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Found 140 results
  1. Content Article
    Dementia can have a significant impact on a person’s daily life, including how well they function within their home. Memory issues or problems recognising and interpreting the objects around them can cause the person frustration or create safety issues. Dementia UK have produced a leaflet with tips and guidance on how to make the home more safe for someone with dementia.
  2. Content Article
    This study in the British Journal of General Practice looked at the association between continuity of GP care and potentially inappropriate prescribing in patients with dementia, as well as the incidence of adverse health outcomes. The study authors found that for patients with dementia, consulting with the same doctor consistently, resulted in: 35% less risk of delirium 58% less risk of incontinence 10% less risk in emergency admission to hospital less inappropriate prescribing. The results demonstrate that increasing continuity of care for patients with dementia could improve their treatment and outcomes.
  3. Content Article

    John's Campaign

    Sam

    Sam posted an article in Dementia

    Dr John Gerrard was a doctor and a business man, and diagnosed with Alzheimers in his mid seventies. It was a slow decline, that sped up when he was ill or upset, for ten years. Then, at the start of February 2014, he went into hospital. He had infected leg ulcers which weren’t responding to antibiotics. The hospital had a norovirus outbreak which meant visitors weren’t allowed at all. He was there for five weeks. John went in strong, mobile, smiling, able to tell stories about his past, to work in his garden and help with things round the house. He was able to feed himself, to keep clean, to have a good kind of daily life. He came out skeletal, immobile, incoherent, requiring 24-hour care and barely knowing those around him. His family are sure that if he had not spent that time alone, without them, he would not have descended into such a state of deep delirium. Having someone with you - someone who you love, who you know, whose face you know (be they your carer, your family, your friend, your lover) - helps keep you tied to reality, to life, to sanity. John died in November 2014. His story, however, is still repeated. Far too many people die cut off from the people who care for them. Far too many places have dangerously over-restrictive policies (both predating and during the present pandemic) preventing people from being with people who need them. In the wake of his death, John’s daughter, Nicci Gerrard, cofounded John’s Campaign with Julia Jones, whose mother, June, also lived well with dementia (both Alzheimer’s and vascular) for many years before her death in 2018. John’s Campaign is June’s Campaign, is Everyone’s Campaign, for none of us should be blocked from our best, most special friends, family or carers.
  4. Content Article
    The pandemic has shone a stark spotlight on so many inequities and inconsistencies in access to health and social care. Unfortunately, many of these inequities were already there and so, in some respects, its nothing new. In this blog, I want to draw attention to how visiting restrictions can result in worse outcomes for patients and their families. I will focus mainly on the needs of older adults in hospital or care, and those with dementia, because that has been my own experience. But these restrictive practices have affected so many groups: among them, those with mental health conditions and those with learning and behavioural difficulties. 
  5. Community Post
    Hello! Patients with dementia or inattention (e.g. following stroke) can struggle to remember to use a walking aid prescribed by physiotherapists to enable safe mobility. This can result in increased falls, as patients mobilise without their aids. A simple solution is to provide a red walking aid; the colour contrasts with the surroundings and draws the patient’s attention to the aid, prompting them to use it for mobilising. There are no articles on this, possibly as it is hard to prove a causal link between red frames and reduced falls? I am looking for evidence (subjective or objective) for the use of red walking aids to increase patient's independent use of aid, and reduce falls in patients with dementia. I hope to promote the prescription of these within my trust, wherein they are currently classed as a special order, but I also want to spread the word as none of my colleagues had heard of them! Many thanks, Susanna
  6. Content Article
    This report by the National Audit of Dementia (NAD) presents the results of the fifth round of audit data. For the first time, the audit has been undertaken prospectively, which will enable hospitals to take earlier action to improve patient care and experience. However, this has demonstrated that many hospitals still have no ready mechanism to identify people with dementia once admitted. One notable improvement is delirium screening (dementia is the biggest risk factor for developing delirium). Screening for delirium has improved from 58% in round 4 to 87% in the current audit. In addition, a high number of pain assessments are also being undertaken within 24 hours of admission (85%). Although encouraging, the report highlights that 61% of these assessments were based only on a question about pain—an approach that can be unreliable in patients with dementia. While this report acknowledges that our health services have experienced an extraordinarily difficult and challenging time, it does shine a light on a need for more training. It states that is encouraging that many staff have received Tier 1 dementia training (median 86%), but suggests that a much higher proportion of ward-based patient facing staff should have received Tier 2 dementia training (median 45%). It found that only 58% of hospitals are able to report the proportion of staff who have received training. As such, the report recommends that any member of staff involved in the direct care of people with dementia should have Tier 2 training, and this training should be recorded to provide assurance to the public and regulators.
  7. Content Article
    This guide is intended for people caring for people living with Alzheimer’s Disease and other forms of dementia, to help facilitate conversations that can help to make health care decisions as the need arises. It has been produced as part of the Conversation Project, a public engagement initiative of the Institute for Healthcare Improvement (IHI). The Project’s goal is to help everyone talk about their wishes for care through the end of life, so those wishes can be understood and respected.
  8. Content Article
    Age-Friendly Health Systems (AFHS) is an initiative that aims to follow evidence-based practices while minimising harm in older patients. The evidence-based elements of high-quality care are known as the 4Ms: What Matters Medication Mentation Mobility During the early days of the Covid-19 pandemic, a team from the Oregon Health & Science University (OHSU) decided to examine the equity of their care for older adults. The resulting study published about the age-friendly work at OHSU is the first to include data about health equity as part of AFHS outcomes and illustrates the importance of creating equitable care at clinical and institutional policy levels. This blog looks at the process the team went through to assess and collect data about age-related equity.
  9. Content Article
    The Department of Health and Social Care is seeking views and ideas on how to prevent, diagnose, treat and manage the six major groups of health conditions that most affect the population in England. These are: cancers cardiovascular disease, including stroke and diabetes chronic respiratory diseases dementia mental ill health musculoskeletal disorders The views and ideas gathered will inform the priorities and actions in the major conditions strategy. The consultation will close at 11:59pm on 27 June 2023.
  10. Content Article
    This guide aims to help health and social care workers provide dementia care, which corresponds to the needs and wishes of people from a wide range of ethnic groups, especially minority ethnic groups.
  11. Content Article
    A formal diagnosis of dementia can help people living with the condition and their families gain a better understanding of what to expect and help to inform important decisions about treatment, support and care. Alzheimer’s Society estimate that in England, Wales and Northern Ireland there are over 300,000 people living with dementia who do not have a diagnosis. In this report they highlight barriers to accessing a timely and accurate dementia diagnosis and advocate for practical changes and tangible solutions to overcome them.
  12. News Article
    People with dementia, particularly care home residents early in the pandemic, were “disproportionately” vulnerable to fatal Covid infections, according to a new report. The analysis, commissioned by the Scottish Government, also found that excess deaths involving dementia during 2020 were “almost wholly” attributable to Covid. Of the 2,154 deaths where both dementia and Covid were listed on the death certificate, 95 per cent had Covid as the main underlying cause. This contradicts previous suggestions that a rise in dementia deaths early in the pandemic may have been linked indirectly to the virus as a result of “lockdown distress” or an increased use of potentially harmful sedation in elderly people confused by restrictions. The report also found that 73% (1,577) of those who died with both Covid and dementia mentioned on their death certificates had passed away in care homes. Henry Simmons, chief executive of Alzheimer’s Scotland, said their loved ones had been “torn apart by grief and loss” and that the report “raises many more questions as to why so many people with dementia living in care homes quickly became victims of Covid-19”. Read full story Source: The Herald, 10 February 2022
  13. News Article
    Hundreds of care homes in England are providing substandard care to dementia patients, analysis by the Guardian has found. One in five homes specialising in dementia are rated “inadequate” or “requires improvement” by the Care Quality Commission (CQC), inspection reports show. Some pose such a serious risk to people with dementia – including filthy conditions, poor infection control and untrained staff – that inspectors have ordered them to be placed into special measures. Altogether, 1,636 care homes are failing patients in findings described by charities and campaigners as “appalling”. They said urgent action was needed to tackle the “unacceptable” state of dementia care across the country. Zoe Campbell, the director of operations at the Alzheimer’s Society, said: “It’s appalling to hear that one in five care homes specialising in dementia are delivering substandard care. Every person with dementia deserves to live in a safe, secure place and to be treated with compassion and respect.” Campbell said the revelations meant staff recruitment and dementia training must be prioritised in the government’s social care proposals. Read full story Source: The Guardian, 18 January 2022
  14. News Article
    The number of adults living with dementia worldwide is on course to nearly triple to 153 million by 2050, according to the first study of its kind. Experts described the data as shocking and said it was clear that dementia presented “a major and rapidly growing threat to future health and social care systems” in every community, country and continent. US researchers said the dramatic rise from an estimated 57 million cases in 2019 would be primarily due to population growth and ageing. However, several risk factors for dementia – including obesity, smoking and high blood sugar – would also fuel the increase, they said. Improvements in global education access are projected to reduce global dementia prevalence by 6.2 million cases by 2050. But this will be countered by anticipated trends in obesity, high blood sugar and smoking, which are expected to result in an extra 6.8 million dementia cases. Hilary Evans, the chief executive of Alzheimer’s Research UK, who was not involved in the study, said the figures “lay bare the shocking scale of dementia across the world”. She said: “We need to see concerted global action to avoid this number tripling. Dementia doesn’t just affect individuals, it can devastate whole families and networks of friends and loved ones. The heartbreaking personal cost of dementia goes hand in hand with huge economic and societal impacts, strengthening the case to governments across the world to do more to protect lives now and in the future.” Read full story Source: The Guardian, 6 January 2022
  15. News Article
    The government is facing criticism over its guidance on safe visits to care homes in England. Labour and a number of charities have described the suggestions, including floor-to-ceiling screens, designated visitor pods and window visits, as impractical. Alzheimer's Society has said it "completely misses the point". Justice Secretary Robert Buckland told BBC Radio 4's Today programme the guidance was "non-exhaustive". The updated government advice, which came into effect on Thursday, says care homes - especially those which have not allowed visits since March - "will be encouraged and supported to provide safe visiting opportunities". Labour's shadow care minister Liz Kendall said many care homes would not be able to comply with the government's requirements which meant "in reality thousands of families are likely to be banned from visiting their loved ones". She said instead of suggesting measures such as screens, the government should "designate a single family member as a key worker - making them a priority for weekly testing and proper PPE". Kate Lee, chief executive at Alzheimer's Society, said: "We're devastated by today's new care home visitor guidance - it completely misses the point: this attempt to protect people will kill them." She said the pandemic had left people with dementia isolated and thousands had died. The guidelines "completely ignore the vital role of family carers in providing the care for their loved ones with dementia that no one else can", she added. She said the "prison-style screens" proposed by the government with people speaking through phones were "frankly ridiculous when you consider someone with advanced dementia can often be bed-bound and struggling to speak". That view was echoed by Caroline Abrahams, charity director at Age UK, who said she was "acutely aware" that the methods being sanctioned were "unlikely to be useable by many older people with dementia, or indeed sensory loss". Read full story Source: BBC News, 5 November 2020
  16. News Article
    An NHS trust has offered an unreserved apology to an elderly patient and his family after they accused hospital staff of restraining him 19 times in order to forcibly administer treatment. East Kent Hospitals University NHS Foundation Trust admitted that care for the man, who has dementia, “fell far short” of what patients should expect. The 77-year-old had been admitted to the William Harvey Hospital last November for urinary retention problems, according to a recent BBC investigation. In February, The Independent revealed that a police investigation had been launched into an alleged assault against an elderly man at the hospital after nurses and carers were filmed by hospital security staff holding the man’s arms, legs and face down while they inserted a catheter. A whistleblower told The Independent that the incident was being covered up by the trust and staff were told: “Don’t discuss it, don’t refer to it at all.” On Wednesday, the trust said its investigation had found a failure to alert senior medics to the difficulties being experienced in caring for the patient. Changes to dementia care including ward reorganisation, training and recruitment are underway, said a spokesperson, who added: “We apologise unreservedly to the patient and his family for the failings in his care, this fell far short of what patients should expect.” Read full story Source: The Independent, 14 October 2020
  17. News Article
    Tens of thousands of people avoided going to hospital for life-threatening illnesses such as heart attacks during Britain's coronavirus crisis, data has revealed. Shocking figures reveal that admissions for seven deadly non-coronavirus conditions between March and June fell by more than 173,000 on the previous year. Previous data for England shows there were nearly 6,000 fewer admissions for heart attacks in March and April compared with last year, and almost 137,000 fewer cancer admissions from March to June. Analysis by the Daily Mail found that the trends were alarmingly similar across the board for patients who suffered strokes, diabetes, dementia, mental health conditions and eating disorders. Health experts said the statistics were 'troubling' and warned that many patients may have died or suffered longterm harm as a result. Gbemi Babalola, senior analyst at the King's Fund think-tank said: "People with some of the most serious health concerns are going without the healthcare they desperately need. Compared with the height of the pandemic, the NHS is seeing an increase in the number of patients as services restart, and significant effort is going into new ways to treat and support patients." "But the fact remains that fewer people are being treated by NHS services." Read full story Source: Daily Mail, 13 September 2020
  18. News Article
    Nanotechnology could be used to test blood for evidence of Alzheimer’s disease years before symptoms appear, researchers have said. Scientists used nanotechnology to extract previously unseen blood signals of neurodegeneration in a mouse model of Alzheimer’s disease. They say tests that capture early signs of neurodegeneration in blood offer enormous potential for those who suffer from the disease, as well as dementia patients, to receive effective treatment or manage their progressive condition before significant brain damage occurs. Alzheimer’s disease can currently be diagnosed using brain scans only after someone has been showing behavioural symptoms, such as memory impairment. By the time symptoms emerge, it is often too late to treat patients effectively. Read full story Source: The Independent, 17 March 2021
  19. News Article
    A woman with dementia was effectively left housebound for the last eight years of her life due to surgical delays, an investigation found. The Public Services Ombudsman for Wales said the individual worried about being "caught short" due to incontinence and it affected her family relationships. Her son complained about the care she received at Glan Clwyd Hospital in Denbighshire, in particular. Betsi Cadwaladr University Health Board has since apologised to the family. Ombudsman Nick Bennett said it was clear there was "significant injustice" in the case of the individual, who was identified in the report findings as Mrs B. The patient's son complained there had been surgical delays for a rectal prolapse issue dating back to 2011, concerns over inpatient medical care provided by an elderly care consultant, and a delayed diagnosis of terminal ovarian cancer during a hospital stay. The ombudsman found that clinical decision-making by colorectal surgeons "was not in keeping with accepted clinical practice". Read full story Source: BBC News, 2 March 2021
  20. News Article
    More than 34,000 people with dementia are estimated to have died from coronavirus in the UK since the start of the pandemic, according to new figures. The condition has been identified in just over a quarter of all deaths due to COVID-19, partly due to the large number of deaths in care homes. Nearly 12,000 care home residents have died since January alone. A coalition of charities, including Alzheimer's Society, Dementia UK, John's Campaign and Together in Dementia Every Day (tide), are now calling for introduction of universal social care – free at the point of use like the NHS – as a legacy of COVID-19. It comes as new figures from the Office for National Statistics revealed that deaths of care home residents, where around 70% of people have dementia, are 30%t higher than previously thought. Nearly 12,000 have died since January alone. The charities also revealed the result of a survey of 1,001 people who care for someone close to them with dementia, demonstrating that the toll of the pandemic reaches further than simply deaths from the virus. More than nine in ten (92%) said the pandemic had accelerated their loved one's dementia symptoms, with a third (31%) reported a more rapid increase in difficulty speaking and holding a conversation, and a quarter (25%) in eating by themselves. Nearly a third (32%) of those who lost a loved one during the pandemic thought that isolation/lack of social contact was a significant factor in that loss. The Alzheimer Society and Dementia UK said their helplines had been flooded with calls from relatives reporting how quickly their loved ones were deteriorating. Read full story Source: The Independent, 1 March 2021
  21. News Article
    New research has emerged that may be able to diagnose dementia after a single brain scan. Scientists have begun testing a new artificial intelligence system that could identify the condition and predict predict whether it will remain stable for many years, slowly deteriorate or need immediate treatment. Prof Zoe Kourtzi, of Cambridge University and a fellow of national centre for AI and data science The Alan Turing Institute, said "If we intervene early, the treatments can kick in early and slow down the progression of the disease and at the same time avoid more damage". Read full story. Source: BBC News, 10 August 2021
  22. News Article
    Tens of thousands of people with dementia are taken to hospital each year for emergency admission because inadequate social care has left them unprotected from infections, falls and dehydration, an investigation has found. There has been a 27% increase over a four-year period in avoidable illnesses and injuries caused by failures in care for those living with dementia, according to the Alzheimer’s Society. “This news comes just under a week after the Queen’s speech frustratingly made only a brief mention of the prime minister’s promise nearly two years ago to deliver a clear plan for social care reform, a devastating blow for the 850,000 people living with dementia, worst hit by coronavirus,” said Kate Lee, chief executive officer at Alzheimer’s Society. The charity found that nearly two-thirds of dementia emergency admissions could have been avoided. It blames cuts in social care budgets and warned that worse is to come. Launched to mark Dementia Action Week, the charity’s investigation also found that nearly three-quarters of family carers said loved ones with dementia had experienced preventable medical issues because of lack of support. One in nine had been taken to hospital. Read full story Source: The Guardian, 17 May 2021
  23. Content Article
    1 in 6 people in the UK live with a neurological condition, but there simply isn’t the workforce or services in place to provide the support they need. Every two years, The Neurological Alliance runs My Neuro Survey to give a picture of the experience of care, treatment and support for people with neurological conditions. From a lack of mental wellbeing support, delays to life changing treatment and care and a lack of information and support at diagnosis, over 8,500 people living with or affected by neurological conditions across the UK shared their experiences in the 2021/22 My Neuro Survey.
  24. Content Article
    This report examines the impact of the Covid-19 pandemic on people living with long-term conditions and highlights that many have deteriorated faster than usual due to being unable to access rehabilitation services. It makes recommendations to the government aimed at restoring rehabilitation support services. The report was produced collaboratively by The Alzheimer's Society, The Stroke Association, Macmillan Cancer Support, The Centre for Mental Health, Age UK, The College of Podiatry, The Royal College of Speech and Language Therapists, The Royal College of Occupational Therapists, The Chartered Society of Physiotherapy and The British Dietetic Association.
  25. Content Article
    People with living dementia or mild cognitive impairment and their family carers face challenges in managing medicines. This review, published in Age and Ageing, identifies interventions to improve medicine self-management for people with dementia and mild cognitive impairment and their family carers, and the core components of medicine self-management that they address.
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