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HelenH

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Everything posted by HelenH

  1. Community Post
    Hi Helen, thank you for sharing your horrible experience with us. I hope that you are able to receive the care you need without fear or pain. We are working closely with @Katharine Tylko and her wonderful colleagues at CAPH. They also have a FB group where women are sharing their stories too. https://m.facebook.com/story.php?story_fbid=1564972663700527&id=193342597530214 We will not stop until these significant patient safety concerns are addressed. You might find our latest blog on this issue of interest. https://www.patientsafetylearning.org/blog/minister-acknowledges-patients-concerns-about-painful-hysteroscopies-but-will-action-be-taken Thanks again. Personal testimonies really help drive home the need for urgent action. Take care and best wishes, Helen
  2. Community Post
    This is absolutely not correct. From the NICE guidance ‘Do not exclude people from referral to a multidisciplinary assessment service or for further investigations or specialist input based on the absence of a positive SARS‑CoV‑2 test (PCR, antigen or antibody).’ https://www.nice.org.uk/guidance/ng188/chapter/3-Investigations-and-referral Please see a jointly produced leaflet by us and the RCGP People have said that they have found this helpful in discussing with the GP. Hope it helps. If it does, can you let us know? Best wishes Helen and @Stephanie O'Donohue
  3. Community Post
    Hi Michelle, we’ve a few of those on the hub, should be searchable. Any problem, just let us know @Patient Safety Learning I met with the CEO of an Australian company this week and they have a tool that hasn’t yet been used in healthcare. It is a 10 minute survey that looks at: health and well being; safety systems; safety leadership; safety engagement. It’s called the Health and Safety Index. It looks pretty impressive. I’ve been thinking that it would be good to get a few pilots in healthcare on it and they’re keen. If you’re interested, do let me know and I’ll make the introductions healthandsafetyindex.com.au
  4. Community Post
    @Steve Turner An excellent blog, thank you. Very powerful concluding thoughts: Given the annual expenditure on medicines with the benefits and risks involved in their use, it seems surprising to me that the art and science of prescribing medicines receives so little attention in investigation reports, and from public bodies. I believe patients, the public and healthcare practitioners need to be aware of the Prescribing Competency Framework and why the framework must be applied in practice, used in clinical supervision and CPD, and why we must all speak out if we believe it is not being followed. At present it appears that, since the demise of the National Prescribing Centre, no national body is picking up on this need for more awareness, training and education specifically related to prescribing. I believe that patients are being harmed and lives may be being lost as a direct result of this gap in learning. I do hope that your blog and discussion drives the change needed.
  5. Content Article Comment
    Hi Derek, It's a pushing water uphill task, at times, as you and we well know. Sharing is not the problem, it's getting people to listen and act that's the challenge. By adding content to the hub, we try hard to bring innovation to people's attention. Any more we can do @Clive Flashman ? Helen
  6. Community Post
    Hi Carrie, I’m at a meeting with the CIEHF this afternoon and will raise the general point with them, how needle phobic patients are being supported. They may wish to include in any guide and advice. I’d have thought that the main contact for personal support should be your GP. Hope that helps, best wishes, Helen
  7. Community Post
    Hi Carrie, Good question. Maybe submit to the CIEHF so they can include this in their work? https://www.linkedin.com/posts/noorzamanrashid_the-economist-on-twitter-activity-6750290388721926144-h8XV/ Helen
  8. Community Post
    Hi Carrie, I wonder if you shared your concerns with your GP they could provide you with information and support - including ensuring that the vaccination is given to you in a way that avoids any distress. Best wishes, Helen
  9. Community Post
    That sounds fascinating and valuable. Might you write a blog for us on your work? Maybe reflections on the impact of your work at Leeds, Birmingham and Glasgow ? Helen Do contact me on helen@patientsafetylearning.org if you'd like to follow up.
  10. Community Post
    Hi Susie, I'm so sorry to hear of your ghastly experience. How absolutely terrifying for you. It seems clear to me that you weren't given the information you needed to give informed consent or the options for pain relief which should have been available to you. We've been reflecting the same as you, this does seem to be a gender issue. The recent Cumberlege report 'First Do No Harm' reflects on the patient safety issues that affected women over decades. It's not good enough. Thanks for sharing your story; further resolve for us to continue supporting patient groups and the campaign to end such barbaric practice. @Stephanie O'Donohue
  11. Content Article Comment
    Hi Derek, You describe a frustrating and lonely path for innovation. @Clive Flashman any suggestions of where Derek could promote this approach? Helen
  12. Content Article Comment
    Hi @Derek Malyon Thank you got this, really interesting. Do you know of any work being taken forward in this area? This approach would not only provide a feedback loop that would highlight activity omissions but would place the consenting patient at the heart of decision making.
  13. Community Post
    Thank you so much for sharing your overall positive experience. So pleased it went well - the advice and support you received seemed spot on. I too am fascinated with seeing bits of me on screen! Fingers crossed for confirmation of a positive result. I don’t know if you’ve heard of Care Opinion? They’re a great charity and they enable and encourage patient feedback to inform staff - to commend good practice and help identify the need for improvements in services, where needed. In case you’d like to follow up. thank you again. Let’s make sure everyone has your experience. Helen
  14. Content Article
    2020 has been a strange year, and a very difficult one for many around the world. Along with organisations everywhere, we at Patient Safety Learning have had to adapt how we work due to the COVID-19 pandemic. Though our working environments and areas of focus have changed, our goals as a charity have not. We continue to be an independent voice, committed to working in partnership to improve patient safety.
  15. Content Article Comment
    Hi Sally Hope you're well. Thanks again for another great blog. Very useful! My husband and I do go on very long walks - rather muddy now we're into autumn. Praise to criticism ratio of 5 to 1. Gulp, not sure whether I achieve that. Especially with my young adult kids!, Helen
  16. Community Post
    Hi @Natalie Sullivan Thanks for the question. There’s progress. Simon Stevens replied and following his announcement that outlined his 5 point action plan. NHSEI have since issued guidance to CCGs and NICE have issued their scope for guidance they’re developing. It’s progress but the clinics aren’t up and running - they’ve set a deadline of end November. These should be developed in light of the national guidelines. We’ve included all these resources on the hub (see links below). I’ve been asked to join the longcovid task force so will be able to update on the hub. Hope that helps. Do come back with comments/questions. Helen National guidance for post-COVID syndrome assessment clinics (6 November 2020) Your COVID Recovery guidance (6 November 2020)
  17. Community Post
    Thanks @Emmyloow It's good to hear of your experience. We're very keen that all patients have access to advice that can help them make an informed decision. As you say, some women are fine with it and it's important that people aren't unnecessarily concerned. You make a good point about managing the risks and especially in times of covid. Thanks again ' '
  18. Community Post
    A fascinating post, thanks @Keith Bates I’d love to find out more. Maybe we could do an interview with you and share on the hub? Would also be interesting to connect with AI people, how these issues are considered in systematising of decision making. @Richard Jones @Clive Flashman Might you be interested too?
  19. Community Post
    Safety is always a systems issue! Need to design safety into the development of new ways of working and be clear how to assess variance - to learn about refinement of the product/process, how to ensure effective and safe implementation and with transparent reporting and learning - if things go wrong and from good practice. Are their patient safety design standards for software development?
  20. Community Post
    Really good questions! Looking forward to sharing insights. Very excited about our collaboration @Richard Jones @Clive Flashman I'm really keen to explore how do we know that AI is safe? And also, how AI can make us safer. We know that diagnostic errors is a huge issue and frankly not one that is getting enough attention in the patient safety community. Too big and scary an issue? This is a useful intro and refers to the monumentally good and scary IOM report in 2015 on Diagnostic Errors. https://psnet.ahrq.gov/primer/diagnostic-errors Definitely something to find out what's going on in this area and what more is needed. Brilliant to have you on board. Let's get the LinkedIn groups engaged too Helen
  21. Content Article Comment
    Hi Lorri Thank you so much for your latest (and now, last) blog. I've learned a lot and they always have given us an interesting perspective. Who'd have thought we'd have been reflecting on the impact of Covid 19 on the physician/patient relationship and safety issues? That was a 'stand out' article for me from this month. Best wishes from us all at Patient Safety Learning and thanks again for your fascinating insights. @lzipperer
  22. Content Article Comment
    'If you are aware that there are delays for a particular service and your patient is likely to be affected by this, you should make this clear to them and manage their expectations from the outset.' Really important.
  23. Content Article Comment
    @Jon Holt Spot on ‘This is because investigations often stop at the point of identifying what went wrong and how rather than focusing on the working conditions, environment, team dynamics, culture and other human factors / systems factors which need to be explored to identify why things went wrong and generate meaningful solutions. ‘ How can we make the changes needed @Katrina and @Jerome P? @Claire Cox suggested on Twitter this weekend a network of PS Managers. That would help amplify the voices for change and to share good practice and ideas.
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