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Blodwen

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Posts posted by Blodwen

  1. Thank you but I’ve tried everything you mention and more.

    because I wasn’t really told the full extent of my complication ( enterocutaneous fistula), I never complained, I assumed it would heal or could be fixed.  When I did take it up with the hospital they said they had no responsibilities for patients, private hospitals are merely hosts.  The consultant was and is still seeing me, as I was private there are no other means of support.  ( no PALS, no Community Health Council, no ombudsman ).

    AvMA have been helpful but say my only option is the legal route but I’m out of time.

    Phin just provided statistics to help you decide what hospital or surgeon to chose in the private sector.

    the regulatory body for Independent hospitals is ISCAS who will only help if you’ve put in a first tier complaint.  But as I say I was told I had nothing to complain about. ( 3 stoma bags !). 
     

    I cannot see where private patients are advised of any of this prior to surgery.  How can that be right, I would have certainly managed my expectations better .

     

    thank you for taking the trouble to reply, it is much appreciated. 

     

     

  2. Hi all

    I had. Life changing complications in a private hospital - long story and will never recover . Has anyone any experience or knowledge if what mechanisms are in place when these events happen - should there be an enquiry for example ? 
    thank you 

  3. Hi all,

    7 years ago I had catastrophic complications following a hysterectomy.  I’m not saying it was negligence but the damage is permanent , life changing and getting worse.  I have an abdominal fistula and 3 stoma bags.  It’s a very very long story.  The psychological damage has been almost as bad as the physical.  Had I know then what I know now I would have complained and ‘made a fuss’, but I did nothing partly because my life was blown apart and I spent 6 months in hospital being vein fed facing the possibility of never eating or drinking again.

    what traumatises mean to this day is the absolute lack of guidance and support.  I had my surgery as a private patient because I was a carer to my brain damaged mother, I needed the op out of the way.   There was no enquiry, or explanation despite having a perforated bowel, enterocuranous fistula, respiratory failure, sepsis - I could go on.  Yet nothing was ever explained and now I’m out of time.  No one but no wants to help,  I’ve tried really hard but all I get is sorry but too late.  How can this be right and has anyone any suggestions how I can get answers please .   It just doesn’t sound right . 

     

  4. Hi I had a hysterectomy that caused life changing complications.  It’s a long story but I ended up with a fistula which means I have a connection from my small bowel to skin, it’s a real health burden. I have 3 bags.  When they tried to fix  the fistula two years later, that surgery initially went ok but then I had to go back to theatre for an anastomotic leak .  I returned to the ward and felt awful, ‘wanted to die’ awful.  I didn’t feel believed and as the week went on I deteriorated.  I had a naso gastric tube in as my gut was on stop, after a nurse aspirated the tube the drainage stopped - I got worse eventually suffering respiratory arrest. I could not breathe yet I was told I was having a panic attack until she saw the SATS reading of 68.  I ended up in ICU minutes from death.  I’ve never recovered and am now terrified of hospitals.  I don’t think I will ever feel safe again, difficult because I still have the fistula and have to spend a lot of time in hospital.  

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