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Showing results for tags 'Endometriosis'.
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Content ArticleThis information is for you if you wish to know more about endometriosis. It may also be helpful if you are the partner or relative of someone with endometriosis.
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Content ArticleThis article discusses endometriosis and how the common treatment of performing laparoscopic surgery to remove damaged tissue may not be as effective as once thought. Lucia Osborne-Crowley writes about how experts have found that women who have the surgery don't always get better and if they do, it only lasts a short while. The article also describes what endometriosis is and how it is important not to continue encouraging women to undergo repeat surgeries as it may not improve the condition.
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Event
Everywoman festival
Patient Safety Learning posted an event in Community Calendar
untilThe Everywoman festival is a one day event aimed at all women over the age of 16 and aims to empower women to understand what is normal and when to seek help for issues that can affect 90% of women at some point in their life. The festival combines more than 40 workshops and 6 themed seminar sessions with a fun, relaxed environment with art workshops, food and drink, music and charity stands. Themes are wide ranging and include periods and endometriosis, pelvis pain and bladder, childbirth injury, menopause and sexual wellbeing. Additional drop in sessions to meet the consultant experts as well as book readings and signings will be available on the day. The Everywoman Festival will be held in the heart of Cardiff in the beautiful venue of Insole Court. It will feature a range of interactive workshops and talks from leading health experts. Attendees will have the opportunity to learn about everything from nutrition and fitness to mindfulness through art. For those who are looking for something a little more active, there will be a variety of fitness classes and workshops taking place throughout the day. From seated yoga, Pilates to Belly dancing and dancing lessons from Heels empowerment, there's something for everyone, regardless of their fitness level. Charities attending with stalls and information include Coppa feel, Endometriosis UK, Womens Aid, the Menstrual project and Fair Treatment for Women of Wales. Health stalls from Muslim Doctors Cymru, Medtronic, Mcgregor, THD will be on hand to provide information and signpost for everything from your bladder and bowels, childbirth to high blood pressure. Some of the highlights of the festival are the wellness market, where attendees can shop for a wide variety of health and wellness products and in the creative market products from artists such as Black and Beech, Melin Trygwynt and Eliza Eliza. Further tickets and information Follow on instagram @Theeverywomanfestival A5leaflet Everywoman (2).pdf -
Event
Endometriosis webinar for patients
Patient Safety Learning posted an event in Community Calendar
Join the British Society for Gynaecological Endoscopy for an endometriosis Q&A session with experts from across the UK. Hosted by Carla Cressy, questions can be put to the panel via the @theBSGE instagram page and the Endometriosis Foundation website. It will cover a wide range of topics from diagnosis to fertility to thoracic and adolescent endometriosis. Register -
Content ArticleWhat health condition affects some 200 million people around the world, yet remains woefully misunderstood, underfunded, and barely addressed in medical-school curricula? Endometriosis is a disease that the World Health Organization estimates affects 1 in 10 women and girls globally. And yet the National Institute of Health allocates a whopping 0.038% of its research resources to the disorder. Endometriosis, which involves tissue similar to uterine tissue growing elsewhere in the body, has myriad symptoms, including GI distress, migraines, discomfort during sex and abdominal pain that can range from debilitating to excruciating. Countless women miss days of school and work, lose their jobs, and suffer depression as a result of the illness. Experts say endometriosis could be the underlying cause of 50% of infertility cases. L Despite efforts to raise awareness, it persists as an underground topic, and many doctors are ill equipped to help those afflicted or don’t even believe their patients. “It’s a perfect storm of undervaluing women and women’s health, inequities in health care, menstrual taboo, gender bias, racial bias, and financial barriers to healthcare,” said Shannon Cohn, the director of Below the Belt: The Last Health Taboo, a searing one-hour documentary set to premiere on PBS.
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Content ArticleThis report was prepared by the Endometriosis Task and Finish Group and submitted to the Welsh Government on 16 April 2018. Authors propose a robust care pathway based on NICE guidance using a life course approach to ensure that symptoms are recognised and responded to promptly and appropriately, as they emerge.
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Content ArticleIn this article, published by British Vogue, Alexa Chung shares her experiences of endometriosis and the barriers and attitudes she faced in seeking a diagnosis and treatment.
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Content Article
In this interview, we speak to sociologist Dr Marieke Bigg about why she decided to write her debut non-fiction This won’t hurt: How medicine fails women. Marieke discusses how societal ideas about the female body have restricted the healthcare system’s approach to women’s health and describes the impact this has had on health outcomes. She also highlights areas where the health system is reframing its approach by listening to the needs of women and describes how simple changes, such as allowing women to carry out their own cervical screening at home, can make a big difference. -
News Article
Endometriosis care in Scotland not meeting 'base level'
Patient Safety Learning posted a news article in News
Clinical care for sufferers of endometriosis is not meeting "base level", according to new research seen by BBC Scotland. The debilitating condition affects 100,000 women in Scotland and is more common than diabetes, yet it takes eight and a half years to be diagnosed. Almost half of those with endometriosis are in pain most days. The study, commissioned as part of the Scottish government's Women's Health Plan, found that services were lacking. The charity Endometriosis UK said the condition costs the UK economy £8.2bn each year in treatment, healthcare costs and loss of work. It carried out the study and has recommended four main areas for improvement: Implementing National Institute for Health and Care Excellence guidelines and quality standards on endometriosis care across Scotland - the research found that this base level of care "is not currently being met". Building relationships between healthcare services through managed clinical networks to allow for smoother referrals. Increasing education in primary and secondary care levels - including GPs and non-specialist gynaecologists. Investment in a public health campaign and improved menstrual education in schools. Read full story Source: BBC News, 23 January 2022 -
News ArticleIn ‘Invisible Women: Exposing Data Bias in a World Designed For Men’ author Caroline Criado Perez writes about Rachael, a woman who suffered years of severe and incapacitating pain during her period. It takes, on average, eight years for women in the UK to obtain a diagnoses of endometriosis. In fact, for over a decade, there has been no improvement in diagnostic times for women living with the debilitating condition. You might think, given the difficulty so many women experience in having their symptoms translated into a diagnosis, that endometriosis is a rare condition that doctors perhaps don’t encounter all that often. Yet it is something that affects one in ten women – so what is going wrong? Read the full article here in The Scotsman
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News Article
Endometriosis care needs urgent improvement, MPs say
Patient Safety Learning posted a news article in News
Endometriosis care across the UK needs urgent improvement and diagnosis times need to be cut in half, a report by MPs says. It found an average wait for a diagnosis was eight years and that has not improved in more than a decade. Endometriosis affects one in 10 women in the UK and causes debilitating pain, very heavy periods and infertility. Nadine Dorries, minister for women's health, said awareness was increasing but there was still a long way to go. More than 10,000 people took part in the All-Party Political Group inquiry which found that 58% of people visited the GP more than 10 times before diagnosis and 53% went to A&E with symptoms before diagnosis. The majority of people also told MPs their mental health, education and careers had been damaged by the condition. About 90% said they would have liked access to psychological support but were never offered it, with 35% having a reduced income due to endometriosis. Helen-Marie Brewster, 28, from Hull, has been told by doctors that her only remaining treatment option is a full hysterectomy. She had symptoms throughout secondary school but was only diagnosed when she left education. "GPs ask me to explain to them what endometriosis is, because they don't know. They're the ones who are meant to help." "Last year I visited the A&E department 17 times trying to find help and pain relief for this condition, even for just a few days so I can keep going. The wait time for diagnosis is so long that in that time it's spreading and doing more damage the longer it is left untreated... We can't carry on like this." Read full story Source: BBC News, 19 October 2020 Read press release -
News ArticleA 23-year-old woman who begged doctors to remove her womb to relieve chronic pain says the surgery is being refused due to her age and childless status. Hannah Lockhart has endometriosis, a condition that can cause debilitating pain, heavy periods and infertility. Although she has always wanted her own children, Hannah says her daily pain is now so severe she wants a hysterectomy. "It's heartbreaking that just because I'm so young I have to keep suffering," she told the BBC's Evening Extra. Ms Lockhart, from Bangor in County Down, has been in hospital seven times in the past year because of crippling pain from endometriosis. "Every single day I'm taking morphine, I'm taking different tablets for nerves to try and stop the pain and nothing works," she said. Read full story Source: BBC News, 14 April 2021
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News ArticleNew stats from Endometriosis UK this week for Endometriosis Awareness Month reveal that 62% of women (aged 16-54) would put off going to a doctor with symptoms of endometriosis. Reasons include they don’t think it’s serious enough to bother a doctor with, they’d be embarrassed, they don’t think they’d be taken seriously, or they think symptoms including painful periods are normal. This statistic rises to 80% of 16-24-year-olds. 1.5 million UK women are currently living with endometriosis, with average diagnosis time standing at an unacceptable 8 years Endometriosis UK says it is vital that Governments, society, the NHS and workplaces wake-up and recognise the symptoms and impact endometriosis can have, and afford those with the condition the support and access to treatment they need to manage their symptoms. Commenting on the new research, Emma Cox, CEO of Endometriosis UK said: “Endometriosis is a long-term chronic health condition affecting 1.5 million in the UK, yet it still all too often considered a taboo or not important due to links with the menstrual cycle. Symptoms including chronic pelvic pain, painful periods, painful bladder and bowel movements, and infertility, can have a major, life-long impact, physically and mentally. But far too many find their symptoms are not believed nor taken seriously." “Myths such as “chronic period pain is normal” or “you must have a low pain threshold” manifesting in society, workplaces, schools, and even healthcare settings contribute to those experiencing symptoms being put off from seeking medical advice and contribute to diagnosis taking on average a shocking 8 years. “The impact of delayed diagnosis on people’s physical and mental health can’t be overstated. If undiagnosed, the disease may progress, and negatively impact people’s careers, education, relationships and all aspects of their life.” Read full story Source: Endometriosis UK, 1 March 2021
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News Article
8 things people living with endometriosis want you to know
Patient Safety Learning posted a news article in News
Endometriosis is not uncommon – in fact, it’s believed to affect one in 10 women/people who menstruate. Yet it’s still widely misunderstood, and those affected can struggle for years before getting proper help. Because it’s associated with the menstrual cycle (it occurs when cells similar to those that grow in the womb lining grow outside the womb too, resulting in inflammation, scar tissue or adhesions and blood-filled cysts/endometriomas), it’s often dismissed as being ‘just bad periods’. But endometriosis is a medical condition which can have a huge impact. To mark Endometriosis Month, Abi Jackson helps bust some misconceptions around this common condition. Read full story Source: The Independent, 1 March 2021 -
News ArticleA woman with stage 4 endometriosis said she was told she needed to "be more positive" before her diagnosis - despite heavy blood loss and pain. Anna Cooper, from Newbridge, Wrexham, started her periods at 11 and by the time she turned 14, her mother was pushing for a referral. Since then she has had 13 surgeries, with a 14th due in the coming months. She said: "It is not taken seriously enough. It seems to be that we are just not being heard at the minute." Watch video Source: BBC News, 9 September 2021
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Content ArticlePainful menstruation—dysmenorrhea—interferes with the daily life of around one in five women. This blog looks at why painful periods receive so little research attention and examines the impact this has on women's lives and health. Sharing a personal story of her own painful periods, the author discusses how doctors are quick to prescribe birth control pills and antidepressants to treat painful periods, rather than investigating the problem to find out whether the cause of pain is endometriosis, a condition where endometrial tissue forms outside the uterus. It is thought that around 10% of ovulating women in the US have endometriosis and it takes an average of ten years for accurate diagnosis. The author discusses the need to raise the visibility of dysmenorrhea and endometriosis so that medical research takes it on as a serious issue.
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Content ArticleIs good-quality health care being provided for women in prison? As the government proceeds with plans to build 500 more prison places for women, this new Nuffield Trust analysis uses HES data to look at women prisoners' use of hospital services, finding that they face a series of challenges and risks in prison because of barriers to accessing health and care services.
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Content ArticleThe government has published the first ever Women's Health Strategy for England to tackle the gender health gap.
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Content ArticleThis opinion piece in the New Scientist looks at the persistence of the gender pain gap and highlights research that demonstrates its persistence in healthcare systems. An increasing number of studies have shown how bias against women’s expressions of pain negatively affect diagnosis and treatment of their health conditions; misinterpretations of female pain as anxiety contribute to women being around 50% more likely to be misdiagnosed after a heart attack. It also looks at how women who are Black, Asian or from ethnic minority backgrounds experience more underestimation of their pain by healthcare professionals than white women. The author argues that gendered myths about pain have had a powerful impact on centuries of scientific and biomedical advances.
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Content ArticleIn this blog, Gurpreet Kaur, who had to use a wheelchair for five years due to the severity of her endometriosis, talks about her firsthand experience of gender bias in pain management. She recalls sexist and inappropriate comments made to her by male healthcare professionals, describing how they belittled her pain and treated her as a 'hysterical woman'. She also highlights that research clearly demonstrates that women of color are more disproportionately affected by dismissals of their pain.
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Content ArticleAn Inquiry by the All Party Parliamentary Group (APPG) on Endometriosis has highlighted the devastating impact endometriosis can have on all aspects of a person’s life, and urges Ministers to take bold action to ensure those with endometriosis have access to the right care at the right time. The inquiry surveyed over 10,000 people with endometriosis, interviewed healthcare practitioners and those with the condition about their experiences.
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Content ArticleFor 10 years, 29-year-old historian Robyn battled extreme endometriosis pain, but was continuously dismissed by doctors when she went to them for help. She was finally diagnosed with the condition – but five surgeries later, it was clear the damage had already been done. In this article published by Stylist, she asks why women’s health issues aren’t being taken seriously enough.
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Content ArticleThis is an interview with Gabrielle Jackson, author of Pain and Prejudice: A call to arms for women and their bodies, published by the Hysterical Women website. Jackson talks about her diagnosis of endometriosis, the lack of advanced medical knowledge around women's medical issues and a need for access to better treatments.
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Content Article
Getting diagnosed with endometriosis: personal stories
Patient Safety Learning posted an article in Women's health
Women share their personal experiences to Endometriosis UK of getting diagnosed with endometriosis. -
Content Article
Endometriosis UK factsheet: Getting a diagnosis
Patient Safety Learning posted an article in Women's health
It takes around seven to eight years on average for a woman to get diagnosed with endometriosis from the time she starts experiencing symptoms. Whilst this has reduced from the eleven years measured previously, it is still far too long. The symptoms of endometriosis are very similar to other common conditions. It's important to share as much information with your doctor as possible To help you prepare for a GP appointment, Endometriosis UK has produced a factsheet giving tips on what to say to your GP, what will happen at your appointment, what to do if you are not satisfied that your symptoms are being properly looked into by your GP, how to get a referral and questions to ask your GP.
