levels of the NHS, and that they have worse day-to-day work experiences and face more challenges in progressing their careers. In this Nuffield Trust chart, Billy Palmer shows how stark some of the differences are.
  21. Content Article
    The National Paediatric Diabetes Audit (NPDA) is performed annually in England and Wales and aims to provide information that leads to improved quality care for children and young people affected by diabetes. The audit is funded by the Department of Health through the Healthcare Quality Improvement Partnership (HQIP). Key messages in this 2020-21 annual report on care processes and outcomes include: There was an increase of an increase of 20.7% in the number of children aged 0-15 diagnosed with type 1 diabetes compared with 2019-20. Completion rates on recommended health checks were lower than in previous years due to the impact of the Covid-19 pandemic. There was wide variation between paediatric diabetes units in the completion rates of all key annual health checks. A smaller percentage of newly-diagnosed children and young people started insulin pump therapy compared to previous years. The national median HbA1c (a measure of blood glucose control) reduced from 61.5 mmol/mol to 61.0mmol/mol between 2019/20 and 2020/21, following several years of year on year decreases (improvement) in the national median. Children from ethnic minorities were less likely to be using insulin pumps and continuous glucose monitors (CGMs) than white children. However, the highest percentage increase between audit years in the use of CGMs was seen in black children and young people with type 1 diabetes.
  22. Content Article
    Epistemic injustice occurs when a person is not given authority and credibility as a 'knower' in a conversation, due to negative stereotypes associated with their identity. These stereotypes might relate to their age, gender, ethnicity, social class, education, sexual orientation or health. Young people with unusual experiences and beliefs are particularly at risk of experiencing epistemic injustice, and this can have a negative impact on their health outcomes. In this blog Joe Houlders, Matthew Broome and Lisa Bortolotti from the University of Birmingham talk about the risks of young people with unusual experiences and beliefs experiencing epistemic injustice in clinical encounters. This is the first in a series of blogs reporting outcomes from a project on Agency in Youth Mental Health, led by Rose McCabe at City University.
  23. Content Article
    The article in the Journal of Global Health examines the unique patient safety risks that can arise in fragile, conflict-affected and vulnerable settings (FCV), including humanitarian crises, conflict, extreme adversity, services disruption and immediate or protracted emergencies. Recent estimates suggest a large proportion of the total number of preventable deaths take place in FCV settings, including 60% of preventable maternal deaths, 53% of deaths in children under five years, and 45% of neonatal deaths. The authors highlight a gap in knowledge and research about healthcare in FCV settings, which prevents researchers from being able to effectively assess interventions for quality, safety and sustainability. They suggest that more academic research is urgently needed in order to make policy and practice more effective in improving patient safety in these settings.
  24. Content Article
    Diabetes UK are calling on government for a recovery plan to tackle 'devastating’ diabetes care delays – before it’s too late   Diabetes is serious and people living with diabetes have been ‘pushed to the back of the queue’ during the coronavirus pandemic and a national recovery plan is needed to support front-line healthcare teams in getting vital services back on track.    Diabetes UK warn that despite the tireless efforts of the NHS through the pandemic, many people living with the condition are still struggling to access the care they need, putting them at risk of serious complications, which can lead to premature death.   This new report published by Diabetes UK as part of our Diabetes Is Serious campaign, shows the scale of the problem and sets out a series of calls to UK Government to tackle it.  
  25. Content Article
    An expert committee will extend the vision for the nursing profession into 2030 and chart a path for the nursing profession to help create a culture of health, reduce health disparities, and improve the health and well-being of the US population in the 21st century. The committee will consider newly emerging evidence related to the COVID-19 global pandemic and include recommendations regarding the role of nurses in responding to the crisis created by a pandemic.
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