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Found 592 results
  1. News Article
    Children have suffered severe harm at two further hospital trusts as a result of failures in paediatric audiology, HSJ has revealed. HSJ reported in July that three children at Croydon Health Service Trust may have come to “severe harm” – meaning they may have suffered permanent damage – following failures in the trust’s processes in audiology. Now East and North Hertfordshire Trust and North West Anglia Foundation Trust have also confirmed a small number of cases of severe or serious harm; while some trusts have yet to confirm findings from case reviews they have carried out. Major problems emerged earlier this year, initially in Scotland, of poor quality checks missing children with hearing problems who should have received support, and of a failure to inspect the services. NHS England ordered a review of data from the national newborn screening programme which, alongside other review work, identified six English trusts as having likely failures in their service: Croydon, East and North Herts, North West Anglia, Warrington and Halton Hospitals, North Lincolnshire and Goole, and Worcestershire Acute Hospitals. Read full story (paywalled) Source: HSJ, 14 September 2023
  2. News Article
    The mother of Martha Mills, whose preventable death in hospital has led to calls for extra patients' rights, has said she is to meet the health secretary to discuss "Martha's Rule". If introduced, it would give families a statutory right to get a second opinion if they have concerns about care. Merope Mills said patients needed more clarity and to feel empowered. Her daughter, Martha, died two years ago after failures in treating her sepsis at King's College Hospital. She had entered hospital with an injury to her pancreas after falling off her bike. The injury was serious but should never have been fatal. Within days she had died of sepsis. In an interview on Radio 4's Today programme, Mrs Mills said she had raised concerns but doctors told her the extensive bleeding was "a normal side-effect of the infection, that her clotting abilities were slightly off". The King's College Hospital Trust said it remained "deeply sorry that we failed Martha when she needed us most" and her parents should have been listened to. Read full story Source: BBC News, 12 September 2023
  3. News Article
    At the end of the COVID pandemic, more than half (54%) of US children were covered by Medicaid or CHIP; the vast majority by Medicaid. So, the lifting of the pandemic-related Medicaid continuous enrolment protection this spring is a really big deal, putting low-income children at risk of losing access to health care and/or exposing their families to medical debt. In fact, researchers at federal Office of the Assistant Secretary for Planning and Evaluation (ASPE) projected that just shy of three-quarters of children losing Medicaid would be disenrolled despite remaining eligible. Children are most at risk of losing coverage during the unwinding despite being eligible and the likelihood that the child uninsured rate will go up if states do not take care in the process. Over half a million children have lost Medicaid already in 21 states where there is data. And that large number doesn’t include Texas, a state that disenrolled more than 500,000 people on June 1st, and where state agency employees recently blew the whistle on systems errors that caused inappropriate terminations. The Biden Administration must take swift and definitive action to pause all terminations in states with systemic problems. Governors who see large numbers of children losing coverage must pause the process. Coverage must be reinstated for those who lose coverage inappropriately. The time for action to protect children is now. Read full story Source: McCourt School of Public Policy at Georgetown University, 23 August 2023
  4. Content Article
    Two years after his 13-year-old child died needlessly in hospital, Paul Laity reflects on life without her. Martha Mills died of septic shock due to a series of serious failures in her care after she injured her pancreas in a cycling accident. Her father Paul talks about the ongoing pain of grief, and the additional burden of knowing that Martha's death was preventable, caused by the complacency of her doctors and a culture in the hospital that meant consultants were reluctant to ask expert advice from paediatric ICU. "Martha’s avoidable death was unusual in that the prime causes weren’t overwork or a lack of resources, but complacency, overconfidence and the culture on the ward. What upsets me most was that the consultants – a different one most days – took a punt that she was going to be OK over the weekend. No one assumed responsibility; they hoped for the best rather than playing safe. Was everything done for Martha that could have been done? Emphatically not. It’s very hard to live with this knowledge. But just as hard is the recognition that I, too, didn’t do enough." Further reading ‘We had such trust, we feel such fools’: how shocking hospital mistakes led to our daughter’s death (The Guardian, 3 September 2022) Prevention of Future Deaths Report: Martha Mills (28 February 2022)
  5. News Article
    In September last year, Ebrima Sajnia watched helplessly as his young son slowly died in front of his eyes. Mr Sajnia says three-year-old Lamin was set to start attending nursery school in a few weeks when he got a fever. A doctor at a local clinic prescribed medicines, including a cough syrup. Over the next few days, Lamin's condition deteriorated as he struggled to eat and even urinate. He was admitted to a hospital, where doctors detected kidney issues. Within seven days, Lamin was dead. He was among around 70 children - younger than five - who died in The Gambia of acute kidney injuries between July and October last year after consuming one of four cough syrups made by an Indian company called Maiden Pharmaceuticals. In October, the World Health Organization (WHO) linked the deaths to the syrups, saying it had found "unacceptable" levels of toxins in the medicines. A Gambian parliamentary panel also concluded after investigations that the deaths were the result of the children ingesting the syrups. Both Maiden Pharmaceuticals and the Indian government have denied this - India said in December that the syrups complied with quality standards when tested domestically. It's an assessment that Amadou Camara, chairperson of the Gambian panel that investigated the deaths, strongly disagrees with. "We have evidence. We tested these drugs. [They] contained unacceptable amounts of ethylene glycol and diethylene glycol, and these were directly imported from India, manufactured by Maiden," he says. Ethylene glycol and diethylene glycol are toxic to humans and could be fatal if consumed". Read full story Source: BBC News, 21 August 2023
  6. News Article
    Young people who vape are more at risk of bronchitis and shortness of breath, research has suggested, even if they also smoke cigarettes. Researchers from the US tracked the respiratory health of young people in the Southern California Children’s Health Study between 2014 and 2018. They conducted surveys which asked about people’s vape and cigarette use in the last 30 days. Researchers also included questions on bronchitic symptoms, such as a daily cough for three months in a row, as well as wheezing and shortness of breath. The study found the odds of wheezing were 81 per cent more likely among past 30-day e-cigarette users than among “never users”. The odds of bronchitic symptoms were twice as likely, while those of shortness of breath were 78 per cent more likely after accounting for survey wave, age, sex, race and parental education. The researchers said their findings contribute to “emerging evidence from human and toxicological studies that e-cigarettes cause respiratory symptoms that warrant consideration in regulation of e-cigarettes.” Jon Foster, policy manager at Asthma + Lung UK, said it is “interesting” the study found a link between vaping and lung conditions in young people, but pointed out the regulation around the amount of nicotine and chemicals used in e-cigarettes is “much tighter” in the UK than the US. “More research would be needed to find out if the situation in the UK is the same,” he added. “However, given that we still know little about long-term effects, the growing popularity of vaping among children and young people is concerning.” Read full story Source: Independent, 16 August 2023
  7. Event
    until
    Care experienced young people are much more likely to experience poorer health, wellbeing, social and educational outcomes compared with the general population. These inequalities are not new, but were exacerbated by Covid-19 as care leavers experienced disrupted relationships and reduced access to support services. Specific groups of care leavers are likely to face additional disadvantages, such as those from ethnic minority backgrounds, unaccompanied refugee and asylum seeking children and/or disabled young people. Yet the health and health inequalities of young care leavers have largely been ignored within policy and practice. As part of AYPH’s youth health inequalities programme we reviewed the available evidence and undertook a youth engagement project with young people to draw together what we know. In this webinar you will hear directly from young people who will share their experiences of the barriers they face in leading healthy lives and accessing healthcare services. We will also highlight the latest available data on care leavers and health outcomes, demonstrating where inequalities exist for young people aged 10-25. During the event we will be launching two major publications that explore in more detail the role of care experience in understanding young people’s health, this will be the first opportunity to hear the learnings and recommendations from this research. The webinar is hosted jointly by the Association for Young People's Health and Coram Voice and will be co-chaired by a young person with experience on this topic. We will be joined by a range of expert speakers – more information to follow soon. Register for the webinar
  8. Event
    until
    Vaccine uptake in the UK is dropping, and we are failing to meet the WHO’s 95% coverage target. To help address this, we must understand people’s attitudes and experiences of vaccines, so we can grasp their concerns and better support them. Children’s attitudes are important too, because they must feel empowered to make health decisions. RSPH research with Children and Young People (CYP) shows that they trust vaccines and think they are important to their health. However, trust varies by ethnicity, with results showing that 85% of white CYP trust vaccines, in comparison to 71% of Asian and 74% of black CYP. Knowledge varies around which vaccines they think are available to them and they do not necessarily know which vaccines they can have. Whilst 61% of CYP understood how vaccines worked, they reported concerns about side effects (63%), safety (57%), whether they will hurt (55%) and the costs of accessing vaccines (16%). These findings have practical implications for practitioners working with CYP and delivering vaccines. In this webinar, we will explore: The impact of inequalities on access to vaccines and information about vaccinations. What challenges the public health workforce face in delivering vaccines. How the workforce – and others involved in vaccine delivery - can be supported to develop and deliver vaccines programmes Register for the webinar
  9. News Article
    The Care Quality Commission (CQC) has published a report on Stoke Mandeville Hospital, part of Buckinghamshire Healthcare NHS Trust following a recent inspection in June. CQC carried out a focused inspection of the trusts children’s emergency department in response to concerns raised about the safety and quality of the service. Inspectors found children and young people received safe care. However, the trust needs to review its systems to make sure potential serious incidents are managed in a way that allows any lessons learned to be shared, to reduce the risk of them happening again. Link to the full report (opens in a new browser window)
  10. Content Article
    'The Family Oops and Burns First Aid' is a free children's book written by Kristina Stiles, beautifully illustrated by Jill Latter, created to support children and their families learning about burns prevention and first aid principles together. The book describes an accident prone family who are not burns aware, who have to go to school to learn about burn safety and first aid principles within the home. The book is aimed at KS1 children and their families, and is available as hard copy book by request from Children's Burns Trust and also as an audio/video book via YouTube.
  11. News Article
    Children in some areas of England are waiting up to 18 months on average for dental general-anaesthetic treatment and teeth extractions, an investigation reveals. Some have been left with prolonged dental pain, according to information shared with BBC News. The parents of one girl who has waited three years for extractions say the pain keeps her up at night. At the start of this year, more than 12,000 under-18s were on waiting lists for assessment or treatment at community dental service (CDS) providers, data obtained by the Liberal Democrats from the NHS Business Services Authority and shared with BBC News earlier this year reveals. Children are referred to a CDS provider when they have tooth decay too severe to be treated in general practice. They also treat those with physical or learning disabilities when general practice is not a practical option. The longest average wait faced by children for general-anaesthetic treatment at a CDS provider is 80 weeks, at Harrogate and District NHS Foundation Trust. Read full story Source: BBC News, 19 July 2023
  12. Content Article
    Food allergy affects around 7-8% of children worldwide, or about two children in an average-sized classroom. As children spend at least 20% of their waking hours in school, it is not surprising that data show that 18% of food allergy reactions and 25% of first-time anaphylactic reactions occur at school. This report by the Benedict Blythe Foundations looks at the prevalence and seriousness of allergies in school-aged children, and the devastating consequences when things go wrong at school.
  13. News Article
    A14-year-old girl could lose the ability to walk after her brain surgery was cancelled three times as NHS children’s services are stretched to breaking point. Piper Miller, who has severe autism, needs urgent surgery to remove fluid on her brain that if unaddressed could also leave her unable to control her bladder. But her operation has been pushed back three times in the past month due to emergency operations taking priority and severe short staffing made worse by junior doctors’ strikes. Her mum, Toni Milner said the delays had had a “heartbreaking and gut-wrenching” effect on her daughter whose anxiety is “sent through the roof” each time she is told she is not having her surgery. Piper’s story comes as NHS data uncovered by The Independent reveals at least 340 life-saving children’s operations, such as transplant and lung surgery, were shelved from April to December 2022, while 763 emergency operations were refused due to a lack of intensive care beds. Read full story Source: The Independent, 16 July 2023
  14. News Article
    Children with suspected ADHD and autism are waiting as long as seven years for treatment on the NHS, as the health service struggles to manage a surge in demand during a crisis in child mental health. Experts said “inhumane” waits are putting a generation of neurodiverse children at risk of mental illness as they are “pushed to the back of a very long queue” for children and adolescent mental health services (Camhs). UK children with suspected neurodevelopmental conditions faced an average waiting time of one year and four months for an initial screening in 2022, more than three times longer than the average wait for all Camhs services, according to research carried out by the House magazine and shared with the Guardian. Half of all trusts responding to a freedom of information request had an average wait of at least a year, and at one-sixth of trusts it was more than two years. The NICE guidance for autism and mental health services stipulates that no one should wait longer than 13 weeks between being referred and first being seen. Read full story Source: The Guardian, 17 July 2023 Related reading on the hub: Long waits for ADHD diagnosis and treatment are a patient safety issue
  15. Content Article
    This 2023 updated guidance, produced by the Patient Information Forum, aims to help anyone who creates health information for children and young people improve what they do.  It focuses on the practical aspects of creating good health information, including involving children, choosing the right format, writing for children, and tackling sensitive issues. It places health inequality and the need to engage children and young people of all backgrounds people at its centre.  Case studies provide both practical tips and inspiration.  The guide covers the use of stories and play, social media and apps and how and when to give information.  It provides guidance on digital, mental health needs and working with children who are traumatised or at risk of violence. Experts from child psychiatry, leading children’s health charities, Barts Health NHS Trust and NHS England contributed to the guide.  This guide was part funded by NHS England.
  16. News Article
    Tens of thousands of children will be treated in “virtual wards” to free hospital beds for more critically ill patients under new NHS plans. The Hospital at Home service will be expanded to include paediatric care in every region of England this month, the health service announced. As part of the service, clinical teams review patients daily and can provide treatments including blood tests, prescribe medicines or administer fluids through a drip. Ward rounds can include home visits or a video call, and many services use technology such as apps and wearable devices to monitor recovery. Professor Simon Kenny, the NHS’s national clinical director for children and young people, said: “The introduction of paediatric virtual wards means children can receive clinical care from home, surrounded by family and an environment they and their parents would rather they be — with nurses and doctors just a call away.” Read full story (paywalled) Source: The Times. 5 July 2023
  17. News Article
    The BMA will review the dangers posed by e-cigarettes, after its annual representative meeting passed a motion warning that vaping was a “growing public health epidemic.” The motion, which was passed by the meeting in Liverpool on 5 July, called on the BMA’s Board of Science to rereview the dangers of vaping, and discuss restrictions on marketing and cracking down on illegal sales to children. The BMA’s last position paper on vaping was published in 2017.1 The motion urged the board to consider whether doctors should include history of e-nicotine use as a “regular and essential” part of patient history and examination. Read full story (paywalled) Source: BMJ, 5 July 2023
  18. News Article
    Men who take the epilepsy drug sodium valproate could beat increased risk of having children with disabilities, research has found. A study ordered by the European Medicines Agency (EMA) has suggested a link between fathers taking the drug three months before babies are conceived and a small increased likelihood that the children will have neurodevelopmental disorders. The drug manufacturer Sanofi has not published the full results, leading to confusion among patients and doctors. Sodium valproate, sold in the UK as Epilim, is prescribed to treat epilepsy, bipolar disorder and migraines. It is known to cause deformities in one in ten babies exposed to it in the womb because their mothers are taking the drug. Four in ten babies suffer developmental delays. Read full story (paywalled) Source: The Times, 2 July 2023
  19. News Article
    There has been an unusual rise in the number of children and teenagers around the world diagnosed with type 1 diabetes since Covid, say researchers. A new study in JAMA Network Open journal has collated available data from different countries, including the UK, on more than 38,000 young people diagnosed during the pandemic. The authors describe the increase in cases of diabetes as "substantial". More work is needed to understand why the rise is happening, they say. Some of the rise could be attributed to catch-up - from backlogs and delays when health services were shut - but does not explain all of the newly diagnosed cases, say scientists. Before the pandemic, the incidence rate of childhood type 1 diabetes was already increasing - by about 3% a year.
  20. Content Article
    There are reports of increasing incidence of paediatric diabetes since the onset of the COVID-19 pandemic. This study by D'Souza et al. compares the incidence rates of paediatric diabetes during and before the COVID-19 pandemic. The study found that incidence rates of type 1 diabetes and diabetic ketoacidosis at diabetes onset in children and adolescents were higher after the start of the COVID-19 pandemic than before the pandemic. Increased resources and support may be needed for the growing number of children and adolescents with diabetes. Future studies are needed to assess whether this trend persists and may help elucidate possible underlying mechanisms to explain temporal changes.
  21. Content Article
    This video made by Health Education England and the Restraint Reduction Network looks at the impact of inappropriately used restraint practices in mental health and learning disability services. Three people with lived experience of restraint discuss the impact it has had on their lives and why they are campaigning for change.
  22. News Article
    NHS trusts across England are scrambling to trace thousands of children for urgent hearing tests amid fears that cases of infant deafness may have been missed for years. An internal NHS report has exposed poor-quality testing within paediatric audiology departments at five hospitals and warned of systemic failings. At another NHS trust, almost 1,500 children were found to have missed out on appointments dating back to 2012. Vital quality inspections of departments checking infants for hearing loss were stopped ten years ago. Whistleblowers who previously worked for the NHS’s newborn hearing screening programme have revealed that concerns were raised shortly before they were told to stop carrying out checks. They say that thousands of children may have been mistreated for deafness and hearing loss in the past decade. Read full story (paywalled) Source: The Times, 25 June 2023
  23. News Article
    A vaccine that promises to protect infants and the over-75s from a lung infection which adds to pressure on the NHS each winter has been backed by government advisers. Respiratory syncytial virus (RSV) is a leading cause of pneumonia in the very young and elderly. It typically causes between 22,000 and 30,000 hospital admissions of small children a year. RSV’s impact on the elderly is less well understood but important, and experts believe that an effective vaccine could significantly lessen winter pressures on the health service. After 60 years of research, vaccines for older adults from Britain’s GSK and its US rivals Pfizer and Moderna are in the final stages of development. The Joint Committee on Vaccination and Immunisation (JCVI) believes that they could be licensed this year or early next year and trial data suggest that they work well. Read full story (paywalled) Source: The Times, 23 June 2023
  24. News Article
    The human papillomavirus (HPV) vaccination given in schools – which is helping to virtually eliminate cervical cancer – will move to a single dose from September, it has been announced. The UK Health Security Agency (UKHSA) said the change in England follows advice from the Joint Committee on Vaccination and Immunisation (JCVI) and World Health Organisation scientists that a single dose “delivers robust protection” against HPV when compared with the two doses given at present. The HPV vaccine programme is offered to all children in school Year 8, when they are aged 12 to 13. Dr Vanessa Saliba, immunisation consultant epidemiologist at the UKHSA, said: “The HPV vaccination programme is one of the most successful in the world and has dramatically lowered the rates of cervical cancer and harmful infections in both women and men – preventing many cancers and saving lives. “The latest evidence shows that one dose provides protection as robust as two doses. This is excellent news for young people." Read full story Source: The Independent, 20 June 2023
  25. Content Article
    Intrahospital transport is a common occurrence for many hospitalised patients. Critically ill children are an especially vulnerable population who experience preventable adverse events at least once a week, on average. Transporting these patients throughout the hospital introduces additional hazards and increases the risk of adverse events. The transport process can be decomposed into a series of steps, each incurring specific risk. These risks are numerous and few of these risks are specific to the transport process. There is a paucity of literature available on paediatric intrahospital transport and related adverse events. Elliot et al. recently reviewed the Wake Up Safe database, a paediatric anesthesia quality improvement initiative across member institutions to disseminate information on best practices, for paediatric perioperative adverse events associated with anaesthesia-directed transport. The authors present several examples of airway and respiratory events taken from the database and discuss the complexity of the transport process.
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