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NAME:Community Calendar
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DTSTART:20220327T020000Z
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SUMMARY:Priorities for rare disease research\, diagnosis\, and care 
	in the UK
DTSTAMP:20211129T162648Z
SEQUENCE:0
UID:628-1-ee2a5ec9cbd1b5a75b4ec5d63ec903ec@www.pslhub.org
ORGANIZER;CN="Sam":noreply@pslhub.org
DESCRIPTION:\n	This conference will discuss the next steps for rare dise
	ases policy in the UK\, looking at priorities going forward for the Rare 
	Diseases Framework\, the role of genomics in improving diagnosis and care\
	, and the future for research\, treatment access\, and system preparedness
	.\n\n\n\n	Taking place following the publication of the Rare Diseases Fra
	mework earlier this year\, delegates will discuss the first year of its d
	elivery\, the impact of the pandemic\, and the key priorities for deliveri
	ng ambitions within the framework over the next year.\n\n\n\n	It will also
	 be an opportunity to look at the impact of policy developments within the
	 life sciences and health research landscape\, as well as the opportunitie
	s these developments present for improving rare disease outcomes\, includi
	ng the Genome UK Implementation Plan\, the Life Sciences Vision\, the F
	uture of UK Clinical Research Delivery\, and the new Innovative Medicines
	 Fund.\n\n\n\n	Key areas for discussion include:\n\n\n\n	\n		taking forwar
	d the UK Rare Diseases Framework and priorities for improving diagnosis an
	d care\n	\n	\n		the implementation of Genome UK and harnessing genomics 
	to improve the understanding\, detection\, and treatment of rare genetic c
	onditions\n	\n	\n		developing the UK’s research ecosystem\, improving ac
	cess to new and innovative medicine and treatment\, and the potential for 
	global leadership in this field\n	\n	\n		raising awareness of rare disease
	s across the health system\, meeting new workforce needs\, and developing 
	expertise to support high-quality care.\n	\n\n\n\n	Register\n\n
DTSTART;VALUE=DATE:20220131
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