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Showing results for tags 'Consent'.
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Content ArticleProviding high quality care and treatment for patients coming to the end of their lives is likely to involve making difficult and emotionally challenging decisions. This guidance from the General Medical Council provides a framework to support doctors in meeting the needs of each patient as they come towards the end of their life.
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- End of life care
- Medicine - Palliative
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Content ArticleThis patient decision aid from the National Institute for Health and Care Excellence (NICE) aims to help adults with type 2 diabetes understand the risks and benefits of taking a second medication, so that they can make an informed decision about their care.
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- Diabetes
- Decision making
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Content ArticleThis patient decision aid from the National Institute for Health and Care Excellence (NICE) aims to help family members and carers of severe stroke patients under 60 understand the risks and benefits of decompressive hemicraniectomy, so that they can make an informed decision about treatment.
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- Decision making
- Patient engagement
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Content ArticleThis patient decision aid from the National Institute for Health and Care Excellence (NICE) aims to help patients with high blood pressure understand the risks and benefits of different treatment options so that they can make an informed decision about their care.
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- Decision making
- Communication
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Birthrights video: Speak Up, Speak Out (16 November 2021)
Patient-Safety-Learning posted an article in Maternity
This video by the charity Birthrights encourages women and birthing people to speak out when they experience poor quality care. It highlights the right to safe and appropriate maternity care that respects individuals' dignity, privacy and confidentiality and is given equally and without discrimination.- Posted
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- Health inequalities
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Content ArticlePoppy Harris was born at Milton Keynes University hospital on 23 November 2020. Following a protracted labour, she was delivered using Kielland's forceps. She was transferred to John Radcliffe Hospital in Oxford where it was discovered that she had suffered a spinal cord injury and despite all efforts and care she died on 24 March 2021.
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- Patient death
- Baby
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Content ArticleThis article discusses evidence that doctors-in-training and medical students are still performing pelvic exams on anesthetized women without their consent.
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- Consent
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Content ArticleThis presentation was submitted by the patient group Campaign Against Painful Hysteroscopy, as an oral presentation to the British Society for Gynae Endoscopy’s Annual Scientific Meeting 2021. It includes patient testimonials and statistical data gathered around painful hysteroscopies and informed consent.
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- Obstetrics and gynaecology/ Maternity
- Womens health
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NHSX information governance portal
Patient Safety Learning posted an article in NHS X
NHSX has launched a brand new information governance portal providing a 'one-stop shop' for NHS policies and guidance. -
Content ArticlePregnant people receive many public health messages that are intended to guide their decision making; intended to improve outcomes for babies and mothers. However, there is growing concern that messages do not always fully reflect or explain the evidence base underpinning them, and that negotiating the risk landscape can sometimes feel confusing, overwhelming, and disempowering. This may negatively affect women’s experiences of pregnancy and motherhood, and be exacerbated by a wider culture of parenting that tends to blame mothers for all less-than-ideal outcomes in their children. The WRISK Project draws on women’s experiences to understand and improve the development and communication of risk messages in pregnancy.
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Content ArticleMore and more women are coming forward to share their stories of a painful IUD procedure. In this blog for the BMJ Opinion, Stephanie O’Donohue (Content and Engagement Manager for Patient Safety Learning) argues that healthcare services need to get better at recording these experiences. The ripples of trauma caused by severe pain during IUD procedures If you have had an IUD fitted and would like to share your experience, please visit our community forum and share your views. Related reading The pain of my IUD fitting was horrific…and I’m not alone The normalisation of women’s pain Through the hysteroscope: Reflections of a gynaecologist Improving hysteroscopy safety (Patient Safety Learning, November 2020)
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Content ArticleThis article in the Nursing Times explains how the law has evolved and how it applies to nursing practice, describing the legal duty of nurses to obtain informed consent from their patients before carrying out any treatment or intervention, and why informed consent is fundamental to the provision of person-centred care.
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Content Article
What I never consented to (24 June 2021)
Mark Hughes posted an article in Consent issues
In this blog in the BMJ, Andrés J Lessing considers how consent forms and conversations about care and treatment often do not account for the possibility of incidental findings. The author suggests that incidental findings can be very stressful for patients and that as part of the pre-treatment consent process healthcare professionals could provide a reminder about the likelihood of incidental findings and what might be done to address them.- Posted
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Content ArticleLucy Cohen recently had a contraceptive device (IUD) fitted, during which she suffered extremely high levels of pain. Following her experience, she decided to launch a survey to understand how others had found the procedure. In this interview, Lucy shares her findings and calls for better pain management and improved consent processes, in order to reduce avoidable harm.
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- Sexual and reproductive health
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Content ArticleThis Prevention of Future Deaths report relates to the death of four patients who all died from endoscopic retrograde cholangio-pancreatography (ERCP) related complications, within a six-month period. All four patients had their treatment carried out by the same doctor during his training for this high-risk procedure. In her report, the Coroner Laurinder Bower raises concerns about the systems in place to gain consent and inform patients of the risks of these procedures.
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- Patient death
- Coroner reports
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Content ArticleIn this personal account, hub member Sophie talks about the trauma she experienced after a painful contraceptive device (IUD) fitting, and the impact this has had on her subsequent experience of medical procedures. She argues that damaging narratives around female pain cause harm to patients in multiple ways and have consequences that reach far beyond the initial experience of pain.
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- Pain
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Content ArticleIn this episode of BBC Panorama, Reporter Deborah Cohen investigates how medical devices can cause harm to patients, and the lack of support and redress available when things go wrong.
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- Medical device
- Medical device / equipment
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Content ArticleThis is the fourth of a short series of blogs in which we take a look back at our work in five areas of patient safety during 2021. In this blog we consider the need for greater patient engagement to support improvements to patient safety. Throughout our work, Patient Safety Learning seeks to harness the knowledge, insights, enthusiasm and commitment of health and social care organisations, professionals and patients for system-wide change and the reduction of avoidable harm. We believe patient safety is not just another priority; it is a core purpose of health and social care. Patient safety should not be negotiable.
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- Patient harmed
- Patient engagement
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Content ArticleRhian Rose underwent feticide on 22 November 2019 and was admitted to a maternity ward on 24 November 2019 for medical termination of pregnancy. By the evening of her admission, Rhian had clear symptoms of infection, however the sepsis pathway and antibiotics were not commenced until the following morning. In the late afternoon on 25 November 2019, Rhian became acutely unwell resulting in unconsciousness, emergency caesarean section, subsequent cardiac arrest and eventually her death. In this report the Coroner raises concerns about a lack of informed consent and discussion of maternal wishes and the mode of delivery highlighted by this case. He highlights a lack of guidance relating to the infection risk when a mother is attending for delivery following feticide.
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Content Article
Healthy data e-consultation (2022)
Patient-Safety-Learning posted an article in Data and insight
The Healthy Data e-consultation is a joint initiative run by the Belgian project 'Towards the development of a national health data platform' (AHEAD) and the European initiative 'Towards a European Health Data Space' (TEHDAS). Its aims are: to listen to citizens and patients’ views on health data secondary use and sharing, and on the role that they would like to play in the management and use of their health data. to increase citizen awareness, engagement and empowerment on the topic, so that everyone can develop informed opinions and take an active role in the use of their health data. Anyone can sign up and share their views on the following questions: What should your health data be used for? Under which conditions should your health data be used? How would you like to be informed and involved in the reuse of your health data? What other ideas do you have on health data reuse?- Posted
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- Electronic Health Record
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Content Article
The Health Literacy Place toolkit
Patient-Safety-Learning posted an article in Health inequalities
It is easy to underestimate people’s health literacy needs, because those needs can be hidden or people can be reluctant to admit that they haven’t understood the information they have been given. This toolkit by The Health Literacy Place contains a range of resources to help healthcare professionals better understand and meet the health literacy needs of their patients.- Posted
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- Health literacy
- Health inequalities
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Content ArticleThis article in The BMJ discusses the consequences for practising doctors of the 2015 Montgomery v Lanarkshire Case. The case was brought by Nadine Montgomery, a woman with diabetes and of small stature, after she delivered her son vaginally and experienced complications during the birth which resulted in her son having cerebal palsy. Her obstetrician had not disclosed the increased risk of this complication in vaginal delivery, despite Montgomery asking if the baby’s size was a potential problem. The Supreme Court ruling in her favour established that a patient should be told whatever they want to know, not what the doctor thinks they should be told.
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- Consent
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Content ArticleThis guide by The Eve Appeal and The Survivors Trust gives information about attending cervical screening for survivors of rape, sexual abuse or assault. It offers tips that may help patients feel more comfortable about their appointment. It is part of the #CheckWithMeFirst campaign to help raise awareness of the challenges survivors of rape, sexual abuse and sexual violence may face when accessing cervical screening.
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- Surgery - Obs & Gynae
- Womens health
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Patient blog - A tale of two MRIs (10 July 2020)
Patient-Safety-Learning posted an article in Patient stories
This blog by patient Lelainia Lloyd in the Journal of Medical Imaging and Radiation Sciences is a personal account of two starkly different MRI appointment experiences. In the first scan, the technologist said very little to Lelainia and the experience left her with significant anxiety about future MRIs. But her second experience was completely different, with the technologist communicating clearly, asking questions and making sure she felt comfortable throughout the process. Lelainia highlights the importance of communicating clearly and compassionately with patients to make them feel safe and able to ask for help. She outlines some practical steps for healthcare workers to help them engage with patients and ensure they are clearly consenting to all aspects of care and treatment.- Posted
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- Consent
- Communication
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