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  • The normalisation of women’s pain


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    Summary

    In this wonderfully personal reflection, Junior Doctor and Clinical Fellow, Lisa Rampersad, argues that women are taught to apologise for their pain from an early age. Lisa draws on her own experiences, including those as a patient herself, to highlight a need for a better understanding of the female anatomy. She concludes by sharing her own approach as a clinician, encouraging others to listen and believe their patients when they talk about pain. 

    Content

    Puberty, birth control and cramps

    I grew up in Trinidad, in the Caribbean in a very Christian household, and attended religious primary and secondary schools. Sexual and reproductive health was discussed in a functional way in biology class. While we were taught about birth control methods (condoms, IUDs, etc), we were expected to follow the abstinence only path.

    The shame and stigma around premarital sex meant that a lot of incorrect information was passed from girl to girl. I was one of the lucky ones – my parents provided books, encyclopaedias and, no idea why or how we had them, medical encyclopaedias. From these books I learned about puberty and sexual differentiation With all this book knowledge I felt that I was well prepared for anything puberty threw my way. My first period was met with delight that I was finally a ‘woman’. My second was met with agonising cramps and being told, “stop being a baby, that’s life”.

    I learned the tricks – sleep on your side to prevent leaking (tampons were not allowed), get a hot water bottle, Buscopan tablets, always having a spare pad, count the days meticulously to avoid being embarrassed. We were taught that cramps were just a way of life and you had to just get on with it. In an all-girl school, period cramps were not considered a good excuse for PE or any physical activity.

    My period suddenly stopped

    In my second year of university (my first degree) I took on a very stressful course load and quickly became overwhelmed by the volume of work needing to be submitted every week. The stresses of university life made itself known by my period stopping. By the third month, I realised that something was definitely wrong, and I approached my mother with my concern.

    As soon as I’d articulated my concern my mother paled and gasped “ARE YOU PREGNANT?!” I was at a loss for words because, while I was in a relationship, it had not progressed to that point and I hadn’t even considered that my mother would think that. I immediately replied “Of course not.”

    This led to my first gynaecological visit, where my mother’s gynaecologist tried to insist I was pregnant and refused to accept that I wasn’t sexually active at 20. After a negative pregnancy test and a normal examination, they concluded that it was university stress, prescribed me a progesterone pill to restart my period and medication to regulate it. No further investigations were done, and without the knowledge to advocate for myself, I trusted in my doctor that he was right.

    My boyfriend at the time saw the medication as a gift – I could now safely have sex if I wanted to. I saw it as liberating for different reasons. I could skip a period, I knew exactly when my period would be so I could plan social activities and not be caught out, my periods were now pain-free and very light. I wished I had discovered this pill years before!

    As a doctor, I thought I knew what to expect with an IUD

    Six years later, with that relationship ended and me in another country pursuing my medical degree, I was still taking this pill to avoid periods even though I was single. However, with a varying schedule I kept missing my timing for the pill and, during my Obstetrics and Gynaecology rotation, on learning more about the copper Intrauterine device (IUD) I felt that this was a fool-proof method. Having attended clinics, been taught about the insertion of the IUD and having inserted some for patients myself, I felt confident that this was the method for me.

    How to insert an IUD: A properly sized speculum is inserted and adjusted to bring the cervix into view. A uterine sound is used for measuring to ensure high fundal placement of the copper IUD. The IUD is then placed. If, like me, your uterus is retroflexed, a tenaculum (device with 2 prongs) is used to grasp the cervix and straighten the uterus to avoid perforation.

    The above information was rattled off many times by doctors and nurses we observed as medical students, and we rattled it off to patients when we were allowed to assist.

    The other side of the curtain

    I went into that room thinking I knew everything. I had all the knowledge and experience from books and my teachers. This was going to be quick and easy. I was going to get this done, and re-join my peers for the rest of the day in clinic.

    The patient experience is definitely weird when you know that tomorrow you are going to come in and be face to face with the nurse who is currently all up in your insides. You try to make conversation and feel less awkward about the discomfort involved in a speculum insertion, you try to follow the instructions to “relax and take deep breaths.” But nothing prepared me for the white-hot searing pain that came after the words, “now you’re going to feel a little pinch.”

    I screamed.

    And immediately felt ashamed for it. Because, this is normal, right? This is what many woman go through. Why couldn’t I just grit my teeth and bare it? Why did I have to be so weak?

    Through clenched teeth I endured the rest of the insertion, got off the table and dressed and stumbled out to the waiting room before collapsing on a chair. My head was spinning, my insides writhed in agony and I couldn’t form words. I was sitting there in my white coat and scrubs and being stared at by all these women in the clinic. My clothes screamed that I was on the other side of this divide, and the curious stares drove me to leave. I stood up and walked out of the clinic and went to the café next door.

    I quickly realised what a mistake I’d made as I fainted and was luckily caught by a café patron and placed on a chair. A kind lady brought me a drink and sat with me while I waited for the ringing in my head to stop and my vision to return to normal. When I could stand without assistance, I got a taxi home where I got into bed and cried myself to sleep.

    Normalisation of female pain

    In the weeks and years that followed that experience, and now as a practicing doctor, I find myself asking, “why do we allow female pain?”

    Too often female pain is dismissed as ‘normal’ and from an early age we tell girls to accept menstrual cramps. It takes years for an endometriosis diagnosis to be made, all while the girl/woman is going through pain that can be so debilitating that they cannot go to school or work. In medical school and in practice, a lot of stress is placed on testicular pain and definitive treatment as soon as possible to save a testis. Meanwhile, possible ovarian pain/torsion is made to wait.

    Normalisation and diminishing female pain starts from a young age, and leads to the internalisation and acceptance of this by women. Painful periods, intercourse or just pelvic pain are often dismissed or trivialised as ‘a low pain threshold’, ‘making it up’, ‘excuses’, ‘all in your head’. Women learn to apologise for their pain. I have lost count of the number of women I have seen in the A&E who start off with “I’m sorry to bother you doc, but…”.

    We need to understand the female anatomy better

    Medical textbooks abound with descriptions of male anatomy. Journals are filled with erectile dysfunction treatment. For women, the same isn’t true. Prominent obstetric and gynaecological textbooks ignore detailed female anatomy. Illustrations such as this image of the female clitoral anatomy aren’t common in medical textbooks. If, as medical professionals, we don’t know the nerve supply to an area, how can we truly say, “this won’t hurt?”

    In order to truly understand female pain, we need a better understanding of female anatomy and to stop thinking that if they’re not complaining, it doesn’t hurt.

    Improving patient knowledge also goes a long way in being able to properly communicate their pain. When a large proportion of women use the word vagina to mean the vulva, it’s difficult to effectively communicate where the pain is.

    Validating the patient’s experience

    I don’t have an easy solution, but here’s how I’m combatting it:

    One of the things I found that made a difference to patients (children to adults) was saying, “I believe you.” Pain is something I can experience, but I cannot see. If someone is telling me they have pain, my job isn’t to judge or dismiss it, it is to try to help to relieve that pain. Starting off a consultation validating your patient’s feelings and pain isn’t hard to do, and makes a world of difference.

    As medical professionals, we can make the difference for other women and help to champion better responses to female pain. 

    Further reading

    Is pain a patient safety issue? (Patient Safety Learning, November 2020)

    ‘Women are being dismissed, disbelieved and shut out’ (Stephanie O'Donohue, November 2020)

    Gender bias: A threat to women’s health (August 2020)

    Should mismanaged pain be considered an adverse event? (March 2015)

    Improving hysteroscopy safety (Patient Safety Learning, November 2020)

    About the Author

    Lisa Rampersad is from Trinidad and Tobago, and half-Guyanese. Lisa did her first degree in Trinidad, studying Biochemistry and Zoology, before moving to Guyana to do her medical degree. During her time in Guyana she met her partner who is British and later moved to the UK.

    Lisa is now working in Brighton as a Clinical Fellow in Surgery, with a goal of becoming a paediatric surgeon. In her spare time she is pursuing an MSc in Surgery, studying for a Membership of the Royal College of Surgeons (MRCS) exam and is a junior doctor representative on the British Medical Association (BMA) Junior Doctors Committee.

    As an International Medical Graduate (IMG), she is passionate about ensuring doctors from across the globe have the support they need when they move here, and has just taken on the additional role of IMG Champion to the BMA Junior Doctors Committee. She is passionate about ensuring women have equity of care and knowledge and are empowered through their interactions with the NHS. 

    4 reactions so far

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    Dear Lisa - this is SUPERB!  Thank you so much for acknowledging gynae pain and the way that women are taught from an early age that they must keep quiet about even white-hot searing pain.  At the Campaign Against Painful Hysteroscopy we're trying to persuade the Department of Health to permit all NHS hysteroscopy patients to choose from a range of pain-control options (including IV sedation, spinal/regional/general anaesthetic) and  not be forced through Trial by Outpatient Hysteroscopy with just 'vocal local'.  @hysteroscopyA www.hysteroscopyaction.org.uk  On Facebook: the Campaign Against Painful Hysteroscopy community plus closed group.  

    Good luck in all your work!

    Katharine

    snip - Survey 1639 individuals with difff pain tolerance not a number.JPG

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    Lisa, what you've written here is wonderful!  I experienced a horrendously painful hysteroscopy when I was many years post-menopausal and had had very painful periods before that.  I was in a high risk group for pain and this was ignored, as it is for thousands of women in the UK, because the powers that be prefer to say the procedure is well tolerated and most women don't experience pain.  The truth is that for most women PROMS aren't sought. To hear you say "If someone is telling me they have pain, my job isn’t to judge or dismiss it," is music to my ears!  How can we get other medics to agree with you?

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    I am a campaigner to raise awareness for Pudendal Neuralgia. I suffer from this debilitating condition and since I was diagnosed I have found very few doctors and consultants that know about it. I even had one consultant say the pain was all in my head. No it’s not. It’s real pain in the vagina and rectum. 
    thank you so much for writing your piece. I had to stop eating my dinner to read it because i wish all the medical profession were like you x💕🔥💕

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    I think we should offer Entonox in primary care for coil fittings as they are very painful in my personal experience.

    I also found a CVS extremely painful

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