Summary
People with myalgic encephalomyelitis, or ME, have long felt disregarded by some medical professionals who believed their pain and exhaustion to be a psychological disorder. More recently, patient activism, combined with new data on the underlying biology of the illness, has resulted in changes in treatment guidelines and a renewed focus on ME as a biologically grounded post-viral disease. This article in the Irish Times highlights patients' experiences and the challenges they face.
ME: ‘I spend 20 hours a day lying down. I have four upright hours in the day’ (11 October 2022)
https://www.irishtimes.com/health/your-wellness/2022/10/11/me-i-spend-20-hours-a-day-lying-down-i-have-four-upright-hours-in-the-day/
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