The 2013 Child Health Review into Epilepsy highlighted the importance of clear and comprehensive care plans for parents, schools and others caring for children and young people with epilepsy; providing them with information on how to respond to prolonged seizures. This finding supports the recommendations on emergency care plans as set out in the National Institute of Clinical Excellence (NICE) and Scottish Intercollegiate Guidelines Network (SIGN) guidelines.
A key recommendation from the review was for clinical teams looking after children and young people with epilepsy to consider introducing an 'epilepsy passport' as a means of improving communication and clarity around ongoing management.
This page includes:
- aims and objectives of the passport
- a link to the tool/template
- guidance for professionals
- guidance for parents and carers
- guidance for children and young people.