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EventuntilThe Cancer Care Conference will be a culmination of Public Policy Projects' year-long programme to develop the Cancer Care Delivery Plan, and will feature a broad range of high-level speakers who are key players in cancer care policy and delivery. This full-day in-person conference in London will give you a unique opportunity to take part in conversations that will shape a broad range of healthcare policy that aims to improve delivery of cancer care. The Conference will also feature delegates from NHS England, NHS trusts, cancer specialists, academics, patient advocacy groups and leading industry partners, providing a space to network and develop relations that can enable substantive improvements in cancer care. Key topics Improving prevention, screening and treatment practices Addressing inequalities in access and outcomes Delivering personalised care and precision medicine Effectively utilising technology and data to improve care Addressing workforce and resource challenges Register for the conference
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Event
Busting prostate cancer myths
Patient-Safety-Learning posted an event in Community Calendar
untilJoin Prostate Cancer UK to hear from men with lived experience as we explore the truth behind common prostate cancer myths. Together with our Specialist Nurses, we'll be answering questions and offering advice on tackling difficult subject matters with your loved ones, ensuring they understand the facts. Together, we can help men understand their risk of prostate cancer and save lives. Register for the webinar -
EventuntilEarly diagnosis and treatment are critical in extending the lives of those living with cancer and improving their quality of life. However, a number of national performance standards around diagnosis and waiting times for cancer care have not been met for several years. The Covid-19 pandemic has further highlighted the need to ensure that cancer programmes are not disrupted in the future, as the system seeks to recover from the impact of the pandemic. The government is planning to publish a new Major Conditions Strategy, which encompasses elements of the previously planned dedicated cancer plan, aimed at developing aimed at developing a co-ordinated approach across major conditions and diseases, including cancer. Against this backdrop, this panel discussion will bring together senior leaders from the cancer community to discuss: putting patients’ experiences of cancer treatment at the centre of pathway design and priority areas for improvement strategies to ensure that the system – already dealing with pressures on workforce, capacity and an intimidating backlog – is equipped to deliver high quality cancer care going forward how to improve the link between early diagnosis and early treatment, and address inequalities in provision and access. Register
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Event
RCNi Breast Cancer Webinar 2023
Patient Safety Learning posted an event in Community Calendar
untilWhile scientific breakthroughs are giving people with breast cancer more hopeful outcomes, much improvement is needed in cancer diagnosis and treatment rates, which have seen further setbacks as a result of the disruption caused by the COVID-19 pandemic. The COVID-19 legacy has also transformed many practices in cancer care and research settings. So, what does this mean for nurses working in breast cancer today? This timely and up-to-the-minute webinar offers you a chance to benefit from the latest research and guidance on breast cancer care, from screening through to treatment. With a firm focus on the role of the nurse, this event will create a supportive environment in which you can hear from experts, ask your questions and engage with a community of breast cancer nurses facing the same daily challenges as you. Register -
EventuntilHear about the work undertaken on digital storytelling via the NHS England cancer alliances and how they have been used to improve services. There will also be a session by Macmillian Cancer Care on digital storytelling project which shares peoples experiences of cancer diagnosis and treatment. Register
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EventPRSB is hosting a live podcast which will feature a vibrant discussion on the importance of human connection and personalised approach in providing care. Attendees will hear from Sarah Woolf, Movement Psychotherapist, who will talk about her own experience of how personalised care helped her recover from her condition, not only physically, but also emotionally and mentally. Sarah had the chance to describe her story in an article for the BMJ. The podcast will provide the opportunity for Q&A, and attendees will also be encouraged to share their own experiences and how they think personalised care can meet people's needs and expectations of care. The event is free to attend and everyone is welcome to join. Register
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EventuntilNHS England (NHSE) and Picker are pleased to announce a National Insight Webinar designed to unpick the results of the 2021 Under 16 Cancer Patient Experience Survey (U16 CPES). The webinar is dedicated to helping NHS teams, providers, charities, commissioners, and the wider public to better understand their results, identify areas for action, and place person centred care at the heart of operations. Register
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EventThis conference focuses on prehabilitation – Principles and practice, and will provide a practical guide to delivering an effective prehabilitation programme, ensuring patients are fit and optimised for surgery/treatment. This is even more important in light of the Covid-19 pandemic and lockdowns which have had a negative effect on many individual’s health and fitness levels, and currently high waiting lists could be used as preparation time to ensure the best outcomes. The conference will look at preoperative/pre treatment optimisation of patients fitness and wellbeing through exercise, nutrition and psychological support. This conference will enable you to: Network with colleagues who are working to deliver effective prehabilitation for surgery/treatment. Reflect on a patient lived experience to understand how to engage patients in prehab programmes. Learn from outstanding practice in implementing a prehabilitation programme. Embed virtual prehabilitation into your programme during and beyond Covid-19. Demonstrate a business case for prehabilitation and ensure prehab services continue through and beyond the pandemic. Reflect on national developments and learning. Improve the way we support patients to prepare themselves, physically and emotionally for surgery/treatment. Develop your skills in Behaviour Change and Motivational Interviewing.. Embed virtual prehabilitation into your programme during and beyond Covid-19. Learn from case studies. Understand how you can improve emotional and psychological support. Explore the role of prehabilitation in older people. Work with patients to improve nutrition. Ensure you are up to date with the latest evidence. Self assess and reflect on your own practice. Supports CPD professional development and acts as revalidation evidence. This course provides 5 Hrs training for CPD subject to peer group approval for revalidation purposes. Register
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EventuntilOn 12 October, 11:00-12:00 CET, the ETUI is hosting a webinar on cancer risks in healthcare workers: identification of Hazardous Medicinal Products (HMPs). In the healthcare sector, 12.7 million workers across the EU are potentially exposed to Hazardous Medicinal Products (HMPs). While these drugs are vital in the treatment of different diseases (for example, cancers and psoriasis), they can also pose health risks to those exposed to them at work such as nurses, pharmacists and cleaners. The ETUI has identified 121 HMPs commonly used in the healthcare sector which can cause cancer or reproductive disorders in professionals exposed to them on a daily basis. Download the report here As the Carcinogens, Mutagens & Reprotoxic Substances Directive (CMRD – Dir (EU) 2004/37/EC) has been recently revised to specifically cover HMPs, the ETUI list of HMPs is timely to raise awareness about these risks in the healthcare sector and help employers use the European guidelines on the safe management of HMPs to be published soon by the European Commission. Programme Welcome and introduction Claes-Mikael Ståhl, Deputy general secretary, ETUC (tbc) The ETUI list of Hazardous Medicinal Products (HMPs) Ian Lindsley, Secretary of the European Biosafety Network Q&A with the audience moderated by Marian Schaapman, Head of the Working conditions, health and safety unit at the ETUI Conclusions - Tony Musu, senior researcher in the health and safety and working conditions of the ETUI Register for the webinar
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EventThis Westminster Health Forum policy conference will examine the key priorities for the future of cancer prevention, diagnosis, care and treatment as the Government develops a 10-year Cancer Plan for England. Delegates will discuss priorities for the next stage of the elective care backlog delivery plan, including meeting demand as waiting times for new referrals increase, and what can be learned from success in clearing the longest waiting times for patients. With questions about the future of the National Insurance increase and social care funding, it will be an opportunity to discuss priorities for the Government under a new prime minister. Overall, areas for discussion include: the pandemic - assessing its impact on cancer services and patient care - the future for personalised care in England reducing cancer waiting times - options for increasing capacity - priorities for diagnostics, infrastructure and the use of digital technology - building workforce resilience and retention the 10-year Cancer Plan for England - stakeholder perspectives on next steps in its development screening programmes - progress in recovering services and options for future delivery - developing public awareness health outcomes - improving early diagnosis and access to innovation - use of data and developing prevention programmes to meet local need - addressing accessibility and health inequalities personalised care - the future for patient engagement and involvement in their own care plans - how this should look within cancer care in England. Agenda Register
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Content ArticleThis summary guide pulls together best practice to support NHS clinicians to better meet the Faster Diagnosis Standard for cancer. Getting It Right First Time (GIRFT) and NHS England’s Cancer Programme have worked in partnership to produce this guidance, which outlines how cancer alliances and local organisations can implement NHS England’s best practice timed diagnostic pathways for cancer. The guidance includes advice for all stages of a cancer diagnosis, from early identification of patients to onward referral, as well as useful insights from the relevant GIRFT national clinical leads and links to best practice case studies. This edition has a particular focus on colorectal cancer, prostate cancer and skin cancer.
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Content ArticleThis article from Sarcoma UK was written by Dermot’s family to develop their reflections and recommendations on the recent publication of the Healthcare Safety Investigation (HSIB) report, Variations in the delivery of palliative care services to adults.
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Content ArticleHealth and care services in England are not always able to provide individualised, equitable and coordinated palliative and end of life care (PEoLC) to meet the holistic needs of people and their families. To understand the impact of inconsistent palliative care, the Healthcare Safety Investigation Branch (HSIB) looked at the case of Dermot, a 77-year-old cancer patient. Dermot's case shows the gap between what is needed and what is available. HSIB make three safety recommendations to NHS England aimed at improving the delivery of palliative and end of life care.
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Content ArticleDr Liz O’Riordan is a breast cancer surgeon who has battled against social, physical and mental challenges to practise at the top of her field. Under the Knife charts Liz’s incredible highs: performing like a couture dressmaker as she moulded and reshaped women’s breasts, while saving their lives; to the heart-breaking lows of telling ten women a day that they had cancer. But this memoir is more than just an eye-opening look at the realities of training to be a female surgeon in a man’s world. In addition to this high-powered, high-pressured role, Liz faced her own breast cancer diagnosis, severe depression and suicidal thoughts, in tandem with commonplace sexual harassment and bullying. And by revealing how she coped when her life crashed around her, she demonstrates there is always hope.
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Content Article
In 2022, an illustration of a Black foetus in the womb by Nigerian medical illustrator and medical student Chidiebere Ibe, went viral. The image sparked an important conversation around representation in medical imagery and the impact this has on health outcomes for patients who are Black, Indigenous and people of colour (BIPOC). Research showed that only 5% of medical images show dark skin and only 8% of medical illustrators identified as BIPOC. A collaboration between Chidiebere Ibe, Deloitte and Johnson & Johnson, Illustrate Change aims to build the world's largest library of BIPOC medical illustrations for use in medical education and training. So far, the library contains images relevant to the following specialties: Dermatology Eye disease General health Haematology Maternal health Oncology Orthopaedics -
Content ArticleIn December 2022, Public Policy Projects brought together oncology experts and key stakeholders for a roundtable to discuss how effective partnership working in healthcare environments can reduce health inequalities in breast cancer outcomes. The objective of the roundtable was to create a series of actionable insights and recommendations for health providers to create a more resilient health and care system and, ultimately, improve breast cancer outcomes in the UK. This document is a summary of the key outcomes, insights and recommendations that were generated from the roundtable. It is not an exhaustive report of facilitating and enabling partnerships to tackle health inequalities, but rather a particular view from a group of key sector stakeholders.
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Content ArticleThe U.S. Preventive Services Task Force (USPSTF) recently changed its recommendations for all women to get screened for breast cancer every other year starting at age 40 instead of 50. Wanda Nicholson, USPSTF Vice Chair and professor at George Washington University said the updated recommendations “will save more lives among all women.” However, time and time again, the evidence shows that screening healthy women using mammograms in fact, does not save lives. Dr Maryanne Demasi discusses the evidence.
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Content ArticleIn England, the NHS National Breast Screening Programme (NHSBSP) offers routine breast screening to all women, some trans men and non-binary people, between the ages of 50 years and up to their 71st birthday, every 3 years. The unfolding Covid-19 pandemic in early 2020 was understandably a time of great anxiety and concern. Culturally we were seeing strong behavioural shifts such as social distancing and a general change in all our daily life patterns. Conceptually, and as leaders, we understood the vulnerability we observed, but felt that we did not have the 'right language' and in fact lacked the relevant experience of how to address and communicate with staff and clients during this crisis. A semiotic, observational research project was utilised that aimed at providing insight how cultural behaviour was being shaped and expressed during the early onset of the Covid-19 pandemic in England. The recommendations of the project were then integrated and implemented into an action plan and subsequent practice. Semiotic analysis revealed that several factors (positive and negative) impacted on peoples' confidence and had practical and emotional implications. Eleven main codes which are belief systems about oneself and others were identified and expressed in a multitude of different ways revealing three main themes or needs i.e. Reassurance, Trust and Clarity. An action plan was developed in response to the project findings and recommendation were implemented. Effective leadership relies on situational awareness. This semiotic project enabled the authors to find the 'right' language and communication style so that they could connect with staff at the time of crisis.
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Content ArticleThis WHO report includes six case studies from 12 individuals with lived experience of diverse health conditions. These case studies explore the topics of power dynamics and power reorientation towards individuals with lived experience; informed decision-making and health literacy; community engagement across broader health networks and health systems; lived experience as evidence and expertise; exclusion and the importance of involving groups that are marginalized; and advocacy and human rights. It is the first publication in the WHO Intention to action series, which aims to enhance the limited evidence base on the impact of meaningful engagement and address the lack of standardized approaches on how to operationalise meaningful engagement. The Intention to action series aims to do this by providing a platform from which individuals with lived experience, and organisational and institutional champions, can share solutions, challenges and promising practices related to this cross-cutting agenda.
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Content ArticleThe Department of Health and Social Care is seeking views and ideas on how to prevent, diagnose, treat and manage the six major groups of health conditions that most affect the population in England. These are: cancers cardiovascular disease, including stroke and diabetes chronic respiratory diseases dementia mental ill health musculoskeletal disorders The views and ideas gathered will inform the priorities and actions in the major conditions strategy. The consultation will close at 11:59pm on 27 June 2023.
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Content Article
Infopool prostate cancer patient resource
Patient-Safety-Learning posted an article in Cancers
This patient resource created by Prostate Cancer Research aims to equip patients and the public with information about prostate cancer. It contains information on: testing and diagnosis treatment choices living with side effects clinical trials. -
Content ArticleDuring the first waves of the Covid-19 pandemic, the UK shielding policy was introduced with the intention to protect people at the highest risk of harm from Covid-19 infection. This study in the journal Public Health aimed to describe intervention effects in Wales at one year. The authors retrospectively compared linked demographic and clinical data for cohorts of people identified for shielding from 23 March to 21 May 2020 with the rest of the population. The largest clinical categories in the shielded cohort were severe respiratory condition (35.5%), immunosuppressive therapy (25.9%) and cancer (18.6%). The study found that: Deaths and healthcare utilisation were higher amongst shielded people than the general population, as would be expected in the sicker population. Differences in testing rates, deprivation and pre-existing health are potential confounders, but lack of clear impact on infection rates raises questions about the success of shielding and indicates that further research is required to fully evaluate this national policy intervention.
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News ArticleTwo years of the pandemic have meant drops in essential screening and detection in Australia, while cancer patients undergo treatments alone and isolate to avoid Covid risks. When Claire Simpson turned 50 in early 2020, she received a letter telling her to get a mammogram. Then the pandemic hit, and Victoria went into lockdown. “Like many people, I put it off until we were coming out of that lockdown, but by then it was September and I couldn’t get an appointment until December,” she says. In February 2021 she was diagnosed with breast cancer and had a mastectomy. Tests showed she was positive for the aggressive HER2 receptor, so she began 12 weeks of chemotherapy as well as a treatment called Herceptin, which she received an IV infusion of every three weeks. Simpson says the delay in screening “really, really delayed diagnosis for me, by a good six months”. “I can’t help but feel that [an earlier screening] could have probably saved me from having to have chemotherapy and this Herceptin infusion therapy that I’m having,” she says. Her last Herceptin treatment was last Wednesday. She has been living in self-imposed lockdown, terrified as the Omicron wave built that she would have to isolate due to Covid and disrupt her treatment. That self-imposed isolation will continue until her final surgery, an elective operation scheduled for mid-year. Cancer screening dropped by 10% in Victoria alone in the first year of the pandemic. In 2021, referrals to the Peter MacCallum Cancer Centre, a leading treatment and research facility in Melbourne, were down 40%. “That is certainly going to bounce back at some point,” says Prof Sherene Loi, an oncologist and researcher at Peter MacCallum. “It is potentially going to be a real problem in a few years’ time. At the moment we have a lot of very young cancer diagnoses, a lot of breast cancer … we are just flat chat.” Read full Source: The Guardian, 13 February 2022
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News ArticleAgain and again, Hannah Catton told doctors something was wrong with her body. Again and again, she said, the doctors dismissed her concerns. They didn’t listen in late 2018 when she told them about her frequent urinary tract infections. They didn’t listen months later when she returned to tell them she was having irregular periods. And they didn’t listen when she complained of bloating, constipation, diarrhea and extreme pain. Catton was telling them her body was in rebellion. Almost a dozen physicians told her otherwise: She was young and healthy, so it was probably nothing — just a little too much stress. One told her she was overweight and losing a few pounds might ease her symptoms. Almost three years passed after Catton’s symptoms first emerged, during which she saw about 10 doctors. Then, in October, she collapsed in pain and took herself to the emergency room. From one of her ovaries, surgeons pulled a cancerous blob weighing roughly 4½ pounds and stretching nearly eight inches — about the size of a volleyball. After her years-long crusade to be heard, Catton, now 24, wants other women and doctors to learn from her experience. Women should learn the warning signs of ovarian cancer and forcefully advocate for themselves, she said, while doctors need to become better versed in recognizing the symptoms. More importantly, Catton said, physicians need to listen to patients instead of dismissing them. Catton knew early on that something was wrong, that it wasn’t just stress. Despite that, she acquiesced to the doctors because she didn’t “want to be a patient that wastes time.” She’s not alone, clinical psychologist Bella Grossman told Northwell Health’s Katz Institute for Women’s Health in the article “Gaslighting in women’s health: No, it’s not just in your head.” Men tend to be more persistent with their doctors when they have concerns about their health, Grossman said. Read full story (paywalled) Source: Washington Post, 9 February 2022
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News Article
Top oncologist says Tayside cancer crisis was 'avoidable tragedy'
Patient Safety Learning posted a news article in News
A crisis in cancer care at NHS Tayside could have been averted if the health board had publicly supported doctors who were criticised by an official report, according to a top oncologist. The last remaining breast radiotherapy specialist left at the end of January, with the board unable to replace him. Patients must now travel to Aberdeen, Glasgow or Edinburgh for radiotherapy. The situation has emerged three years after an investigation into chemotherapy treatment at Ninewells Hospital. NHS Tayside apologised to patients in 2019 after an investigation found doctors deviated from national standards on chemotherapy dosages given to breast cancer patients after surgery. A subsequent review found that the lower dosages were highly unlikely to have led to the deaths of any patients. Last year the doctors involved were cleared of any wrongdoing by the General Medical Council (GMC), who also found no fault with the treatment patients received. Some clinicians close to those involved told BBC Scotland the cancer doctors felt they had no choice but to leave because they did not have the backing of the board. Colleagues who support the oncologists say none of this needed to happen. Prof Alastair Munro, emeritus professor of radiation oncology at Dundee University, who previously worked as a cancer doctor in the department, said: "It's a totally avoidable tragedy, this should not have happened. "The first thing the health board need to do is to come clean, and say we got it wrong, we put our hands up, we want to start again with a clean slate and we want to attract good people to come to Tayside to deliver breast cancer services to the patients whose needs we serve." Read full story Source: BBC News, 9 February 2022
