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Found 153 results
  1. Content Article
    The aim of the project was to introduce and evaluate a Call for Concern (C4C) service that provides patients and relatives with direct access to the Critical Care Outreach (CCO) team, to give patients and relatives more choice about who they can consult with about their care, and facilitate the early recognition of the deteriorating ward patient. The project involved two phases: a six month pilot phase to evaluate the C4C service for feasibility, and its effects on patients, relatives and the health care teams. a three month phase implementing the C4C service onto two surgical wards to test and evaluate the findings of the feasibility phase in preparation for expansion to all hospital wards. Between 1st Sept 2009 and 23rd Sept 2010, the CCO team received 37 C4C referrals representing 0.5% of total CCO activity. Critical deterioration of a patient was prevented in at least two cases, and the service received positive feedback from patients and relatives. In the words of a relative, C4C provided: ‘…a better quality of care…and…reduces the risk of death.’
  2. Content Article
    Accessing social care and social support services is key to support the well-being of people living with dementia (PLWD) and unpaid carers. COVID-19 has caused sudden closures or radical modifications of these services, and is resulting in prolonged self-isolation. The aim of this study from Giebel et al., published in Aging and Mental Health, was to explore the effects of COVID-19 related social care and support service changes and closures on the lives of PLWD and unpaid carers. Fifty semi-structured interviews were conducted with unpaid carers. The study found that PLWD and carers need to receive specific practical and psychological support during the pandemic to support their well-being, which is severely affected by public health restrictions.
  3. Content Article
    Dementia is a cause of disability and dependency associated with high demands for health services and expected to have a significant impact on resources. Care policies worldwide increasingly rely on family caregivers to contribute to service delivery for older people, and the general direction of health care policy internationally is to provide care in the community, meaning most people will receive services there. Patient safety in primary care is therefore important for future care, but not yet investigated sufficiently when services are carried out in patients’ homes. In particular, we know little about how family carers experience patient safety of older people with dementia in the community.
  4. Event
    until
    Our ICUsteps trustees and invited guests answer questions about recovery from critical illness and what patients and relatives can do to help support their recovery. Book here
  5. Content Article
    Caring for people with learning disabilities in an acute hospital setting can be challenging, especially if that patient has transitioned from children’s services to adult services. The experience in children’s acute care differs to adult acute care; this difference in processes of care can cause great anxiety for the patient and their family and carers. The reasonable adjustments that were perhaps made and sustained in children’s services may now not exist. The purpose of this blog is to demonstrate the importance for services to be designed around patients’ needs with patients, families and carers. If we get this right, the quality of care given will be improved, patient satisfaction increases and, in turn, a reduction in patient harm. It is important to note that designing services around patients is not exclusive to learning disabilities; designing services with ALL patients at the centre with their involvement is crucial for trusts to provide safe care.
  6. Content Article
    The Care Quality Commission (CQC) has published the first of what will be a regular series of insight documents intended to highlight COVID-19 related pressures on the sectors that CQC regulates.   This document draws on information gathered through direct feedback from staff and people receiving care, regular data collection from services who provide care for people in their own homes, and insight from providers and partners.   The information collected from these sources is being used to understand the wider impact of COVID-19, to share regular updates with local, regional, and national system partners and the Department of Health and Social Care, and to highlight any emerging trends and issues.
  7. Content Article
    Around 6.5 million carers in the UK are propping up the NHS by keeping loved ones safe at home. Where is their recognition? For the past eight years, Sheena and her brother have been caring for their mother, who has early onset dementia, diabetes and other health issues. In her blog to the Guardian, Sheena discusses why she wants to see affirmative action for carers, why government needs to take responsibility and why the carers themselves need to be involved in these discussions.
  8. Content Article
    Nadia Whittome, an MP, went back to work in social care when the pandemic struck but was dismissed when she spoke out about the lack of personal protective equipment (PPE) faced by workers on the frontline. She recounts her experience in a blog to the Guardian.
  9. News Article
    More than 170 carers have called a whistleblowing helpline since the start of the COVID-19 outbreak, according to a report that highlights the voices of frontline workers and lays bare a catalogue of safety concerns. Compassion in Care, which operates the helpline for care workers, says it is seeing the whistleblowing process move at “unprecedented speed” as the coronavirus crisis unfolds, with many concerns being ignored. With the coronavirus death toll mounting in care homes, the charity’s report flags the “horrendous” unsafe conditions workers are facing amid concerns over lack of personal protective equipment (PPE), as well as the impact on carers’ mental health. One whistleblower likens the situation to a “war zone” with people struggling to breathe, while another describes the pain of not having the time, because of the overwhelming workload, to even hold distressed residents’ hands. In a new report, titled When the Silence Wins, Compassion in Care’s founder, Eileen Chubb, who is herself a former care whistleblower, writes: “During this crisis I have experienced the whistleblowing process moving at unprecedented speed, at such a high-volume and involving whistleblowing issues that are without exception extremely serious." “What is emerging from these cases is a lack of action by employers in response to genuine concerns." Read full story Source: The Guardian, 6 May 2020
  10. Content Article
    Hundreds of healthcare organisations around the world are Schwartz Center healthcare members and conduct Schwartz Rounds® to bring doctors, nurses and other caregivers together to discuss the social and emotional side of caring for patients and families. This video explains more.
  11. Content Article
    Carers UK's website sets out the current government guidance as it relates to carers and offers suggestions for making plans. They've also answered common questions many carers have been asking on their FAQ page and offer some tailored tips on keeping a positive frame of mind in their Wellbeing Action Plan. For recent updates to the benefits system, see their A-Z of changes to benefits, assessments and support – COVID-19. 
  12. Content Article
    Many people will be experiencing anxiety about their health and safety during this time. This page provides information about COVID-19 and how to manage your mental health during the pandemic. Guidance includes advice on accessing treatment and medication.
  13. Content Article
    BBC Radio 4's You and Yours programme discusses the impact of coronavirus on social care and asks listeners if they feel their relatives in care are being properly protected? One listener, Amanda, speaks about the recent loss of her father who had Alzheimer's Disease. Following a fall and a hospital admission, he contracted the virus. A second caller, Bill, talks about the challenges and risks associated with needing care and support at home as a disabled man. Follow the link below to hear the full programme.  This feature aired on 14 April 2020.
  14. Content Article
    Call 4 Concern is a patient safety initiative enabling patients and families to call for immediate help and advice when they feel concerned that they are not receiving adequate clinical attention. Here is the Royal Berkshire NHS Foundation Trust's leaflets for adults and children. You may also be interested in:  NHS Mid and South Essex's 'We're Listening' leaflet
  15. News Article
    Hundreds of people are dying in care homes from confirmed or suspected coronavirus without yet being officially counted, the Guardian has learned. More than 120 residents of the UK’s largest charitable provider of care homes are thought to have died from the virus in the last three weeks, while another network of care homes is reported to have recorded 88 deaths. Care England, the industry body, estimated that the death toll is likely to be close to 1,000, despite the only available official figure for care home fatalities being dramatically lower. The gulf in the figures has prompted warnings that ministers are underestimating the impact of Covid-19 on society’s most frail, and are failing to sufficiently help besieged care homes and workers. Read full story Source: The Guardian, 7 April 2020
  16. Content Article
    Day 1, Dad goes into a care home so Mum can have respite care. Day 5, the care home provider announces a lockdown is in place. Day 12, Dad develops a raging temperature. Day 13, he develops a persistent cough, and they try to evict him back home to Mum. Here’s our story...
  17. News Article
    The first two coronavirus deaths among care workers in England were announced, as industry leaders hit out at chronic shortages of protective equipment and urged the government to start treating social care as “a second front line”. Carol Jamabo, 56, a community carer for Cherish Elderly Care in Bury in Greater Manchester, died last Wednesday. Another carer died in a home run by MHA, the UK’s largest charitable social care provider, which said it was unclear where she contracted the virus. The death of a West Dumbartonshire care worker that emerged on Sunday was also confirmed by the Scottish first minister, Nicola Sturgeon. The fatalities came amid rising concern that those working in social care still do not have the protection they need amid the Covid-19 pandemic and that, without testing for the virus, staff risk contaminating care homes where elderly people are supposed to be “shielded”. Read full story Source: The Guardian, 6 April 2020
  18. Content Article
    Living with dementia at any time brings everyday challenges for the person and those around them. Coronavirus is making daily life much harder. You may feel anxious, scared or lonely. But you are not alone – the Alzheimer's Society have collated guidance, tips and advice.
  19. News Article
    On any normal day the Oak Springs Care home in Liverpool is a hive of activity, laughter ringing out as its elderly residents enjoy dancing, creative crafts and bingo. Yesterday it was quiet, the inhabitants confined to their bedrooms and stark notices on the door warning visitors against entering, as word spread that a third resident had died in hospital that morning after a corona-virus diagnosis. Of the 66 remaining residents, 52 are exhibiting symptoms. Four were put on end-of-life care plans this week, a situation described by Andrea Lyons, the general manager, as “our absolute worst nightmare”. She said: “These are people who we love, who we spend more time with than our families. It has been difficult beyond the worst you can imagine”. Read full story Source: The Times, 2 April 2020
  20. News Article
    A father has described the "huge impact" of losing respite care for his young daughter who has complex special needs. Tim Clarke and his wife Ana look after their six-year-old daughter Molly at home in Worcester. The family normally receives a few hours of outside care and educational help a week, but that ended with the coronavirus pandemic. Molly has been diagnosed with autism and also has medical issues including a cyst on her brain. One charity worker from the Pathological Demand Avoidance (PDA) Society, a condition which is on the autism spectrum, described parents of children with special needs as being in "survival mode". Watch video Source: BBC News, 1 April 2020
  21. Content Article
    In this blog, Adele Doherty, Head of Dementia Voice at Alzheimer's Society, highlights the difficulties and fears for dementia patients and their families and carers during the coronavirus pandemic.
  22. News Article
    Nurses caring for patients in the community have been spat at and called ‘disease spreaders’ by members of the public, according to England’s chief nurse and the Royal College of Nursing (RCN). The nursing union urged members of the public to support the UK’s “socially critical” nursing workforce during the coronavirus outbreak. The RCN said it had received anecdotal reports of community nurses receiving abuse while working in uniform. Separately, England’s Chief Nurse Ruth May said she had heard reports of nurses being spat at. Susan Masters, the RCN’s director of policy, said abuse of nurses was “abhorrent behaviour”. She said a number of nurses had raised concerns about abuse on forums used by members to talk confidentially. Describing one incident she told The Independent: “These were community nurses who had to go into people’s homes and were in uniform. Members of the public who saw them called out to them and said they were ‘disease spreaders’.” She added: “We don’t know how big this problem is, it is anecdotal, but it is absolutely unacceptable. Read full story Source: The Independent, 21 March 2020
  23. Content Article
    The Learning Disabilities Mortality Review (LeDeR) Programme is a world-first. It is the first national programme of its kind aimed at making improvements to the lives of people with learning disabilities. The University of Bristol is one of the partners in the programme, which is funded and run by NHS England. Reviews of deaths are being carried out with a view to improve the standard and quality of care for people with learning disabilities. People with learning disabilities, their families and carers have been central to developing and delivering the programme. Further information and useful resources can be found on the University of Bristol's website.
  24. News Article
    A police investigation has been launched into an alleged assault against an elderly patient with Alzheimer’s by NHS staff at the troubled East Kent Hospitals University NHS Foundation Trust. The Independent can reveal nurses and carers at the William Harvey Hospital have been suspended after being filmed by hospital security staff for eight minutes allegedly holding down the man’s arms and legs as well as his face while they inserted a catheter. The trust has confirmed it has launched an investigation and alerted police after the incident on 15 December on the Cambridge J ward at the William Harvey Hospital in Ashford. A spokesperson “apologised unreservedly” for the incident and said it was being treated with the “utmost seriousness”. A whistleblower spoke out to The Independent about the incident, fearing it was being covered up by the trust after staff were told “don’t discuss it, don’t refer to it at all”. The senior clinician said they had decided to go public after the “horrific” incident because of the trust’s toxic culture and concerns for the welfare of other patients on wards. Read full story Source: The Independent, 7 February 2020
  25. Content Article
    In his blog, Steve Turner, Head of Medicines and Prescribing at Medicine Gov, talks about how to manage medicines in care homes and implement quality standards. This blog is designed to provide information for care homes and for those choosing a care home.
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